Re: Views/opinion - to give Paed/GP ...

[Guest guest]

There are studies on pubmed showing a correlation between aggression in children and blood lead levels. Can't you show that to them. This is crazy!!

>>Yep and Lead associated with learning disabilities but Heard did put in the letter which I should have spotted in the beginning that he was askign for funding for Autism - when my angloe was always to ask for funding for toxicity. I think I need to start again with another practitioner with the toxicity angle and somebody prepared to front up the funders.

Mandi x

[Guest guest]

There are studies on pubmed showing a correlation between aggression in children and blood lead levels. Can't you show that to them. This is crazy!!

Re: Re: Views/opinion - to give Paed/GP ...

In a message dated 04/06/2007 20:00:09 GMT Standard Time, moppett1btinternet writes:

Lead off the page...

Can you not go higher at the NHS TRust where you are.

That's disgusting that it is being ignored...

>>They decided its was 'slight' and took advice from some chap at a London hositpal that said its not worth treating.............I know, lets bang our heads against the wall in stereo shall we?

Mandi x

[Guest guest]

I think that's the way to go. keep the "A" word out and go with "high lead levels". That's black and white.

There must be some sort of higher authority you can go to. But I guess you've been there and done that......

I'm sure there must be somebody in the media who might be interested in this ridiculous state of affairs...... (that is, if you still have some energy to pursue this potential new front...)

I mean everyone knows lead is NOT good in kids!

Re: Re: Views/opinion - to give Paed/GP ...

In a message dated 04/06/2007 22:22:09 GMT Standard Time, moppett1btinternet writes:

There are studies on pubmed showing a correlation between aggression in children and blood lead levels. Can't you show that to them. This is crazy!!

>>Yep and Lead associated with learning disabilities but Heard did put in the letter which I should have spotted in the beginning that he was askign for funding for Autism - when my angloe was always to ask for funding for toxicity. I think I need to start again with another practitioner with the toxicity angle and somebody prepared to front up the funders.

Mandi x

[Guest guest]

Just re-read this post. Why did he write "funding for autism" when he probably knew it was going o be a really "sticky" issue!

>>No comment, maybe the same reason he told the guy from the PCT he didn't take part in clinical audit (he does), didn't know how many kids he treated (the receptionist could have told him) and didn't know how well they did (yet he has baseline ATECS and gets patients to repeat them) and refused to meet with my Paed while he was in Bournemouth for the conference - too much with his presentation.

He has lots of kids doing VERY well, he shouldn't be ashamed of that. I just don't think arguing the case for biomed with mainstreamers (face to face) is something he feels comfortable with. I think I need a medic with a kid with autism - that shares our passion and knows what its like to be me.

When we went to make the presentation to the panel, they told me that WAS the appeal although I had never had any correspondance about the original the decision. So I think its best to go back in with another application on different grounds.

I KNOW they WANTED to fund me, but they need 'evidence', correspondance etc to satisfy their auditors and they didn't have it. Their excuses were pathetic but reasonable in the absence of a strong case from my medic. Very frustrating

Mandi x

[Guest guest]

Do you have a Children's Minister like they do in Wales? If you can't find a reasonable thinking GP maybe that's an alternative.

Re: Re: Views/opinion - to give Paed/GP ...

In a message dated 05/06/2007 01:30:16 GMT Standard Time, moppett1btinternet writes:

Just re-read this post. Why did he write "funding for autism" when he probably knew it was going o be a really "sticky" issue!

>>No comment, maybe the same reason he told the guy from the PCT he didn't take part in clinical audit (he does), didn't know how many kids he treated (the receptionist could have told him) and didn't know how well they did (yet he has baseline ATECS and gets patients to repeat them) and refused to meet with my Paed while he was in Bournemouth for the conference - too much with his presentation.

He has lots of kids doing VERY well, he shouldn't be ashamed of that. I just don't think arguing the case for biomed with mainstreamers (face to face) is something he feels comfortable with. I think I need a medic with a kid with autism - that shares our passion and knows what its like to be me.

When we went to make the presentation to the panel, they told me that WAS the appeal although I had never had any correspondance about the original the decision. So I think its best to go back in with another application on different grounds.

I KNOW they WANTED to fund me, but they need 'evidence', correspondance etc to satisfy their auditors and they didn't have it. Their excuses were pathetic but reasonable in the absence of a strong case from my medic. Very frustrating

Mandi x

[Guest guest]

How about the Children's Society

http://www.childrenssociety.org.uk/

They were on the news this morning.

Re: Re: Views/opinion - to give Paed/GP ...

In a message dated 05/06/2007 01:30:16 GMT Standard Time, moppett1btinternet writes:

Just re-read this post. Why did he write "funding for autism" when he probably knew it was going o be a really "sticky" issue!

>>No comment, maybe the same reason he told the guy from the PCT he didn't take part in clinical audit (he does), didn't know how many kids he treated (the receptionist could have told him) and didn't know how well they did (yet he has baseline ATECS and gets patients to repeat them) and refused to meet with my Paed while he was in Bournemouth for the conference - too much with his presentation.

He has lots of kids doing VERY well, he shouldn't be ashamed of that. I just don't think arguing the case for biomed with mainstreamers (face to face) is something he feels comfortable with. I think I need a medic with a kid with autism - that shares our passion and knows what its like to be me.

When we went to make the presentation to the panel, they told me that WAS the appeal although I had never had any correspondance about the original the decision. So I think its best to go back in with another application on different grounds.

I KNOW they WANTED to fund me, but they need 'evidence', correspondance etc to satisfy their auditors and they didn't have it. Their excuses were pathetic but reasonable in the absence of a strong case from my medic. Very frustrating

Mandi x

[Guest guest]

Maybe he was scared fo a witch hunt Mandi and just wants to get on

and treat kids. I mean anyone who is really vocal about treating

autism seems to have a bad time.

Peta x

>

>

> In a message dated 05/06/2007 01:30:16 GMT Standard Time,

> moppett1@... writes:

>

> Just re-read this post. Why did he write " funding for autism " when

he

> probably knew it was going o be a really " sticky " issue!

>

>

>

> >>No comment, maybe the same reason he told the guy from the PCT

he didn't

> take part in clinical audit (he does), didn't know how many kids

he treated

> (the receptionist could have told him) and didn't know how well

they did (yet

> he has baseline ATECS and gets patients to repeat them) and refused

to meet

> with my Paed while he was in Bournemouth for the conference - too

much with his

> presentation.

>

> He has lots of kids doing VERY well, he shouldn't be ashamed of

that. I just

> don't think arguing the case for biomed with mainstreamers (face

to face) is

> something he feels comfortable with. I think I need a medic with a

kid with

> autism - that shares our passion and knows what its like to be me.

>

> When we went to make the presentation to the panel, they told me

that WAS

> the appeal although I had never had any correspondance about the

original the

> decision. So I think its best to go back in with another

application on

> different grounds.

>

> I KNOW they WANTED to fund me, but they need 'evidence',

correspondance etc

> to satisfy their auditors and they didn't have it. Their excuses

were pathetic

> but reasonable in the absence of a strong case from my medic.

Very

> frustrating

>

> Mandi x

>