Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confused Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Hi, Joyce......don't panic. I'm genotype 2b and 2's are probably the best you can get! You'll learn all about what these things mean as the days go by. There are a lot of people here who have a ton of knowledge and then there are the ones like me.......I just know what I've been through and that's a lot of knowledge to pass on!!! It's that vast "brain trust" that this group possesses that is worth it's weight in gold! Don't panic and just start reading, asking questions and print out what you want to save. Get copies of all your lab test results and keep them in a binder or file of some sort (I should take my own advice!!) I'm in New York so I'm not too far from you. Just holler when you have a question or need to talk. It's not a death sentence & you're not dying so don't start thinking about WHEN! You may be confused right now, but the fog will clear and you'll know more than you ever thought you could know before you know it!!! Dorothy in NY From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of joyceannSent: Thursday, December 13, 2007 7:13 PMHepatitis C Subject: hep c, new and cirrohis hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confused Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Hi, Joyce......don't panic. I'm genotype 2b and 2's are probably the best you can get! You'll learn all about what these things mean as the days go by. There are a lot of people here who have a ton of knowledge and then there are the ones like me.......I just know what I've been through and that's a lot of knowledge to pass on!!! It's that vast "brain trust" that this group possesses that is worth it's weight in gold! Don't panic and just start reading, asking questions and print out what you want to save. Get copies of all your lab test results and keep them in a binder or file of some sort (I should take my own advice!!) I'm in New York so I'm not too far from you. Just holler when you have a question or need to talk. It's not a death sentence & you're not dying so don't start thinking about WHEN! You may be confused right now, but the fog will clear and you'll know more than you ever thought you could know before you know it!!! Dorothy in NY From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of joyceannSent: Thursday, December 13, 2007 7:13 PMHepatitis C Subject: hep c, new and cirrohis hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confused Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee@...> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 First off, welcome to the group,, and NO,, you are not dying,, I know its scary, we were all terrified when we first got the diagnosis,, the MAIN thing you can do for yourself is NOT to drink alcohol or use alcohol in any way ever again... and mixing tylenol and alcohol can make for fast liver disease.. Did your doc tell you what stage you are? Usually they stage you in a 1 through 4 with 4 being fully cirrhosed.. I was diagnosed with stage 3-4 with early cirrhosis and advanced fibrosis and I treated, I am in remission now almost 5 years.. so treatment can help but THERE IS NO CURE.. only remission..Eat GOOD food, dont eat a lot of white flour or sugar or other junk foods,, good healthy foods are very important now,, lean meats, fish, chicken, tofu etc with lots of fresh organic veggies and fruit,, whole grains etc,, and lots of filtered water,, If you are genotype 2, you will have a better chance at success with treatment, so that is in your favor. But treatment is hard but doable,, Learn as much as you can about this disease,, and just know that there IS NOTHING that will cure you, and standard treatment is the only thing that will put this virus into remission,, nothing 'natural' will do that.. so dont let anyone fool you into believing that some herb or supplement will cure you.. it wont,, there are things you can take like Milk Thistle that can help your liver handle the virus better but it wont affect the virus,, just will help keep your liver in better shape.. If you take tylenol, do not exceed 2000 mg or 2 grams per day of tylenol, if you take advil, do not exceed 1600 mg of advil per day either. Many ppl find themselves depressed while on tx as the Interferon depletes the brain of the seretonin so most take an SSRI antidepressant.. just feel free to ask us anything you think of,, we're not docs here, but we do have a lot of experience and we will help you find the answers.. and as one of our members said, make sure you get copies of everything and keep it in a file at home,, once again, welcome jax Fira joyceann <mepurplegee@...> wrote: hi new member as of 10 min ago to this grp, ive had hep c for years but didnt have the ins for the treatment the cash and i was actively drinking,,,,,i am in some sort of a position to start treatm,ent i went to a dr and got a biopsy of my liver friday and got the results today i have cirrohis (cant spell it) begiining stage,,,severe scarring of the liver, and of course the chronic hep c....i cried ,,im sad,,,,you all prob know the feelings,,,im dieing??when????etc....well dont know the cost of if the ins will pay for the treatment which he said will cure the hep c i have viral load type 2,,,,if you know what i mean and as far as the cirrohis goes it takes years of my life he said and we will know more as time goes by,,,blood testing etc,,,,,,i dotn know what im looking for right now, support grps, someone to talk to ,,,advise etc,,,,im 43, i live in mass the north shore area danvers,ma if anyone can respond id appreciate it,,,,im like i have a head ache do i tk tylenol,,,what about a diet,,,so confusedJackie Quote Link to comment Share on other sites More sharing options...
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