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RE: Re: Ports question

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jmfritze wrote:

So I'm trying to prepare

> my husband for all of this. ... can anyone give me a clue what IGIV

> costs? I know it is expensive but have no idea what " expensive is

> considered. "

, I have no idea what the cost is now. But our insurance covered

every penny of it -- no co-pay or anything. Everytime 's employer

changed insurance plans, we cringed, but we were always able to find one

of the plans that would pay 100% of the IVIG.

In His service,

dale

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,

Tim's ivig at home costs about $3-4k -- we pay the first $600 out of pocket

for any medical expense and then the rest is covered. This doesn't include the

lab tests.

Pam

Tim - age 15 cvid

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It depends on the insurance. With our first insurance company we had to pay

20% and that came out to a large amount-especially with two boys getting it.

The total for our portion each month (including hospital, physician and the

IVIG) was about $1600 total (800 a piece) until we met our out of pocket max

of 6k. With the current insurance we had to pay $255 per kid per infusion

so a total of $510 per infusion until we meet our out of pocket max. On top

of that we were only charged a $20 co-pay for each kid to the physician-so

really the total was $550 ($275) for both each time. The hospital charged

$1534 - so just paying our 20% of that is a lot... the last insurance did

not charge the physician as a " visit " so we had to pay $125 each time--

this insurance sees it as a visit and our co-pay is all we pay.

We had many reasons to go with SCIG vs IVIG. the vein access, being able to

do it at home and of course the $$$ we save not having a hospital or doctor

fee! Our current insurance runs it through our pharmacy benefit and we just

pay a drug co-pay. IVIG at the hospital wasn't done that way.

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

Thanks for the input everyone. it will be interesting to see what the

doc says. I'll let you know what we decide. So I'm trying to prepare

my husband for all of this. ... can anyone give me a clue what IGIV

costs? I know it is expensive but have no idea what " expensive is

considered. " Thanks

_____

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OH WOW! You were certainly lucky!!! The insurance with this employer is

better than the last, but it still costs us quite a bit!

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

_____

, I have no idea what the cost is now. But our insurance covered

every penny of it -- no co-pay or anything. Everytime 's employer

changed insurance plans, we cringed, but we were always able to find one

of the plans that would pay 100% of the IVIG.

In His service,

dale

_____

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OH WOW! You were certainly lucky!!! The insurance with this employer is

better than the last, but it still costs us quite a bit!

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

_____

, I have no idea what the cost is now. But our insurance covered

every penny of it -- no co-pay or anything. Everytime 's employer

changed insurance plans, we cringed, but we were always able to find one

of the plans that would pay 100% of the IVIG.

In His service,

dale

_____

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That was supposed to read the hospital charged $1534 for the IVIG

The hospital charged

$1534 - so just paying our 20% of that is a lot... the last insurance did

not charge the physician as a " visit " so we had to pay $125 each time--

this insurance sees it as a visit and our co-pay is all we pay.

Peace Be With You,

~Pattie~

Piedmont Triad, NC

Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

and ph, age 8, Shwachman-Diamond Syndrome

Our family website: www.shwachman.50megs.com

_____

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I could not begin to tell you what it would cost becuase my insurance

pays it all.

Cassie

jmfritze wrote:

> >

> > The decision is personal, it must be made with full knowledge.

> Would I

> > put in a port to start with? -- no, but some doctors do! Hope that

> > helps and doesn't muddy the water too much.

>

>

> Thanks for the input everyone. it will be interesting to see what the

> doc says. I'll let you know what we decide. So I'm trying to prepare

> my husband for all of this. ... can anyone give me a clue what IGIV

> costs? I know it is expensive but have no idea what " expensive is

> considered. " Thanks

>

> Fritze

> Ana 13mo, IgG, FTT

>

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed

> with a Primary Immune Deficiency. Opinions or medical advice stated

> here are the sole responsibility of the poster and should not be taken

> as professional advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

>

>

>

>

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I guess I will h ave to check into having it done at h ome if this shows

to work out for him.

Cassie

Pattie Curran wrote:

> It depends on the insurance. With our first insurance company we had

> to pay

> 20% and that came out to a large amount-especially with two boys

> getting it.

> The total for our portion each month (including hospital, physician

> and the

> IVIG) was about $1600 total (800 a piece) until we met our out of

> pocket max

> of 6k. With the current insurance we had to pay $255 per kid per infusion

> so a total of $510 per infusion until we meet our out of pocket max.

> On top

> of that we were only charged a $20 co-pay for each kid to the physician-so

> really the total was $550 ($275) for both each time. The hospital

> charged

> $1534 - so just paying our 20% of that is a lot... the last insurance did

> not charge the physician as a " visit " so we had to pay $125 each time--

> this insurance sees it as a visit and our co-pay is all we pay.

>

>

>

> We had many reasons to go with SCIG vs IVIG. the vein access, being

> able to

> do it at home and of course the $$$ we save not having a hospital or

> doctor

> fee! Our current insurance runs it through our pharmacy benefit and

> we just

> pay a drug co-pay. IVIG at the hospital wasn't done that way.

>

>

>

> Peace Be With You,

>

> ~Pattie~

>

> Piedmont Triad, NC

>

> Mom to , age 12 & healthy, , age 9, Shwachman-Diamond Syndrome

> and ph, age 8, Shwachman-Diamond Syndrome

>

> Our family website: www.shwachman.50megs.com

>

>

>

>

>

>

>

> Thanks for the input everyone. it will be interesting to see what the

> doc says. I'll let you know what we decide. So I'm trying to prepare

> my husband for all of this. ... can anyone give me a clue what IGIV

> costs? I know it is expensive but have no idea what " expensive is

> considered. " Thanks

>

>

>

>

>

>

> _____

>

>

>

>

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Dale, I wish we had your " luck " in finding plans to cover it.....we tend

to battle every single thing....and have to fight...but I guess that is

the " blues of IL " . I have new insurance now with my new job...no

premiums and about the same coverage...but haven't had any SCIG go

through yet, so will have to see if it is good or not.

Re: Re: Ports question

jmfritze wrote:

So I'm trying to prepare

> my husband for all of this. ... can anyone give me a clue what IGIV

> costs? I know it is expensive but have no idea what " expensive is

> considered. "

, I have no idea what the cost is now. But our insurance covered

every penny of it -- no co-pay or anything. Everytime 's employer

changed insurance plans, we cringed, but we were always able to find one

of the plans that would pay 100% of the IVIG.

In His service,

dale

This forum is open to parents and caregivers of children diagnosed with

a Primary Immune Deficiency. Opinions or medical advice stated here are

the sole responsibility of the poster and should not be taken as

professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

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