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I find it very hard to live with the pain and consequent depression that CMT

brings to me, sometimes I could scream/bang my head against the wall because

there seems to be no relief from my pain.....any advice warmly accepted.

Take Care

Graham

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Hi Graham,

I think once you get the depression under control some of the physical pain

symptoms will be easier for you to manage under a doctors care.

Depression just makes everything worse, including pain.

Have you tried any of the antidepressants?

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Hello Graham,

Just think of the pain your head would have if you banged it against a

wall....More Pain...Just sit back and take life a little easier

when things don't go right. Talking to a friend might help. Good Luck.

Debbie from MO

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Graham,

I empathize with what you are going through. I will keep you in my thoughts. I

live in Kentucky and the weather is really rainy and damp right now. When the

weather is miserable, I am miserable. I wish I had

some good advice to offer you. I keep telling myself that a better day will be

here tomorrow. I also try to keep my mind occupied with other things. Hang in

there.

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Graham:

While CMT and it's neuropathic pain has been in my life for only five

years, I have been living with chronic back pain since 1969.

Depression and pain are siblings -- I doubt that chronic pain without

depression is as rare as a politician that beleives in term limits.

I found myself lying around my home, in pain, depressed, and doing

nothing. One day I realized that I could choose to do nothing and be

in pain, or choose to do something and be in pain.

Since that epiphany, I skiied, referred soccer games, foxhunted on

horseback, trained hunting and racing dogs -- but always with pain.

Now, sometimes after being active, I really hurt. Sometimes pain

prevented me from doing something I wanted , but as soon as I could I

returned to some activity.

Well, CMT called and now I have issues. In fact, I have been depressed

by the limitations I wake up with every day. My depression deepened

when I was forced to take disability retirement this year after

working at some job since 1959.

To do something, I have started baking artisan breads. They take most

of a day to prepare and bake and they offer something to wake up to.

They taste good and my lack of fine motor skills in my fingers aren't

an issue.

Dickinson wrote:

Because I could not stop for Death,

He kindly stopped for me;

If you don't stop for pain -- and pain is very real -- depression

becomes easier to manage.

-- Larry

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Hi Mike,

I'm not , but from the keys. I just got off the phone with my

daughter who is 24 and my ex brother in law, and they both have bad comments

about the medication I'm on, which is 320 mg of Oxycontin a day, also Effexor,

and Xanax (I don't take the Xanax very often because it makes me tired the next

morning.

It just bothers me that some people don't understand the relief that the

medicine gives me and I have tried everything. And I totally agree with you

about how much one decent day can affect the next 3 or 4. We definitely pay for

it. I'm also never at a completely normal pain level.

I am however trying to stretch more. I just e-mailed the Mayo Clinic to see if

they might be able to help me somehow. I have to get an operation on my back

soon and am terrified someone will screw

something up.

Take care and if you or anyone would like to get in touch with me, please email.

Love to all,

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  • 2 years later...

I know exactly how you're feeling, I've been not able to work any

longer since 1999. I used to do home day care. I can't get Disability

to help with all of my medical bills and meds either. Makes me feel

like I'm not doing my part to contribute.

Depression sets in quite often for me.

My husband's been trying to save enough money to retire and I'm

spending it as fast as he brings it home on medical and meds. This

sure doesn't help with depression. We live in rural county too! So I

don't get out except for appts.

>

> I know first hand what its like to be depressed and have alot pain. I

> am on total disability and being in my home all day every day takes a

> toll on me i feel shut in my wife had to go from psrt time work to

> fulltime so I also alone feel alone every day its the same ol daily

> pain and being depresed get over welming I been sitting here 10 years

> not albe to go to work and also having problem cleaning my house trying

> to be a house dad I cant get much done so it affects my marriage having

> my wife working fulltime then having to do work around the house for

> the 2 days she off. It affects me mentally not being able to help more.

> This is life. I just wanted you to know we all are in same boat. it

> hard to deal with pain. my kids are here watching me. it hurts not

> beig able to be a better father. Just wanted you ro know this Mike

> group owner

>

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My doctors and Ins. Health Nurse deal with my depression by always

wanting to give me more meds, but the last time I was put on med for

depression I was a Zombie and slept all day long. So now I just deal

with it by myself, I have good days and bad days.

I've never a therapist for it.

> >

> > I know first hand what its like to be depressed and have alot pain. I

> > am on total disability and being in my home all day every day takes a

> > toll on me i feel shut in my wife had to go from psrt time work to

> > fulltime so I also alone feel alone every day its the same ol daily

> > pain and being depresed get over welming I been sitting here 10 years

> > not albe to go to work and also having problem cleaning my house

trying

> > to be a house dad I cant get much done so it affects my marriage

having

> > my wife working fulltime then having to do work around the house for

> > the 2 days she off. It affects me mentally not being able to help

more.

> > This is life. I just wanted you to know we all are in same boat. it

> > hard to deal with pain. my kids are here watching me. it hurts not

> > beig able to be a better father. Just wanted you ro know this Mike

> > group owner

> >

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I see a psychrist and very greatful to her . She is someone I can

talk to and can trust, Getting my insurance he soon and I can start to

see her on a regular bases. I know I need help and will be getting it

soon.

> >

> > I know first hand what its like to be depressed and have alot pain.

I

> > am on total disability and being in my home all day every day takes

a

> > toll on me i feel shut in my wife had to go from psrt time work to

> > fulltime so I also alone feel alone every day its the same ol daily

> > pain and being depresed get over welming I been sitting here 10

years

> > not albe to go to work and also having problem cleaning my house

trying

> > to be a house dad I cant get much done so it affects my marriage

having

> > my wife working fulltime then having to do work around the house for

> > the 2 days she off. It affects me mentally not being able to help

more.

> > This is life. I just wanted you to know we all are in same boat. it

> > hard to deal with pain. my kids are here watching me. it hurts not

> > beig able to be a better father. Just wanted you ro know this Mike

> > group owner

> >

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