Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Well Laurie At least NOW, you wont have to wait for a week to find out! Thank that nurse for sparing you this torture! You know that 1 is the hardest and most difficult to treat but it IS BEING done every day! Your viral load is VERY LOW!!!! Do you have any idea how long you have had this virus? You may be very early in the process and IF you decided to tx sooner rather than later, you might be able to kick its butt right out of your body easier with fewer side effects ,,, but you need a liver biopsy to see how much damage you have and how 'fast' it is or is not moving along! When they do the biopsy, they give you a 'stage' and a 'grade',, the stage is how much damage you have,, they base it on a 0-4 with 0 being no damage and 4 being fully cirrhosed and the 'grade' is how active the virus is,, also 0-4 with 0 being very very slow moving and 4 being moving really quickly AND AGGRESSIVELY... so if you are stage 0 and grade 1,, you are very early in the disease process and you have plenty of time to make a decision regarding whether or not you want to do tx.. you have to really be 'sure' you want to tx because its hard,, treatment is hard,, but its doable.. Lots of ppl think that they can just start tx and if its too hard, they can just quit treatment and thats wrong... IF you start tx and then stop, the virus can mutate and then you will play hell getting rid of it... so if you start tx, you have to do everything to make sure you finish tx.. its complicated.. but at this point,, you know that your virus is active because you do have a viral load.. Next week talk with the doc about the biopsy so you can make an 'informed' decision about whether or not you want to do treatment.. Well have a good weekend hon,, we'll be here for ya if you have any further questions! jaxLaurie <bostons@...> wrote: I I phoned my doc's office on Tuesday to see if test results were in. They were, but I was then informed that the doctor was out of the office for the remainder of the week - to return next week. After hanging up the phone I started making myself nuts .... having to wait another week for the info I needed was going to be too difficult to bear. I called the office this morning and set up an appointment for next Thursday and while I still had the nurse on the phone I explained to her that the doctor had dropped the Hep C bomb on me the day before Thanksgiving (which was pretty much ruined) and the thought of waiting another week to find out if I actually had the active virus and it's type just wasn't something I could do. The nurse called me just a little while ago to tell me that I'm genotype 1b and the viral load is 69,100. This was all the info I needed to get me through until next week. Good to know these results, I have more to research now. Anyway - that's about it for now ---- EXCEPT - I was looking over a chart about genotypes and I see that 1b is more prevalent in Europe and Asia. I thought for sure I'd end up 1a or 2. Thanks for reading everyone, -Laurie Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Hi Laurie, Sorry to hear about your stress - I wnet through the same thing a few weeks ago (waiting and worrying about biopsy results in my case) and it put in me the hospital. Please don't stress...it's the worst thing for your health. I am a 1 b also...1 a and 1b are the gentotype that 70% of Americans have, I believe. Peace, susan > > I I phoned my doc's office on Tuesday to see if test results were in. They were, but I was then informed that the doctor was out of the office for the remainder of the week - to return next week. After hanging up the phone I started making myself nuts .... having to wait another week for the info I needed was going to be too difficult to bear. > > I called the office this morning and set up an appointment for next Thursday and while I still had the nurse on the phone I explained to her that the doctor had dropped the Hep C bomb on me the day before Thanksgiving (which was pretty much ruined) and the thought of waiting another week to find out if I actually had the active virus and it's type just wasn't something I could do. The nurse called me just a little while ago to tell me that I'm genotype 1b and the viral load is 69,100. This was all the info I needed to get me through until next week. Good to know these results, I have more to research now. > > Anyway - that's about it for now ---- EXCEPT - I was looking over a chart about genotypes and I see that 1b is more prevalent in Europe and Asia. I thought for sure I'd end up 1a or 2. > > Thanks for reading everyone, > > -Laurie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 Hi Laurie, I am also new to this site (but old to the hep c) and I just wanted to tell you that I think your courage in so commendable. I remember how hard those early weeks really were. You are being pro-active and learning all you can. Way to go! I loved that you got on the phone and let them know how you were feeling about the test results. Sounds like a good nurse. What I also remember as I learned more about this disease (and it was slow going without the Internet being up to speed back then) is that there were windows of good news - that my then 5 year old son was probably not infected (although testing him was a must) and that sexual transmission was also rare. Glad you are here. with love & light, karen > > I I phoned my doc's office on Tuesday to see if test results were in. They were, but I was then informed that the doctor was out of the office for the remainder of the week - to return next week. After hanging up the phone I started making myself nuts .... having to wait another week for the info I needed was going to be too difficult to bear. > > I called the office this morning and set up an appointment for next Thursday and while I still had the nurse on the phone I explained to her that the doctor had dropped the Hep C bomb on me the day before Thanksgiving (which was pretty much ruined) and the thought of waiting another week to find out if I actually had the active virus and it's type just wasn't something I could do. The nurse called me just a little while ago to tell me that I'm genotype 1b and the viral load is 69,100. This was all the info I needed to get me through until next week. Good to know these results, I have more to research now. > > Anyway - that's about it for now ---- EXCEPT - I was looking over a chart about genotypes and I see that 1b is more prevalent in Europe and Asia. I thought for sure I'd end up 1a or 2. > > Thanks for reading everyone, > > -Laurie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2006 Report Share Posted December 1, 2006 I sooo agree with , Stress can be debilitating. I used to have anxiety attacks and all kinds of physical manefestations with that. Stress is hard to control, but harder on the body. I would not admit to the stress and it would just overtake me. I am 2a and was told somewhere along the line that I had an Asian strain. I got it froma transfusion. <marvindamartian05@...> wrote: Hi Laurie, Sorry to hear about your stress - I wnet through the same thing a fewweeks ago (waiting and worrying about biopsy results in my case) andit put in me the hospital. Please don't stress...it's the worst thingfor your health.I am a 1 b also...1 a and 1b are the gentotype that 70% of Americanshave, I believe.Peace,susan>> I I phoned my doc's office on Tuesday to see if test results werein. They were, but I was then informed that the doctor was out of theoffice for the remainder of the week - to return next week. Afterhanging up the phone I started making myself nuts .... having to waitanother week for the info I needed was going to be too difficult to bear.> > I called the office this morning and set up an appointment for nextThursday and while I still had the nurse on the phone I explained toher that the doctor had dropped the Hep C bomb on me the day beforeThanksgiving (which was pretty much ruined) and the thought of waitinganother week to find out if I actually had the active virus and it'stype just wasn't something I could do. The nurse called me just alittle while ago to tell me that I'm genotype 1b and the viral load is69,100. This was all the info I needed to get me through until nextweek. Good to know these results, I have more to research now.> > Anyway - that's about it for now ---- EXCEPT - I was looking over achart about genotypes and I see that 1b is more prevalent in Europeand Asia. I thought for sure I'd end up 1a or 2.> > Thanks for reading everyone,> > -Laurie> Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 I try to stay as calm as possible. I don't want to scare our 16 year old daughter. We had her blood drawn on Wednesday and won't get the results until sometime Monday. That's causing a bit of anxiety. My husband's results came in yesterday and he's negative. What a relief! Now he's bitching about having to go to his doctor for a follow up on the test - doc wants to talk to him about precautions, etc... - says he's not going to change anything in our lives. Sometimes I want to grab him and shake him - he's so bull-headed!! Of course, he's very supportive and trying to stay strong. He got in from work the other night (the day my results came in) and lost it. First time I've seen him cry in a very long time. Made me realize that this is just as difficult for him to deal with as it is for me. -Laurie Re: Re: Viral load and genotype I sooo agree with , Stress can be debilitating. I used to have anxiety attacks and all kinds of physical manefestations with that. Stress is hard to control, but harder on the body. I would not admit to the stress and it would just overtake me. I am 2a and was told somewhere along the line that I had an Asian strain. I got it froma transfusion. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Just a word of cheer on this. My husband and I are reasonably sure-but not positive that we were both infected at a tattoo shop on Hollywood Blvd in the 70’s. The only reason that I mention this is to date it, and that was about 6 years before we had our first child. Our second child was born 13 years later and neither of our kids were infected at birth. Our youngest was 3 when we discovered the Hep, and we have had the kids spot checked discretely during well child visits blood work. ..No problem so far, and the big one is 27 now. I want to share a worry, though. Our son has Schizno Affective disorder, meaning that he is both schiznophrenic and bi-polar. Like many, especially in this day of barbaric prison terms especially in the small Texas towns where the DA is king in all but name, he has had a string of very petty minor infractions that landed him on a probation that he was unable to maintain. To make it short, he did a year in prison, was on parole for 7 months and then got a DUI and has spent the last year in prison again. Please include him in your prayers. He comes home in January. Will get bloodwork done then because of the dangerous environment they have, sharing razors and such. Our hearts have ached so very much for his situation. “All will be well, all will be well, all manner of things will be well.” Nikki I try to stay as calm as possible. I don't want to scare our 16 year old daughter. We had her blood drawn on Wednesday and won't get the results until sometime Monday. That's causing a bit of anxiety. My husband's results came in yesterday and he's negative. What a relief! Now he's bitching about having to go to his doctor for a follow up on the test - doc wants to talk to him about precautions, etc... - says he's not going to change anything in our lives. Sometimes I want to grab him and shake him - he's so bull-headed!! Of course, he's very supportive and trying to stay strong. He got in from work the other night (the day my results came in) and lost it. First time I've seen him cry in a very long time. Made me realize that this is just as difficult for him to deal with as it is for me. -Laurie Re: Re: Viral load and genotype I sooo agree with , Stress can be debilitating. I used to have anxiety attacks and all kinds of physical manefestations with that. Stress is hard to control, but harder on the body. I would not admit to the stress and it would just overtake me. I am 2a and was told somewhere along the line that I had an Asian strain. I got it froma transfusion. __._,_.___ __,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Just a word of cheer on this. My husband and I are reasonably sure-but not positive that we were both infected at a tattoo shop on Hollywood Blvd in the 70’s. The only reason that I mention this is to date it, and that was about 6 years before we had our first child. Our second child was born 13 years later and neither of our kids were infected at birth. Our youngest was 3 when we discovered the Hep, and we have had the kids spot checked discretely during well child visits blood work. ..No problem so far, and the big one is 27 now. I want to share a worry, though. Our son has Schizno Affective disorder, meaning that he is both schiznophrenic and bi-polar. Like many, especially in this day of barbaric prison terms especially in the small Texas towns where the DA is king in all but name, he has had a string of very petty minor infractions that landed him on a probation that he was unable to maintain. To make it short, he did a year in prison, was on parole for 7 months and then got a DUI and has spent the last year in prison again. Please include him in your prayers. He comes home in January. Will get bloodwork done then because of the dangerous environment they have, sharing razors and such. Our hearts have ached so very much for his situation. “All will be well, all will be well, all manner of things will be well.” Nikki I try to stay as calm as possible. I don't want to scare our 16 year old daughter. We had her blood drawn on Wednesday and won't get the results until sometime Monday. That's causing a bit of anxiety. My husband's results came in yesterday and he's negative. What a relief! Now he's bitching about having to go to his doctor for a follow up on the test - doc wants to talk to him about precautions, etc... - says he's not going to change anything in our lives. Sometimes I want to grab him and shake him - he's so bull-headed!! Of course, he's very supportive and trying to stay strong. He got in from work the other night (the day my results came in) and lost it. First time I've seen him cry in a very long time. Made me realize that this is just as difficult for him to deal with as it is for me. -Laurie Re: Re: Viral load and genotype I sooo agree with , Stress can be debilitating. I used to have anxiety attacks and all kinds of physical manefestations with that. Stress is hard to control, but harder on the body. I would not admit to the stress and it would just overtake me. I am 2a and was told somewhere along the line that I had an Asian strain. I got it froma transfusion. __._,_.___ __,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Nikki, thanks so much for sharing this information, and I WILL pray for your son! I have 2 teens, a wonderful 15 year old son, and a gifted 14 year old daughter, and I am very anxious about getting them tested. I will be racked with guilt if either, or both, are positive. I worry so much about this. Actually, the " legal " side of me says to get them both life insurance BEFORE testing them, because if one or both is/are positive, the results are reported to the CDC, and they likely become " uninsurable " . Crazy world we live in. Please tell your son that people are thinking of him, praying for him, and that he WILL come out of this ok. > > Just a word of cheer on this. My husband and I are reasonably sure-but not > positive that we were both infected at a tattoo shop on Hollywood Blvd in > the 70's. The only reason that I mention this is to date it, and that was > about 6 years before we had our first child. Our second child was born 13 > years later and neither of our kids were infected at birth. Our youngest > was 3 when we discovered the Hep, and we have had the kids spot checked > discretely during well child visits blood work. .No problem so far, and the > big one is 27 now. > > > > I want to share a worry, though. Our son has Schizno Affective disorder, > meaning that he is both schiznophrenic and bi-polar. Like many, especially > in this day of barbaric prison terms especially in the small Texas towns > where the DA is king in all but name, he has had a string of very petty > minor infractions that landed him on a probation that he was unable to > maintain. To make it short, he did a year in prison, was on parole for 7 > months and then got a DUI and has spent the last year in prison again. > Please include him in your prayers. He comes home in January. Will get > bloodwork done then because of the dangerous environment they have, sharing > razors and such. Our hearts have ached so very much for his situation. > > > > " All will be well, all will be well, all manner of things will be well. " > > > > Nikki > > > > > > I try to stay as calm as possible. I don't want to scare our 16 year old > daughter. We had her blood drawn on Wednesday and won't get the results > until sometime Monday. That's causing a bit of anxiety. > > > > My husband's results came in yesterday and he's negative. What a relief! > Now he's bitching about having to go to his doctor for a follow up on the > test - doc wants to talk to him about precautions, etc... - says he's not > going to change anything in our lives. Sometimes I want to grab him and > shake him - he's so bull-headed!! Of course, he's very supportive and > trying to stay strong. He got in from work the other night (the day my > results came in) and lost it. First time I've seen him cry in a very long > time. Made me realize that this is just as difficult for him to deal with as > it is for me. > > > > -Laurie > > Re: Re: Viral load and genotype > > > > I sooo agree with , Stress can be debilitating. I used to have > anxiety attacks and all kinds of physical manefestations with that. Stress > is hard to control, but harder on the body. I would not admit to the stress > and it would just overtake me. > > > > I am 2a and was told somewhere along the line that I had an Asian strain. I > got it froma transfusion. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 What a difference in people. My husband forbade me to mention it around his boss. He was afraid of the stigma at work and that he would lose his job. He's come a long way, but does not accept new information well. He's near 70 so I try not to expect too much from him, just that he be as supportive as HE is able to be or if not, then to leave me be. He does try--- SharonLaurie <bostons@...> wrote: I try to stay as calm as possible. I don't want to scare our 16 year old daughter. We had her blood drawn on Wednesday and won't get the results until sometime Monday. That's causing a bit of anxiety. My husband's results came in yesterday and he's negative. What a relief! Now he's bitching about having to go to his doctor for a follow up on the test - doc wants to talk to him about precautions, etc... - says he's not going to change anything in our lives. Sometimes I want to grab him and shake him - he's so bull-headed!! Of course, he's very supportive and trying to stay strong. He got in from work the other night (the day my results came in) and lost it. First time I've seen him cry in a very long time. Made me realize that this is just as difficult for him to deal with as it is for me. -Laurie Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Thank you so much! I will tell him and he will be glad. Hey, I have a gifted 14 year old daughter, too! I agree with you 1000 percent about the life insurance. Check out Herman Sons, they are great. Nikki Nikki, thanks so much for sharing this information, and I WILL pray for your son! I have 2 teens, a wonderful 15 year old son, and a gifted 14 year old daughter, and I am very anxious about getting them tested. I will be racked with guilt if either, or both, are positive. I worry so much about this. Actually, the " legal " side of me says to get them both life insurance BEFORE testing them, because if one or both is/are positive, the results are reported to the CDC, and they likely become " uninsurable " . Crazy world we live in. Please tell your son that people are thinking of him, praying for him, and that he WILL come out of this ok. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2006 Report Share Posted December 2, 2006 Thanks, Nikki, will do! > > Thank you so much! I will tell him and he will be glad. > > Hey, I have a gifted 14 year old daughter, too! > > I agree with you 1000 percent about the life insurance. Check out Herman > Sons, they are great. > > Nikki > > Nikki, thanks so much for sharing this information, and I WILL pray > for your son! > > I have 2 teens, a wonderful 15 year old son, and a gifted 14 year old > daughter, and I am very anxious about getting them tested. I will be > racked with guilt if either, or both, are positive. I worry so much > about this. Actually, the " legal " side of me says to get them both > life insurance BEFORE testing them, because if one or both is/are > positive, the results are reported to the CDC, and they likely become > " uninsurable " . > > Crazy world we live in. > > Please tell your son that people are thinking of him, praying for him, > and that he WILL come out of this ok. > Quote Link to comment Share on other sites More sharing options...
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