HELP! re SSI etc- venting, very frustrated-kinda long-sorry

[Guest guest]

Hello all! I am very upset and frustrated as my daughter has AGAIN been

turned down for SSI. I had to leave a lucrative job with excellent

benefits a couple years ago to be able to be here and give her the help

and supervision she needs. As a result I am working at home on a VERY

tight budget (not enough really and I drive a 1992 car with 213,000

miles on it, live in a small town rent a house etc) So I have been

trying to get her on SSI to supplement my income (single mom of three)

so I can at least pay all the basics every month without juggling and

going without basics.

Noone will watch her before and after school because she is 13 and is

not very pleasant with others in general. and she acts out and is much

more violent when I am working outside the home as well as my not being

able to work 40 hours per week and drive another 10-15 (as I said, we

live in a rural area so to get to a " good " job that pays decently, I

would have to drive 50-60 miles one way daily)That is simply not

possible given her problems and all it requires from me.

She receives services through the mental health waiver. Her dx are AS,

ADHD, ODD, and mood disorder nos at the moment. She receives in home

therapy and social skills training once per week. They say it doesn't

cause a severe and marked difficulty in day to day activities so she

does not qualify! WHAT IN THE HECK ARE THEY SAYING!? It has affected

the entire family and the only reason she is doing even as well as she

is is BECAUSE I gave up my career and am home dealing with her day to

day but they will not help me be able to do that!

I was wondering if anyone else has had a similar experience and has any

ideas to help me out!

Thank you and God Bless!

DeeDee

[Guest guest]

I was under the impression that Asperger Syndrome doesn't qualify - only autism and then you need a lawyer to get it - but I am not sure?jdcorbin_2000 <jdcorbin_2000@...> wrote: Hello all! I am very upset and frustrated as my daughter has AGAIN been turned down for SSI. I had to leave a lucrative job with excellent benefits a couple years ago to be able to be here and give her the help and supervision she needs. As a result I am working at home on a VERY tight budget (not enough really and I drive a 1992

car with 213,000 miles on it, live in a small town rent a house etc) So I have been trying to get her on SSI to supplement my income (single mom of three) so I can at least pay all the basics every month without juggling and going without basics. Noone will watch her before and after school because she is 13 and is not very pleasant with others in general. and she acts out and is much more violent when I am working outside the home as well as my not being able to work 40 hours per week and drive another 10-15 (as I said, we live in a rural area so to get to a "good" job that pays decently, I would have to drive 50-60 miles one way daily)That is simply not possible given her problems and all it requires from me. She receives services through the mental health waiver. Her dx are AS, ADHD, ODD, and mood disorder nos at the moment. She receives in home therapy and social skills training once per week. They say it

doesn't cause a severe and marked difficulty in day to day activities so she does not qualify! WHAT IN THE HECK ARE THEY SAYING!? It has affected the entire family and the only reason she is doing even as well as she is is BECAUSE I gave up my career and am home dealing with her day to day but they will not help me be able to do that! I was wondering if anyone else has had a similar experience and has any ideas to help me out! Thank you and God Bless! DeeDee If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like

a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Dee Dee, I understand your frustration. I had SSI for my son Avery, dx Autism, ADHD. For about 8 months back in 2001 right after he was diagnosed. At first he was receiving full benefits, which lasted only about three months after that I got letter after letter saying he was over paid in this month and that. I never could understand why. It had gotten down to $23 a month. By this time he was in school and needed uniforms, breakfast/lunch money and supplies for school. At that time my husband had not graduated college yet, so he was not yet a teacher. I was an assistant manager for Popeye's, which still am. The last letter I got from Them stated that Avery was no longer eligible for benefits because our monthly income was too high. Now mind you I also have a daughter to take care of. I don't understand what my income has to do with benefits for him. When he was getting it I used his benefits strictly for him and kept every receipt as proof. Some times it seems to me that they want to give benefits to those that are going to abuse the and not those that really need them. Good Luck and keep on trying :-)

Hope StudentPineville, Louisianamsyogi@...

HELP! re SSI etc- venting, very frustrated-kinda long-sorry

Hello all! I am very upset and frustrated as my daughter has AGAIN been turned down for SSI. I had to leave a lucrative job with excellent benefits a couple years ago to be able to be here and give her the help and supervision she needs. As a result I am working at home on a VERY tight budget (not enough really and I drive a 1992 car with 213,000 miles on it, live in a small town rent a house etc) So I have been trying to get her on SSI to supplement my income (single mom of three) so I can at least pay all the basics every month without juggling and going without basics. Noone will watch her before and after school because she is 13 and is not very pleasant with others in general. and she acts out and is much more violent when I am working outside the home as well as my not being able to work 40 hours per week and drive another 10-15 (as I said, we live in a rural area so to get to a "good" job that pays decently, I would have to drive 50-60 miles one way daily)That is simply not possible given her problems and all it requires from me. She receives services through the mental health waiver. Her dx are AS, ADHD, ODD, and mood disorder nos at the moment. She receives in home therapy and social skills training once per week. They say it doesn't cause a severe and marked difficulty in day to day activities so she does not qualify! WHAT IN THE HECK ARE THEY SAYING!? It has affected the entire family and the only reason she is doing even as well as she is is BECAUSE I gave up my career and am home dealing with her day to day but they will not help me be able to do that! I was wondering if anyone else has had a similar experience and has any ideas to help me out! Thank you and God Bless! DeeDee

[Guest guest]

** DEE DEE Said--

the entire family and the only reason she is doing even as well as she is is BECAUSE I gave up my career and am home dealing with her day to day but they will not help me be able to do that! I was wondering if anyone else has had a similar experience and has any ideas to help me out! Thank you and God Bless! DeeDee

** DEE DEE

I have heard over and over from many online people and friends and just about anyone who has applied for SSI that at first MOST are turned down. TRY TRY AGAIN!

Also, if this does not work after the third time, hire an attorney. If you hire one this second time, you should get through and get it, if you qualify. IF they are out to give you a hard time, they will stop when at attorney is involved. Do not give up.

in ILLINOIS

[Guest guest]

One certain expert said the only difference between Aspergers and High Functioning Autism is the name......

Re: HELP! re SSI etc- venting, very frustrated-kinda long-sorry

I was under the impression that Asperger Syndrome doesn't qualify - only autism and then you need a lawyer to get it - but I am not sure?jdcorbin_2000 <jdcorbin_2000 > wrote:

Hello all! I am very upset and frustrated as my daughter has AGAIN been turned down for SSI. I had to leave a lucrative job with excellent benefits a couple years ago to be able to be here and give her the help and supervision she needs. As a result I am working at home on a VERY tight budget (not enough really and I drive a 1992 car with 213,000 miles on it, live in a small town rent a house etc) So I have been trying to get her on SSI to supplement my income (single mom of three) so I can at least pay all the basics every month without juggling and going without basics. Noone will watch her before and after school because she is 13 and is not very pleasant with others in general. and she acts out and is much more violent when I am working outside the home as well as my not being able to work 40 hours per week and drive another 10-15 (as I said, we live in a rural area so to get to a "good" job that pays decently, I would have to drive 50-60 miles one way daily)That is simply not possible given her problems and all it requires from me. She receives services through the mental health waiver. Her dx are AS, ADHD, ODD, and mood disorder nos at the moment. She receives in home therapy and social skills training once per week. They say it doesn't cause a severe and marked difficulty in day to day activities so she does not qualify! WHAT IN THE HECK ARE THEY SAYING!? It has affected the entire family and the only reason she is doing even as well as she is is BECAUSE I gave up my career and am home dealing with her day to day but they will not help me be able to do that! I was wondering if anyone else has had a similar experience and has any ideas to help me out! Thank you and God Bless! DeeDee

If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.10.5/403 - Release Date: 7/28/2006

[Guest guest]

They only thing I can tell you is to keep appealing. I had to appeal my sons 4 times before he was approved. There are lawyers that deal with SSI that do not charge unless you are approved and they take a portion of the retroactive check. I am also a single mom to 3 boys so i know how hard it is doing it alone. I work from home selling Discovery Toys because I can't work a regular 9-5 job. Some people just do not understand. Cody and jacob-6 Austin-5 www.discoverytoyslink.com/brendawaleski <freecyclemail@...> wrote: One certain expert said the only difference between Aspergers and High Functioning Autism is the name...... Re: HELP!

re SSI etc- venting, very frustrated-kinda long-sorry I was under the impression that Asperger Syndrome doesn't qualify - only autism and then you need a lawyer to get it - but I am not sure?jdcorbin_2000 <jdcorbin_2000 > wrote: Hello all! I am very upset and frustrated as my daughter has AGAIN been turned down for SSI. I had to leave a lucrative job with excellent benefits a couple years ago to be able to be here and give her the help and supervision she needs. As a result I am working at home on a VERY tight budget (not enough really and I drive a 1992 car with 213,000 miles on it, live in a small town rent a house etc) So I have been trying to get her on SSI to supplement my income (single mom of

three) so I can at least pay all the basics every month without juggling and going without basics. Noone will watch her before and after school because she is 13 and is not very pleasant with others in general. and she acts out and is much more violent when I am working outside the home as well as my not being able to work 40 hours per week and drive another 10-15 (as I said, we live in a rural area so to get to a "good" job that pays decently, I would have to drive 50-60 miles one way daily)That is simply not possible given her problems and all it requires from me. She receives services through the mental health waiver. Her dx are AS, ADHD, ODD, and mood disorder nos at the moment. She receives in home therapy and social skills training once per week. They say it doesn't cause a severe and marked difficulty in day to day activities so she does not qualify! WHAT IN THE HECK ARE THEY SAYING!? It has affected

the entire family and the only reason she is doing even as well as she is is BECAUSE I gave up my career and am home dealing with her day to day but they will not help me be able to do that! I was wondering if anyone else has had a similar experience and has any ideas to help me out! Thank you and God Bless! DeeDee If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that

loves you more than he loveshimself.Josh Billings Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.10.5/403 - Release Date: 7/28/2006

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Seems like MOST people do not understand. It was somewhat easier for me when she was younger because at least them people expected her to act some of the ways she did and the rest was more acceptable. Not to mention that trying to get childcare for a 5 ft 2 in tall 105# "child" is not really possible where I live! That you , guess all I CAN do is TRY to find a lawyer who knows SOMETHING about autism and AS and go from there. Good luck and God bless!DeeDee <bjwaleski@...> wrote: They only thing I can tell you is to keep appealing. I had to appeal my sons 4 times before he was approved. There are lawyers that deal with SSI that do not charge unless you are approved and they take a portion of the retroactive check. I am also a single mom to 3 boys so i know how hard it is doing it alone. I work from home selling Discovery Toys because I can't work a regular 9-5 job. Some people just do not understand. Cody and jacob-6 Austin-5 www.discoverytoyslink.com/brendawaleski <freecyclemailcomcast (DOT) net> wrote: One certain expert said the only difference between Aspergers and High Functioning Autism

is the name...... Re: HELP! re SSI etc- venting, very frustrated-kinda long-sorry I was under the impression that Asperger Syndrome doesn't qualify - only autism and then you need a lawyer to get it - but I am not sure?jdcorbin_2000 <jdcorbin_2000 > wrote: Hello all! I am very upset and frustrated as my daughter has AGAIN been turned down for SSI. I had to leave a lucrative job with excellent benefits a couple years ago to be able to be here and give her the help and supervision she needs. As a result I am working at home on a VERY tight budget (not enough really and I drive a 1992 car with 213,000 miles on it, live in a small town rent a house etc) So I have been trying to get her on SSI to supplement my income (single mom of three) so I can at least pay all the basics every month without juggling and going without basics. Noone will watch her before and after school because she is 13 and is not very pleasant with others in general. and she acts out and is much more violent

when I am working outside the home as well as my not being able to work 40 hours per week and drive another 10-15 (as I said, we live in a rural area so to get to a "good" job that pays decently, I would have to drive 50-60 miles one way daily)That is simply not possible given her problems and all it requires from me. She receives services through the mental health waiver. Her dx are AS, ADHD, ODD, and mood disorder nos at the moment. She receives in home therapy and social skills training once per week. They say it doesn't cause a severe and marked difficulty in day to day activities so she does not qualify! WHAT IN THE HECK ARE THEY SAYING!? It has affected the entire family and the only reason she is doing even as well as she is is BECAUSE I gave up my career and am home dealing with her day to day but they will not help me be able to do that! I was wondering if anyone else has had a similar experience and has

any ideas to help me out! Thank you and God Bless! DeeDee If there are no dogs in Heaven, then when I die I want to go where they wentWill There is no psychiatrist in the world like a puppy licking your face.Ben A dog is the only thing on earth that loves you more than he loveshimself.Josh Billings Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.394 / Virus Database: 268.10.5/403 - Release Date: 7/28/2006 Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

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[Guest guest]

>

I chose to not take SSI because even though we qualified, the amount

was too small for our trouble and I would have to go on Medi-cal which

would disqualify my son for Healthy Families insurance which is much

better. It just wasn't worth it.

A friend of mine told me a good place to get answers in dealing with

the system, join this group:

Disability-SSD-SSI/

[Guest guest]

Find an attorney who does nothing but disability cases. Our child appears

high functioning (in a small quiet room with low key person for a few

minutes) and was constantly overlooked by his teachers and speech

therapist as having autism. The pediatric neurologist diagnosed him at age

7 and still teachers and speech therapist could not believe he is

autistic. I mention this because their reports caused problems with

securing SSI - the first time around. Because the attorney was experienced

he suggested I bring our child into his office for a visit. After

listening to 20 minutes of non-stop talk about the current obsession

(video games), the attorney looked at me and said " no problem " as in " no

problem in getting SSI " . This attorney persisted with the case, got an

evaluation for speech/language at the state disability office during which

the evaluator asked me why we were doing this (evaluation) as this child

is clearly disabled. He has been on SSI since January of this year.

The key is to find a competent disability attorney and to keep copies of

reports. The system is designed to encourage really disabled people who

cannot advocate for themselves and who have no advocate TO give up. Never

give up. It can take 2 years.

Then, once your child is on SSI, keep meticulous records of therapies and

how you are spending the money on the child.

Priscilla in Kansas

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