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A Question for Kathleen

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Kathlleen

Did your son have a tonsillectomy? If so did it help initially then symptoms

came back or did it not help at all?

Just curious because my daughter was greatly improved with tonsillectomy but

still has mouth sores and a couple of cycles in the last 6 months. I have braced

my self for the possibility of the symptoms returning but I wondered what your

experience was like?

Christy Mom to 6y/o

Missouri Valley Iowa

>>> kmcloud79@... 5/2/2006 6:42 PM >>>

-

It has been hard for me to respond to the mom's of young children

because has suffered from this for so long. I didn't want to

make anyone feel more frustrated than they already do. He did not

have genetic tests done. I have 2 other children that have never

shown any signs

of . I have 21 nieces and nephews, not one has 's symptoms.

Please feel free to ask me any questions.

Kathleen (mom of 23 yrs old still dealing with )

On May 2, 2006, at 6:12 PM, wrote:

> Kathleen,

> Your son still has at the age of 23? Did he have genetic

> tests done? I am wondering and worried because we have been told

> that our daughter would grow out of this and it is shocking to hear

> that your son has suffered with this for so long. The thought of

> going through this for that long brings tears to my eyes. Does

> anyone know if children really grow out of this? Does any one know

> any child who has grown out of this, and at what age????

>

> , mother of ee

> Just turned 2,

>

>

>>

>>

>> -

>>

>> My son is 23 yrs old and has had since he was 4 mos old. He

> has every symptom but has never suffered from a cough. He never has

> had any other illness, until he was 21 yrs old, that my other

> children had.

>>

>> Kathleen (mother of , 23)

>> -------------- Original message --------------

>> From: " jensheahan " <jensheahan@...>

>>

>>> Hello all...my 4 year old son has had fevers since

> he

>>> was 9 months old. He doesn't always get all the manifestations

> so we

>>> were delayed in his diagnosis. He was considered to have

> systemic JRA

>>> until recently. He started fevering on Friday night and

> developed a

>>> cough. By saturday morning his fever was 104.4,he had the mouth

> sores,

>>> was complaining that his neck hurt, but also had this cough. I

> took

>>> him into the after hours clinic so I could document the throat

> because

>>> I am trying to make a case for a tonsillectomy. They cultured

> his

>>> throat, negative as usual, and then decided it was a

> episode. (I

>>> knew that but had to get it documented.) Anyway, all symptoms

> have now

>>> disappeared except the cough. Does anyone else have a child that

>>> continues with a gagging cough after all other symptoms

>>> disappear? I'm not sure if this is typical or maybe it is an

> allergy.

>>> Thanks for any replies. I read all posts even though I can't

> always

>>> respond!!

>>>

>>>

>>> Mom to , 4 since 9 months

>>>

>>>

>>>

>>>

>>>

>>>

>>>

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