Re: Another roll call - Lurkers - come out come out where ever you are!!!

[Guest guest]

Name: Kim

General Location: New Jersey

Pid Pumpkin:

Age: 9 1/2

Diagnosis: CVID

How long diagnosed: July 2001

On treatment: IVIG 12 grams every 4 weeks and Augmentin 400 MG twice a day

Additional Health Concerns: Also ADHD

is the healthiest one in my house with very few breakthrough

infections since starting antibiotics, in addition to the IVIG. He is very

active but still has regular episodes of moderate to severe fatigue,

especially right before treatment.

[Guest guest]

Dale Weatherford

Location: Mountain View, California

my pumpkin is all grown up and married and living in Florida

age 21

CVID

diagnosed at age 13 - perfectly healthy until age 11

On IVIG for 6 years, SCIG for 2, and now trialing off

I'm gonna' be a grandma! Katy's big brother, and his wife are

volunteer missionaries (one year) in Thailand and are expecting in

September. They will be back in the states in June and will relocate to

Chicago. So, I'll be a long-distance grandma!

[Guest guest]

Name Dayna

General Location/state/city whatever your comfortable with Las Vegas, NV

Pid Pumpkin Charlie

Age 5

Diagnosis IgG subclass, partial antibody deficiency

How long diagnosed 2.5 years

On treatment On 12.5 g IVIG - 2 years of IVIG now

Additional Health Concerns

Pid Pumpkin Kate

Age 3.5 years

Diagnosis IgG, IgA, Partial Antibody, sometimes IgM

How long diagnosed 3 years

On treatment IVIG - 1.5 years, 10g

Additional Health Concerns

Pid Pumpkin

Age 2

Diagnosis IgG, IgA, partial antibody, NK cell

How long diagnosed 1.5 years

On treatment 1 year IVIG, 7.5g

Additional Health Concerns

Tell us a little about yourself/your child, or anything! Really glad to

be a part of this group, and writing for Ig Living - have you

subscribed? It's free to you, and any money made goes back to patient

organizations. www.igliving.com <http://www.igliving.com/>

_____

[Guest guest]

Dayna S Fladhammer wrote:

> It's been a long time since we did this, and we have a few new members -

> plus, I think we have quite a few lurkers!

>

> Name Faye

> General Location/state/city whatever your comfortable with- New

> Brunswick,Canada

> Pid Pumpkin-

> Age 10

> Diagnosis- IgG Def

> How long diagnosed-3 years

> On treatment-Biweekly Ivig- high dose or tx of intractable seizures as

> well as IgG def

> Additional Health Concerns- Severe epilepsy, food and environmental

> allergies, Gi issues(chronic diarrhea), mild developmental delay and

> severe learning disability. Mike is homeschooled and even with all his

> problems , he is doing great

>

>

> Tell us a little about yourself/your child, or anything!

>

> This may be a good way to connect with others in your area, or your

> childs age range

>

>

>

[Guest guest]

Name:

General Location: Iowa

Pid Pumpkin: Caelan

Age: 6 1/2

Diagnosis: IgG def, subclass def, antigen proliferation defect, pneumo

antibody def.

How long diagnosed: March 2001

On treatment: don't know right now. We've been doign antibiotics,just went

through new testing. He's been off IVIG for a few years

Additional Health Concerns: asthma, severe food allergies, EE, GERD

Caelan has been doing really well the past few years with hardly any illness

and staying at home mostly. Due to his food allergies the preschools wouldn't

take him. He started KG this year and everything went to heck. We are awaiting

a new round of full testing (prelim was low IgG, high IgM) and will formulate a

plan based on that. We have pulled him out of KG until the severe illnesses

pass.

[Guest guest]

Name:

General Location: Iowa

Pid Pumpkin: Caelan

Age: 6 1/2

Diagnosis: IgG def, subclass def, antigen proliferation defect, pneumo

antibody def.

How long diagnosed: March 2001

On treatment: don't know right now. We've been doign antibiotics,just went

through new testing. He's been off IVIG for a few years

Additional Health Concerns: asthma, severe food allergies, EE, GERD

Caelan has been doing really well the past few years with hardly any illness

and staying at home mostly. Due to his food allergies the preschools wouldn't

take him. He started KG this year and everything went to heck. We are awaiting

a new round of full testing (prelim was low IgG, high IgM) and will formulate a

plan based on that. We have pulled him out of KG until the severe illnesses

pass.

[Guest guest]

Name: Amy

General Location/state/city: Lincoln, NE

Pid Pumpkin:

Age: 3 years old

Diagnosis:18 months

How long diagnosed: 20 months

On treatment: SCIG

Additional Health Concerns

[Guest guest]

Name Amy

General Location/state/city Billings, MT

Pid Pumpkin Bradley

Age 3.5 years

Diagnosis IgA Def, Partial Antibody Def

How long diagnosed 2 years

On treatment IVIG - no

Additional Health Concerns

Tell us a little about yourself/your child, or anything! This group is a great

blessing to me. Bradley is doing so wonderful eventhough his numbers have not

improved. Prayer is amazing!!

Amy

RE: Another roll call - Lurkers - come out come out where

ever you are!!!

Name Dayna

General Location/state/city whatever your comfortable with Las Vegas, NV

Pid Pumpkin Charlie

Age 5

Diagnosis IgG subclass, partial antibody deficiency

How long diagnosed 2.5 years

On treatment On 12.5 g IVIG - 2 years of IVIG now

Additional Health Concerns

Pid Pumpkin Kate

Age 3.5 years

Diagnosis IgG, IgA, Partial Antibody, sometimes IgM

How long diagnosed 3 years

On treatment IVIG - 1.5 years, 10g

Additional Health Concerns

Pid Pumpkin

Age 2

Diagnosis IgG, IgA, partial antibody, NK cell

How long diagnosed 1.5 years

On treatment 1 year IVIG, 7.5g

Additional Health Concerns

Tell us a little about yourself/your child, or anything! Really glad to

be a part of this group, and writing for Ig Living - have you

subscribed? It's free to you, and any money made goes back to patient

organizations. www.igliving.com <http://www.igliving.com/>

_____

[Guest guest]

Name Amy

General Location/state/city Billings, MT

Pid Pumpkin Bradley

Age 3.5 years

Diagnosis IgA Def, Partial Antibody Def

How long diagnosed 2 years

On treatment IVIG - no

Additional Health Concerns

Tell us a little about yourself/your child, or anything! This group is a great

blessing to me. Bradley is doing so wonderful eventhough his numbers have not

improved. Prayer is amazing!!

Amy

RE: Another roll call - Lurkers - come out come out where

ever you are!!!

Name Dayna

General Location/state/city whatever your comfortable with Las Vegas, NV

Pid Pumpkin Charlie

Age 5

Diagnosis IgG subclass, partial antibody deficiency

How long diagnosed 2.5 years

On treatment On 12.5 g IVIG - 2 years of IVIG now

Additional Health Concerns

Pid Pumpkin Kate

Age 3.5 years

Diagnosis IgG, IgA, Partial Antibody, sometimes IgM

How long diagnosed 3 years

On treatment IVIG - 1.5 years, 10g

Additional Health Concerns

Pid Pumpkin

Age 2

Diagnosis IgG, IgA, partial antibody, NK cell

How long diagnosed 1.5 years

On treatment 1 year IVIG, 7.5g

Additional Health Concerns

Tell us a little about yourself/your child, or anything! Really glad to

be a part of this group, and writing for Ig Living - have you

subscribed? It's free to you, and any money made goes back to patient

organizations. www.igliving.com <http://www.igliving.com/>

_____

[Guest guest]

>Name - Karin Hart

General Location- Perkasie, Pa.

Pid Pumkin - Hart

Age - 14 (15 on the first of May)

Diagnosis- IGA immune Def., Asthma

How long diagnosed?- Since he was 15 months old.

On treatment- As far as we know there is none. Antibiotics for

bacterial infections. Fluids when he gets dehydrated etc.

I am a lurker. Not that I want to be it just that life has thrown me

and my family some bumps in the road. My computer blew so I can

only get on once in a while from work. My oldest daughter has also

been diagnosed Bi-polar, and depressed. This can really make things

diffucult. The highs and lows this kid goes through is

incrediable!! Now shes into heavy drugs and things are getting

worse. Add a PId to the mix with all these virsus and such going

around and life can get next to impossible sometimes. Only by the

grace of God am I still here. So please excuse the lurking. I will

try to stay in touch more often now that I have a parttime job and a

computer to use. If there is anyone in my general area, please let

me know. Thanks.

Karin Hart.

> It's been a long time since we did this, and we have a few new

members -

> plus, I think we have quite a few lurkers!

>

> Name

> General Location/state/city whatever your comfortable with

> Pid Pumpkin

> Age

> Diagnosis

> How long diagnosed

> On treatment

> Additional Health Concerns

>

>

> Tell us a little about yourself/your child, or anything!

>

> This may be a good way to connect with others in your area, or your

> childs age range

>

>

>

[Guest guest]

We are having our house remodeled (yipee!) and it has caused me to be without my

computer for almost 3 weeks!

So now that we are up and running again...her is our roll call info.

Name: Becki

Location: Bulverde, Texas

Pid Pumpkin: Reagon

Age: 4 (will be 5 in May)

Diagnosis: CVID

How long diagnosed:4 yrs.

Treatment: None at the time...doing very, very well

Additional Health Concerns: Food allergies, can have severe eczema at times and

has moderate asthma

Re: Another roll call - Lurkers - come out come out where

ever you are!!!

Dayna S Fladhammer wrote:

> It's been a long time since we did this, and we have a few new members -

> plus, I think we have quite a few lurkers!

>

> Name Faye

> General Location/state/city whatever your comfortable with- New

> Brunswick,Canada

> Pid Pumpkin-

> Age 10

> Diagnosis- IgG Def

> How long diagnosed-3 years

> On treatment-Biweekly Ivig- high dose or tx of intractable seizures as

> well as IgG def

> Additional Health Concerns- Severe epilepsy, food and environmental

> allergies, Gi issues(chronic diarrhea), mild developmental delay and

> severe learning disability. Mike is homeschooled and even with all his

> problems , he is doing great

>

>

> Tell us a little about yourself/your child, or anything!

>

> This may be a good way to connect with others in your area, or your

> childs age range

>

>

>