Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Kathy, Hon, don't let this upset you two. A couple of years ago my alphafetalprotein was high, they did a ultra-sound and found that every thing was okay. Sometimes due to the fact that we have done treatment, and there fore it works to some degree it can cause some hinky blood work. Hubby and you go for the CT scan and I am sure that everything will work out. Love Janetkathy przybyla <kathypfmp@...> wrote: Hello Group!My husband was diagnosed with Hep C four years agowhen he became very ill. He could not toleratetreatment, so the Dr took him off interferon/ribafrina year ago.He has been so weak and unpredictable that he has beenunable to work for four years. The damage to hisliver has changed to Cirrosis last year.The Dr office called the other day and said his tumormarkers were extremely high and he has been scheduledfor a CT Scan at a special facility about an houraway.My question to the group is-has this happened toanyone else and this CT is just a precautionarymeasure-not a jump to expect the worst? Any insightwould be very much appreciated...We are both in apanic and so far the research I have done is not verypromising and I haven't shared my findings with him...Kathy--- Lee <leecuatemsn> wrote:> I did my fifth dose of Pegasys yesterday and so far> everything is > going well. Whats weird is that I still have a black> and blue mark > from my first injection site, since the first one> there has only > been a little redness the next day or two. Maybe the> first injection > shocks your body more?> This is the first day I have taken off since I> started treatment. I > own a plant nursery and have to work at least a few> hours seven days > a week. I have had very few side affects, headaches> a little sore > after loading 200 plus flats of bedding plants on> the delivery > truck, and sometimes just feeling wierd. I too, have> gotten a > strange aversion to red meat. Last week I ate some> beef and couldn't > get the taste out of my mouth for a day. I am still> drinking over > two gallons of water a day including pedialyte and> gatorade. > Sometimes I feel congested and get a productive> cough (I still smoke > 15 cigarettes a day) but nothing that lasts. Luckily> it is cooling > off into the 90s here in Tucson, October is one of> our busiest > months of the year and once I make it through the> month I can take > it easy the rest of the year.> I forced myself to gain weight before treatment> because I knew that > I would lose some during treatment. I am 6' and got> my weight up to > 190#, I don't own a scale, but this last week I had> to tighten my > belt one notch.> I had always had trouble going to sleep and used to> have a drink to > get to sleep. after I quite drinking the insomnia> got real bad. I > have to get up at 4:30 every morning and was only> getting a few > hours of sleep a night. My primary care doctor> started me on > AmbienCR a month before I started treatment and I> still take one > every night at 8 PM. The stuff is great. I fall to> sleep quckly and > even though I get up a couple of times a night to> pee I fall right > back to sleep. I'll worry about quitting the Ambien> when I am done > with treatment in February.> My viral load was at 27 million before treatment> and my doctor > doesn't have me scheduled for a viral load test> until my twelth > week. I don't know why she isn't having it tested> sooner but from > what I have read viral load is not an indicator of> disease > progression or treatment prognosis. > Anyway just thought I would let everyone know that> at least so far > for me I have been tolorating treatment well.> I so rarely get a day off that I am not sure what I> will do all > day, except that I have been craving pasta and am> going to make some > speghetti.> > LEE in TUCSON> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Janet, Thank you so much! I feel better already- Love, Kathy --- Janet <doc_jade@...> wrote: > Kathy, > Hon, don't let this upset you two. A couple of > years ago my alphafetalprotein was high, they did a > ultra-sound and found that every thing was okay. > Sometimes due to the fact that we have done > treatment, and there fore it works to some degree it > can cause some hinky blood work. Hubby and you go > for the CT scan and I am sure that everything will > work out. > Love > Janet > > kathy przybyla <kathypfmp@...> wrote: > Hello Group! > > My husband was diagnosed with Hep C four years ago > when he became very ill. He could not tolerate > treatment, so the Dr took him off > interferon/ribafrin > a year ago. > > He has been so weak and unpredictable that he has > been > unable to work for four years. The damage to his > liver has changed to Cirrosis last year. > > The Dr office called the other day and said his > tumor > markers were extremely high and he has been > scheduled > for a CT Scan at a special facility about an hour > away. > > My question to the group is-has this happened to > anyone else and this CT is just a precautionary > measure-not a jump to expect the worst? Any insight > would be very much appreciated...We are both in a > panic and so far the research I have done is not > very > promising and I haven't shared my findings with > him... > Kathy > --- Lee <leecuate@...> wrote: > > > I did my fifth dose of Pegasys yesterday and so > far > > everything is > > going well. Whats weird is that I still have a > black > > and blue mark > > from my first injection site, since the first one > > there has only > > been a little redness the next day or two. Maybe > the > > first injection > > shocks your body more? > > This is the first day I have taken off since I > > started treatment. I > > own a plant nursery and have to work at least a > few > > hours seven days > > a week. I have had very few side affects, > headaches > > a little sore > > after loading 200 plus flats of bedding plants on > > the delivery > > truck, and sometimes just feeling wierd. I too, > have > > gotten a > > strange aversion to red meat. Last week I ate some > > beef and couldn't > > get the taste out of my mouth for a day. I am > still > > drinking over > > two gallons of water a day including pedialyte and > > gatorade. > > Sometimes I feel congested and get a productive > > cough (I still smoke > > 15 cigarettes a day) but nothing that lasts. > Luckily > > it is cooling > > off into the 90s here in Tucson, October is one of > > our busiest > > months of the year and once I make it through the > > month I can take > > it easy the rest of the year. > > I forced myself to gain weight before treatment > > because I knew that > > I would lose some during treatment. I am 6' and > got > > my weight up to > > 190#, I don't own a scale, but this last week I > had > > to tighten my > > belt one notch. > > I had always had trouble going to sleep and used > to > > have a drink to > > get to sleep. after I quite drinking the insomnia > > got real bad. I > > have to get up at 4:30 every morning and was only > > getting a few > > hours of sleep a night. My primary care doctor > > started me on > > AmbienCR a month before I started treatment and I > > still take one > > every night at 8 PM. The stuff is great. I fall to > > sleep quckly and > > even though I get up a couple of times a night to > > pee I fall right > > back to sleep. I'll worry about quitting the > Ambien > > when I am done > > with treatment in February. > > My viral load was at 27 million before treatment > > and my doctor > > doesn't have me scheduled for a viral load test > > until my twelth > > week. I don't know why she isn't having it tested > > sooner but from > > what I have read viral load is not an indicator of > > disease > > progression or treatment prognosis. > > Anyway just thought I would let everyone know that > > at least so far > > for me I have been tolorating treatment well. > > I so rarely get a day off that I am not sure what > I > > will do all > > day, except that I have been craving pasta and am > > going to make some > > speghetti. > > > > LEE in TUCSON > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2006 Report Share Posted September 23, 2006 Hi Kathy Well hon, pleaselet us know what you find out,, Im hoping its just from tx and his labs are just a bit out of whack.. jaxkathy przybyla <kathypfmp@...> wrote: Hello Group!My husband was diagnosed with Hep C four years agowhen he became very ill. He could not toleratetreatment, so the Dr took him off interferon/ribafrina year ago.He has been so weak and unpredictable that he has beenunable to work for four years. The damage to hisliver has changed to Cirrosis last year.The Dr office called the other day and said his tumormarkers were extremely high and he has been scheduledfor a CT Scan at a special facility about an houraway.My question to the group is-has this happened toanyone else and this CT is just a precautionarymeasure-not a jump to expect the worst? Any insightwould be very much appreciated...We are both in apanic and so far the research I have done is not verypromising and I haven't shared my findings with him...Kathy--- Lee <leecuatemsn> wrote:> I did my fifth dose of Pegasys yesterday and so far> everything is > going well. Whats weird is that I still have a black> and blue mark > from my first injection site, since the first one> there has only > been a little redness the next day or two. Maybe the> first injection > shocks your body more?> This is the first day I have taken off since I> started treatment. I > own a plant nursery and have to work at least a few> hours seven days > a week. I have had very few side affects, headaches> a little sore > after loading 200 plus flats of bedding plants on> the delivery > truck, and sometimes just feeling wierd. I too, have> gotten a > strange aversion to red meat. Last week I ate some> beef and couldn't > get the taste out of my mouth for a day. I am still> drinking over > two gallons of water a day including pedialyte and> gatorade. > Sometimes I feel congested and get a productive> cough (I still smoke > 15 cigarettes a day) but nothing that lasts. Luckily> it is cooling > off into the 90s here in Tucson, October is one of> our busiest > months of the year and once I make it through the> month I can take > it easy the rest of the year.> I forced myself to gain weight before treatment> because I knew that > I would lose some during treatment. I am 6' and got> my weight up to > 190#, I don't own a scale, but this last week I had> to tighten my > belt one notch.> I had always had trouble going to sleep and used to> have a drink to > get to sleep. after I quite drinking the insomnia> got real bad. I > have to get up at 4:30 every morning and was only> getting a few > hours of sleep a night. My primary care doctor> started me on > AmbienCR a month before I started treatment and I> still take one > every night at 8 PM. The stuff is great. I fall to> sleep quckly and > even though I get up a couple of times a night to> pee I fall right > back to sleep. I'll worry about quitting the Ambien> when I am done > with treatment in February.> My viral load was at 27 million before treatment> and my doctor > doesn't have me scheduled for a viral load test> until my twelth > week. I don't know why she isn't having it tested> sooner but from > what I have read viral load is not an indicator of> disease > progression or treatment prognosis. > Anyway just thought I would let everyone know that> at least so far > for me I have been tolorating treatment well.> I so rarely get a day off that I am not sure what I> will do all > day, except that I have been craving pasta and am> going to make some > speghetti.> > LEE in TUCSON> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Hi! We will be holding our breath...but I will let you know what we find out! Dr appt not until Oct 9...a long wait! Thank you! Kathy --- Jackie on <redjaxjm@...> wrote: > Hi Kathy > Well hon, pleaselet us know what you find out,, Im > hoping its just from tx and his labs are just a bit > out of whack.. > jax > > kathy przybyla <kathypfmp@...> wrote: > Hello Group! > > My husband was diagnosed with Hep C four years ago > when he became very ill. He could not tolerate > treatment, so the Dr took him off > interferon/ribafrin > a year ago. > > He has been so weak and unpredictable that he has > been > unable to work for four years. The damage to his > liver has changed to Cirrosis last year. > > The Dr office called the other day and said his > tumor > markers were extremely high and he has been > scheduled > for a CT Scan at a special facility about an hour > away. > > My question to the group is-has this happened to > anyone else and this CT is just a precautionary > measure-not a jump to expect the worst? Any insight > would be very much appreciated...We are both in a > panic and so far the research I have done is not > very > promising and I haven't shared my findings with > him... > Kathy > --- Lee <leecuate@...> wrote: > > > I did my fifth dose of Pegasys yesterday and so > far > > everything is > > going well. Whats weird is that I still have a > black > > and blue mark > > from my first injection site, since the first one > > there has only > > been a little redness the next day or two. Maybe > the > > first injection > > shocks your body more? > > This is the first day I have taken off since I > > started treatment. I > > own a plant nursery and have to work at least a > few > > hours seven days > > a week. I have had very few side affects, > headaches > > a little sore > > after loading 200 plus flats of bedding plants on > > the delivery > > truck, and sometimes just feeling wierd. I too, > have > > gotten a > > strange aversion to red meat. Last week I ate some > > beef and couldn't > > get the taste out of my mouth for a day. I am > still > > drinking over > > two gallons of water a day including pedialyte and > > gatorade. > > Sometimes I feel congested and get a productive > > cough (I still smoke > > 15 cigarettes a day) but nothing that lasts. > Luckily > > it is cooling > > off into the 90s here in Tucson, October is one of > > our busiest > > months of the year and once I make it through the > > month I can take > > it easy the rest of the year. > > I forced myself to gain weight before treatment > > because I knew that > > I would lose some during treatment. I am 6' and > got > > my weight up to > > 190#, I don't own a scale, but this last week I > had > > to tighten my > > belt one notch. > > I had always had trouble going to sleep and used > to > > have a drink to > > get to sleep. after I quite drinking the insomnia > > got real bad. I > > have to get up at 4:30 every morning and was only > > getting a few > > hours of sleep a night. My primary care doctor > > started me on > > AmbienCR a month before I started treatment and I > > still take one > > every night at 8 PM. The stuff is great. I fall to > > sleep quckly and > > even though I get up a couple of times a night to > > pee I fall right > > back to sleep. I'll worry about quitting the > Ambien > > when I am done > > with treatment in February. > > My viral load was at 27 million before treatment > > and my doctor > > doesn't have me scheduled for a viral load test > > until my twelth > > week. I don't know why she isn't having it tested > > sooner but from > > what I have read viral load is not an indicator of > > disease > > progression or treatment prognosis. > > Anyway just thought I would let everyone know that > > at least so far > > for me I have been tolorating treatment well. > > I so rarely get a day off that I am not sure what > I > > will do all > > day, except that I have been craving pasta and am > > going to make some > > speghetti. > > > > LEE in TUCSON > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 The CT scan is a diagnostic tool used to rule out many things , and because his tumor makers are rising then he may feel there is a risk . Don't get scared yet ! Just because his numbers are high doesnt necessarily mean that he has a tumor . At this point it is to early to expect the worse , but never the less be prepared just in case .Here is just a portion of what is out there on the internet about tumor markers . Read the highlighted area . Tumor Markers What Are Tumor Markers? Tumor markers are substances that can be found in the body (usually in the blood or urine) when cancer is present. They can be products of the cancer cells themselves or of the body in response to cancer or other conditions. Most tumor markers are proteins. There are many different tumor markers. Some are seen only in a single type of cancer, while others can be detected in several types of cancer. To test for the presence of a tumor marker, the doctor sends a sample of the patient's blood or urine to a lab. The marker is usually detected by combining the blood or urine with manmade antibodies designed to react with that specific protein. For several reasons, tumor markers by themselves are usually not enough to diagnose (or rule out) a specific type of cancer. Most tumor markers can be produced by normal cells as well as by cancer cells, even if in smaller amounts. Sometimes, non-cancerous diseases can also cause levels of certain tumor markers to be higher than normal. And not every person with cancer may have higher levels of a tumor marker. For these reasons, only a handful of tumor markers are commonly used by most doctors. When a doctor does look at the level of a certain tumor marker, he or she will consider it along with the results of the patient’s history and physical exam and other lab tests or imaging tests. In recent years, doctors have begun to develop newer types of tumor markers. With advances in technology, levels of certain genetic materials (DNA or RNA) can now be measured. And while it has been hard to identify single substances that provide useful information, doctors are now beginning to look at patterns of genes or proteins in the blood. These new fields of genomics and proteomics, respectively, are discussed further in the section "What’s New in Tumor Marker Research?" Looking for Insight Hello Group!My husband was diagnosed with Hep C four years agowhen he became very ill. He could not toleratetreatment, so the Dr took him off interferon/ribafrina year ago.He has been so weak and unpredictable that he has beenunable to work for four years. The damage to hisliver has changed to Cirrosis last year.The Dr office called the other day and said his tumormarkers were extremely high and he has been scheduledfor a CT Scan at a special facility about an houraway.My question to the group is-has this happened toanyone else and this CT is just a precautionarymeasure-not a jump to expect the worst? Any insightwould be very much appreciated...We are both in apanic and so far the research I have done is not verypromising and I haven't shared my findings with him...Kathy--- Lee <leecuatemsn> wrote:> I did my fifth dose of Pegasys yesterday and so far> everything is > going well. Whats weird is that I still have a black> and blue mark > from my first injection site, since the first one> there has only > been a little redness the next day or two. Maybe the> first injection > shocks your body more?> This is the first day I have taken off since I> started treatment. I > own a plant nursery and have to work at least a few> hours seven days > a week. I have had very few side affects, headaches> a little sore > after loading 200 plus flats of bedding plants on> the delivery > truck, and sometimes just feeling wierd. I too, have> gotten a > strange aversion to red meat. Last week I ate some> beef and couldn't > get the taste out of my mouth for a day. I am still> drinking over > two gallons of water a day including pedialyte and> gatorade. > Sometimes I feel congested and get a productive> cough (I still smoke > 15 cigarettes a day) but nothing that lasts. Luckily> it is cooling > off into the 90s here in Tucson, October is one of> our busiest > months of the year and once I make it through the> month I can take > it easy the rest of the year.> I forced myself to gain weight before treatment> because I knew that > I would lose some during treatment. I am 6' and got> my weight up to > 190#, I don't own a scale, but this last week I had> to tighten my > belt one notch.> I had always had trouble going to sleep and used to> have a drink to > get to sleep. after I quite drinking the insomnia> got real bad. I > have to get up at 4:30 every morning and was only> getting a few > hours of sleep a night. My primary care doctor> started me on > AmbienCR a month before I started treatment and I> still take one > every night at 8 PM. The stuff is great. I fall to> sleep quckly and > even though I get up a couple of times a night to> pee I fall right > back to sleep. I'll worry about quitting the Ambien> when I am done > with treatment in February.> My viral load was at 27 million before treatment> and my doctor > doesn't have me scheduled for a viral load test> until my twelth > week. I don't know why she isn't having it tested> sooner but from > what I have read viral load is not an indicator of> disease > progression or treatment prognosis. > Anyway just thought I would let everyone know that> at least so far > for me I have been tolorating treatment well.> I so rarely get a day off that I am not sure what I> will do all > day, except that I have been craving pasta and am> going to make some > speghetti.> > LEE in TUCSON> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Ooo excellent article Liz, I know this will help. Love Janetelizabethnv1 <elizabethnv1@...> wrote: The CT scan is a diagnostic tool used to rule out many things , and because his tumor makers are rising then he may feel there is a risk . Don't get scared yet ! Just because his numbers are high doesnt necessarily mean that he has a tumor . At this point it is to early to expect the worse , but never the less be prepared just in case .Here is just a portion of what is out there on the internet about tumor markers . Read the highlighted area . Tumor Markers What Are Tumor Markers? Tumor markers are substances that can be found in the body (usually in the blood or urine) when cancer is present. They can be products of the cancer cells themselves or of the body in response to cancer or other conditions. Most tumor markers are proteins. There are many different tumor markers. Some are seen only in a single type of cancer, while others can be detected in several types of cancer. To test for the presence of a tumor marker, the doctor sends a sample of the patient's blood or urine to a lab. The marker is usually detected by combining the blood or urine with manmade antibodies designed to react with that specific protein. For several reasons, tumor markers by themselves are usually not enough to diagnose (or rule out) a specific type of cancer. Most tumor markers can be produced by normal cells as well as by cancer cells, even if in smaller amounts. Sometimes, non-cancerous diseases can also cause levels of certain tumor markers to be higher than normal. And not every person with cancer may have higher levels of a tumor marker. For these reasons, only a handful of tumor markers are commonly used by most doctors. When a doctor does look at the level of a certain tumor marker, he or she will consider it along with the results of the patient’s history and physical exam and other lab tests or imaging tests. In recent years, doctors have begun to develop newer types of tumor markers. With advances in technology, levels of certain genetic materials (DNA or RNA) can now be measured. And while it has been hard to identify single substances that provide useful information, doctors are now beginning to look at patterns of genes or proteins in the blood. These new fields of genomics and proteomics, respectively, are discussed further in the section "What’s New in Tumor Marker Research?" Looking for Insight Hello Group!My husband was diagnosed with Hep C four years agowhen he became very ill. He could not toleratetreatment, so the Dr took him off interferon/ribafrina year ago.He has been so weak and unpredictable that he has beenunable to work for four years. The damage to hisliver has changed to Cirrosis last year.The Dr office called the other day and said his tumormarkers were extremely high and he has been scheduledfor a CT Scan at a special facility about an houraway.My question to the group is-has this happened toanyone else and this CT is just a precautionarymeasure-not a jump to expect the worst? Any insightwould be very much appreciated...We are both in apanic and so far the research I have done is not verypromising and I haven't shared my findings with him...Kathy--- Lee <leecuatemsn> wrote:> I did my fifth dose of Pegasys yesterday and so far> everything is > going well. Whats weird is that I still have a black> and blue mark > from my first injection site, since the first one> there has only > been a little redness the next day or two. Maybe the> first injection > shocks your body more?> This is the first day I have taken off since I> started treatment. I > own a plant nursery and have to work at least a few> hours seven days > a week. I have had very few side affects, headaches> a little sore > after loading 200 plus flats of bedding plants on> the delivery > truck, and sometimes just feeling wierd. I too, have> gotten a > strange aversion to red meat. Last week I ate some> beef and couldn't > get the taste out of my mouth for a day. I am still> drinking over > two gallons of water a day including pedialyte and> gatorade. > Sometimes I feel congested and get a productive> cough (I still smoke > 15 cigarettes a day) but nothing that lasts. Luckily> it is cooling > off into the 90s here in Tucson, October is one of> our busiest > months of the year and once I make it through the> month I can take > it easy the rest of the year.> I forced myself to gain weight before treatment> because I knew that > I would lose some during treatment. I am 6' and got> my weight up to > 190#, I don't own a scale, but this last week I had> to tighten my > belt one notch.> I had always had trouble going to sleep and used to> have a drink to > get to sleep. after I quite drinking the insomnia> got real bad. I > have to get up at 4:30 every morning and was only> getting a few > hours of sleep a night. My primary care doctor> started me on > AmbienCR a month before I started treatment and I> still take one > every night at 8 PM. The stuff is great. I fall to> sleep quckly and > even though I get up a couple of times a night to> pee I fall right > back to sleep. I'll worry about quitting the Ambien> when I am done > with treatment in February.> My viral load was at 27 million before treatment> and my doctor > doesn't have me scheduled for a viral load test> until my twelth > week. I don't know why she isn't having it tested> sooner but from > what I have read viral load is not an indicator of> disease > progression or treatment prognosis. > Anyway just thought I would let everyone know that> at least so far > for me I have been tolorating treatment well.> I so rarely get a day off that I am not sure what I> will do all > day, except that I have been craving pasta and am> going to make some > speghetti.> > LEE in TUCSON> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Thank you so much for sharing!!! --- elizabethnv1 <elizabethnv1@...> wrote: > The CT scan is a diagnostic tool used to rule out > many things , and because his tumor makers are > rising then he may feel there is a risk . Don't get > scared yet ! Just because his numbers are high > doesnt necessarily mean that he has a tumor . At > this point it is to early to expect the worse , but > never the less be prepared just in case .Here is > just a portion of what is out there on the internet > about tumor markers . Read the highlighted area . > > Tumor Markers > > What Are Tumor Markers? > > Tumor markers are substances that can be > found in the body (usually in the blood or urine) > when cancer is present. They can be products of the > cancer cells themselves or of the body in response > to cancer or other conditions. Most tumor markers > are proteins. > > There are many different tumor markers. > Some are seen only in a single type of cancer, while > others can be detected in several types of cancer. > > To test for the presence of a tumor > marker, the doctor sends a sample of the patient's > blood or urine to a lab. The marker is usually > detected by combining the blood or urine with > manmade antibodies designed to react with that > specific protein. > > For several reasons, tumor markers by > themselves are usually not enough to diagnose (or > rule out) a specific type of cancer. Most tumor > markers can be produced by normal cells as well as > by cancer cells, even if in smaller amounts. > Sometimes, non-cancerous diseases can also cause > levels of certain tumor markers to be higher than > normal. And not every person with cancer may have > higher levels of a tumor marker. > > For these reasons, only a handful of > tumor markers are commonly used by most doctors. > When a doctor does look at the level of a certain > tumor marker, he or she will consider it along with > the results of the patient's history and physical > exam and other lab tests or imaging tests. > > In recent years, doctors have begun to > develop newer types of tumor markers. With advances > in technology, levels of certain genetic materials > (DNA or RNA) can now be measured. And while it has > been hard to identify single substances that provide > useful information, doctors are now beginning to > look at patterns of genes or proteins in the blood. > These new fields of genomics and proteomics, > respectively, are discussed further in the section > " What's New in Tumor Marker Research? " > > > > > Looking for Insight > > > Hello Group! > > My husband was diagnosed with Hep C four years ago > when he became very ill. He could not tolerate > treatment, so the Dr took him off > interferon/ribafrin > a year ago. > > He has been so weak and unpredictable that he has > been > unable to work for four years. The damage to his > liver has changed to Cirrosis last year. > > The Dr office called the other day and said his > tumor > markers were extremely high and he has been > scheduled > for a CT Scan at a special facility about an hour > away. > > My question to the group is-has this happened to > anyone else and this CT is just a precautionary > measure-not a jump to expect the worst? Any > insight > would be very much appreciated...We are both in a > panic and so far the research I have done is not > very > promising and I haven't shared my findings with > him... > Kathy > --- Lee <leecuate@...> wrote: > > > I did my fifth dose of Pegasys yesterday and so > far > > everything is > > going well. Whats weird is that I still have a > black > > and blue mark > > from my first injection site, since the first > one > > there has only > > been a little redness the next day or two. Maybe > the > > first injection > > shocks your body more? > > This is the first day I have taken off since I > > started treatment. I > > own a plant nursery and have to work at least a > few > > hours seven days > > a week. I have had very few side affects, > headaches > > a little sore > > after loading 200 plus flats of bedding plants > on > > the delivery > > truck, and sometimes just feeling wierd. I too, > have > > gotten a > > strange aversion to red meat. Last week I ate > some > > beef and couldn't > > get the taste out of my mouth for a day. I am > still > > drinking over > > two gallons of water a day including pedialyte > and > > gatorade. > > Sometimes I feel congested and get a productive > > cough (I still smoke > > 15 cigarettes a day) but nothing that lasts. > Luckily > > it is cooling > > off into the 90s here in Tucson, October is one > of > > our busiest > > months of the year and once I make it through > the > > month I can take > > it easy the rest of the year. > > I forced myself to gain weight before treatment > > because I knew that > > I would lose some during treatment. I am 6' and > got > > my weight up to > > 190#, I don't own a scale, but this last week I > had > > to tighten my > > belt one notch. > > I had always had trouble going to sleep and used > to > > have a drink to > > get to sleep. after I quite drinking the > insomnia > > got real bad. I > > have to get up at 4:30 every morning and was > only > > getting a few > > hours of sleep a night. My primary care doctor > > started me on > > AmbienCR a month before I started treatment and > I > > still take one > > every night at 8 PM. The stuff is great. I fall > to > > sleep quckly and > > even though I get up a couple of times a night > to > > pee I fall right > > back to sleep. I'll worry about quitting the > Ambien > > when I am done > > with treatment in February. > > My viral load was at 27 million before treatment > > and my doctor > > doesn't have me scheduled for a viral load test > > until my twelth > > week. I don't know why she isn't having it > tested > > sooner but from > > what I have read viral load is not an indicator > of > > disease > > progression or treatment prognosis. > > Anyway just thought I would let everyone know > that > > at least so far > > for me I have been tolorating treatment well. > > I so rarely get a day off that I am not sure > what I > > will do all > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 I strive to please ,lol I am making it my mission in life to educate everyone about everything medical hehe Looking for Insight Hello Group!My husband was diagnosed with Hep C four years agowhen he became very ill. He could not toleratetreatment, so the Dr took him off interferon/ribafrina year ago.He has been so weak and unpredictable that he has beenunable to work for four years. The damage to hisliver has changed to Cirrosis last year.The Dr office called the other day and said his tumormarkers were extremely high and he has been scheduledfor a CT Scan at a special facility about an houraway.My question to the group is-has this happened toanyone else and this CT is just a precautionarymeasure-not a jump to expect the worst? Any insightwould be very much appreciated...We are both in apanic and so far the research I have done is not verypromising and I haven't shared my findings with him...Kathy--- Lee <leecuatemsn> wrote:> I did my fifth dose of Pegasys yesterday and so far> everything is > going well. Whats weird is that I still have a black> and blue mark > from my first injection site, since the first one> there has only > been a little redness the next day or two. Maybe the> first injection > shocks your body more?> This is the first day I have taken off since I> started treatment. I > own a plant nursery and have to work at least a few> hours seven days > a week. I have had very few side affects, headaches> a little sore > after loading 200 plus flats of bedding plants on> the delivery > truck, and sometimes just feeling wierd. I too, have> gotten a > strange aversion to red meat. Last week I ate some> beef and couldn't > get the taste out of my mouth for a day. I am still> drinking over > two gallons of water a day including pedialyte and> gatorade. > Sometimes I feel congested and get a productive> cough (I still smoke > 15 cigarettes a day) but nothing that lasts. Luckily> it is cooling > off into the 90s here in Tucson, October is one of> our busiest > months of the year and once I make it through the> month I can take > it easy the rest of the year.> I forced myself to gain weight before treatment> because I knew that > I would lose some during treatment. I am 6' and got> my weight up to > 190#, I don't own a scale, but this last week I had> to tighten my > belt one notch.> I had always had trouble going to sleep and used to> have a drink to > get to sleep. after I quite drinking the insomnia> got real bad. I > have to get up at 4:30 every morning and was only> getting a few > hours of sleep a night. My primary care doctor> started me on > AmbienCR a month before I started treatment and I> still take one > every night at 8 PM. The stuff is great. I fall to> sleep quckly and > even though I get up a couple of times a night to> pee I fall right > back to sleep. I'll worry about quitting the Ambien> when I am done > with treatment in February.> My viral load was at 27 million before treatment> and my doctor > doesn't have me scheduled for a viral load test> until my twelth > week. I don't know why she isn't having it tested> sooner but from > what I have read viral load is not an indicator of> disease > progression or treatment prognosis. > Anyway just thought I would let everyone know that> at least so far > for me I have been tolorating treatment well.> I so rarely get a day off that I am not sure what I> will do all > day, except that I have been craving pasta and am> going to make some > speghetti.> > LEE in TUCSON> > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 I was glad to help Kathy . Looking for Insight> > > Hello Group!> > My husband was diagnosed with Hep C four years ago> when he became very ill. He could not tolerate> treatment, so the Dr took him off> interferon/ribafrin> a year ago.> > He has been so weak and unpredictable that he has> been> unable to work for four years. The damage to his> liver has changed to Cirrosis last year.> > The Dr office called the other day and said his> tumor> markers were extremely high and he has been> scheduled> for a CT Scan at a special facility about an hour> away.> > My question to the group is-has this happened to> anyone else and this CT is just a precautionary> measure-not a jump to expect the worst? Any> insight> would be very much appreciated...We are both in a> panic and so far the research I have done is not> very> promising and I haven't shared my findings with> him...> Kathy> --- Lee <leecuatemsn> wrote:> > > I did my fifth dose of Pegasys yesterday and so> far> > everything is > > going well. Whats weird is that I still have a> black> > and blue mark > > from my first injection site, since the first> one> > there has only > > been a little redness the next day or two. Maybe> the> > first injection > > shocks your body more?> > This is the first day I have taken off since I> > started treatment. I > > own a plant nursery and have to work at least a> few> > hours seven days > > a week. I have had very few side affects,> headaches> > a little sore > > after loading 200 plus flats of bedding plants> on> > the delivery > > truck, and sometimes just feeling wierd. I too,> have> > gotten a > > strange aversion to red meat. Last week I ate> some> > beef and couldn't > > get the taste out of my mouth for a day. I am> still> > drinking over > > two gallons of water a day including pedialyte> and> > gatorade. > > Sometimes I feel congested and get a productive> > cough (I still smoke > > 15 cigarettes a day) but nothing that lasts.> Luckily> > it is cooling > > off into the 90s here in Tucson, October is one> of> > our busiest > > months of the year and once I make it through> the> > month I can take > > it easy the rest of the year.> > I forced myself to gain weight before treatment> > because I knew that > > I would lose some during treatment. I am 6' and> got> > my weight up to > > 190#, I don't own a scale, but this last week I> had> > to tighten my > > belt one notch.> > I had always had trouble going to sleep and used> to> > have a drink to > > get to sleep. after I quite drinking the> insomnia> > got real bad. I > > have to get up at 4:30 every morning and was> only> > getting a few > > hours of sleep a night. My primary care doctor> > started me on > > AmbienCR a month before I started treatment and> I> > still take one > > every night at 8 PM. The stuff is great. I fall> to> > sleep quckly and > > even though I get up a couple of times a night> to> > pee I fall right > > back to sleep. I'll worry about quitting the> Ambien> > when I am done > > with treatment in February.> > My viral load was at 27 million before treatment> > and my doctor > > doesn't have me scheduled for a viral load test> > until my twelth > > week. I don't know why she isn't having it> tested> > sooner but from > > what I have read viral load is not an indicator> of> > disease > > progression or treatment prognosis. > > Anyway just thought I would let everyone know> that> > at least so far > > for me I have been tolorating treatment well.> > I so rarely get a day off that I am not sure> what I> > will do all > === message truncated ===__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 I will go with your wanting to share the wealth of knowledge! Haha-Thank you! You guys are an excellent support system and I am not going to forget it! --- elizabethnv1 <elizabethnv1@...> wrote: > I strive to please ,lol I am making it my mission in > life to educate everyone about everything medical > hehe > Looking for > Insight > > > Hello Group! > > My husband was diagnosed with Hep C four years > ago > when he became very ill. He could not tolerate > treatment, so the Dr took him off > interferon/ribafrin > a year ago. > > He has been so weak and unpredictable that he > has been > unable to work for four years. The damage to > his > liver has changed to Cirrosis last year. > > The Dr office called the other day and said > his tumor > markers were extremely high and he has been > scheduled > for a CT Scan at a special facility about an > hour > away. > > My question to the group is-has this happened > to > anyone else and this CT is just a > precautionary > measure-not a jump to expect the worst? Any > insight > would be very much appreciated...We are both > in a > panic and so far the research I have done is > not very > promising and I haven't shared my findings > with him... > Kathy > --- Lee <leecuate@...> wrote: > > > I did my fifth dose of Pegasys yesterday and > so far > > everything is > > going well. Whats weird is that I still have > a black > > and blue mark > > from my first injection site, since the > first one > > there has only > > been a little redness the next day or two. > Maybe the > > first injection > > shocks your body more? > > This is the first day I have taken off since > I > > started treatment. I > > own a plant nursery and have to work at > least a few > > hours seven days > > a week. I have had very few side affects, > headaches > > a little sore > > after loading 200 plus flats of bedding > plants on > > the delivery > > truck, and sometimes just feeling wierd. I > too, have > > gotten a > > strange aversion to red meat. Last week I > ate some > > beef and couldn't > > get the taste out of my mouth for a day. I > am still > > drinking over > > two gallons of water a day including > pedialyte and > > gatorade. > > Sometimes I feel congested and get a > productive > > cough (I still smoke > > 15 cigarettes a day) but nothing that lasts. > Luckily > > it is cooling > > off into the 90s here in Tucson, October is > one of > > our busiest > > months of the year and once I make it > through the > > month I can take > > it easy the rest of the year. > > I forced myself to gain weight before > treatment > > because I knew that > > I would lose some during treatment. I am 6' > and got > > my weight up to > > 190#, I don't own a scale, but this last > week I had > > to tighten my > > belt one notch. > > I had always had trouble going to sleep and > used to > > have a drink to > > get to sleep. after I quite drinking the > insomnia > > got real bad. I > > have to get up at 4:30 every morning and was > only > > getting a few > > hours of sleep a night. My primary care > doctor > > started me on > > AmbienCR a month before I started treatment > and I > > still take one > > every night at 8 PM. The stuff is great. I > fall to > > sleep quckly and > > even though I get up a couple of times a > night to > > pee I fall right > === message truncated === __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Thank you Kathy Looking for> Insight> > > Hello Group!> > My husband was diagnosed with Hep C four years> ago> when he became very ill. He could not tolerate> treatment, so the Dr took him off> interferon/ribafrin> a year ago.> > He has been so weak and unpredictable that he> has been> unable to work for four years. The damage to> his> liver has changed to Cirrosis last year.> > The Dr office called the other day and said> his tumor> markers were extremely high and he has been> scheduled> for a CT Scan at a special facility about an> hour> away.> > My question to the group is-has this happened> to> anyone else and this CT is just a> precautionary> measure-not a jump to expect the worst? Any> insight> would be very much appreciated...We are both> in a> panic and so far the research I have done is> not very> promising and I haven't shared my findings> with him...> Kathy> --- Lee <leecuatemsn> wrote:> > > I did my fifth dose of Pegasys yesterday and> so far> > everything is > > going well. Whats weird is that I still have> a black> > and blue mark > > from my first injection site, since the> first one> > there has only > > been a little redness the next day or two.> Maybe the> > first injection > > shocks your body more?> > This is the first day I have taken off since> I> > started treatment. I > > own a plant nursery and have to work at> least a few> > hours seven days > > a week. I have had very few side affects,> headaches> > a little sore > > after loading 200 plus flats of bedding> plants on> > the delivery > > truck, and sometimes just feeling wierd. I> too, have> > gotten a > > strange aversion to red meat. Last week I> ate some> > beef and couldn't > > get the taste out of my mouth for a day. I> am still> > drinking over > > two gallons of water a day including> pedialyte and> > gatorade. > > Sometimes I feel congested and get a> productive> > cough (I still smoke > > 15 cigarettes a day) but nothing that lasts.> Luckily> > it is cooling > > off into the 90s here in Tucson, October is> one of> > our busiest > > months of the year and once I make it> through the> > month I can take > > it easy the rest of the year.> > I forced myself to gain weight before> treatment> > because I knew that > > I would lose some during treatment. I am 6'> and got> > my weight up to > > 190#, I don't own a scale, but this last> week I had> > to tighten my > > belt one notch.> > I had always had trouble going to sleep and> used to> > have a drink to > > get to sleep. after I quite drinking the> insomnia> > got real bad. I > > have to get up at 4:30 every morning and was> only> > getting a few > > hours of sleep a night. My primary care> doctor> > started me on > > AmbienCR a month before I started treatment> and I> > still take one > > every night at 8 PM. The stuff is great. I> fall to> > sleep quckly and > > even though I get up a couple of times a> night to> > pee I fall right > === message truncated ===__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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