Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 - We have never tried Cimetidine (my daughter hasn't been diagnosed with , we don't know what she has, but it doesn't really seem like ), but we have tried many other medications, including Colchicine (the medication for FMF) and our rheumatologist has always had us slowly wean off the medications. Even when we are certain its not working and they are fairly benign medications, we've never cut anything out cold turkey. From my understanding Cimetidine is pretty benign, with little side effects, etc. so I don't see why it wouldn't be ok for you guys to slowly decrease the dosage instead of stopping abruptly. I would ask the doctor about this. And that way, if her episodes are worse as you are weaning off of it, then maybe its a sign that it is helping some? Hopefully others who have used Cimetidine will chime in. Good luck! am > > My daughter has been on Cimetidine for around 68 days and the doctor > wants us to stop the medication cold turkey since she is still having > fever episodes. I am wondering if any of your children on this > medication still have fevers??? She has had three fevers (currently > having one) while on the medication but they seem less severe. The > fevers don't get as high and respond really well to Tylenol or > Motrin. She also had the fevers at a three week cycle instead of her > usually two week cycle. I am just afraid to stop the medication if it > is helping even a little, but I don't know for sure if it is and I > don't what to not follow doctor's orders. The doctor also wants us to > stop it now, but she is in the middle of an episode and I am afraid > she will get worse or have a harder time getting cut off the > medication cold turkey. I am hoping that some of you have some > insight or similar experiences with the medication. > Thank you, > , mother of ee > 23 months old, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 , The trial time to see if Cimetidine works is 6 months. If it does not work then you should stop the medication. If it works by then the recommendation is another 6 months. Make sure liver enzymes are checked. If it is not working you can stop the medication. It is NOT like Prednisone or other drugs... does not have to be slowly stopped. However if it works.... slowly remove the medication to allow her body to take over the immunilogical effect and the fevers hopefully will not return. We have a couple of children on the board who did get a positive response at about 4 months... and they continued the medication for about a year... weaned... (cut back to half the dose for a couple months then stopped) and they remain fever free. Hope this helps God Bless Fran Fran A Bulone Mom to ph 6 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 , My son, , started Cimetidine last spring. He continued to have fever episodes and NIH told us to stop the medicine after about 3 months. > > My daughter has been on Cimetidine for around 68 days and the doctor > wants us to stop the medication cold turkey since she is still having > fever episodes. I am wondering if any of your children on this > medication still have fevers??? She has had three fevers (currently > having one) while on the medication but they seem less severe. The > fevers don't get as high and respond really well to Tylenol or > Motrin. She also had the fevers at a three week cycle instead of her > usually two week cycle. I am just afraid to stop the medication if it > is helping even a little, but I don't know for sure if it is and I > don't what to not follow doctor's orders. The doctor also wants us to > stop it now, but she is in the middle of an episode and I am afraid > she will get worse or have a harder time getting cut off the > medication cold turkey. I am hoping that some of you have some > insight or similar experiences with the medication. > Thank you, > , mother of ee > 23 months old, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 , My son, , started Cimetidine last spring. He continued to have fever episodes and NIH told us to stop the medicine after about 3 months. > > My daughter has been on Cimetidine for around 68 days and the doctor > wants us to stop the medication cold turkey since she is still having > fever episodes. I am wondering if any of your children on this > medication still have fevers??? She has had three fevers (currently > having one) while on the medication but they seem less severe. The > fevers don't get as high and respond really well to Tylenol or > Motrin. She also had the fevers at a three week cycle instead of her > usually two week cycle. I am just afraid to stop the medication if it > is helping even a little, but I don't know for sure if it is and I > don't what to not follow doctor's orders. The doctor also wants us to > stop it now, but she is in the middle of an episode and I am afraid > she will get worse or have a harder time getting cut off the > medication cold turkey. I am hoping that some of you have some > insight or similar experiences with the medication. > Thank you, > , mother of ee > 23 months old, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hi, Here is a crazy question.... We just started our 5 year old son on cimetidine this week. After a couple of days of battling over the awful taste, we found he was willing to take it with a big orange juice chaser. I haven't seen anywhere that absorption is diminished if taken with certain things (acidic food, citris, vitamin C or calcium) but I'm wondering if anyone knows anything about this. Thanks in advance for your help. , Mom to Will age 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Nothing found in the drug pamphlet for Cimetidine... Call the pharmacy to make sure. Good Luck Fran Fran A Bulone Mom To ph 6 yr Waxhaw NC 28173 Owner of group / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 My daughter also takes cimetidine and we added a flavoring and she perfers it without she says its worse. She is 6, the pharmacy also said we could add 1/2tsp of sweet n low to the bottle to take the bitter edge off but we havent tried it yet. good luck! Laurie mom to 6 Newman Lake wash dwkweknh <dwkweknh@...> wrote: Hi, Here is a crazy question.... We just started our 5 year old son on cimetidine this week. After a couple of days of battling over the awful taste, we found he was willing to take it with a big orange juice chaser. I haven't seen anywhere that absorption is diminished if taken with certain things (acidic food, citris, vitamin C or calcium) but I'm wondering if anyone knows anything about this. Thanks in advance for your help. , Mom to Will age 5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2007 Report Share Posted April 20, 2007 , Thanks for your input! Our doctor still wants us to give it a couple more weeks. For your questions, I was wondering the same thing about the doses. Our nurse is suppose to call me back this morning, and I will ask her that question. We have a HORRIBLE time getting him to take his medicine. He screams and we have to basically hold him down. Now he has gotten real good at spitting it out so we never know how much he actually gets each day. If you know any tips, please let me know! > > From: " elnico1 " <angelica@...> > Date: 2007/04/20 Fri AM 10:06:05 EDT > > Subject: Re: Cimetidine question > > To my knowledge it might take 4-6 months to see a change. We are about > to start our daughter on Cimetidine next week, so of course I am > hoping we see some of the changes earlier! Sorry to hear what you are > going through . I wish you the best! > > My question re: this medication is if everyone has it prescribed so > you have to give it twice daily? Can't it be a dose for once a day? I > am afraid our daughter will be giving us a hard time taking it... > > Any suggestions/comments, I'd appreciate it. > > > > > > > > > Our doctor just put our son on Cimetidine on March 23 of this year. > > Since then he has fevered 17 days later, then day which was only 14 > > days. Before the Cimetidine, he would fever every 3 to 5 weeks. > > Our doctor wants him to stay on it for 6 to 8 weeks. Has anyone else > > experienced this with Cimetidine? I almost just want to stop giving > > it to him and deal with fevers every 3 to 5 weeks. Also, is there > > anyoen in the birmingham, Alabama area? > > Thanks for your input! > > > > Mother to Conyers (2.2 years old) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2007 Report Share Posted April 20, 2007 On Fri, 20 Apr 2007 11:19:23 -0400, wrote... The pharmacist told us to add artificial sweetener to our daughter. I add a couple packets to each small bottle and she does not complain. Have you ever tasted it-poor kids make no wonder they don't want to take it. Hope this helps. Kris (mom of on Cimetidine for 1 1/2 years.) Quote Link to comment Share on other sites More sharing options...
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