Re: SMA treatment from China

[Guest guest]

Someone else have anything o say about?

Felipe

SMA treatment from China

> http://www.damo-qigong.net/treat/myelophathy/SMA.htm

>

> __________________________________________________

>

[Guest guest]

First, the description of SMA in that article seems way out of date

in some respects. They actual say that Type I, II & III SMA are

NOT progressive??!?!?! Wow, is that ever wrong.

Regardless, I wouldn't touch Chinese herbal treatments with a 10

foot pole. But that's just me.

>

> Someone else have anything o say about?

> Felipe

> SMA treatment from China

>

>

> > http://www.damo-qigong.net/treat/myelophathy/SMA.htm

> >

> > __________________________________________________

> >

[Guest guest]

Something more? I've recived the values to buy that pils, very expansive...

Anyone here have tryed it?

Felipe

SMA treatment from China

> >

> >

> > >

> > http://www.damo-qigong.net/treat/myelophathy/SMA.htm

> > >

> > > __________________________________________________

> > >

[Guest guest]

I am glad that your daughter has had some good results

with acupuncture treatment. Does she receive any other

treatments beside that? The girl who learnt to stand

is now 6 years old, she did some acupuncture for

several months around one year old then took some

chinese medicines after that every day. Usually, the

herbs are prescriped by the doctor specifically for

you, although some majoy herb ingrediences are

similar.

regards,

jenny

--- MLF CHA <clxcli@...> wrote:

> Hi ,

> My daughter with SMA type II, age 7, is on

> acupuncture treatment for nearly 2 years. She has

> the treatment once a week. Overall, she has shown

> some

> improvement in her muscle power, she is able to

> crawl for about 5 to 10 steps now which she is not

> able to do previously.

> Would you able to share with us more on the TCM

> that the doctor prescribes to the kid who is

> learning to stand ? It is really imazing to hear

> that! How old is the kid now ? Thank you for your

> good news ! Rgds, ML

>

> Huang <jenny_huang99@...> wrote:

> My son has SMA type II. According to Dr.

> Swoboda, he is in weak side. We tried him some

> chinese

> herbs last year for a while. Overall, he seems to

> have

> more energy, better appetite and did some help to

> his

> strength. The doctor he is seeing has quite rich

> experience and has dealt with a range of diseases in

> China for more than 15 years. It is very important

> to

> find a good doctor who knows the foundamentals of

> TCM.

> Good TCM doctor knows how to improve your own

> healing

> power. The human body is very powerful and tends to

> heal itself. For SMA, as my understanding, the body

> is

> too off its regular track to heal itself without a

> lot

> of intervention. I have kept in touch with more then

> 15 chinese SMA families for a while, most of their

> kids who are using chinese medicines are quite

> healthy

> and haven't progressed for quite long time. One

> kiddo

> who took chinese medicines even learnt to stand.

> That

> is the best story I have heard. My understanding is

> that TCM might enhance your overal health and help

> to

> remove those toxins produced by the metabolism

> disorder. Ben did not continue the chinese medicine

> because he attended VPA trial in Salt lake city. We

> are not sure whether he is taking the real drug or

> not. I do notice some positive results. Ben

> continues

> his acupuncture treatment 3 times a week since last

> April. Overal, he is a very healthy boy and hasn't

> have any scoliosis yet, although his muscle tone is

> very weak. If you have any questions regarding to

> TCM,

> please let me know. -jenny

>

> --- Felipe da Motta <felipe@...> wrote:

>

> > Someone else have anything o say about?

> > Felipe

> > SMA treatment from China

> >

> >

> > >

> >

> http://www.damo-qigong.net/treat/myelophathy/SMA.htm

> > >

> > >

> __________________________________________________

> > >

[Guest guest]

and did you already try this? Works for you?

Felipe

SMA treatment from China

> Yes, all information is on that web site. First, you will need to

> contact them, and then Chinese doctors will contact you (they do that

> quickly). They will ask several questions about your condition, and

> then they will decide what pills you will need to take and how much it

> would cost. They recommend you to buy for one month only. You will buy

> more only if you will feel any changes.

>

> Aul

>

> __________________________________________________

>

[Guest guest]

I haven't received the pills yet. I will let everybody know about

results.

Aul

>

> and did you already try this? Works for you?

> Felipe

> SMA treatment from China

>

>

> > Yes, all information is on that web site. First, you will need to

> > contact them, and then Chinese doctors will contact you (they do

that

> > quickly). They will ask several questions about your condition,

and

> > then they will decide what pills you will need to take and how

much it

> > would cost. They recommend you to buy for one month only. You

will buy

> > more only if you will feel any changes.

> >

> > Aul

> >

> > __________________________________________________

> >

[Guest guest]

I haven't received the pills yet. I will let everybody know about

results.

Aul

>

> and did you already try this? Works for you?

> Felipe

> SMA treatment from China

>

>

> > Yes, all information is on that web site. First, you will need to

> > contact them, and then Chinese doctors will contact you (they do

that

> > quickly). They will ask several questions about your condition,

and

> > then they will decide what pills you will need to take and how

much it

> > would cost. They recommend you to buy for one month only. You

will buy

> > more only if you will feel any changes.

> >

> > Aul

> >

> > __________________________________________________

> >

[Guest guest]

Thanks, keep sendin' about...

Felipe

SMA treatment from China

> >

> >

> > > Yes, all information is on that web site. First, you will need to

> > > contact them, and then Chinese doctors will contact you (they do

> that

> > > quickly). They will ask several questions about your condition,

> and

> > > then they will decide what pills you will need to take and how

> much it

> > > would cost. They recommend you to buy for one month only. You

> will buy

> > > more only if you will feel any changes.

> > >

> > > Aul

> > >

> > > __________________________________________________

> > >

[Guest guest]

Hey Aul, just how long did you take this med? A couple of weeks isnt a fair

time frame to determine if they are doing anything good for you. When taking

meds that are natural ingredients, it may take more time to penetrate into

your system. If money isnt an issue, try 3 months, especially if you have no

side effects. Then before taking anything new, wait three weeks.

My opinion based on personal experience and some dr input.

Angie

On Saturday 03 June 2006 18:17, Aul Pedajas wrote:

> Hello,

>

> As I promised to do, I let you know that I have taken all of the

> Chinese medication that I told you about several weeks ago.

> Unfortunately, they didn't help me. I'm not saying that they don't help

> anybody, but they really didn't help me in my condition. In a few weeks

> I will start taking another Chinese stuff. I will keep you informed

> about that.

>

> Aul

>

> __________________________________________________

>

[Guest guest]

Did you get the the another stuff one from the same source?

Felipe

SMA treatment from China

> Hello,

>

> As I promised to do, I let you know that I have taken all of the

> Chinese medication that I told you about several weeks ago.

> Unfortunately, they didn't help me. I'm not saying that they don't help

> anybody, but they really didn't help me in my condition. In a few weeks

> I will start taking another Chinese stuff. I will keep you informed

> about that.

>

> Aul

>

> __________________________________________________

>

[Guest guest]

i'm sorry i just read you post now, where you find that anther stuffs? Have

a link to send us?

Felipe

SMA treatment from China

> No, the other stuff I'm going to try is from another source. I know

> that there is a lot of risk involved when trying new things, but I know

> one thing - if I don't try, I will never get any better. I will keep in

touch.

>

> __________________________________________________

>