Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Does anyone else just lay in bed at night and just cry till you fall asleep. Thinking about your child and why they have to experience all the negitive stuff that goes along with their disability? It seems like I am doing it more now that is going to be evaluated for autism. He sees the neurologist this thur. I just feel exhusted with the school and doctors and ... I am always answering questions for s brothers who are 8 and 6 who ask how come Logan who is 3 and Liam who is 1 can do things can't. I want them to understand fully and I am very honest. I hope they treat the children they are in contact with that are different with sensativity. However, they go to catholic school and the catholic school in my town in CT, doesn't have services for children with special needs. how ironic, I think that with the philosphy the catholic schools teach that can only except 4 of the 5 of my children because God, choose to give extra challenges. I'm venting.------LISA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 In a message dated 1/30/01 11:39:48 AM Eastern Standard Time, doug.smith@... writes: << Does anyone else just lay in bed at night and just cry till you fall asleep. Thinking about your child and why they have to experience all the negitive stuff that goes along with their disability? It seems like I am doing it more now that is going to be evaluated for autism. He sees the neurologist this thur. I just feel exhusted with the school and doctors and ... I am always answering questions for s brothers who are 8 and 6 who ask how come Logan who is 3 and Liam who is 1 can do things can't. I want them to understand fully and I am very honest. I hope they treat the children they are in contact with that are different with sensativity. However, they go to catholic school and the catholic school in my town in CT, doesn't have services for children with special needs. how ironic, I think that with the philosphy the catholic schools teach that can only except 4 of the 5 of my children because God, choose to give extra challenges. I'm venting.------LISA >> Hi , I only cried one night about Seth. It was the night he was born and went to ICU. I don't know if I cried because he had downs, or because I thought he wouldn't live. Maybe a combo of both. My kids just accept Seth, with very little questions. Probably because I'm always giving a reason to them for everything he does! LOL I'm very grateful my kids accept him totally like they do. I don't think my 8 year old understands everything because she was afraid at Seth's surgery that they were going to cure him. I couldn't for a long time figure out why she was as upset as she was. At that age there is no way she could understand everything about the surgery. She was crying because she thought he would come home different. No downs or autism. :-( I think she understands now that they will always be a part of Seth, no matter how good he gets. Our Catholic schools are not equipped to handle Seth. I know he needs more than they could give, so I won't even pursue that non-option. LOL Boy, there are a lot of non-options out there! LOL Hope you are feeling better and not so blue. Maybe a dx for will help you deal better with it. I know that helped me. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 Im with you, I find it hard to take when I see what possible life my nathan may have and try to make sure he doesnt end up that way, its such a steep hill to climb and at the rip aol age of 29, im soo tired, its all i can do to keep myself from crying. Virtual hugs. shawna. --- Doug <doug.smith@...> wrote: > Does anyone else just lay in bed at night and just > cry till you fall > asleep. Thinking about your child and why they have > to experience all > the negitive stuff that goes along with their > disability? It seems like > I am doing it more now that is going to be > evaluated for autism. > He sees the neurologist this thur. I just feel > exhusted with the school > and doctors and ... I am always answering questions > for s brothers > who are 8 and 6 who ask how come Logan who is 3 and > Liam who is 1 can do > things can't. I want them to understand fully > and I am very > honest. I hope they treat the children they are in > contact with that are > different with sensativity. However, they go to > catholic school and the > catholic school in my town in CT, doesn't have > services for children > with special needs. how ironic, I think that with > the philosphy the > catholic schools teach that can only except 4 of the > 5 of my children > because God, choose to give extra challenges. > I'm > venting.------LISA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2001 Report Share Posted January 30, 2001 In a message dated 1/30/01 9:54:42 AM Central Standard Time, burnett@... writes: << You know, when receives Communion I say to her " You're going to receive Jesus in your heart now. " I swear she understands me & seems to have a calmness & serenity about her after receiving this Sacrament. >> , so good to hear this! I hope this happens with this spring when she begins receiving. Thanks for sharing, Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 In a message dated 1/30/01 10:55:06 AM Eastern Standard Time, burnett@... writes: << I just wish people wouldn't look at us with pity or sympathy in their eyes. Now my dh says he doesn't notice this, so there you go! >> , My dh doesn't notice either. Or if he sees it, he totally ignores it. I really admire this trait and wish I could be more like him. However, I'm better at other stuff... <<You know, when receives Communion I say to her " You're going to receive Jesus in your heart now.>> That's so great that Steph receives communion!!! I don't know if we'll ever get Maddie to this point, but it's sure encouraging for me to hear this!! We don't take her to church that much anymore because she just gets up and leaves. We have lots of funny church stories as many on this list probably remember. The last time we took Maddie was x-mas eve mass and I had to stand in the back holding her the entire time (not a good thing with my neck). Dh really doesn't like to go separately (he's a eucharistic minister and always serves the 10 oclock), but it's too hard to take her. I'm hoping it'll get better with time. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 In a message dated 1/30/01 11:39:39 AM Eastern Standard Time, doug.smith@... writes: << Does anyone else just lay in bed at night and just cry till you fall asleep. Thinking about your child and why they have to experience all the negitive stuff that goes along with their disability? It seems like I am doing it more now that is going to be evaluated for autism. He sees the neurologist this thur. I just feel exhusted with the school and doctors and ... I am always answering questions for s brothers who are 8 and 6 who ask how come Logan who is 3 and Liam who is 1 can do things can't. I want them to understand fully and I am very honest. I hope they treat the children they are in contact with that are different with sensativity. However, they go to catholic school and the catholic school in my town in CT, doesn't have services for children with special needs. how ironic, I think that with the philosphy the catholic schools teach that can only except 4 of the 5 of my children because God, choose to give extra challenges. I'm venting.------LISA >> Aw !!!! Sure, it's hard. Vent away!! Yes, I feel sad sometimes. Sad that Maddie can't communicate. Sad that so much of everyday life scares her. Sad when I see people judging her. Sad that she can't tell us what hurts or even to seek comfort from us when she is hurt. But even with all this (and surely lots more), she's a happy little girl. And the immense joy she brings to our family far outweighs any sadness. It seems to us that Maddie makes all of us, and all those who she touches, better people. Pretty big deal for a little girl who has no words, eh? But allow yourself your moments,,,,because your entitled. And sometimes a good cry is what you need!!!! So long as you get right back on the upbeat path again!!!! {{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}} Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 In a message dated 1/31/01 2:48:51 PM Eastern Standard Time, doug.smith@... writes: << Thanks Donna--- I do do get right back up again and to tell you the truth their probably isn't a person around me that could tell you that i wasn't always upbeat when it comes to . >> I'm glad to hear that . But we're here to listen when you need those moments. That's our job!! And I know about the scratching thing. It's so hard. The pain I felt in my heart the time Maddie bit right through her sister Allie's skin was almost unbearable!!! {{{{{{{{{hugs}}}}}}}}}}} Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Thanks Donna--- I do do get right back up again and to tell you the truth their probably isn't a person around me that could tell you that i wasn't always upbeat when it comes to . i hold alot in. I saw maddie's picture in the newsletter what a cutie. I have 5 sons so when ever i see a little girl my heart just melts. goes to the neurologist tommarow so I'll let everyone know how it goes. He scratched a little boy at school and drew blood. luckly i know the mother and she knows me and was very understanding, but it was a horrible scratch.---- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 --- Dear ,I am a grandmom to two special needs kidsand yes there have been nights of crying and despair and wondering why this precious child has to go through all of these problems.One long night i finally came to terms with it and i have feltr better ever since.We do not know why but God does and this has been the life plan for this child to have these challenges.I feel that our family has grown much closer as my two children help each other with their own child s problems.We have met some marvelous people starting with those at early intervention up to the present time that we never would have known with just an average kid.With the young cousins we tell them things as they come up and stress the fact that they may not do some things as well or as fast but bring up othersthat the handicapped child does really well. Your four other sons have a chance to learn at early ages love and compassion for others.perhaps one of them will be in a profession that will make a major difference in some way for our special kids.I firmly believe if the Lord has counted every hair on our head then he has a reason for a disabled child and some day we will know the reason too. Carole ug <doug.smith@...> wrote: > Does anyone else just lay in bed at night and just > cry till you fall > asleep. Thinking about your child and why they have > to experience all > the negitive stuff that goes along with their > disability? It seems like > I am doing it more now that is going to be > evaluated for autism. > He sees the neurologist this thur. I just feel > exhusted with the school > and doctors and ... I am always answering questions > for s brothers > who are 8 and 6 who ask how come Logan who is 3 and > Liam who is 1 can do > things can't. I want them to understand fully > and I am very > honest. I hope they treat the children they are in > contact with that are > different with sensativity. However, they go to > catholic school and the > catholic school in my town in CT, doesn't have > services for children > with special needs. how ironic, I think that with > the philosphy the > catholic schools teach that can only except 4 of the > 5 of my children > because God, choose to give extra challenges. > I'm > venting.------LISA > > ===== Carole, wife of Rich, mom to and , m-i-l to and , grandmom to ,8 ,with d.s.and a.s.d. and 6 with adhd and possible a.s.d.and Logan 2 year old wild child, and Seth 7months old and better known as the gerber baby! In the hour of adversity be not without hope for crystal rain falls from the black clouds Persian poem __________________________________________________ Get personalized email addresses from - only $35 a year! http://personal.mail./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Yes I do cry myself to sleep sometimes. I don't have any children, but I just think of life in general, about my surroundings, friends, etc. and that's basically why I cry myself to sleep. > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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