Re: CBS News article about Teen with Autism and Basketball

[Guest guest]

It was a heart warming story, BUT gives the wrong impression,it

simplifies things. As if only our kids could hit " three pointer's " life

would be better. They only need an opportunity to " express " themselves

thru something like music or sports or whatever. Uplifting stories on

the news, happy ending...simple?

Life is a lot more difficult and complicated in our house.

I always celebrate the victories of our kids but, it misleads people as

to what most of us are realing dealing with. Reality sucks.

>

> sorry I don't know how to do the tiny url thing.

>

> Great story though.

>

> Cathie

>

>

>

_http://www.cbsnews.com/stories/2006/02/23/earlyshow/main1339324.shtml_

>

(http://www.cbsnews.com/stories/2006/02/23/earlyshow/main1339324.shtml)

>

[Guest guest]

,

I have posted a letter exchange I had with a reader regarding this

subject. I have posted the entire exchange on the EOHarm blog

http://tinyurl.com/h8r48 It is not exactly on topic for the blog, but

my hope is that if I just start publishing there, the blog will get

some traction. There is additional material that has just been added.

The redefining of autism as something less than a disability should

take some of our attention. But not too much. You could write

letters to the editor of the publications that portray autism as

something benign, but I would put my letter writing energy on some of

the major problems we are all now dealing with.

By the way, the reader never responded to my last note to her. I

think the reason she didn't is because there is no comeback to it that

would make any sense.

Lenny

>

> Ok, nice story for him...

> But... this is just really bugging me lately... I cannot let it go.

> I do not want people to see me, or any parent of an autie child as poor

> victims -BUT, I am not comfortable with this new freaking PR

campaign that

> autism is the cool new quirky thing to have.

> The " what the hell are you guys complaining about anyway " disease!

>

> So forgive me for pointing out... yet another...

> THIS KID IS NOT AUTISTIC.

>

> Here... perhaps we should send this out to the media for their brush up:

> http://www.autism-biomed.org/dsm-iv.htm

>

> --by they way, I am not happy with the whole DSM deal and no mention

of the

> biomedical problems in the DX too... this is not to start that

debate...

> just want to point out that this kid is Aspergers at worst.

> I am so tired of people hearing my kid is autistic and them saying,

" Cool! "

> yeah... cool. I guess we don't really need that therapy... b/c, all

is cool.

>

> and I am not saying life with my kid sucks...

> But people have gone from being clueless in a tolerable way --to being

> clueless in an intolerable way.

>

> jenny

>

> Re: CBS News article about Teen with Autism and

Basketball

>

>

> > It was a heart warming story, BUT gives the wrong impression,

>

[Guest guest]

,

After reading your comments I think I must be an idiot to not feel

lucky about my son's autism and what havoc it has brought to our

lives. What was I thinking? I certainly can tell you about all the

little victories that are my son's " Three pointers " , but he is

certainly not the kid he should have been had he not been poisoned

with mandated vaccines as a baby (haven't quite got over that fact

yet). My son is happy too, except when he's constipated, or has a

headache, or whatever unknown pain or problem. You see he can't

express his needs because he can't put certain sounds together

because his brain must have been so affected by those poisons. Yes,

my son gets lots of praise and attention too, he's the center of my

world. I wouldn't know if he feels left out he can't talk, clueless

if he feels different from other kids.

You are lucky that your son is doing well. I'm happy for you. Despite

our best efforts my son is still autistic that's why I said reality

sucks. We manage, but sometimes it can be quite a bit to bear. We do

have special moments that keep us going, even if we didn't we'd still

have to keep going.

> I feel lucky. My reality doesn't suck. My son is happy, he's

doing well.

> He doesn't know that he has autism, doesn't feel left out. He gets

tons of

> attention and praise.

>

> Tonight I said to my son " do you want to do Miss Mack? " and

he said

> " yes " . Not " do Mack " . But a totally natural YES. That's his

3

> pointer.

> He wouldn't have said that a couple of months ago. Then he sat on

my lap

> and we played that clapping game- with him singing along.

>

> I really hope you ALL have moments like that to keep you going....

>

>

>

[Guest guest]

CNN is doing a story on this right now

-

-- In EOHarm , " schaferatsprynet " <schafer@...> wrote:

>

>

> ,

> I have posted a letter exchange I had with a reader regarding this

> subject. I have posted the entire exchange on the EOHarm blog

> http://tinyurl.com/h8r48 It is not exactly on topic for the blog,

but

> my hope is that if I just start publishing there, the blog will get

> some traction. There is additional material that has just been

added.

>

> The redefining of autism as something less than a disability should

> take some of our attention. But not too much. You could write

> letters to the editor of the publications that portray autism as

> something benign, but I would put my letter writing energy on some

of

> the major problems we are all now dealing with.

>

> By the way, the reader never responded to my last note to her. I

> think the reason she didn't is because there is no comeback to it

that

> would make any sense.

>

> Lenny

>

>

> >

> > Ok, nice story for him...

> > But... this is just really bugging me lately... I cannot let it

go.

> > I do not want people to see me, or any parent of an autie child

as poor

> > victims -BUT, I am not comfortable with this new freaking PR

> campaign that

> > autism is the cool new quirky thing to have.

> > The " what the hell are you guys complaining about anyway "

disease!

> >

> > So forgive me for pointing out... yet another...

> > THIS KID IS NOT AUTISTIC.

> >

> > Here... perhaps we should send this out to the media for their

brush up:

> > http://www.autism-biomed.org/dsm-iv.htm

> >

> > --by they way, I am not happy with the whole DSM deal and no

mention

> of the

> > biomedical problems in the DX too... this is not to start that

> debate...

> > just want to point out that this kid is Aspergers at worst.

> > I am so tired of people hearing my kid is autistic and them

saying,

> " Cool! "

> > yeah... cool. I guess we don't really need that therapy... b/c,

all

> is cool.

> >

> > and I am not saying life with my kid sucks...

> > But people have gone from being clueless in a tolerable way --to

being

> > clueless in an intolerable way.

> >

> > jenny

> >

> > Re: CBS News article about Teen with Autism and

> Basketball

> >

> >

> > > It was a heart warming story, BUT gives the wrong impression,

> >

>

[Guest guest]

M,

How true. My Daughter complains at times regarding the fairness issue. My usual

response is that " Life isn't fair and Yes, you're right it's not fair. How would

you like to change the outcome? Life is in direct proportion to what you put

into it. Unless you win the lottery.

Van Dyke

Director of Safety

Summit Construction Co., Inc.

1107 Burdsal Parkway

Indianapolis, IN 46208

317-634-6112

317-264-2529 fx

317-710-6685 cell

>>> mkeller@... 02/23/06 10:02PM >>>

It was a heart warming story, BUT gives the wrong impression,it

simplifies things. As if only our kids could hit " three pointer's " life

would be better. They only need an opportunity to " express " themselves

thru something like music or sports or whatever. Uplifting stories on

the news, happy ending...simple?

Life is a lot more difficult and complicated in our house.

I always celebrate the victories of our kids but, it misleads people as

to what most of us are realing dealing with. Reality sucks.

>

> sorry I don't know how to do the tiny url thing.

>

> Great story though.

>

> Cathie

>

>

>

_http://www.cbsnews.com/stories/2006/02/23/earlyshow/main1339324.shtml_

>

(http://www.cbsnews.com/stories/2006/02/23/earlyshow/main1339324.shtml)

>

[Guest guest]

, I thought Aspie at first, too, but in one interview I saw, I

got a different impression of him, he was really struggling to speak

and had a very poor articulation. I also know kids that start out as

full-blown but end up by his age appearing to be more AS. Don't know

if that's his case or not.

I agree, my girl is cool, but she's not a novelty.

Debi

-

[Guest guest]

Thank you for writing about your son. It gives me encouragement.

My most severely affected son turns 11 years old next week. We have

only recently begun biomed. I have fears that it is too late, but

I have great hope that he may become one of those statistics of

recovered children.

Donna

> > >

> > > Ok, nice story for him...

> > > But... this is just really bugging me lately... I cannot let it

go.

> > > I do not want people to see me, or any parent of an autie child

as poor

> > > victims -BUT, I am not comfortable with this new freaking PR

> > campaign that

> > > autism is the cool new quirky thing to have.

> > > The " what the hell are you guys complaining about anyway "

disease!

> > >

> > > So forgive me for pointing out... yet another...

> > > THIS KID IS NOT AUTISTIC.

> > >

> > > Here... perhaps we should send this out to the media for their

brush up:

> > > http://www.autism-biomed.org/dsm-iv.htm

> > >

> > > --by they way, I am not happy with the whole DSM deal and no

mention

> > of the

> > > biomedical problems in the DX too... this is not to start that

> > debate...

> > > just want to point out that this kid is Aspergers at worst.

> > > I am so tired of people hearing my kid is autistic and them

saying,

> > " Cool! "

> > > yeah... cool. I guess we don't really need that therapy... b/c,

all

> > is cool.

> > >

> > > and I am not saying life with my kid sucks...

> > > But people have gone from being clueless in a tolerable way --

to being

> > > clueless in an intolerable way.

> > >

> > > jenny

> > >

> > > Re: CBS News article about Teen with Autism

and

> > Basketball

> > >

> > >

> > > > It was a heart warming story, BUT gives the wrong impression,

> > >

> >

>

[Guest guest]

Donna,

My son is 25 and the OT was raving about him today, saying she was truly

amazed at his progress. She's seeing faster and quicker responses to her

prompts, easier work with his hands, more speech, better motor planning and

problem solving . .

Barb

Re: CBS News article about Teen with Autism

> and

>> > Basketball

>> > >

>> > >

>> > > > It was a heart warming story, BUT gives the wrong impression,

>> > >

>> >

>>

>

>

>

>

>

>

>

>

>

[Guest guest]

Barb,

That is wonderful! It is so frightening to think of my son at 25

and behaving the same way as he does today. He has to get better

or I don't know how we will live like this. He was just totally

freaking out at the fact that he can't have the new Lady and the

Tramp DVD. It comes out on Tuesday and he has no concept of what

four more days from now means. He wants it NOW and we all have to

suffer if he doesn't get what he wants when he wants it. The thing

that makes all of this bearable is knowing that there are thousands

of other children and parents struggling as we are. We are not alone.

Donna

> My son is 25 and the OT was raving about him today, saying she was

truly

> amazed at his progress. She's seeing faster and quicker responses

to her

> prompts, easier work with his hands, more speech, better motor

planning and

> problem solving . .

> Barb

> Re: CBS News article about Teen with Autism

> > and

> >> > Basketball

> >> > >

> >> > >

> >> > > > It was a heart warming story, BUT gives the wrong

impression,

> >> > >

> >> >

> >>

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

For safe, inexpensive oral therapy see nitrf.org

Sincerely,

H.H. Fudenberg, M.D., D.D.G., I.O.M.

226 Edgewater Road

Inman, SC 29349

864-592-8076

nitrf@hotmailcom

From: "andrea52521991" <mkeller@...>Reply-EOHarm To: EOHarm Subject: Re: CBS News article about Teen with Autism and BasketballDate: Fri, 24 Feb 2006 12:26:03 -0000,After reading your comments I think I must be an idiot to not feel lucky about my son's autism and what havoc it has brought to our lives. What was I thinking? I certainly can tell you about all the little victories that are my son's "Three pointers", but he is certainly not the kid he should have been had he not been poisoned with mandated vaccines as a baby (haven't quite got over that fact yet). My son is happy too, except when he's constipated, or has a headache, or whatever unknown pain or problem. You see he can't express his needs because he can't put certain sounds together because his brain must have been so affected by those poisons. Yes, my son gets lots of praise and attention too, he's the center of my world. I wouldn't know if he feels left out he can't talk, clueless if he feels different from other kids.You are lucky that your son is doing well. I'm happy for you. Despite our best efforts my son is still autistic that's why I said reality sucks. We manage, but sometimes it can be quite a bit to bear. We do have special moments that keep us going, even if we didn't we'd still have to keep going. > I feel lucky. My reality doesn't suck. My son is happy, he's doing well.> He doesn't know that he has autism, doesn't feel left out. He gets tons of> attention and praise.> > Tonight I said to my son "do you want to do Miss Mack?" and he said> "yes". Not "do Mack". But a totally natural YES. That's his 3> pointer.> He wouldn't have said that a couple of months ago. Then he sat on my lap> and we played that clapping game- with him singing along.> > I really hope you ALL have moments like that to keep you going....> > >