flu and strep

[Guest guest]

Hi all, hope everyone had a nice, relaxing mother's day! My little girl ended

up with a headache, chest pain, really bad cough last wednesday and fevers from

102-103. Today she is finally fever free. She went to the peds. on thurs and

was put on antibiotics incase it was bacterial but they were unsure what it was.

they did a throat culture and sent it out. The immunologist said that if she

still had a high fever by sat. she needed to go to the ER to be checked out.

She was unable to get her friday hizentra infusion because of her fever they

said. Saturday we went to the ER with her and they put a tube down her nose for

a viral panel, chest x-ray was neg. blood tests were normal just a low white

count which she always has, and they gave her IV fluids because she was

dehydrated. Saturday night she deveoloped myositis of the back of her knees and

calves that they said was viral. She was in so much pain that she couldn't

walk. She either crawled or I carried her. Sunday night I got a call from the

hospital that her viral panel showed flu b and monday am I got a call from her

peds. doc that she also has strep. On monday the Immuno told us that if her

temp was below 101 we could go ahead and give her the hizentra anyway to help

her get better. During the day she was only 100.3 so I hurried up and gave it

to her. She was so exhausted that day that she fell asleep after her treatment

and slept from 1:30pm until 6:00pm when I finally woke her up and then she went

back to bed at 8:00pm. By today she finally has no temp and her legs are fine!

She is just left with a really bad cough. These 2 infections things really

kicked her butt. She didn't touch any food wed-mon and is finally eating little

bits today. She did constantly drink. I have to say this was scary for us.

She has had many infections that lasted forever prior to the Hizentra but this

was the first time that she was down for the count and sooooo exhausted without

eating or even touching her barbies. Now aware that she has an immune

deficiency I was really worried how her body would react esp. without her

Hizentra. Obviously our kids on treatments can still get sick, but was a little

surprised how sick she was and with the flu and strep on top of it. Was

wondering if anyone has missed a full hizentra dose during an illness and did it

make it harder to heal. I don't know how long it takes to be out of your system

and was worried how to get her back on track and if it will set her back to

build up her antibodies again ?! Thanks, (mom of 6 year ol Madeline)