A little update on

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Hey everyone, I had origionally posted a post about having concerns that might be having seziures, but after having posted that and then having watched him more closely during one of his "episodes", I have determined that I probably over reacted. When he got that way, i could get down in the floor to check out his face and he would turn his head and look at me. Today when I called his name he looked up and said mommy. I guess he was just overloaded sensory wise or he's stimming like another mom mentioned. I'm still going to bring it up to his Dev Ped when we go on the 8th. I didn't get to take him to the regular Ped today and the only other time I can take him is the 22nd of March. I'm not as really freaked out about it as I was before so I'm ok with this. Also, I had his PPCD teacher fill out her questionaire and I was really surprised with the answers. I was expecting them to be totally different from mine, but they were pretty much

along the same lines as what I put. I noticed that there were a few things that she put he did it more often than I did and then there were some where she put that he did it less often then what I had put on my paper. She said that she never saw him flap his hands though, but I have seen that at home and out at town on several occasions, but I'm just relieved I guess that there wasn't such a huge difference in our two reports. I'm sure that you have all read the posts about what type of person my mother is, so my next question to you all is should I tell her if they do give him a diagnoses, or just tell only the people that are supportive? Thanks again everyone. Leighanne

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Hi Leighanne,

I enjoyed your reflection, saying you may have overreacted a bit to your son lying on the floor, I can sure relate with that. Over the years I have been one big overreaction at times, but am not that way today. Well, my son is 41 years old now, and I guess I have just mellowed out. He has had seizures all of his life, since the age of 2 actually, and what I have to control myself to not overreact about now is when he has one, to just deal with it, and then let it go. It is the days when he has four or five in a row, the bad ones, that I lose this ability and began to freak out, but even at that, I know that his brain will finally stop doing it, and he will be fine, and he hasn't had days like that in quite awhile.

What bothers me now is his cough, he has been coughing lately. Last year he had pneumonia and had to have lung surgery so I overreact some to his cough. But he isn't doing it much so I don't think he is sick, but he does look a little pale too, he doesn't talk so I have to be able to see things he cannot tell me.

On the other hand I take care of three of my grandchildren while their mother works, and so kind of overreact to them. She was sick for a week, and is on vacation now, so I am getting quite a rest from them. Anyway the little guy, Lucas, who is 19 month's old likes to bang his head on the floor when something upsets him. Also he likes to rock to music. These behaviors make his mom wonder about him, whether something is wrong, but I don't think so. Is just his way of expressing himself I think, I hope.

Right now my 8 year old granddaughter, Sierra, is chewing her nails, has done it off and on, but it is much worse I noticed the last few days. She has them down to a nub, and has had really sore ones requiring a band aid. I read up on it on Google, and most of the information said to play it down, talk about it, but don't scold and don't get the bad tasting stuff, just reassure her, etc.

I think part of it is she is home with her mom more now, and her mom is a basket case lately, has many stresses in her life, and is quite expressive about it with anger, cussing, etc., where I do not do that over here, am usually very low key, have LEARNED this over the years, something about age I think mellowing a person out.

Well have to run get from school, the 5 year old. I am so nice to take them and I pick one of the up, but my daughter will have to go and get her daughter at 2:45, draw the line there on the "grandma express."

Anyway just wanted to let you know we love you, and we are here to support you in every way we can. I belong to several on line groups, and have found they are very good support groups, even to vent about troubling relationships, like your mom. Only you know her, but I suppose, from my perspective you should tell her if there is a diagnosis for your son. I mean she is your mom, but then again I am not sure.

And thanks for inspiring me today, you young mothers doing what I did really touch me a lot. Yes, it is a long road with a disabled child, but can be a wonderful road too. My son is really a blessing to me, and our household.

Much love,

Carolyn in Oregon

A little update on

Hey everyone, I had origionally posted a post about having concerns that might be having seziures, but after having posted that and then having watched him more closely during one of his "episodes", I have determined that I probably over reacted. When he got that way, i could get down in the floor to check out his face and he would turn his head and look at me. Today when I called his name he looked up and said mommy. I guess he was just overloaded sensory wise or he's stimming like another mom mentioned. I'm still going to bring it up to his Dev Ped when we go on the 8th. I didn't get to take him to the regular Ped today and the only other time I can take him is the 22nd of March. I'm not as really freaked out about it as I was before so I'm ok with this. Also, I had his PPCD teacher fill out her questionaire and I was really surprised with the answers. I was expecting them to be totally different from mine, but they were pretty much along the same lines as what I put. I noticed that there were a few things that she put he did it more often than I did and then there were some where she put that he did it less often then what I had put on my paper. She said that she never saw him flap his hands though, but I have seen that at home and out at town on several occasions, but I'm just relieved I guess that there wasn't such a huge difference in our two reports. I'm sure that you have all read the posts about what type of person my mother is, so my next question to you all is should I tell her if they do give him a diagnoses, or just tell only the people that are supportive? Thanks again everyone.

Leighanne

Use Photomail to share photos without annoying attachments.