2 weeks on acyclovir/Aidan

[Guest guest]

Hi All,

We decided to trial acyclovir for my ten year old HF son two weeks

ago, mostly because a friend who's son has exact profile (regressive

ASD, gut,viral issues) uses acyclovir and her son is pretty much

recovered. We have been on LDN since last July with excellent results,

but still seeing signs of viral cycling ie; red spots on upper lip

followed by dark red spots on butt, gut inflammation, and behavioral

deterioration. Aidan has had a history of wierd viral rashes, HSP, and

bacterial overload. He also has a positive ANA, and does best on

antibiotics such as cefzil or amox.

The first week on acyclovir we saw pimpley spots on his chin and some

spots on his legs. Language has absolutely taken off in a big way

nearly from the beginning! His bowels are moving more regularly as

well. This morning when I took him in to school, he walked up to a

young woman in a wheel chair and asked her if her legs hurt, then held

her hands and told her everything would be okay. I was nearly sobbing

it was so damn sweet! Just thought I'd share in case anyone with an

older child is hesitating to try.

Best,

[Guest guest]

--- pom5903 <pom5903@...> wrote:

> Hi All,

> We decided to trial acyclovir for my ten year old HF

> son two weeks

> ago, mostly because a friend who's son has exact

> profile (regressive

> ASD, gut,viral issues) uses acyclovir and her son is

> pretty much

> recovered. We have been on LDN since last July with

> excellent results,

> but still seeing signs of viral cycling ie; red

> spots on upper lip

> followed by dark red spots on butt, gut

> inflammation, and behavioral

> deterioration. Aidan has had a history of wierd

> viral rashes, HSP, and

> bacterial overload. He also has a positive ANA, and

> does best on

> antibiotics such as cefzil or amox.

> The first week on acyclovir we saw pimpley spots on

> his chin and some

> spots on his legs. Language has absolutely taken off

> in a big way

> nearly from the beginning! His bowels are moving

> more regularly as

> well. This morning when I took him in to school, he

> walked up to a

> young woman in a wheel chair and asked her if her

> legs hurt, then held

> her hands and told her everything would be okay. I

> was nearly sobbing

> it was so damn sweet! Just thought I'd share in case

> anyone with an

> older child is hesitating to try.

> Best,

>

>

> I am very happy for you patricia. Rashes on the but

sometimes are fungal and very rarely caused by a

biotin defeciency. Rashes can be cultured quite easily

by a dermatologist. You just take a swab to the skin

and look at it under a slide or culture it. Very easy

for the child if you want an exact diagnosis. So glad

your child improved!!!!!!!!!

>

>

>

__________________________________________________

[Guest guest]

--- pom5903 <pom5903@...> wrote:

> Hi All,

> We decided to trial acyclovir for my ten year old HF

> son two weeks

> ago, mostly because a friend who's son has exact

> profile (regressive

> ASD, gut,viral issues) uses acyclovir and her son is

> pretty much

> recovered. We have been on LDN since last July with

> excellent results,

> but still seeing signs of viral cycling ie; red

> spots on upper lip

> followed by dark red spots on butt, gut

> inflammation, and behavioral

> deterioration. Aidan has had a history of wierd

> viral rashes, HSP, and

> bacterial overload. He also has a positive ANA, and

> does best on

> antibiotics such as cefzil or amox.

> The first week on acyclovir we saw pimpley spots on

> his chin and some

> spots on his legs. Language has absolutely taken off

> in a big way

> nearly from the beginning! His bowels are moving

> more regularly as

> well. This morning when I took him in to school, he

> walked up to a

> young woman in a wheel chair and asked her if her

> legs hurt, then held

> her hands and told her everything would be okay. I

> was nearly sobbing

> it was so damn sweet! Just thought I'd share in case

> anyone with an

> older child is hesitating to try.

> Best,

>

>

> I am very happy for you patricia. Rashes on the but

sometimes are fungal and very rarely caused by a

biotin defeciency. Rashes can be cultured quite easily

by a dermatologist. You just take a swab to the skin

and look at it under a slide or culture it. Very easy

for the child if you want an exact diagnosis. So glad

your child improved!!!!!!!!!

>

>

>

__________________________________________________