Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hi, I am getting into this thread late, I have been out of town for a while. We have not used valtrex yet, but plan to do at the end of the month. But regarding the healing regression....do you HAVE to have rashes, colds, etc for this healing regression? Our son has only been on one virastop divided 2x a day and OLE 250 mgs morning and night. He has not gotten any rashes, yet he is experiencing extreme behavioral deterioration. He fits the viral profile very well, it makes total sense that he is viral...has all of the " typical " signs and all...but no rashes. Any thoughts? Kim > > Do you know about the healing regression period. I get excited when I see my son 6yr 48lbs getting the viral reactions because it means it's working. Every reaction has not lasted long. I think though you are on a small dose and you should be splitting it up 3x per day. My son is on 750mgtotal with 250mg split 3x. CJ got a cold sore yesterday that is already gone and I cheered for joy. > - > > >From: mermaidawnmom <Mermaidawn@...> > >Date: Thu Apr 27 07:43:34 CDT 2006 > >mb12 valtrex > >Subject: What if you can't handle the Valtrex? > > >Hi all, > > > >My son had tested positive to herpes, CMV and very high EB all IgG > >results. We started valtrex early this week, 500mg once a day (he is > >almost 6 and aprox 50lbs) and after the second day he developed very > >red itchy eyes (I had posted about this earlier). I had never seen this > >reaction to anything we have given him before, he really could not keep > >them open until after a long hot shower. Our DAN has asked us to hold > >the Valtrex and said maybe we would start at a 1/2 a dose again in a > >few days. > > > >If he cannont tolerate the Valtrex, what are the alternatives? I'm > >sure there are some natural anti-virals but I don't know what they are > >and would like to research them before our dr's apt. on Monday. > > > >Thanks for any advice > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hi, I am getting into this thread late, I have been out of town for a while. We have not used valtrex yet, but plan to do at the end of the month. But regarding the healing regression....do you HAVE to have rashes, colds, etc for this healing regression? Our son has only been on one virastop divided 2x a day and OLE 250 mgs morning and night. He has not gotten any rashes, yet he is experiencing extreme behavioral deterioration. He fits the viral profile very well, it makes total sense that he is viral...has all of the " typical " signs and all...but no rashes. Any thoughts? Kim > > Do you know about the healing regression period. I get excited when I see my son 6yr 48lbs getting the viral reactions because it means it's working. Every reaction has not lasted long. I think though you are on a small dose and you should be splitting it up 3x per day. My son is on 750mgtotal with 250mg split 3x. CJ got a cold sore yesterday that is already gone and I cheered for joy. > - > > >From: mermaidawnmom <Mermaidawn@...> > >Date: Thu Apr 27 07:43:34 CDT 2006 > >mb12 valtrex > >Subject: What if you can't handle the Valtrex? > > >Hi all, > > > >My son had tested positive to herpes, CMV and very high EB all IgG > >results. We started valtrex early this week, 500mg once a day (he is > >almost 6 and aprox 50lbs) and after the second day he developed very > >red itchy eyes (I had posted about this earlier). I had never seen this > >reaction to anything we have given him before, he really could not keep > >them open until after a long hot shower. Our DAN has asked us to hold > >the Valtrex and said maybe we would start at a 1/2 a dose again in a > >few days. > > > >If he cannont tolerate the Valtrex, what are the alternatives? I'm > >sure there are some natural anti-virals but I don't know what they are > >and would like to research them before our dr's apt. on Monday. > > > >Thanks for any advice > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Kim, I saw cold and virus activity for the 1st week, 2nd week small bumpy rash that last one day, a few days later a cold sore that only lasted a few hours and 1 more rash on the back of his leg for only a short time. I wouldn't have seen these things unless I'd been checking his whole body daily. He is also exhibiting some bad behaviors. Excessive fears and some obstinacy, I just stand there and wait it out. He has also said 6 full unprompted sentences to get things he wants. (Usually I have to prompt a full sentence with sign or visuals). It's been up and down and I'm assuming that's all part of the healing regression. He did get a nose bleed the other night while sleeping. Supposedly it is more common is children with dust allergies (which CJ has) and happens more often while sleeping. But I have to say it freaked me out!! That day he had his 1st challenger baseball game and sat in the dirt screaming for the 1st hour. I'm assuming his nose was full of dirt and dust and was not because of any of the treatments. Let's hope anyway. Take care, I want to add virastop next when he levels off. - What if you can't handle the Valtrex? > > >Hi all, > > > >My son had tested positive to herpes, CMV and very high EB all IgG > >results. We started valtrex early this week, 500mg once a day (he is > >almost 6 and aprox 50lbs) and after the second day he developed very > >red itchy eyes (I had posted about this earlier). I had never seen this > >reaction to anything we have given him before, he really could not keep > >them open until after a long hot shower. Our DAN has asked us to hold > >the Valtrex and said maybe we would start at a 1/2 a dose again in a > >few days. > > > >If he cannont tolerate the Valtrex, what are the alternatives? I'm > >sure there are some natural anti-virals but I don't know what they are > >and would like to research them before our dr's apt. on Monday. > > > >Thanks for any advice > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Kim, I saw cold and virus activity for the 1st week, 2nd week small bumpy rash that last one day, a few days later a cold sore that only lasted a few hours and 1 more rash on the back of his leg for only a short time. I wouldn't have seen these things unless I'd been checking his whole body daily. He is also exhibiting some bad behaviors. Excessive fears and some obstinacy, I just stand there and wait it out. He has also said 6 full unprompted sentences to get things he wants. (Usually I have to prompt a full sentence with sign or visuals). It's been up and down and I'm assuming that's all part of the healing regression. He did get a nose bleed the other night while sleeping. Supposedly it is more common is children with dust allergies (which CJ has) and happens more often while sleeping. But I have to say it freaked me out!! That day he had his 1st challenger baseball game and sat in the dirt screaming for the 1st hour. I'm assuming his nose was full of dirt and dust and was not because of any of the treatments. Let's hope anyway. Take care, I want to add virastop next when he levels off. - What if you can't handle the Valtrex? > > >Hi all, > > > >My son had tested positive to herpes, CMV and very high EB all IgG > >results. We started valtrex early this week, 500mg once a day (he is > >almost 6 and aprox 50lbs) and after the second day he developed very > >red itchy eyes (I had posted about this earlier). I had never seen this > >reaction to anything we have given him before, he really could not keep > >them open until after a long hot shower. Our DAN has asked us to hold > >the Valtrex and said maybe we would start at a 1/2 a dose again in a > >few days. > > > >If he cannont tolerate the Valtrex, what are the alternatives? I'm > >sure there are some natural anti-virals but I don't know what they are > >and would like to research them before our dr's apt. on Monday. > > > >Thanks for any advice > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Thanks : Admittedly, I have not been looking/searching his body for any rash. I thought that it would just be obvious, but now i will look a little more. Thanks for the info...this is very disturbing. Just 2 months ago, our son was almost ready for mainstream kindergarten. Now, his teachers/therapists thinks he has regressed so much that he will be in a structured kindergarten with a 2 to 1 ratio. The weird thing is...he also started the MB-12 shots, which made him really really hyper. I wonder if I should stop those? Kim > > > > Do you know about the healing regression period. I get excited > when I see my son 6yr 48lbs getting the viral reactions because it > means it's working. Every reaction has not lasted long. I think > though you are on a small dose and you should be splitting it up 3x > per day. My son is on 750mgtotal with 250mg split 3x. CJ got a cold > sore yesterday that is already gone and I cheered for joy. > > - > > > > >From: mermaidawnmom <Mermaidawn@> > > >Date: Thu Apr 27 07:43:34 CDT 2006 > > >mb12 valtrex > > >Subject: What if you can't handle the Valtrex? > > > > >Hi all, > > > > > >My son had tested positive to herpes, CMV and very high EB all IgG > > >results. We started valtrex early this week, 500mg once a day (he > is > > >almost 6 and aprox 50lbs) and after the second day he developed > very > > >red itchy eyes (I had posted about this earlier). I had never seen > this > > >reaction to anything we have given him before, he really could not > keep > > >them open until after a long hot shower. Our DAN has asked us to > hold > > >the Valtrex and said maybe we would start at a 1/2 a dose again in > a > > >few days. > > > > > >If he cannont tolerate the Valtrex, what are the alternatives? > I'm > > >sure there are some natural anti-virals but I don't know what they > are > > >and would like to research them before our dr's apt. on Monday. > > > > > >Thanks for any advice > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Thanks : Admittedly, I have not been looking/searching his body for any rash. I thought that it would just be obvious, but now i will look a little more. Thanks for the info...this is very disturbing. Just 2 months ago, our son was almost ready for mainstream kindergarten. Now, his teachers/therapists thinks he has regressed so much that he will be in a structured kindergarten with a 2 to 1 ratio. The weird thing is...he also started the MB-12 shots, which made him really really hyper. I wonder if I should stop those? Kim > > > > Do you know about the healing regression period. I get excited > when I see my son 6yr 48lbs getting the viral reactions because it > means it's working. Every reaction has not lasted long. I think > though you are on a small dose and you should be splitting it up 3x > per day. My son is on 750mgtotal with 250mg split 3x. CJ got a cold > sore yesterday that is already gone and I cheered for joy. > > - > > > > >From: mermaidawnmom <Mermaidawn@> > > >Date: Thu Apr 27 07:43:34 CDT 2006 > > >mb12 valtrex > > >Subject: What if you can't handle the Valtrex? > > > > >Hi all, > > > > > >My son had tested positive to herpes, CMV and very high EB all IgG > > >results. We started valtrex early this week, 500mg once a day (he > is > > >almost 6 and aprox 50lbs) and after the second day he developed > very > > >red itchy eyes (I had posted about this earlier). I had never seen > this > > >reaction to anything we have given him before, he really could not > keep > > >them open until after a long hot shower. Our DAN has asked us to > hold > > >the Valtrex and said maybe we would start at a 1/2 a dose again in > a > > >few days. > > > > > >If he cannont tolerate the Valtrex, what are the alternatives? > I'm > > >sure there are some natural anti-virals but I don't know what they > are > > >and would like to research them before our dr's apt. on Monday. > > > > > >Thanks for any advice > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Kim, Hyperactivity is very common with MB-12 and Dr. Deth told me if you can stand it to keep going and hyperactivity may be overcome. How long have you been on valtrex and do you have an antifungal. CJ is on nystatin (yes I know we have to switch and will) but I am starting to see either yeast die off or nystatin isn't quite getting it all while on Valtrex. Structured 2to 1 may not be the worst thing, it may be better to give him more and then move him out later when he regains skills. Although I really know how hard it is to take when they go backwards at all. Where are the acutaly regressions. In learning, in behaviors or just ability to get the info out?? Did you possible start giving Calcium or folinic acid at all? - >From: Kim GIll <kim.gill@...> >Date: Tue May 02 11:04:34 CDT 2006 >mb12 valtrex >Subject: Re: What if you can't handle the Valtrex?- >Thanks : Admittedly, I have not been looking/searching his >body for any rash. I thought that it would just be obvious, but now >i will look a little more. Thanks for the info...this is very >disturbing. Just 2 months ago, our son was almost ready for >mainstream kindergarten. Now, his teachers/therapists thinks he has >regressed so much that he will be in a structured kindergarten with a >2 to 1 ratio. > >The weird thing is...he also started the MB-12 shots, which made him >really really hyper. I wonder if I should stop those? > >Kim > > > > >> > >> > Do you know about the healing regression period. I get excited >> when I see my son 6yr 48lbs getting the viral reactions because it >> means it's working. Every reaction has not lasted long. I think >> though you are on a small dose and you should be splitting it up 3x >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a >cold >> sore yesterday that is already gone and I cheered for joy. >> > - >> > >> > >From: mermaidawnmom <Mermaidawn@> >> > >Date: Thu Apr 27 07:43:34 CDT 2006 >> > >mb12 valtrex >> > >Subject: What if you can't handle the Valtrex? >> > >> > >Hi all, >> > > >> > >My son had tested positive to herpes, CMV and very high EB all >IgG >> > >results. We started valtrex early this week, 500mg once a day >(he >> is >> > >almost 6 and aprox 50lbs) and after the second day he developed >> very >> > >red itchy eyes (I had posted about this earlier). I had never >seen >> this >> > >reaction to anything we have given him before, he really could >not >> keep >> > >them open until after a long hot shower. Our DAN has asked us >to >> hold >> > >the Valtrex and said maybe we would start at a 1/2 a dose again >in >> a >> > >few days. >> > > >> > >If he cannont tolerate the Valtrex, what are the alternatives? >> I'm >> > >sure there are some natural anti-virals but I don't know what >they >> are >> > >and would like to research them before our dr's apt. on Monday. >> > > >> > >Thanks for any advice >> > > >> > > >> > > >> > > >> > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Kim, Hyperactivity is very common with MB-12 and Dr. Deth told me if you can stand it to keep going and hyperactivity may be overcome. How long have you been on valtrex and do you have an antifungal. CJ is on nystatin (yes I know we have to switch and will) but I am starting to see either yeast die off or nystatin isn't quite getting it all while on Valtrex. Structured 2to 1 may not be the worst thing, it may be better to give him more and then move him out later when he regains skills. Although I really know how hard it is to take when they go backwards at all. Where are the acutaly regressions. In learning, in behaviors or just ability to get the info out?? Did you possible start giving Calcium or folinic acid at all? - >From: Kim GIll <kim.gill@...> >Date: Tue May 02 11:04:34 CDT 2006 >mb12 valtrex >Subject: Re: What if you can't handle the Valtrex?- >Thanks : Admittedly, I have not been looking/searching his >body for any rash. I thought that it would just be obvious, but now >i will look a little more. Thanks for the info...this is very >disturbing. Just 2 months ago, our son was almost ready for >mainstream kindergarten. Now, his teachers/therapists thinks he has >regressed so much that he will be in a structured kindergarten with a >2 to 1 ratio. > >The weird thing is...he also started the MB-12 shots, which made him >really really hyper. I wonder if I should stop those? > >Kim > > > > >> > >> > Do you know about the healing regression period. I get excited >> when I see my son 6yr 48lbs getting the viral reactions because it >> means it's working. Every reaction has not lasted long. I think >> though you are on a small dose and you should be splitting it up 3x >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a >cold >> sore yesterday that is already gone and I cheered for joy. >> > - >> > >> > >From: mermaidawnmom <Mermaidawn@> >> > >Date: Thu Apr 27 07:43:34 CDT 2006 >> > >mb12 valtrex >> > >Subject: What if you can't handle the Valtrex? >> > >> > >Hi all, >> > > >> > >My son had tested positive to herpes, CMV and very high EB all >IgG >> > >results. We started valtrex early this week, 500mg once a day >(he >> is >> > >almost 6 and aprox 50lbs) and after the second day he developed >> very >> > >red itchy eyes (I had posted about this earlier). I had never >seen >> this >> > >reaction to anything we have given him before, he really could >not >> keep >> > >them open until after a long hot shower. Our DAN has asked us >to >> hold >> > >the Valtrex and said maybe we would start at a 1/2 a dose again >in >> a >> > >few days. >> > > >> > >If he cannont tolerate the Valtrex, what are the alternatives? >> I'm >> > >sure there are some natural anti-virals but I don't know what >they >> are >> > >and would like to research them before our dr's apt. on Monday. >> > > >> > >Thanks for any advice >> > > >> > > >> > > >> > > >> > > >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 : If i did it correctly, I just responded to you in private, so that I dont bother others here with the gory details. Let me know if you dont get it....and thanks! Kim > >> > > >> > Do you know about the healing regression period. I get excited > >> when I see my son 6yr 48lbs getting the viral reactions because it > >> means it's working. Every reaction has not lasted long. I think > >> though you are on a small dose and you should be splitting it up 3x > >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a > >cold > >> sore yesterday that is already gone and I cheered for joy. > >> > - > >> > > >> > >From: mermaidawnmom <Mermaidawn@> > >> > >Date: Thu Apr 27 07:43:34 CDT 2006 > >> > >mb12 valtrex > >> > >Subject: What if you can't handle the Valtrex? > >> > > >> > >Hi all, > >> > > > >> > >My son had tested positive to herpes, CMV and very high EB all > >IgG > >> > >results. We started valtrex early this week, 500mg once a day > >(he > >> is > >> > >almost 6 and aprox 50lbs) and after the second day he developed > >> very > >> > >red itchy eyes (I had posted about this earlier). I had never > >seen > >> this > >> > >reaction to anything we have given him before, he really could > >not > >> keep > >> > >them open until after a long hot shower. Our DAN has asked us > >to > >> hold > >> > >the Valtrex and said maybe we would start at a 1/2 a dose again > >in > >> a > >> > >few days. > >> > > > >> > >If he cannont tolerate the Valtrex, what are the alternatives? > >> I'm > >> > >sure there are some natural anti-virals but I don't know what > >they > >> are > >> > >and would like to research them before our dr's apt. on Monday. > >> > > > >> > >Thanks for any advice > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 : If i did it correctly, I just responded to you in private, so that I dont bother others here with the gory details. Let me know if you dont get it....and thanks! Kim > >> > > >> > Do you know about the healing regression period. I get excited > >> when I see my son 6yr 48lbs getting the viral reactions because it > >> means it's working. Every reaction has not lasted long. I think > >> though you are on a small dose and you should be splitting it up 3x > >> per day. My son is on 750mgtotal with 250mg split 3x. CJ got a > >cold > >> sore yesterday that is already gone and I cheered for joy. > >> > - > >> > > >> > >From: mermaidawnmom <Mermaidawn@> > >> > >Date: Thu Apr 27 07:43:34 CDT 2006 > >> > >mb12 valtrex > >> > >Subject: What if you can't handle the Valtrex? > >> > > >> > >Hi all, > >> > > > >> > >My son had tested positive to herpes, CMV and very high EB all > >IgG > >> > >results. We started valtrex early this week, 500mg once a day > >(he > >> is > >> > >almost 6 and aprox 50lbs) and after the second day he developed > >> very > >> > >red itchy eyes (I had posted about this earlier). I had never > >seen > >> this > >> > >reaction to anything we have given him before, he really could > >not > >> keep > >> > >them open until after a long hot shower. Our DAN has asked us > >to > >> hold > >> > >the Valtrex and said maybe we would start at a 1/2 a dose again > >in > >> a > >> > >few days. > >> > > > >> > >If he cannont tolerate the Valtrex, what are the alternatives? > >> I'm > >> > >sure there are some natural anti-virals but I don't know what > >they > >> are > >> > >and would like to research them before our dr's apt. on Monday. > >> > > > >> > >Thanks for any advice > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > Quote Link to comment Share on other sites More sharing options...
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