Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 > >My 3 1/2 yo ASD daughter has recently had her 4th urine specimen sent >in to Omegatech (a division of King Medical Labs). Each specimen >has been done after several rounds of chelation with Chemet (DMSA) >and, each time, the levels have increased. This most recent one is >most disturbing to me because this is the highest increase I have seen >so far. For example, her Arsenic went from 144 last time to 346 mcg/g >this time! Her Mercury went from .3 to 7.70 mcg/g. Should I be worried >about these increases? Overall, I think you should feel good that lots of stuff is coming out. In our autistic daughter's case, we saw nothing come out at first, later small amounts of mercury came and went, and finally, tin appeared from nowhere, and has stayed high. I get discouraged when it stays high. My NT child, whom we are also chelating, however, has gone down in his tin, which I take as an omen that my daughter will too (her numbers were overall much higher.) Any chance that your DMSA dosing has gone up, to account for some of the increased output? (It accounted for higher output for us for the Hg, but the dosing's been steady for the tin.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 >>>>>>Any chance that your DMSA dosing has gone up, to account for some of the increased output? (It accounted for higher output for us for the Hg, but the dosing's been steady for the tin.) <<<<<< > Yes, as a matter of fact, our doctor DID increase the dosage. Originally, we were doing 100 mg once per day for 30 days. But, now we are doing 100 mg three times per day for three days. Then, off for 11 days and continue the cycle... I guess the higher dosage would account for the higher amount that has been chelated. Thanks. --Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 > Hello, All. I'm new here. I have been a member of the enzymes and > autism board for quite some time now and was told to post the > following question here: > > My 3 1/2 yo ASD daughter has recently had her 4th urine specimen sent > in to Omegatech (a division of King Medical Labs). Each specimen > has been done after several rounds of chelation with Chemet (DMSA) > and, each time, the levels have increased. This most recent one is > most disturbing to me because this is the highest increase I have seen > so far. For example, her Arsenic went from 144 last time to 346 mcg/g > this time! Her Mercury went from .3 to 7.70 mcg/g. Should I be worried > about these increases? She is also high in Cadmium, Chromium, Cobalt, > Iron, Lead, Lithium, Magnesium, Manganese, Potassium, Selenium, > Sodium, and Germanium. She was normal in everything else except she > was a bit low in Copper. I won't be talking to my DAN doctor about > these results for a couple of weeks to see what he recommends doing > next. Does anyone have any thoughts on this, or know why the levels > keep increasing? Please note that I have also been using digestive > enzymes with the last three rounds of Chemet. On page 52 of my book Amalgam Illness: Diagnosis and Treatment (described at www.noamalgam.com) there is a graph of what happens to people when they start excreting mercury. For adults this is typically when they have their fililngs removed. For autistic chidlren it is when you start slinging chelating agents around. Their excretion goes UP for a while. This is normal. Their body is letting go of it. Andy v ew w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 > my three year old is dx w/ mild autism. he received mercury in > three dtap vaccines before he was one. he is having brain seizures > for which he has started lamictal. my ped neuro wants us to start > mt-primer to follow with the mt-promotor. he suggested we start with > this. if after two months(which is really four months because of the > 2 months required for the primer), we see no improvement then we > will try chelation. are we wasting our time Yes. > with the mt promoter. > (i reviewed the faqs and didn't find anything on mt promotion). > thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 i appreciate your answer. my follow up is " why? " (i am happy to go to an archived post if you can direct me.) thanks [ ] Re: new member with a question > my three year old is dx w/ mild autism. he received mercury in > three dtap vaccines before he was one. he is having brain seizures > for which he has started lamictal. my ped neuro wants us to start > mt-primer to follow with the mt-promotor. he suggested we start with > this. if after two months(which is really four months because of the > 2 months required for the primer), we see no improvement then we > will try chelation. are we wasting our time Yes. > with the mt promoter. > (i reviewed the faqs and didn't find anything on mt promotion). > thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 > i appreciate your answer. my follow up is " why? " It isn't helpful to any significant number of people, the theoretical reasoning behind it is unrelated to the reality of how bodies handle food and supplements, the supporting evidence for the theory is tenuous at best, and for practical purposes all other detox support protocols raise MT levels, many such as mine having been specifically designed to do so. Andy . . . . . . . . . . >(i am happy to go to an archived post if you can direct me.) thanks > > > > my three year old is dx w/ mild autism. he received mercury in > > three dtap vaccines before he was one. he is having brain seizures > > for which he has started lamictal. my ped neuro wants us to start > > mt-primer to follow with the mt-promotor. he suggested we start with > > this. if after two months(which is really four months because of the > > 2 months required for the primer), we see no improvement then we > > will try chelation. are we wasting our time > > Yes. > > > with the mt promoter. > > (i reviewed the faqs and didn't find anything on mt promotion). > > thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 My oldest son was like that. Other than allergies/sinus infections he was never sick. Even though he was in daycare he never got a cold or virus. That seems great, but it's actually a sign of an immune system that is not functioning properly. As far as the cough, my son & I both have a constant cough from post nasal drainage when our allergies kick in. > > Hi > > I just joined the list. I have an 8yo dd with autism. I am starting to look into > things other than behaviorial or educational because, though she is > making progress, it is so slow. > > How many of you have kids who are seldom sick? My dd rarely gets > a cold, though she has a constant cough. She is not, as far as we know > allergic to anything, but since she's non-verbal, it's hard to tell. There are > allergies on both sides of the family. > > Look forward to getting to know you all. > > Maggie > San Ramon CA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 There is a substantial subgroup of children " on the spectrum " who are rarely, or never, *outwardly* sick. It's still a sign that the immune system isn't working properly...in the case of children who never catch illness, the immune system is working TOO well and overreacting -- attacking the appropriate microbial invaders, but also attacking the body itself: the brain and nervous system! The body attacking itself is the definition of " autoimmune " . An allergy is the immune system reacting to substance it mistakenly perceives as a threat. The cough you describe is consistent with allergies, possibly to something in the environment. It is also extremely likely that she has food allergies, because virtually all kids on the spectrum do. The best way to find out what she's allergic to, without having blood drawn for a food-allergy panel, is to eliminate one thing at a time from the child's diet for a week, observe the child's behavior, then re-introduce it and watch for a difference in behavior, alertness, communication, eye contact, etc. Cows' milk and cows' milk products are the best things to start with. HTH, Donna > > > > I just joined the list. I have an 8yo dd with autism. I am > starting to look into > > things other than behaviorial or educational because, though she is > > making progress, it is so slow. > > > > How many of you have kids who are seldom sick? My dd rarely gets > > a cold, though she has a constant cough. She is not, as far as > we know > > allergic to anything, but since she's non-verbal, it's hard to > tell. There are > > allergies on both sides of the family. > > > > Look forward to getting to know you all. > > > > Maggie > > San Ramon CA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 My kids used to get sick all of the time. They were always staying home from school, until about ages 9 and 7. Then it turned around to never getting sick. Maybe an occ'l mild cold, but rarely. They have been with Dr. G since 11 and 9 (3 years now). barb --- " Donna B. " <donnaaron@...> wrote: > There is a substantial subgroup of children " on the > spectrum " who are > rarely, or never, *outwardly* sick. It's still a > sign that the immune > system isn't working properly...in the case of > children who never > catch illness, the immune system is working TOO well > and overreacting > -- attacking the appropriate microbial invaders, but > also attacking > the body itself: the brain and nervous system! The > body attacking > itself is the definition > of " autoimmune " . > > An allergy is the immune system reacting to > substance it mistakenly > perceives as a threat. The cough you describe is > consistent with > allergies, possibly to something in the environment. > It is also extremely > likely that she has food allergies, because > virtually all kids on the > spectrum do. The best way to find out what she's > allergic to, without > having blood drawn for a food-allergy panel, is to > eliminate one thing > at a time from the child's diet for a week, observe > the child's > behavior, then re-introduce it and watch for a > difference in > behavior, alertness, communication, eye contact, > etc. Cows' milk and > cows' milk products are the best things to start > with. > > HTH, > Donna > > > > > > > I just joined the list. I have an 8yo dd with > autism. I am > > starting to look into > > > things other than behaviorial or educational > because, though she is > > > making progress, it is so slow. > > > > > > How many of you have kids who are seldom sick? > My dd rarely gets > > > a cold, though she has a constant cough. She > is not, as far as > > we know > > > allergic to anything, but since she's > non-verbal, it's hard to > > tell. There are > > > allergies on both sides of the family. > > > > > > Look forward to getting to know you all. > > > > > > Maggie > > > San Ramon CA > > > > > > > > > Barb Katsaros barbkatsaros@... __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Hello- I was just diagnosed with a systemic Stachybotrys infection that has given me major health problems for over a year, since Hurricane Ivan in 2004. I am looking for info/help/tips/experience on treatment and detox. Also, are the toxins involved water or fat soluble? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 there is such a diagnosis of apraxia or dyspraxia in children here in the US and all over the globe. In fact the name " childhoodapraxiaofspeech " as long and stupid as it sounds and looks didn't even exist when my son Tanner was diagnosed with " apraxia or dyspraxia it means the same thing " (and old archive on that below) I for one say do NOT let anyone put that diagnosis childhoodapraxiaofspeech in writing about your child because they don't stay 3 forever and it's a horrible name for a 12 year old - quite honestly I think I first heard about it when Tanner was younger than 12 and it was still horrible to me. The horrible name we had to fight then was " developmental apraxia of speech " or DAS which translated to " you won't get speech therapy " which ironically is probably a less offensive name than childhood since some don't know what it means...Oh who am I kidding they both are just crazy. In the UK little kids are diagnosed every minute with dyspraxia and you don't see Harry Potter's coming out of the dyspraxia closet with " childhood dyspraxia " !!!! You guys keep going in this direction and I'm not kidding -I'm changing Tanner's diagnosis to dyspraxia. I think I may just do that anyway as there's too much craziness starting to go on in the apraxia world based on recent messages. Speaking of Dr. House -Dr. House would have a field day with all the stupid names of apraxia! He'd need three board to write on just to list all of them! ===== Quote Link to comment Share on other sites More sharing options...
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