Re: Was: Daily Mail now: National Autistic Society

[Guest guest]

Hi all

I remember when autism first rocked my world and desperately scouring the net for help. I stumbled upon the autism research institute, which led me to heaps of excellent information, generation rescue etc etc and then I remember reading the NAS website. I remember thinking back then, what a strange website, there is no mention of all the information that I have just read from ARI or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

Well from thinking back then that it was strange, I then decided that I wasn't going to use the NAS because they seemed out of touch. Well now I realise IT STINKS!!!! What a holy coverup.

We're sitting here recovering our children, the ARI have heaps of information and research ongoing, and have gone to the trouble of publishing a protocol that actually helps us, and the so called National Society are not even interested. How bizarre is that???????

I visited my chiropractor last week (Eleanor's bottom jaw juts out and we have it moved back regularly), and she hasn't seen Eleanor for 6 months. She said that she has never seen progress like it in an autistic child ever. (She specialises in cranio-sacral manipulation in autistic children, so sees heaps of affected children). I told her all about and about the DAN and Cutler protocols and she was amazed. She used words like, 'remarkable', 'flabbergasted'. She asked for Jean's details so that she can pass the information on to her other patients.

Well, what do you suppose the NAS would say about that? A coicidence? A fluke?

I know better.

Hmmm. Feel better now.

Joy

[Guest guest]

Hi all

I remember when autism first rocked my world and desperately scouring the net for help. I stumbled upon the autism research institute, which led me to heaps of excellent information, generation rescue etc etc and then I remember reading the NAS website. I remember thinking back then, what a strange website, there is no mention of all the information that I have just read from ARI or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

Well from thinking back then that it was strange, I then decided that I wasn't going to use the NAS because they seemed out of touch. Well now I realise IT STINKS!!!! What a holy coverup.

We're sitting here recovering our children, the ARI have heaps of information and research ongoing, and have gone to the trouble of publishing a protocol that actually helps us, and the so called National Society are not even interested. How bizarre is that???????

I visited my chiropractor last week (Eleanor's bottom jaw juts out and we have it moved back regularly), and she hasn't seen Eleanor for 6 months. She said that she has never seen progress like it in an autistic child ever. (She specialises in cranio-sacral manipulation in autistic children, so sees heaps of affected children). I told her all about and about the DAN and Cutler protocols and she was amazed. She used words like, 'remarkable', 'flabbergasted'. She asked for Jean's details so that she can pass the information on to her other patients.

Well, what do you suppose the NAS would say about that? A coicidence? A fluke?

I know better.

Hmmm. Feel better now.

Joy

[Guest guest]

Joy I agree. Yeah get off the fence!

When my son was first diagnosed, I lost valuable time in my ignorance

and grief because I asked NAS about resources for diagnosis/treatment

and they told me that they ALL RESIDED WITHIN THE NHS!! and there

is " NOTHING YOU CAN REALLY DO! "

Eventually (the waiting list was 6 months for NHS)I went and paid £80

to see a private paediatrician. Best money I ever spent and would

advise any parent in my position to do it anyway. OK, I still had to

go through the NHS eventually but the letter of diagnosis gave me

access (a year earlier than it would have been) to all the benefits

such as DLA. And armed with this letter the NHS did not mess with me.

Thankfully somebody on this site, when it was first setting up

as " the desperates " emailed me privately to tip me off about biomed

whilst I was on another e-list about food allergy. I daren't think

how much more time I would have lost towards 's recovery.

NAS are, at best, a government information quango, effectively

silenced by politics, because of the source of their funding, and

that is only one aspect.

The Americans are streets ahead of us in every way in autism therapy,

not least because they have within their culture, the notion of

recovery. That means a wide variety of things to people but whatever

progress is made equals quality of life for our children.

They are also the instigators of the " Early Bird " programme which has

prevented children getting the one to one therapy that they need

because the health authority can say " parents have been empowered " to

help their kids. Now OK, these courses can be valuable but they are

NOT ENOUGH. Alright educating me - what about my kid! He needs hands

on! And most people I met on it, their kids were 4 and beyond!

The other thing I cannot STAND is their " Autism is incurable " stance.

I have met so many parents in my position, brainwashed by this, whose

kids are sick and don't get help.

I don't expect they'll send me a Christmas card now. Wish I still

lived in US.

Eileen :<

[Guest guest]

Joy I agree. Yeah get off the fence!

When my son was first diagnosed, I lost valuable time in my ignorance

and grief because I asked NAS about resources for diagnosis/treatment

and they told me that they ALL RESIDED WITHIN THE NHS!! and there

is " NOTHING YOU CAN REALLY DO! "

Eventually (the waiting list was 6 months for NHS)I went and paid £80

to see a private paediatrician. Best money I ever spent and would

advise any parent in my position to do it anyway. OK, I still had to

go through the NHS eventually but the letter of diagnosis gave me

access (a year earlier than it would have been) to all the benefits

such as DLA. And armed with this letter the NHS did not mess with me.

Thankfully somebody on this site, when it was first setting up

as " the desperates " emailed me privately to tip me off about biomed

whilst I was on another e-list about food allergy. I daren't think

how much more time I would have lost towards 's recovery.

NAS are, at best, a government information quango, effectively

silenced by politics, because of the source of their funding, and

that is only one aspect.

The Americans are streets ahead of us in every way in autism therapy,

not least because they have within their culture, the notion of

recovery. That means a wide variety of things to people but whatever

progress is made equals quality of life for our children.

They are also the instigators of the " Early Bird " programme which has

prevented children getting the one to one therapy that they need

because the health authority can say " parents have been empowered " to

help their kids. Now OK, these courses can be valuable but they are

NOT ENOUGH. Alright educating me - what about my kid! He needs hands

on! And most people I met on it, their kids were 4 and beyond!

The other thing I cannot STAND is their " Autism is incurable " stance.

I have met so many parents in my position, brainwashed by this, whose

kids are sick and don't get help.

I don't expect they'll send me a Christmas card now. Wish I still

lived in US.

Eileen :<

[Guest guest]

Now that you have a really good background on biomedical, go and visit ALL the charity websites and see the gaping holes. And then they ask for donations, what? To fund the PR camapigns of the drug and chemical companies.

Re: Was: Daily Mail now: National Autistic Society

Hi all

I remember when autism first rocked my world and desperately scouring the net for help. I stumbled upon the autism research institute, which led me to heaps of excellent information, generation rescue etc etc and then I remember reading the NAS website. I remember thinking back then, what a strange website, there is no mention of all the information that I have just read from ARI or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

Well from thinking back then that it was strange, I then decided that I wasn't going to use the NAS because they seemed out of touch. Well now I realise IT STINKS!!!! What a holy coverup.

We're sitting here recovering our children, the ARI have heaps of information and research ongoing, and have gone to the trouble of publishing a protocol that actually helps us, and the so called National Society are not even interested. How bizarre is that???????

I visited my chiropractor last week (Eleanor's bottom jaw juts out and we have it moved back regularly), and she hasn't seen Eleanor for 6 months. She said that she has never seen progress like it in an autistic child ever. (She specialises in cranio-sacral manipulation in autistic children, so sees heaps of affected children). I told her all about and about the DAN and Cutler protocols and she was amazed. She used words like, 'remarkable', 'flabbergasted'. She asked for Jean's details so that she can pass the information on to her other patients.

Well, what do you suppose the NAS would say about that? A coicidence? A fluke?

I know better.

Hmmm. Feel better now.

Joy

[Guest guest]

Joy & All,

Yes - my daughter uses FC (types with support) and the NAS actually say this is terrible.

Well take it from me it's the best thing that has happened to this family. We have been

over to the US for a conference on FC made some great friends and they have visited us

and given presentations etc... and we invited the NAS - guess what... they didn't turn up.

The US guys now type and speak without any physical support...

Would be keen to know who the chiropractor is, and my daughter has just got a brace on

her teeth and she will need some adjustments.

parent power!!!

Re: Was: Daily Mail now: National Autistic Society

Hi all

I remember when autism first rocked my world and desperately scouring the net for help. I stumbled upon the autism research institute, which led me to heaps of excellent information, generation rescue etc etc and then I remember reading the NAS website. I remember thinking back then, what a strange website, there is no mention of all the information that I have just read from ARI or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

Well from thinking back then that it was strange, I then decided that I wasn't going to use the NAS because they seemed out of touch. Well now I realise IT STINKS!!!! What a holy coverup.

We're sitting here recovering our children, the ARI have heaps of information and research ongoing, and have gone to the trouble of publishing a protocol that actually helps us, and the so called National Society are not even interested. How bizarre is that???????

I visited my chiropractor last week (Eleanor's bottom jaw juts out and we have it moved back regularly), and she hasn't seen Eleanor for 6 months. She said that she has never seen progress like it in an autistic child ever. (She specialises in cranio-sacral manipulation in autistic children, so sees heaps of affected children). I told her all about and about the DAN and Cutler protocols and she was amazed. She used words like, 'remarkable', 'flabbergasted'. She asked for Jean's details so that she can pass the information on to her other patients.

Well, what do you suppose the NAS would say about that? A coicidence? A fluke?

I know better.

Hmmm. Feel better now.

Joy

[Guest guest]

Joy & All,

Yes - my daughter uses FC (types with support) and the NAS actually say this is terrible.

Well take it from me it's the best thing that has happened to this family. We have been

over to the US for a conference on FC made some great friends and they have visited us

and given presentations etc... and we invited the NAS - guess what... they didn't turn up.

The US guys now type and speak without any physical support...

Would be keen to know who the chiropractor is, and my daughter has just got a brace on

her teeth and she will need some adjustments.

parent power!!!

Re: Was: Daily Mail now: National Autistic Society

Hi all

I remember when autism first rocked my world and desperately scouring the net for help. I stumbled upon the autism research institute, which led me to heaps of excellent information, generation rescue etc etc and then I remember reading the NAS website. I remember thinking back then, what a strange website, there is no mention of all the information that I have just read from ARI or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

Well from thinking back then that it was strange, I then decided that I wasn't going to use the NAS because they seemed out of touch. Well now I realise IT STINKS!!!! What a holy coverup.

We're sitting here recovering our children, the ARI have heaps of information and research ongoing, and have gone to the trouble of publishing a protocol that actually helps us, and the so called National Society are not even interested. How bizarre is that???????

I visited my chiropractor last week (Eleanor's bottom jaw juts out and we have it moved back regularly), and she hasn't seen Eleanor for 6 months. She said that she has never seen progress like it in an autistic child ever. (She specialises in cranio-sacral manipulation in autistic children, so sees heaps of affected children). I told her all about and about the DAN and Cutler protocols and she was amazed. She used words like, 'remarkable', 'flabbergasted'. She asked for Jean's details so that she can pass the information on to her other patients.

Well, what do you suppose the NAS would say about that? A coicidence? A fluke?

I know better.

Hmmm. Feel better now.

Joy

[Guest guest]

Another thing to keep in mind when dealing with NAS is all that b*!!!*t

about autism just being a 'different state of mind' and so not need to

cure it... so any attempts of recovery, any biomed treaments, are not

only being dismissed as not working but as actually very undesirable

..... this often comes from adult autists themselves and although I have

no direct experiences with NAS they sound as if being influenced by this

type of viewpoint...

just something to be aware of IMO.

Natasa

>

> Hi all

>

> I remember when autism first rocked my world and desperately scouring

the

> net for help. I stumbled upon the autism research institute, which led

me to

> heaps of excellent information, generation rescue etc etc and then I

remember

> reading the NAS website. I remember thinking back then, what a

strange

> website, there is no mention of all the information that I have just

read from ARI

> or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

>

> Well from thinking back then that it was strange, I then decided that

I

> wasn't going to use the NAS because they seemed out of touch. Well now

I realise

> IT STINKS!!!! What a holy coverup.

>

> We're sitting here recovering our children, the ARI have heaps of

> information and research ongoing, and have gone to the trouble of

publishing a protocol

> that actually helps us, and the so called National Society are not

even

> interested. How bizarre is that???????

>

> I visited my chiropractor last week (Eleanor's bottom jaw juts out and

we

> have it moved back regularly), and she hasn't seen Eleanor for 6

months. She

> said that she has never seen progress like it in an autistic child

ever. (She

> specialises in cranio-sacral manipulation in autistic children, so

sees heaps

> of affected children). I told her all about and about the DAN

and Cutler

> protocols and she was amazed. She used words like, 'remarkable',

> 'flabbergasted'. She asked for Jean's details so that she can pass

the information on

> to her other patients.

>

> Well, what do you suppose the NAS would say about that? A coicidence?

A

> fluke?

> I know better.

>

> Hmmm. Feel better now.

> Joy

>

[Guest guest]

Another thing to keep in mind when dealing with NAS is all that b*!!!*t

about autism just being a 'different state of mind' and so not need to

cure it... so any attempts of recovery, any biomed treaments, are not

only being dismissed as not working but as actually very undesirable

..... this often comes from adult autists themselves and although I have

no direct experiences with NAS they sound as if being influenced by this

type of viewpoint...

just something to be aware of IMO.

Natasa

>

> Hi all

>

> I remember when autism first rocked my world and desperately scouring

the

> net for help. I stumbled upon the autism research institute, which led

me to

> heaps of excellent information, generation rescue etc etc and then I

remember

> reading the NAS website. I remember thinking back then, what a

strange

> website, there is no mention of all the information that I have just

read from ARI

> or gen rescue, etc. There wasn't even any mention of mercury!!!!!!!

>

> Well from thinking back then that it was strange, I then decided that

I

> wasn't going to use the NAS because they seemed out of touch. Well now

I realise

> IT STINKS!!!! What a holy coverup.

>

> We're sitting here recovering our children, the ARI have heaps of

> information and research ongoing, and have gone to the trouble of

publishing a protocol

> that actually helps us, and the so called National Society are not

even

> interested. How bizarre is that???????

>

> I visited my chiropractor last week (Eleanor's bottom jaw juts out and

we

> have it moved back regularly), and she hasn't seen Eleanor for 6

months. She

> said that she has never seen progress like it in an autistic child

ever. (She

> specialises in cranio-sacral manipulation in autistic children, so

sees heaps

> of affected children). I told her all about and about the DAN

and Cutler

> protocols and she was amazed. She used words like, 'remarkable',

> 'flabbergasted'. She asked for Jean's details so that she can pass

the information on

> to her other patients.

>

> Well, what do you suppose the NAS would say about that? A coicidence?

A

> fluke?

> I know better.

>

> Hmmm. Feel better now.

> Joy

>

[Guest guest]

I agree too!! at the nhs autism parent group thing I went to which was 6 weeks

long.it dealt in a very basic way with the different aspects of autism. I had a

phonecall from one of the speech therapists involved in the course in

response to me writing as input to the group that I was disappointed that they

were not dealing with recovery AT ALL , only " coping tips " and she said on

the phone that she was not comfortable with me talking about recovery to the

group, that it was ok to talk to individual parents at break time etc but the

bottom line was - other than that was basically not acceptable, I was shaking

after the call, the bloody diplomtic way she dealt with me, thinking of this

fragile position we are in as parents of these kids both psychologically and

physically and how she silently patronized me . Needless to say that therapist

does not have an autisitic child and even after me discussing it for a long

time,

explaining the progress that parents were making etc that parents had a right

to know what was going on even if it was only a handful of kids recovering ( I

have no idea of figures ) they still had that right to know. I understood what

they were scared of and why they had to officially stand by what they stood for

and accepted as a group but god that is so so lame! Coincidentally I didnt go

after that call, my car died on me, kind of glad and also sad, the talks with

parents were what inspired and helped me and missed that, Josie x

>

> Joy I agree. Yeah get off the fence!

>

> When my son was first diagnosed, I lost valuable time in my ignorance

> and grief because I asked NAS about resources for diagnosis/treatment

> and they told me that they ALL RESIDED WITHIN THE NHS!! and there

> is " NOTHING YOU CAN REALLY DO! "

>

> Eventually (the waiting list was 6 months for NHS)I went and paid £80

> to see a private paediatrician. Best money I ever spent and would

> advise any parent in my position to do it anyway. OK, I still had to

> go through the NHS eventually but the letter of diagnosis gave me

> access (a year earlier than it would have been) to all the benefits

> such as DLA. And armed with this letter the NHS did not mess with me.

>

> Thankfully somebody on this site, when it was first setting up

> as " the desperates " emailed me privately to tip me off about biomed

> whilst I was on another e-list about food allergy. I daren't think

> how much more time I would have lost towards 's recovery.

>

> NAS are, at best, a government information quango, effectively

> silenced by politics, because of the source of their funding, and

> that is only one aspect.

>

> The Americans are streets ahead of us in every way in autism therapy,

> not least because they have within their culture, the notion of

> recovery. That means a wide variety of things to people but whatever

> progress is made equals quality of life for our children.

>

> They are also the instigators of the " Early Bird " programme which has

> prevented children getting the one to one therapy that they need

> because the health authority can say " parents have been empowered " to

> help their kids. Now OK, these courses can be valuable but they are

> NOT ENOUGH. Alright educating me - what about my kid! He needs hands

> on! And most people I met on it, their kids were 4 and beyond!

>

> The other thing I cannot STAND is their " Autism is incurable " stance.

> I have met so many parents in my position, brainwashed by this, whose

> kids are sick and don't get help.

>

> I don't expect they'll send me a Christmas card now. Wish I still

> lived in US.

>

> Eileen :<

>

[Guest guest]

Eileen,

I do so agree about the Early Bird: it's a sop to make parents go away, and can be used by the LEA to claim there's proper early intervention!

margaret

Re: Was: Daily Mail now: National Autistic Society

They are also the instigators of the "Early Bird" programme which has prevented children getting the one to one therapy that they need because the health authority can say "parents have been empowered" to help their kids. Now OK, these courses can be valuable but they are NOT ENOUGH. Alright educating me - what about my kid! He needs hands on! And most people I met on it, their kids were 4 and beyond!

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