Hello, I am new

[Guest guest]

,

Some of what you are describing sounds very much like both OCD and Tourette's

or a milder tic disorder. Although it is very common for children with OCD

to has some tics without it being " full blown " Tourettes's " . That is what my

son has had in the past - lots of facial tics starting in 2nd grade but now

we rarely notice any (he is 14 now) - when he is more stressed out, the tics

are more noticible - by us - the rest of the world would think his nose must

itch - I actually had him tested for alergies before he was diagnosed at 7

because he was sniffling and scrunching his nose so much. The licking and

kissing could be either a ritual or a complex motor tic - the difference

might be wether the compulsion " must " be done right then or a tic which can

be delayed to some extent. There is something called YBOCS - it is a

checklists for both obsessions and compulsions and a different list of tics -

motor as well as vocal. There may be a list available on the OC Foundation

website - ocfoundation.org - The Yale Child Study Center OCD & Tic Disorder

Clinic has a very complete checklist as well.

Good luck in getting a proper assessment.

Anne in CT

[Guest guest]

Hi ! I actually can't definitely say anything about what might

BE an OCD behavior for your daughter. Perhaps some of the more

experienced parents here whose kids might have had similar issues

can.

But I wanted you to look at the following 2 links regarding Tourettes

to see what you thought. They're from the same website.

The first link lists some common tics, and it did mention kissing & a

few other things. And the 2nd link is just a main page on Tourettes

at the same site. I believe that people with Tourettes can also have

OCD too, meaning it's not uncommon at all for a TS person to also

have OCD. They also have info on OCD at this site.

http://www.tourettesyndrome.net/common_tics.htm

http://www.tourettesyndrome.net/tourette.htm

Let us know what you think after reading them! Has her school done

any kind of testing on her?

>

> Hello, I am new to the group and want to share my daughter story.

She is six years old, and has not been dx with OCD yet. She does

alot of different things that leads me to believe she does have OCD.

It started when she was about two. She started to have facial tics,

her eyes, mouth, nose and sometimes all together. She went for about

two months on palm licking over and over again throughout the day.

She went for about two months on kissing everything, when I say

everything I mean everything, even park benches. She then went back

and fourth with the two for a while. Now she is taking both of her

hands putting them together (as if she was going to fold them) and

cracking her nuckles. She does all day long. To me it seems as if

she is not even aware of herself doing this. She also went through a

phase of clearing her throut (grunting almost).

have been removed]

[Guest guest]

Hello Chris! I have read everything there is to read

on Tourette's Syndrome and it just doesn't completely

fit my daughter. I was trying to look up Shadow

Syndrome and Autism Spectrum Disorder. But this is

very hard because she shows so many signs of so many

things. And unfortunatly, I need to know more than

her doctors. If I tell them what I think it is they

look into it and if I don't have any idea, they do not

either.

Thank you so much for you help.

in OH

--- wrote:

> Hi ! I actually can't definitely say anything

> about what might

> BE an OCD behavior for your daughter. Perhaps some

> of the more

> experienced parents here whose kids might have had

> similar issues

> can.

>

> But I wanted you to look at the following 2 links

> regarding Tourettes

> to see what you thought. They're from the same

> website.

>

> The first link lists some common tics, and it did

> mention kissing & a

> few other things. And the 2nd link is just a main

> page on Tourettes

> at the same site. I believe that people with

> Tourettes can also have

> OCD too, meaning it's not uncommon at all for a TS

> person to also

> have OCD. They also have info on OCD at this site.

>

> http://www.tourettesyndrome.net/common_tics.htm

>

> http://www.tourettesyndrome.net/tourette.htm

>

>

> Let us know what you think after reading them! Has

> her school done

> any kind of testing on her?

>

>

>

>

>

>

>

> >

> > Hello, I am new to the group and want to share my

> daughter story.

> She is six years old, and has not been dx with OCD

> yet. She does

> alot of different things that leads me to believe

> she does have OCD.

> It started when she was about two. She started to

> have facial tics,

> her eyes, mouth, nose and sometimes all together.

> She went for about

> two months on palm licking over and over again

> throughout the day.

> She went for about two months on kissing everything,

> when I say

> everything I mean everything, even park benches.

> She then went back

> and fourth with the two for a while. Now she is

> taking both of her

> hands putting them together (as if she was going to

> fold them) and

> cracking her nuckles. She does all day long. To me

> it seems as if

> she is not even aware of herself doing this. She

> also went through a

> phase of clearing her throut (grunting almost).

> have been removed]

>

>

__________________________________________________

[Guest guest]

Anne,

Thank you very much for your insight. My daughters

tics were very bad at age four, they are not so bad at

the present time, but they do come and go. Thank you

again for your input.

in OH

--- AnneGinCT@... wrote:

>

> ,

>

> Some of what you are describing sounds very much

> like both OCD and Tourette's

> or a milder tic disorder. Although it is very

> common for children with OCD

> to has some tics without it being " full blown "

> Tourettes's " . That is what my

> son has had in the past - lots of facial tics

> starting in 2nd grade but now

> we rarely notice any (he is 14 now) - when he is

> more stressed out, the tics

> are more noticible - by us - the rest of the world

> would think his nose must

> itch - I actually had him tested for alergies before

> he was diagnosed at 7

> because he was sniffling and scrunching his nose so

> much. The licking and

> kissing could be either a ritual or a complex motor

> tic - the difference

> might be wether the compulsion " must " be done right

> then or a tic which can

> be delayed to some extent. There is something called

> YBOCS - it is a

> checklists for both obsessions and compulsions and a

> different list of tics -

> motor as well as vocal. There may be a list

> available on the OC Foundation

> website - ocfoundation.org - The Yale Child Study

> Center OCD & Tic Disorder

> Clinic has a very complete checklist as well.

>

> Good luck in getting a proper assessment.

>

> Anne in CT

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

HI :

Welcome to the group. Thank you for sharing about your daughter's

symptoms.

No one knows exactly why these things happen to our kids. THe most

probable answer for now is that they are neurobiological disorders

and their brain chemicals are not working properly. Luckily it is

possible to treat these symptoms even though we don't know what is

causing them.

Six is also a very good age, if you can find competent treatment

providers, to get your daughter treated. The earlier the better.

First it is important to get an accurate diagnosis. When our kids

are young they cannot always distinguish reality from the brain

tricks and error messages that OCD sends. Death obsessions are very

common with our kids, and they can be scary for a parent to

contemplate.

If you share where you live perhaps another parent on the list can

suggest some talented m.h. professionals treating OCD in your area.

This is the answer and it is amazing how well our kids can do when

the get the proper treatment.

My son Steve, was dxed at 10 and is now 15. It took quite a lot of

effort and many tries for him to get going with E & RP but now he is a

master of self-administered E & RP. HE is on Celexa for his depression

and this is working well still. Take care, aloha, kathy (h)

kathyh@...

>

> Hello, I am new to the group and want to share my daughter story.

She is six years old, and has not been dx with OCD yet. She does

alot of different things that leads me to believe she does have OCD.

It started when she was about two. She started to have facial tics,

her eyes, mouth, nose and sometimes all together. She went for about

two months on palm licking over and over again throughout the day.

She went for about two months on kissing everything, when I say

everything I mean everything, even park benches. She then went back

and fourth with the two for a while. Now she is taking both of her

hands putting them together (as if she was going to fold them) and

cracking her nuckles. She does all day long. To me it seems as if

she is not even aware of herself doing this. She also went through a

phase of clearing her throut (grunting almost).

> She has seen two different neurologist and still no answers. The

first doctor said it to very possibly be Tourettes Syndrome, but I

did not think that was the case. She has had an EEG in which came

back showing spikes (very little) but nothing was done because they

said it could not be seizors happening all day. She has also had a

MRI and CT which both came back normal. She starts counceling next

week.

>

> I still have no answers as to why these things are happening to

her. She is very afraid of the dark, at one point she would see

people in the house (a man and a boy) that she would dream about and

then she would see them in the house, she was very afraid of the man,

but she loved the boy, she said they would play together in the sky

on a swing set. I do not know if this has to do with anything but

she was so afraid of this man, she would cry and ask (at daylight)

why is that man sitting in my chair. It was very strange and scary,

she was just so afraid all of the time. We ended up moving because

she would cry while pulling into the driveway saying, I don't want to

go to this house the man is in there. And now she is not so afraid

all of the time, but she is afraid of death, very afraid of death.

>

> I would love to hear from anyone. I feel this is a wonderful idea

to have these support groups, my daughter also has nystagmus and cone

dystrophy, she is visually impaired, but she functions just as well

as any other six year old. She is in a regular classroom and does

wonderful. We are on support groups for that as well.

>

> Thank you

>

> marypetrovic@y...

[Guest guest]

Hi All! I am Stacie. Mom to a 5 year old boy with high functioning autism. Although we are now leaning to aspergers. He will go in to see a neuropscyh in a couple weeks to see if our thoughts are correct. My son has been in the intensive autism therapy for 2 years now. His intensive therapy ends in July which in a way I am glad as I am tired of having to answer to people when he is sick or we need to do things. But the therapy has helped him tremoundously. Dakota was also diagnosed with ADHD.

Dakota recently had his IEP meeting. And well they didn't put him under the autism criteria they put him under the other health impairment. One thing that upset me was the fact they had us fill out the Gillian Rating scale for Autism and Aspergers. I filled it out and they had the speech teacher fill it out. Why they have someone who only spends 2 hours a week with my son is beyond me. Of course he isn't going to have the symptoms to hear because he can communicate with adults and people in a small group if he feels comfortable. That doesn't mean he doesn't have autism. Well according to her findings he didn't have the symptomes and according to mine he rated average in autism and borderline for aspergers. Yet the school psychologist said that because the results had discrepensies they couldn't tell if it was from the autism or not. Fine whatever, they aren't doctors and can't diagnosis. And the speech teacher only thinks of extremely autistic kids and people seem to forget every kid is different. Well the lady from the county was at the IEP and I flat out said to all of them. Aren't you concerned with how he withdraws himself from the other kids. And the lady from the county said how does he do that. well the response was first he brings a toy to school and can play at free time. He will play alone with that toy. Other kids don't go up to him maybe if they did he would let them play. The county lady said rudely solve the problem don't let him bring toys it would force him to be social. Which isn't true as he goes off by himself and then grabs a notebook and writes in it. Also even his teacher has noticed the withdrawal getting worse every day. Another example was that he was doing a project in class while everyone in the room was talking he wasn't talking to anyone in there but doing his project. The lady at the county flat out said oh that don't sound like characteristic to me. I said to her well I am sorry but you are WRONG. First of all this is a everyday occurrence regardless if he brings his toys in, when he gets home his routine is to go in his room and spend hours in there playing with his stuffed dog, and heaven forbid anyone go in there to check on him as he gets mad and starts yelling and calling names as he doesn't want to be distirbed. This is EVERY DAY!!

Now to top this all off is my son is at risk of losing his autism intenisve therapy as lately we have not maintained 20 hours per week. There were lots of factors involved, for example dakota is sick a lot. And when he is sick and has a fever he can't go to school and his therapists can't work with him. Another reason was that the company was understaffed. Yet the lady at the county said that as a parent it's my fault. Sorry I can't help unforseen circumstances. Well I called a advocate and we looked into it more. I found out that she isn't doing her job. For one she reported us to the state without even bothering to help correct teh situation. She is suppose to get with the provider to see about being able to provide 20 hours. WEll obviously that is what the meeting is on Monday. But if they can't provide 20 hours she is suppose to be offering another company she did NOT do that. Also if he is sick a lot and the therapy is helping then we have to find out if there is another type of therapy or alternative that we could be doing. She has not done that. So Monday we have the meeting and lets just say it's not going to be pretty. I complained to her boss but he blew me off. If I get upset during the meeting I am ending the meeting and my advocate will attend the next meeting with me. I have fought for 5 years I will not stop now. However my umph is running out. I have been thru a lot in 5 years. And if I had to do it again I would.

Ok now that i Have rambled on enough and vented I feel better. LOL I hope you all have a great weekend.

Stacie

[Guest guest]

Welcome Stacie! It sounds to me like you are on top of things and are doing a wonderful job of advocating for Dakota to make sure he gets the services he needs and deserves. It is a long, hard fight and with HFA and AS, at least as far as I can see (and my dd is almost 14) it is a continuing fight against educators and people in general who do not have any knowledge of the conditions but yet make assumptions based on what they can "see". Well, they are not seeing what is there because they do not know what to look for!!! Sure these kids are intelligent, is that not in the criteria "average to above average intelligence"? It is their social, interpersonal, sensory etc issues that separate them, not their intelligence. For some reason, there is a prejudice here. If someone is diabetic, or has cancer etc, they can have those conditions and not be expected to fit a "certain" mold as far as intelligence or behavior goes but with autism, everyone automatically pictures

Rainman and that is it! It can be SO frustrating! Sorry for the venting, I have been dealing with alot of those frustrations myself lately and it you do sometimes run out of steam but just do your best to relax over the holidays, enjoy your little man and go in swinging after the new year if necessary! Glad you are here with us! Good luck and God bless! DeeDeeA49erfangirl@... wrote: Hi All! I am Stacie. Mom to a 5 year old boy with high functioning autism. Although we are now leaning to aspergers. He will go in to see a neuropscyh in a couple weeks to see if our thoughts are correct. My son has been in the intensive autism therapy for 2 years now. His intensive therapy ends in July which in a way I am glad as I am tired of having to answer to people when he is sick or we need to do things. But the therapy has helped him tremoundously. Dakota was also diagnosed with ADHD. Dakota recently had his IEP meeting. And well they didn't put him under the autism criteria they put him under the other health impairment. One thing that upset me was the fact they had us fill out the Gillian Rating scale for Autism and Aspergers. I filled it out and they had the speech teacher fill it out. Why they have someone who only spends 2 hours a week with my son is beyond me. Of course he isn't going to have the

symptoms to hear because he can communicate with adults and people in a small group if he feels comfortable. That doesn't mean he doesn't have autism. Well according to her findings he didn't have the symptomes and according to mine he rated average in autism and borderline for aspergers. Yet the school psychologist said that because the results had discrepensies they couldn't tell if it was from the autism or not. Fine whatever, they aren't doctors and can't diagnosis. And the speech teacher only thinks of extremely autistic kids and people seem to forget every kid is different. Well the lady from the county was at the IEP and I flat out said to all of them. Aren't you concerned with how he withdraws himself from the other kids. And the lady from the county said how does he do that. well the response was first he brings a toy to school and can play at free time. He will play alone with that toy. Other kids don't go up to him maybe if they did he would let them play. The

county lady said rudely solve the problem don't let him bring toys it would force him to be social. Which isn't true as he goes off by himself and then grabs a notebook and writes in it. Also even his teacher has noticed the withdrawal getting worse every day. Another example was that he was doing a project in class while everyone in the room was talking he wasn't talking to anyone in there but doing his project. The lady at the county flat out said oh that don't sound like characteristic to me. I said to her well I am sorry but you are WRONG. First of all this is a everyday occurrence regardless if he brings his toys in, when he gets home his routine is to go in his room and spend hours in there playing with his stuffed dog, and heaven forbid anyone go in there to check on him as he gets mad and starts yelling and calling names as he doesn't want to be distirbed. This is EVERY DAY!! Now to top this all off is my son is at risk of losing his

autism intenisve therapy as lately we have not maintained 20 hours per week. There were lots of factors involved, for example dakota is sick a lot. And when he is sick and has a fever he can't go to school and his therapists can't work with him. Another reason was that the company was understaffed. Yet the lady at the county said that as a parent it's my fault. Sorry I can't help unforseen circumstances. Well I called a advocate and we looked into it more. I found out that she isn't doing her job. For one she reported us to the state without even bothering to help correct teh situation. She is suppose to get with the provider to see about being able to provide 20 hours. WEll obviously that is what the meeting is on Monday. But if they can't provide 20 hours she is suppose to be offering another company she did NOT do that. Also if he is sick a lot and the therapy is helping then we have to find out if there is another type of therapy or alternative that we could be doing.

She has not done that. So Monday we have the meeting and lets just say it's not going to be pretty. I complained to her boss but he blew me off. If I get upset during the meeting I am ending the meeting and my advocate will attend the next meeting with me. I have fought for 5 years I will not stop now. However my umph is running out. I have been thru a lot in 5 years. And if I had to do it again I would. Ok now that i Have rambled on enough and vented I feel better. LOL I hope you all have a great weekend. Stacie __________________________________________________

[Guest guest]

Thanks DeeDee!! What you said is true. You know the funny thing is when we went to the neurologists the other day, he said to me that he admires how I keep fighting for dakota. When I think something is wrong I keep going. That made me feel good that a stranger could notice that. He's not really a stranger per say but someone dakota has only see three times and we see him every year. He also commented on the autism. He said looking at dakota I see he uses facial expressions a lot to get his point across and not as many words. I don't think he really said any words while we were there. Yesterday he had a great day at school. he didn't withdraw from the kids. He was pretty social which was great. He was in a excellent mood. I was rather proud of him when I heard that. I am thankful for this group. Just by reading a lot of the posts a lot of you go thru simliar things and it's nice to know someone actually understands the frustrations. I suppose I should get off this computer and get ready. I have to work today and in between working I have some baking to do. I have so much to yet before Christmas. Seems like I don't have enough time in the day.

Stacie

[Guest guest]

Thanks DeeDee!! What you said is true. You know the funny thing is when we went to the neurologists the other day, he said to me that he admires how I keep fighting for dakota. When I think something is wrong I keep going. That made me feel good that a stranger could notice that. He's not really a stranger per say but someone dakota has only see three times and we see him every year. He also commented on the autism. He said looking at dakota I see he uses facial expressions a lot to get his point across and not as many words. I don't think he really said any words while we were there. Yesterday he had a great day at school. he didn't withdraw from the kids. He was pretty social which was great. He was in a excellent mood. I was rather proud of him when I heard that. I am thankful for this group. Just by reading a lot of the posts a lot of you go thru simliar things and it's nice to know someone actually understands the frustrations. I suppose I should get off this computer and get ready. I have to work today and in between working I have some baking to do. I have so much to yet before Christmas. Seems like I don't have enough time in the day.

Stacie