Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 Hi Stan, I saw Ethan's video on GR's website 3 mos ago when I started with a DAN dr for 3.5 year old son Dylan. First off I must commend you on having the strength to film Ethan when he " wasn't at his best " . I must tell you that I never thought my son was viral kid. That is until I got his blood test results and it show elevated levels of MMR titers and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he isn't a celiac but wanted to remove any possible inflammatory stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I was too chicken to give the shot). I did see an increase in hand stimming for Dylan sometime eye stims too (very painful for me to watch). Dylan has been in EI since 18 mos and transitioned to a special nursery school in fall of last year. He is doing very well but the language is WAY behind. He gets the methyl b-12 shots noe (I got over myself) and glutathione cream. My dr. suggested that we move onto ACTOS and the VALTREX. I wante dto go a little more natural and would like to try the OLE. I know you went the VALTREX route, was there a reason you opted for that over OLE??? I am also afraid of the regression (which I see some days with Dylan and it freaks me out)and the rashes, etc. How did you deal??? I don't know if metally I could handle making him sick. Also do you have any experience with ACTOS, (my dr. thinks it will help DYlan with his methylation cycle)? Thanks again for Ethan's video...it gave me so much hope. I still watch it when I am at a low point. BIG HUGS to him for being such a trooper and beating the " beast " back! Debbie Stone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Hi Debbie, I have not found a doctor yet who is seeing great things with Actos (besides Marvin Boris MD, the doctor who did the origional study). It's worth a try, but I would try LDN before ACTOS. We do not have one good ACTOS report here, but we do have some with LDN. I opt for Valtrex because it does more than just go after viruses. It modulates Adenosine and it DOES cross the blood brain barrier. Additionally, many of these viruses can take up residence in the liver and Valtrex turns into acyclovir in the liver... making it a very potent antihepatic therapy. If you are afraid of a healing-regression, avoiding Valtrex may not help. We often see a similar response with natural antivirals including OLE and Virastop. Let us know what you end up doing. - Stan > > Hi Stan, > I saw Ethan's video on GR's website 3 mos ago when I started with a > DAN dr for 3.5 year old son Dylan. First off I must commend you on > having the strength to film Ethan when he " wasn't at his best " . I must > tell you that I never thought my son was viral kid. That is until I > got his blood test results and it show elevated levels of MMR titers > and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he > isn't a celiac but wanted to remove any possible inflammatory > stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and > fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I > was too chicken to give the shot). I did see an increase in hand > stimming for Dylan sometime eye stims too (very painful for me to > watch). Dylan has been in EI since 18 mos and transitioned to a > special nursery school in fall of last year. He is doing very well > but the language is WAY behind. He gets the methyl b-12 shots noe (I > got over myself) and glutathione cream. My dr. suggested that we move > onto ACTOS and the VALTREX. I wante dto go a little more natural and > would like to try the OLE. I know you went the VALTREX route, was > there a reason you opted for that over OLE??? I am also afraid of the > regression (which I see some days with Dylan and it freaks me out) and > the rashes, etc. How did you deal??? I don't know if metally I could > handle making him sick. Also do you have any experience with ACTOS, > (my dr. thinks it will help DYlan with his methylation cycle)? Thanks > again for Ethan's video...it gave me so much hope. I still watch it > when I am at a low point. BIG HUGS to him for being such a trooper > and beating the " beast " back! > Debbie Stone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Hi Debbie, I have not found a doctor yet who is seeing great things with Actos (besides Marvin Boris MD, the doctor who did the origional study). It's worth a try, but I would try LDN before ACTOS. We do not have one good ACTOS report here, but we do have some with LDN. I opt for Valtrex because it does more than just go after viruses. It modulates Adenosine and it DOES cross the blood brain barrier. Additionally, many of these viruses can take up residence in the liver and Valtrex turns into acyclovir in the liver... making it a very potent antihepatic therapy. If you are afraid of a healing-regression, avoiding Valtrex may not help. We often see a similar response with natural antivirals including OLE and Virastop. Let us know what you end up doing. - Stan > > Hi Stan, > I saw Ethan's video on GR's website 3 mos ago when I started with a > DAN dr for 3.5 year old son Dylan. First off I must commend you on > having the strength to film Ethan when he " wasn't at his best " . I must > tell you that I never thought my son was viral kid. That is until I > got his blood test results and it show elevated levels of MMR titers > and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he > isn't a celiac but wanted to remove any possible inflammatory > stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and > fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I > was too chicken to give the shot). I did see an increase in hand > stimming for Dylan sometime eye stims too (very painful for me to > watch). Dylan has been in EI since 18 mos and transitioned to a > special nursery school in fall of last year. He is doing very well > but the language is WAY behind. He gets the methyl b-12 shots noe (I > got over myself) and glutathione cream. My dr. suggested that we move > onto ACTOS and the VALTREX. I wante dto go a little more natural and > would like to try the OLE. I know you went the VALTREX route, was > there a reason you opted for that over OLE??? I am also afraid of the > regression (which I see some days with Dylan and it freaks me out) and > the rashes, etc. How did you deal??? I don't know if metally I could > handle making him sick. Also do you have any experience with ACTOS, > (my dr. thinks it will help DYlan with his methylation cycle)? Thanks > again for Ethan's video...it gave me so much hope. I still watch it > when I am at a low point. BIG HUGS to him for being such a trooper > and beating the " beast " back! > Debbie Stone > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Hi Stan, Dr. Ellis my DAN! dr. is in the same practice as Dr. Boris and he spoke about the study they did. Do I have to do LDN before I do Valtrex or an anti-viral??? How long did you see the healing regression with Ethan before he got better? I am concerned because Dylan is school until August! I would keep him home of course but, would like to let the school know what the worse case scenario would be. Also how long did you give Ethan Valtrex??? Sorry for the questions, new here and new to the protocol. Thank you very much for responding. Debbie in NY > > > > Hi Stan, > > I saw Ethan's video on GR's website 3 mos ago when I started with a > > DAN dr for 3.5 year old son Dylan. First off I must commend you on > > having the strength to film Ethan when he " wasn't at his best " . I > must > > tell you that I never thought my son was viral kid. That is until > I > > got his blood test results and it show elevated levels of MMR > titers > > and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he > > isn't a celiac but wanted to remove any possible inflammatory > > stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and > > fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I > > was too chicken to give the shot). I did see an increase in hand > > stimming for Dylan sometime eye stims too (very painful for me to > > watch). Dylan has been in EI since 18 mos and transitioned to a > > special nursery school in fall of last year. He is doing very well > > but the language is WAY behind. He gets the methyl b-12 shots noe > (I > > got over myself) and glutathione cream. My dr. suggested that we > move > > onto ACTOS and the VALTREX. I wante dto go a little more natural > and > > would like to try the OLE. I know you went the VALTREX route, was > > there a reason you opted for that over OLE??? I am also afraid of > the > > regression (which I see some days with Dylan and it freaks me out) > and > > the rashes, etc. How did you deal??? I don't know if metally I > could > > handle making him sick. Also do you have any experience with > ACTOS, > > (my dr. thinks it will help DYlan with his methylation cycle)? > Thanks > > again for Ethan's video...it gave me so much hope. I still watch it > > when I am at a low point. BIG HUGS to him for being such a trooper > > and beating the " beast " back! > > Debbie Stone > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Hi Stan, Dr. Ellis my DAN! dr. is in the same practice as Dr. Boris and he spoke about the study they did. Do I have to do LDN before I do Valtrex or an anti-viral??? How long did you see the healing regression with Ethan before he got better? I am concerned because Dylan is school until August! I would keep him home of course but, would like to let the school know what the worse case scenario would be. Also how long did you give Ethan Valtrex??? Sorry for the questions, new here and new to the protocol. Thank you very much for responding. Debbie in NY > > > > Hi Stan, > > I saw Ethan's video on GR's website 3 mos ago when I started with a > > DAN dr for 3.5 year old son Dylan. First off I must commend you on > > having the strength to film Ethan when he " wasn't at his best " . I > must > > tell you that I never thought my son was viral kid. That is until > I > > got his blood test results and it show elevated levels of MMR > titers > > and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he > > isn't a celiac but wanted to remove any possible inflammatory > > stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and > > fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I > > was too chicken to give the shot). I did see an increase in hand > > stimming for Dylan sometime eye stims too (very painful for me to > > watch). Dylan has been in EI since 18 mos and transitioned to a > > special nursery school in fall of last year. He is doing very well > > but the language is WAY behind. He gets the methyl b-12 shots noe > (I > > got over myself) and glutathione cream. My dr. suggested that we > move > > onto ACTOS and the VALTREX. I wante dto go a little more natural > and > > would like to try the OLE. I know you went the VALTREX route, was > > there a reason you opted for that over OLE??? I am also afraid of > the > > regression (which I see some days with Dylan and it freaks me out) > and > > the rashes, etc. How did you deal??? I don't know if metally I > could > > handle making him sick. Also do you have any experience with > ACTOS, > > (my dr. thinks it will help DYlan with his methylation cycle)? > Thanks > > again for Ethan's video...it gave me so much hope. I still watch it > > when I am at a low point. BIG HUGS to him for being such a trooper > > and beating the " beast " back! > > Debbie Stone > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Stan, I have asked this before, but never really got an answer...is there a test I can suggest to out pedi to test for viruses, since I asked about the possibility of Valtrex, and her response was.."It's for venereal disease." Thanks! Stan Kurtz <kurtzstan@...> wrote: Hi Debbie,I have not found a doctor yet who is seeing great things with Actos (besides Marvin Boris MD, the doctor who did the origional study). It's worth a try, but I would try LDN before ACTOS. We do not have one good ACTOS report here, but we do have some with LDN.I opt for Valtrex because it does more than just go after viruses. It modulates Adenosine and it DOES cross the blood brain barrier. Additionally, many of these viruses can take up residence in the liver and Valtrex turns into acyclovir in the liver... making it a very potent antihepatic therapy.If you are afraid of a healing-regression, avoiding Valtrex may not help. We often see a similar response with natural antivirals including OLE and Virastop.Let us know what you end up doing.- Stan>> Hi Stan, > I saw Ethan's video on GR's website 3 mos ago when I started with a> DAN dr for 3.5 year old son Dylan. First off I must commend you on> having the strength to film Ethan when he "wasn't at his best". I must> tell you that I never thought my son was viral kid. That is until I> got his blood test results and it show elevated levels of MMR titers> and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he> isn't a celiac but wanted to remove any possible inflammatory> stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and> fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I> was too chicken to give the shot). I did see an increase in hand> stimming for Dylan sometime eye stims too (very painful for me to> watch). Dylan has been in EI since 18 mos and transitioned to a> special nursery school in fall of last year. He is doing very well> but the language is WAY behind. He gets the methyl b-12 shots noe (I> got over myself) and glutathione cream. My dr. suggested that we move> onto ACTOS and the VALTREX. I wante dto go a little more natural and> would like to try the OLE. I know you went the VALTREX route, was> there a reason you opted for that over OLE??? I am also afraid of the> regression (which I see some days with Dylan and it freaks me out)and> the rashes, etc. How did you deal??? I don't know if metally I could> handle making him sick. Also do you have any experience with ACTOS,> (my dr. thinks it will help DYlan with his methylation cycle)? Thanks> again for Ethan's video...it gave me so much hope. I still watch it> when I am at a low point. BIG HUGS to him for being such a trooper> and beating the "beast" back!> Debbie Stone>__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Stan, I have asked this before, but never really got an answer...is there a test I can suggest to out pedi to test for viruses, since I asked about the possibility of Valtrex, and her response was.."It's for venereal disease." Thanks! Stan Kurtz <kurtzstan@...> wrote: Hi Debbie,I have not found a doctor yet who is seeing great things with Actos (besides Marvin Boris MD, the doctor who did the origional study). It's worth a try, but I would try LDN before ACTOS. We do not have one good ACTOS report here, but we do have some with LDN.I opt for Valtrex because it does more than just go after viruses. It modulates Adenosine and it DOES cross the blood brain barrier. Additionally, many of these viruses can take up residence in the liver and Valtrex turns into acyclovir in the liver... making it a very potent antihepatic therapy.If you are afraid of a healing-regression, avoiding Valtrex may not help. We often see a similar response with natural antivirals including OLE and Virastop.Let us know what you end up doing.- Stan>> Hi Stan, > I saw Ethan's video on GR's website 3 mos ago when I started with a> DAN dr for 3.5 year old son Dylan. First off I must commend you on> having the strength to film Ethan when he "wasn't at his best". I must> tell you that I never thought my son was viral kid. That is until I> got his blood test results and it show elevated levels of MMR titers> and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he> isn't a celiac but wanted to remove any possible inflammatory> stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and> fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I> was too chicken to give the shot). I did see an increase in hand> stimming for Dylan sometime eye stims too (very painful for me to> watch). Dylan has been in EI since 18 mos and transitioned to a> special nursery school in fall of last year. He is doing very well> but the language is WAY behind. He gets the methyl b-12 shots noe (I> got over myself) and glutathione cream. My dr. suggested that we move> onto ACTOS and the VALTREX. I wante dto go a little more natural and> would like to try the OLE. I know you went the VALTREX route, was> there a reason you opted for that over OLE??? I am also afraid of the> regression (which I see some days with Dylan and it freaks me out)and> the rashes, etc. How did you deal??? I don't know if metally I could> handle making him sick. Also do you have any experience with ACTOS,> (my dr. thinks it will help DYlan with his methylation cycle)? Thanks> again for Ethan's video...it gave me so much hope. I still watch it> when I am at a low point. BIG HUGS to him for being such a trooper> and beating the "beast" back!> Debbie Stone>__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 First, if you look print out the references in the FILES section of this group that talk about herpes and autism that are in the medical literature, you doc should be able to put together that some of our kids have herpes viruses. Valtrex is not just for VD, it also works for encephilitis as well since it crosses the blood brain barrier. Try to get your doc up to speed, but you might have to switch to a DAN! doc to get this done. - Stan > > > > Hi Stan, > > I saw Ethan's video on GR's website 3 mos ago when I started with a > > DAN dr for 3.5 year old son Dylan. First off I must commend you on > > having the strength to film Ethan when he " wasn't at his best " . I > must > > tell you that I never thought my son was viral kid. That is until > I > > got his blood test results and it show elevated levels of MMR > titers > > and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he > > isn't a celiac but wanted to remove any possible inflammatory > > stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and > > fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I > > was too chicken to give the shot). I did see an increase in hand > > stimming for Dylan sometime eye stims too (very painful for me to > > watch). Dylan has been in EI since 18 mos and transitioned to a > > special nursery school in fall of last year. He is doing very well > > but the language is WAY behind. He gets the methyl b-12 shots noe > (I > > got over myself) and glutathione cream. My dr. suggested that we > move > > onto ACTOS and the VALTREX. I wante dto go a little more natural > and > > would like to try the OLE. I know you went the VALTREX route, was > > there a reason you opted for that over OLE??? I am also afraid of > the > > regression (which I see some days with Dylan and it freaks me out) > and > > the rashes, etc. How did you deal??? I don't know if metally I > could > > handle making him sick. Also do you have any experience with > ACTOS, > > (my dr. thinks it will help DYlan with his methylation cycle)? > Thanks > > again for Ethan's video...it gave me so much hope. I still watch it > > when I am at a low point. BIG HUGS to him for being such a trooper > > and beating the " beast " back! > > Debbie Stone > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2006 Report Share Posted June 5, 2006 First, if you look print out the references in the FILES section of this group that talk about herpes and autism that are in the medical literature, you doc should be able to put together that some of our kids have herpes viruses. Valtrex is not just for VD, it also works for encephilitis as well since it crosses the blood brain barrier. Try to get your doc up to speed, but you might have to switch to a DAN! doc to get this done. - Stan > > > > Hi Stan, > > I saw Ethan's video on GR's website 3 mos ago when I started with a > > DAN dr for 3.5 year old son Dylan. First off I must commend you on > > having the strength to film Ethan when he " wasn't at his best " . I > must > > tell you that I never thought my son was viral kid. That is until > I > > got his blood test results and it show elevated levels of MMR > titers > > and a whopping over 1200+ for herpes 6. We started Dylan gf-cf (he > > isn't a celiac but wanted to remove any possible inflammatory > > stuff)..he loved it. Our dr. then gave us a vitamin, probiotic,and > > fish oil (I already had Dylan on fish oil) and methyl b-12 cream (I > > was too chicken to give the shot). I did see an increase in hand > > stimming for Dylan sometime eye stims too (very painful for me to > > watch). Dylan has been in EI since 18 mos and transitioned to a > > special nursery school in fall of last year. He is doing very well > > but the language is WAY behind. He gets the methyl b-12 shots noe > (I > > got over myself) and glutathione cream. My dr. suggested that we > move > > onto ACTOS and the VALTREX. I wante dto go a little more natural > and > > would like to try the OLE. I know you went the VALTREX route, was > > there a reason you opted for that over OLE??? I am also afraid of > the > > regression (which I see some days with Dylan and it freaks me out) > and > > the rashes, etc. How did you deal??? I don't know if metally I > could > > handle making him sick. Also do you have any experience with > ACTOS, > > (my dr. thinks it will help DYlan with his methylation cycle)? > Thanks > > again for Ethan's video...it gave me so much hope. I still watch it > > when I am at a low point. BIG HUGS to him for being such a trooper > > and beating the " beast " back! > > Debbie Stone > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.