Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 I find it very hard to live with the pain and consequent depression that CMT brings to me, sometimes I could scream/bang my head against the wall because there seems to be no relief from my pain.....any advice warmly accepted. Take Care Graham Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Hi Graham, I think once you get the depression under control some of the physical pain symptoms will be easier for you to manage under a doctors care. Depression just makes everything worse, including pain. Have you tried any of the antidepressants? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Hello Graham, Just think of the pain your head would have if you banged it against a wall....More Pain...Just sit back and take life a little easier when things don't go right. Talking to a friend might help. Good Luck. Debbie from MO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 Graham, I empathize with what you are going through. I will keep you in my thoughts. I live in Kentucky and the weather is really rainy and damp right now. When the weather is miserable, I am miserable. I wish I had some good advice to offer you. I keep telling myself that a better day will be here tomorrow. I also try to keep my mind occupied with other things. Hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Graham: While CMT and it's neuropathic pain has been in my life for only five years, I have been living with chronic back pain since 1969. Depression and pain are siblings -- I doubt that chronic pain without depression is as rare as a politician that beleives in term limits. I found myself lying around my home, in pain, depressed, and doing nothing. One day I realized that I could choose to do nothing and be in pain, or choose to do something and be in pain. Since that epiphany, I skiied, referred soccer games, foxhunted on horseback, trained hunting and racing dogs -- but always with pain. Now, sometimes after being active, I really hurt. Sometimes pain prevented me from doing something I wanted , but as soon as I could I returned to some activity. Well, CMT called and now I have issues. In fact, I have been depressed by the limitations I wake up with every day. My depression deepened when I was forced to take disability retirement this year after working at some job since 1959. To do something, I have started baking artisan breads. They take most of a day to prepare and bake and they offer something to wake up to. They taste good and my lack of fine motor skills in my fingers aren't an issue. Dickinson wrote: Because I could not stop for Death, He kindly stopped for me; If you don't stop for pain -- and pain is very real -- depression becomes easier to manage. -- Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Hi Mike, I'm not , but from the keys. I just got off the phone with my daughter who is 24 and my ex brother in law, and they both have bad comments about the medication I'm on, which is 320 mg of Oxycontin a day, also Effexor, and Xanax (I don't take the Xanax very often because it makes me tired the next morning. It just bothers me that some people don't understand the relief that the medicine gives me and I have tried everything. And I totally agree with you about how much one decent day can affect the next 3 or 4. We definitely pay for it. I'm also never at a completely normal pain level. I am however trying to stretch more. I just e-mailed the Mayo Clinic to see if they might be able to help me somehow. I have to get an operation on my back soon and am terrified someone will screw something up. Take care and if you or anyone would like to get in touch with me, please email. Love to all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 I know exactly how you're feeling, I've been not able to work any longer since 1999. I used to do home day care. I can't get Disability to help with all of my medical bills and meds either. Makes me feel like I'm not doing my part to contribute. Depression sets in quite often for me. My husband's been trying to save enough money to retire and I'm spending it as fast as he brings it home on medical and meds. This sure doesn't help with depression. We live in rural county too! So I don't get out except for appts. > > I know first hand what its like to be depressed and have alot pain. I > am on total disability and being in my home all day every day takes a > toll on me i feel shut in my wife had to go from psrt time work to > fulltime so I also alone feel alone every day its the same ol daily > pain and being depresed get over welming I been sitting here 10 years > not albe to go to work and also having problem cleaning my house trying > to be a house dad I cant get much done so it affects my marriage having > my wife working fulltime then having to do work around the house for > the 2 days she off. It affects me mentally not being able to help more. > This is life. I just wanted you to know we all are in same boat. it > hard to deal with pain. my kids are here watching me. it hurts not > beig able to be a better father. Just wanted you ro know this Mike > group owner > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 My doctors and Ins. Health Nurse deal with my depression by always wanting to give me more meds, but the last time I was put on med for depression I was a Zombie and slept all day long. So now I just deal with it by myself, I have good days and bad days. I've never a therapist for it. > > > > I know first hand what its like to be depressed and have alot pain. I > > am on total disability and being in my home all day every day takes a > > toll on me i feel shut in my wife had to go from psrt time work to > > fulltime so I also alone feel alone every day its the same ol daily > > pain and being depresed get over welming I been sitting here 10 years > > not albe to go to work and also having problem cleaning my house trying > > to be a house dad I cant get much done so it affects my marriage having > > my wife working fulltime then having to do work around the house for > > the 2 days she off. It affects me mentally not being able to help more. > > This is life. I just wanted you to know we all are in same boat. it > > hard to deal with pain. my kids are here watching me. it hurts not > > beig able to be a better father. Just wanted you ro know this Mike > > group owner > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2008 Report Share Posted October 15, 2008 I see a psychrist and very greatful to her . She is someone I can talk to and can trust, Getting my insurance he soon and I can start to see her on a regular bases. I know I need help and will be getting it soon. > > > > I know first hand what its like to be depressed and have alot pain. I > > am on total disability and being in my home all day every day takes a > > toll on me i feel shut in my wife had to go from psrt time work to > > fulltime so I also alone feel alone every day its the same ol daily > > pain and being depresed get over welming I been sitting here 10 years > > not albe to go to work and also having problem cleaning my house trying > > to be a house dad I cant get much done so it affects my marriage having > > my wife working fulltime then having to do work around the house for > > the 2 days she off. It affects me mentally not being able to help more. > > This is life. I just wanted you to know we all are in same boat. it > > hard to deal with pain. my kids are here watching me. it hurts not > > beig able to be a better father. Just wanted you ro know this Mike > > group owner > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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