Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Dear Mr. McCoy, Thank you for your quick reply. I must apologize for not being specific in my prior email. The show aired last week and it involved a high school graduate heading for a college that couldn't answer some very basic questions put to him. Later when someone from that college called in you asked them if they had a special ed program and if they had a 'short bus lane'. I don't believe you intended to demean this student or the 'short bus' community but we are on the average a very sensitive group and even small offhand comments can upset the delicate balance we try to maintain in day to day living. I am deeply saddened to learn you lost a child. I cannot think of anything worse that could happen to a parent. I don't have a clue as to how someone could function after such a loss. You and your family will be in my thoughts and prayers. Thank you for writing back. It gives me hope that there are still a few gems to be found in the media. Regards, Jim From: steve@... [mailto:steve@...] Sent: Monday, August 22, 2005 10:17 AMjgs3@...Subject: RE: Sensitivity Mr s Thank-you for writing and for listening,but I must admit that I do not know what your speaking about. I don't remember making any comments like the one you refer to... As a father of three and someone who lost a child years ago at ish Rite-I am not the type who would make calous comments about children's disabilities.....Just today we had people on from Child Kind a division of medically fragile children. Again,I apologize for any discomfort I may have caused while listening to our show,but I do not remember saying anything about a short bus. Steve McCoy From: Jim s [mailto:jgs3@...] Sent: Monday, August 22, 2005 10:03 AMSteve McCoy; Steve & Vikki; Dan BowenCc: autism Subject: Sensitivity Dear Steve and Vikki, Our family was very hurt by your comments and humor about people that ride the 'short bus'. Our is 6 years old diagnosed with Autism and Pervasive Developmental Delay. She has to work 10 times harder than other children her age to accomplish most everyday tasks. She has therapies in school every day and therapies outside of school 4 times a week that has us driving all over the county. Then there are the medical costs and efforts that never seem to end. Don't you think deserves better press? We do... Regards,Jim s~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~“Be joyful in hope, patient in affliction,faithful in prayer.” (Romans 12:12) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Bacon Girl, I agree with you as well. Isn't it hard to draw the line between understanding their challenges and appropriate " discipline " and limits? I struggle with this daily. P.S. I'm a big fan of anyone who is daring enough to call themselves Bacon Girl!! bacon girl999 <bacongirl999@...> wrote: - I agree that some of kids have other things tied to the OCD but when the OCD syptoms are calm and in my daughter's case, intrusive thoughts aren't really present (calm) she is just a hypersenstive child - I know that both her father and I are sensitive types - both called " sensitive " while growing up. Sometimes I believe it to be her disposition and other times, she just takes this very personally. Yes, I agree that it can be lashing out at the one's you love because they don't like their thoughts etc...but if we continue to let them treat us this way, then we are saying, it is ok. We are teaching her through her therapy to remember to boss back the enemy(OCD) and not take it out on us. I am just thinking out loud and do agree with what you write. Thank you. > > I read a few posts yesterday about the hypersensitivity of some of your > daughters with OCD. Kids with OCD are more likely than the general > population to have sensory intigration disorder, ADD, and Tourettes. > I've treated a lot of kids with OCD and the sensitivity always seems to > go with it. I dont think that it is the beginning of PMS because my Ten > year old SON has got it bad - sensitive to everything and wicked mood > swings. Sometimes I think he is lashing out at the closest target > because he can't take it out on what he is really mad at ....the OCD. > > > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Bacon Girl, I agree with you as well. Isn't it hard to draw the line between understanding their challenges and appropriate " discipline " and limits? I struggle with this daily. P.S. I'm a big fan of anyone who is daring enough to call themselves Bacon Girl!! bacon girl999 <bacongirl999@...> wrote: - I agree that some of kids have other things tied to the OCD but when the OCD syptoms are calm and in my daughter's case, intrusive thoughts aren't really present (calm) she is just a hypersenstive child - I know that both her father and I are sensitive types - both called " sensitive " while growing up. Sometimes I believe it to be her disposition and other times, she just takes this very personally. Yes, I agree that it can be lashing out at the one's you love because they don't like their thoughts etc...but if we continue to let them treat us this way, then we are saying, it is ok. We are teaching her through her therapy to remember to boss back the enemy(OCD) and not take it out on us. I am just thinking out loud and do agree with what you write. Thank you. > > I read a few posts yesterday about the hypersensitivity of some of your > daughters with OCD. Kids with OCD are more likely than the general > population to have sensory intigration disorder, ADD, and Tourettes. > I've treated a lot of kids with OCD and the sensitivity always seems to > go with it. I dont think that it is the beginning of PMS because my Ten > year old SON has got it bad - sensitive to everything and wicked mood > swings. Sometimes I think he is lashing out at the closest target > because he can't take it out on what he is really mad at ....the OCD. > > > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 The name comes from the fact that my daughter LOVES bacon and her grandfather calls her that. Yes, it is hard to draw the line and sometimes I feel terrible when I have lost my patience and I realize, after the fact, it truly was/is a " sensory " sensitive thing and I thought it was just her being " difficult. I and we are learning and that is all I can do. I have to say, things could be a lot worse and I know there are others who struggle far more than my daughter and I do. I wish I had more patience though. > > > > I read a few posts yesterday about the hypersensitivity of some of > your > > daughters with OCD. Kids with OCD are more likely than the general > > population to have sensory intigration disorder, ADD, and Tourettes. > > I've treated a lot of kids with OCD and the sensitivity always seems > to > > go with it. I dont think that it is the beginning of PMS because my > Ten > > year old SON has got it bad - sensitive to everything and wicked mood > > swings. Sometimes I think he is lashing out at the closest target > > because he can't take it out on what he is really mad at ....the OCD. > > > > > > > > > > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 I am sure this has been discussed before, but do you find your children to be especially sensitive to sound and light (at all times, not just during a fever? Everything is " too loud " or " too bright " for our 2.5 year old. The opthamologist checked her eys and said she was just light sensitive, but wondering if there is any link? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 yes, our 3 year old daughter always complains about the light during a fever episode. , mom of Maggie fevering last 9 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Our 3 year old daughter does appear to be sensitive to sound - not only when fevering, but always. Ali has also complained about things being 'too bright " but doesn't appear to be bothered by this as much as she is by loud sounds. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Hello, my son is definately always sensitive to light whether it is during a fever or not. We also took him to an opthamologist and nothing was found but just light sensitivity. The Doctor suggested that we have my son checked during a fever to see if there was anything else that might show up. I have to say that the sensitivity is a lot worse during a fever. He goes as far as wearing his sunglasses in the house. As far as sound, he seems to be fine with loud sounds and doesn't complain anymore than anyone else would. (Mom to 3 years fevering since 14 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 My child has been diagnosed with sensory processing disorder, so yes. She's sensitive to everything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 my son is sensitive to light, especially during fevers... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2009 Report Share Posted March 19, 2009 Yes, my 8 yr old is sensitive to light & sound during her fevers (28 day cycle with more recently). She has had fevers since 10 months. Now she can tell me light & sound hurt her head (forhead between the brows), but when she was young I could only guess. Anyone else having bad headaches during fevers? I treat her headaches with a cool damp towel over eyes. She says it helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 My 7-year old son complains of headaches right before his fevers/ episodes . (He fevers every 25 days.) He was very sensitive to light on his last episode (3/19/09). He asked me to switch off all the lights in the room, which was quite strange for him, because he usually is scared in the dark. He didn't show any light sensitivities before this. The good thing about his last episode was, he only had severe headache, light sensitivity & chills but he didn't get the fever.He was completely fine the day after. (fingers crossed...). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2009 Report Share Posted March 24, 2009 my son gets terrible headaches as well--it's usually how we know he is going to start having a fever--he ususally coplains of a mild head ache--if we take his temp, it's usually low grade--but then climbs pretty quickly within the hour. once the fever is set--then his head gets very severe--especially if we don't give him some motrin or tylenol in time Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.