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Re: What if you can't handle the Valtrex?-

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Hi, I am getting into this thread late, I have been out of town for a

while. We have not used valtrex yet, but plan to do at the end of

the month. But regarding the healing regression....do you HAVE to

have rashes, colds, etc for this healing regression? Our son has

only been on one virastop divided 2x a day and OLE 250 mgs morning

and night. He has not gotten any rashes, yet he is experiencing

extreme behavioral deterioration. He fits the viral profile very

well, it makes total sense that he is viral...has all of

the " typical " signs and all...but no rashes. Any thoughts?

Kim

>

> Do you know about the healing regression period. I get excited

when I see my son 6yr 48lbs getting the viral reactions because it

means it's working. Every reaction has not lasted long. I think

though you are on a small dose and you should be splitting it up 3x

per day. My son is on 750mgtotal with 250mg split 3x. CJ got a cold

sore yesterday that is already gone and I cheered for joy.

> -

>

> >From: mermaidawnmom <Mermaidawn@...>

> >Date: Thu Apr 27 07:43:34 CDT 2006

> >mb12 valtrex

> >Subject: What if you can't handle the Valtrex?

>

> >Hi all,

> >

> >My son had tested positive to herpes, CMV and very high EB all IgG

> >results. We started valtrex early this week, 500mg once a day (he

is

> >almost 6 and aprox 50lbs) and after the second day he developed

very

> >red itchy eyes (I had posted about this earlier). I had never seen

this

> >reaction to anything we have given him before, he really could not

keep

> >them open until after a long hot shower. Our DAN has asked us to

hold

> >the Valtrex and said maybe we would start at a 1/2 a dose again in

a

> >few days.

> >

> >If he cannont tolerate the Valtrex, what are the alternatives?

I'm

> >sure there are some natural anti-virals but I don't know what they

are

> >and would like to research them before our dr's apt. on Monday.

> >

> >Thanks for any advice

> >

> >

> >

> >

> >

> >

> >

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Guest guest

Hi, I am getting into this thread late, I have been out of town for a

while. We have not used valtrex yet, but plan to do at the end of

the month. But regarding the healing regression....do you HAVE to

have rashes, colds, etc for this healing regression? Our son has

only been on one virastop divided 2x a day and OLE 250 mgs morning

and night. He has not gotten any rashes, yet he is experiencing

extreme behavioral deterioration. He fits the viral profile very

well, it makes total sense that he is viral...has all of

the " typical " signs and all...but no rashes. Any thoughts?

Kim

>

> Do you know about the healing regression period. I get excited

when I see my son 6yr 48lbs getting the viral reactions because it

means it's working. Every reaction has not lasted long. I think

though you are on a small dose and you should be splitting it up 3x

per day. My son is on 750mgtotal with 250mg split 3x. CJ got a cold

sore yesterday that is already gone and I cheered for joy.

> -

>

> >From: mermaidawnmom <Mermaidawn@...>

> >Date: Thu Apr 27 07:43:34 CDT 2006

> >mb12 valtrex

> >Subject: What if you can't handle the Valtrex?

>

> >Hi all,

> >

> >My son had tested positive to herpes, CMV and very high EB all IgG

> >results. We started valtrex early this week, 500mg once a day (he

is

> >almost 6 and aprox 50lbs) and after the second day he developed

very

> >red itchy eyes (I had posted about this earlier). I had never seen

this

> >reaction to anything we have given him before, he really could not

keep

> >them open until after a long hot shower. Our DAN has asked us to

hold

> >the Valtrex and said maybe we would start at a 1/2 a dose again in

a

> >few days.

> >

> >If he cannont tolerate the Valtrex, what are the alternatives?

I'm

> >sure there are some natural anti-virals but I don't know what they

are

> >and would like to research them before our dr's apt. on Monday.

> >

> >Thanks for any advice

> >

> >

> >

> >

> >

> >

> >

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Guest guest

Kim,

I saw cold and virus activity for the 1st week, 2nd week small bumpy

rash that last one day, a few days later a cold sore that only lasted a few

hours and 1 more rash on the back of his leg for only a short time. I

wouldn't have seen these things unless I'd been checking his whole body

daily. He is also exhibiting some bad behaviors. Excessive fears and some

obstinacy, I just stand there and wait it out. He has also said 6 full

unprompted sentences to get things he wants. (Usually I have to prompt a

full sentence with sign or visuals). It's been up and down and I'm assuming

that's all part of the healing regression. He did get a nose bleed the

other night while sleeping. Supposedly it is more common is children with

dust allergies (which CJ has) and happens more often while sleeping. But I

have to say it freaked me out!! That day he had his 1st challenger baseball

game and sat in the dirt screaming for the 1st hour. I'm assuming his nose

was full of dirt and dust and was not because of any of the treatments.

Let's hope anyway. Take care, I want to add virastop next when he levels

off. -

What if you can't handle the Valtrex?

>

> >Hi all,

> >

> >My son had tested positive to herpes, CMV and very high EB all IgG

> >results. We started valtrex early this week, 500mg once a day (he

is

> >almost 6 and aprox 50lbs) and after the second day he developed

very

> >red itchy eyes (I had posted about this earlier). I had never seen

this

> >reaction to anything we have given him before, he really could not

keep

> >them open until after a long hot shower. Our DAN has asked us to

hold

> >the Valtrex and said maybe we would start at a 1/2 a dose again in

a

> >few days.

> >

> >If he cannont tolerate the Valtrex, what are the alternatives?

I'm

> >sure there are some natural anti-virals but I don't know what they

are

> >and would like to research them before our dr's apt. on Monday.

> >

> >Thanks for any advice

> >

> >

> >

> >

> >

> >

> >

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Guest guest

Kim,

I saw cold and virus activity for the 1st week, 2nd week small bumpy

rash that last one day, a few days later a cold sore that only lasted a few

hours and 1 more rash on the back of his leg for only a short time. I

wouldn't have seen these things unless I'd been checking his whole body

daily. He is also exhibiting some bad behaviors. Excessive fears and some

obstinacy, I just stand there and wait it out. He has also said 6 full

unprompted sentences to get things he wants. (Usually I have to prompt a

full sentence with sign or visuals). It's been up and down and I'm assuming

that's all part of the healing regression. He did get a nose bleed the

other night while sleeping. Supposedly it is more common is children with

dust allergies (which CJ has) and happens more often while sleeping. But I

have to say it freaked me out!! That day he had his 1st challenger baseball

game and sat in the dirt screaming for the 1st hour. I'm assuming his nose

was full of dirt and dust and was not because of any of the treatments.

Let's hope anyway. Take care, I want to add virastop next when he levels

off. -

What if you can't handle the Valtrex?

>

> >Hi all,

> >

> >My son had tested positive to herpes, CMV and very high EB all IgG

> >results. We started valtrex early this week, 500mg once a day (he

is

> >almost 6 and aprox 50lbs) and after the second day he developed

very

> >red itchy eyes (I had posted about this earlier). I had never seen

this

> >reaction to anything we have given him before, he really could not

keep

> >them open until after a long hot shower. Our DAN has asked us to

hold

> >the Valtrex and said maybe we would start at a 1/2 a dose again in

a

> >few days.

> >

> >If he cannont tolerate the Valtrex, what are the alternatives?

I'm

> >sure there are some natural anti-virals but I don't know what they

are

> >and would like to research them before our dr's apt. on Monday.

> >

> >Thanks for any advice

> >

> >

> >

> >

> >

> >

> >

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Share on other sites

Guest guest

Thanks : Admittedly, I have not been looking/searching his

body for any rash. I thought that it would just be obvious, but now

i will look a little more. Thanks for the info...this is very

disturbing. Just 2 months ago, our son was almost ready for

mainstream kindergarten. Now, his teachers/therapists thinks he has

regressed so much that he will be in a structured kindergarten with a

2 to 1 ratio.

The weird thing is...he also started the MB-12 shots, which made him

really really hyper. I wonder if I should stop those?

Kim

> >

> > Do you know about the healing regression period. I get excited

> when I see my son 6yr 48lbs getting the viral reactions because it

> means it's working. Every reaction has not lasted long. I think

> though you are on a small dose and you should be splitting it up 3x

> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

cold

> sore yesterday that is already gone and I cheered for joy.

> > -

> >

> > >From: mermaidawnmom <Mermaidawn@>

> > >Date: Thu Apr 27 07:43:34 CDT 2006

> > >mb12 valtrex

> > >Subject: What if you can't handle the Valtrex?

> >

> > >Hi all,

> > >

> > >My son had tested positive to herpes, CMV and very high EB all

IgG

> > >results. We started valtrex early this week, 500mg once a day

(he

> is

> > >almost 6 and aprox 50lbs) and after the second day he developed

> very

> > >red itchy eyes (I had posted about this earlier). I had never

seen

> this

> > >reaction to anything we have given him before, he really could

not

> keep

> > >them open until after a long hot shower. Our DAN has asked us

to

> hold

> > >the Valtrex and said maybe we would start at a 1/2 a dose again

in

> a

> > >few days.

> > >

> > >If he cannont tolerate the Valtrex, what are the alternatives?

> I'm

> > >sure there are some natural anti-virals but I don't know what

they

> are

> > >and would like to research them before our dr's apt. on Monday.

> > >

> > >Thanks for any advice

> > >

> > >

> > >

> > >

> > >

> > >

> > >

Link to comment
Share on other sites

Guest guest

Thanks : Admittedly, I have not been looking/searching his

body for any rash. I thought that it would just be obvious, but now

i will look a little more. Thanks for the info...this is very

disturbing. Just 2 months ago, our son was almost ready for

mainstream kindergarten. Now, his teachers/therapists thinks he has

regressed so much that he will be in a structured kindergarten with a

2 to 1 ratio.

The weird thing is...he also started the MB-12 shots, which made him

really really hyper. I wonder if I should stop those?

Kim

> >

> > Do you know about the healing regression period. I get excited

> when I see my son 6yr 48lbs getting the viral reactions because it

> means it's working. Every reaction has not lasted long. I think

> though you are on a small dose and you should be splitting it up 3x

> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

cold

> sore yesterday that is already gone and I cheered for joy.

> > -

> >

> > >From: mermaidawnmom <Mermaidawn@>

> > >Date: Thu Apr 27 07:43:34 CDT 2006

> > >mb12 valtrex

> > >Subject: What if you can't handle the Valtrex?

> >

> > >Hi all,

> > >

> > >My son had tested positive to herpes, CMV and very high EB all

IgG

> > >results. We started valtrex early this week, 500mg once a day

(he

> is

> > >almost 6 and aprox 50lbs) and after the second day he developed

> very

> > >red itchy eyes (I had posted about this earlier). I had never

seen

> this

> > >reaction to anything we have given him before, he really could

not

> keep

> > >them open until after a long hot shower. Our DAN has asked us

to

> hold

> > >the Valtrex and said maybe we would start at a 1/2 a dose again

in

> a

> > >few days.

> > >

> > >If he cannont tolerate the Valtrex, what are the alternatives?

> I'm

> > >sure there are some natural anti-virals but I don't know what

they

> are

> > >and would like to research them before our dr's apt. on Monday.

> > >

> > >Thanks for any advice

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

Kim,

Hyperactivity is very common with MB-12 and Dr. Deth told me if you

can stand it to keep going and hyperactivity may be overcome. How long have you

been on valtrex and do you have an antifungal. CJ is on nystatin (yes I know we

have to switch and will) but I am starting to see either yeast die off or

nystatin isn't quite getting it all while on Valtrex. Structured 2to 1 may not

be the worst thing, it may be better to give him more and then move him out

later when he regains skills. Although I really know how hard it is to take

when they go backwards at all. Where are the acutaly regressions. In learning,

in behaviors or just ability to get the info out?? Did you possible start

giving Calcium or folinic acid at all? -

>From: Kim GIll <kim.gill@...>

>Date: Tue May 02 11:04:34 CDT 2006

>mb12 valtrex

>Subject: Re: What if you can't handle the Valtrex?-

>Thanks : Admittedly, I have not been looking/searching his

>body for any rash. I thought that it would just be obvious, but now

>i will look a little more. Thanks for the info...this is very

>disturbing. Just 2 months ago, our son was almost ready for

>mainstream kindergarten. Now, his teachers/therapists thinks he has

>regressed so much that he will be in a structured kindergarten with a

>2 to 1 ratio.

>

>The weird thing is...he also started the MB-12 shots, which made him

>really really hyper. I wonder if I should stop those?

>

>Kim

>

>

>

>

>> >

>> > Do you know about the healing regression period. I get excited

>> when I see my son 6yr 48lbs getting the viral reactions because it

>> means it's working. Every reaction has not lasted long. I think

>> though you are on a small dose and you should be splitting it up 3x

>> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

>cold

>> sore yesterday that is already gone and I cheered for joy.

>> > -

>> >

>> > >From: mermaidawnmom <Mermaidawn@>

>> > >Date: Thu Apr 27 07:43:34 CDT 2006

>> > >mb12 valtrex

>> > >Subject: What if you can't handle the Valtrex?

>> >

>> > >Hi all,

>> > >

>> > >My son had tested positive to herpes, CMV and very high EB all

>IgG

>> > >results. We started valtrex early this week, 500mg once a day

>(he

>> is

>> > >almost 6 and aprox 50lbs) and after the second day he developed

>> very

>> > >red itchy eyes (I had posted about this earlier). I had never

>seen

>> this

>> > >reaction to anything we have given him before, he really could

>not

>> keep

>> > >them open until after a long hot shower. Our DAN has asked us

>to

>> hold

>> > >the Valtrex and said maybe we would start at a 1/2 a dose again

>in

>> a

>> > >few days.

>> > >

>> > >If he cannont tolerate the Valtrex, what are the alternatives?

>> I'm

>> > >sure there are some natural anti-virals but I don't know what

>they

>> are

>> > >and would like to research them before our dr's apt. on Monday.

>> > >

>> > >Thanks for any advice

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

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Share on other sites

Guest guest

Kim,

Hyperactivity is very common with MB-12 and Dr. Deth told me if you

can stand it to keep going and hyperactivity may be overcome. How long have you

been on valtrex and do you have an antifungal. CJ is on nystatin (yes I know we

have to switch and will) but I am starting to see either yeast die off or

nystatin isn't quite getting it all while on Valtrex. Structured 2to 1 may not

be the worst thing, it may be better to give him more and then move him out

later when he regains skills. Although I really know how hard it is to take

when they go backwards at all. Where are the acutaly regressions. In learning,

in behaviors or just ability to get the info out?? Did you possible start

giving Calcium or folinic acid at all? -

>From: Kim GIll <kim.gill@...>

>Date: Tue May 02 11:04:34 CDT 2006

>mb12 valtrex

>Subject: Re: What if you can't handle the Valtrex?-

>Thanks : Admittedly, I have not been looking/searching his

>body for any rash. I thought that it would just be obvious, but now

>i will look a little more. Thanks for the info...this is very

>disturbing. Just 2 months ago, our son was almost ready for

>mainstream kindergarten. Now, his teachers/therapists thinks he has

>regressed so much that he will be in a structured kindergarten with a

>2 to 1 ratio.

>

>The weird thing is...he also started the MB-12 shots, which made him

>really really hyper. I wonder if I should stop those?

>

>Kim

>

>

>

>

>> >

>> > Do you know about the healing regression period. I get excited

>> when I see my son 6yr 48lbs getting the viral reactions because it

>> means it's working. Every reaction has not lasted long. I think

>> though you are on a small dose and you should be splitting it up 3x

>> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

>cold

>> sore yesterday that is already gone and I cheered for joy.

>> > -

>> >

>> > >From: mermaidawnmom <Mermaidawn@>

>> > >Date: Thu Apr 27 07:43:34 CDT 2006

>> > >mb12 valtrex

>> > >Subject: What if you can't handle the Valtrex?

>> >

>> > >Hi all,

>> > >

>> > >My son had tested positive to herpes, CMV and very high EB all

>IgG

>> > >results. We started valtrex early this week, 500mg once a day

>(he

>> is

>> > >almost 6 and aprox 50lbs) and after the second day he developed

>> very

>> > >red itchy eyes (I had posted about this earlier). I had never

>seen

>> this

>> > >reaction to anything we have given him before, he really could

>not

>> keep

>> > >them open until after a long hot shower. Our DAN has asked us

>to

>> hold

>> > >the Valtrex and said maybe we would start at a 1/2 a dose again

>in

>> a

>> > >few days.

>> > >

>> > >If he cannont tolerate the Valtrex, what are the alternatives?

>> I'm

>> > >sure there are some natural anti-virals but I don't know what

>they

>> are

>> > >and would like to research them before our dr's apt. on Monday.

>> > >

>> > >Thanks for any advice

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

>> > >

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Share on other sites

Guest guest

: If i did it correctly, I just responded to you in private,

so that I dont bother others here with the gory details. Let me

know if you dont get it....and thanks!

Kim

> >> >

> >> > Do you know about the healing regression period. I get

excited

> >> when I see my son 6yr 48lbs getting the viral reactions because

it

> >> means it's working. Every reaction has not lasted long. I

think

> >> though you are on a small dose and you should be splitting it up

3x

> >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

> >cold

> >> sore yesterday that is already gone and I cheered for joy.

> >> > -

> >> >

> >> > >From: mermaidawnmom <Mermaidawn@>

> >> > >Date: Thu Apr 27 07:43:34 CDT 2006

> >> > >mb12 valtrex

> >> > >Subject: What if you can't handle the Valtrex?

> >> >

> >> > >Hi all,

> >> > >

> >> > >My son had tested positive to herpes, CMV and very high EB

all

> >IgG

> >> > >results. We started valtrex early this week, 500mg once a

day

> >(he

> >> is

> >> > >almost 6 and aprox 50lbs) and after the second day he

developed

> >> very

> >> > >red itchy eyes (I had posted about this earlier). I had never

> >seen

> >> this

> >> > >reaction to anything we have given him before, he really

could

> >not

> >> keep

> >> > >them open until after a long hot shower. Our DAN has asked

us

> >to

> >> hold

> >> > >the Valtrex and said maybe we would start at a 1/2 a dose

again

> >in

> >> a

> >> > >few days.

> >> > >

> >> > >If he cannont tolerate the Valtrex, what are the

alternatives?

> >> I'm

> >> > >sure there are some natural anti-virals but I don't know what

> >they

> >> are

> >> > >and would like to research them before our dr's apt. on

Monday.

> >> > >

> >> > >Thanks for any advice

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

Link to comment
Share on other sites

Guest guest

: If i did it correctly, I just responded to you in private,

so that I dont bother others here with the gory details. Let me

know if you dont get it....and thanks!

Kim

> >> >

> >> > Do you know about the healing regression period. I get

excited

> >> when I see my son 6yr 48lbs getting the viral reactions because

it

> >> means it's working. Every reaction has not lasted long. I

think

> >> though you are on a small dose and you should be splitting it up

3x

> >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a

> >cold

> >> sore yesterday that is already gone and I cheered for joy.

> >> > -

> >> >

> >> > >From: mermaidawnmom <Mermaidawn@>

> >> > >Date: Thu Apr 27 07:43:34 CDT 2006

> >> > >mb12 valtrex

> >> > >Subject: What if you can't handle the Valtrex?

> >> >

> >> > >Hi all,

> >> > >

> >> > >My son had tested positive to herpes, CMV and very high EB

all

> >IgG

> >> > >results. We started valtrex early this week, 500mg once a

day

> >(he

> >> is

> >> > >almost 6 and aprox 50lbs) and after the second day he

developed

> >> very

> >> > >red itchy eyes (I had posted about this earlier). I had never

> >seen

> >> this

> >> > >reaction to anything we have given him before, he really

could

> >not

> >> keep

> >> > >them open until after a long hot shower. Our DAN has asked

us

> >to

> >> hold

> >> > >the Valtrex and said maybe we would start at a 1/2 a dose

again

> >in

> >> a

> >> > >few days.

> >> > >

> >> > >If he cannont tolerate the Valtrex, what are the

alternatives?

> >> I'm

> >> > >sure there are some natural anti-virals but I don't know what

> >they

> >> are

> >> > >and would like to research them before our dr's apt. on

Monday.

> >> > >

> >> > >Thanks for any advice

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

> >> > >

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