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Obtaining Medical Notes:

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After talking to Dr Wakefield at the conference on Tuesday about my

daughter Katy,we feel we have no alternatives left but to go to Texas.

Please does anyone know if I would be able to get copies of my

daughters medical notes,she had an Endoscopy in January and various

blood tests in December at Great Ormond St Hospital which despite

phone calls and e-mails we have not been able to get complete

results.I want to be able to bring with us as much information as

possible,but am not sure how to go about this.

Appreciate any information,

Thankyou Sharon.

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Sharon,

Hope you don’t mind me asking, but

why are you going to texas, what is wrong? The reason I am asking is that our son,

, has been incontinent for a year. At the worst point he was passing very soft

faeces constantly (50-60 times a day). We

are seeing and things have improved, now about 15 times a day and on

occasion appear normal, but still incontinent. Until 12 months ago was independent at

toilet (he is 8). My brother lives in

texas (Houston)

and I am interested what Dr Wakefield will do for you.

I am very happy with what we are doing

with Jean.

Thanks Elaine

From:

Autism Treatment

[mailto:Autism Treatment ] On Behalf Of Sharon

Sent: 09 March 2006 10:17

To:

Autism Treatment

Subject:

Obtaining Medical Notes:

After talking to Dr Wakefield

at the conference on Tuesday about my

daughter Katy,we feel we have no alternatives left

but to go to Texas.

Please does anyone know if I would be able to get

copies of my

daughters medical notes,she had an Endoscopy in

January and various

blood tests in December at Great Ormond St

Hospital which despite

phone calls and e-mails we have not been able to

get complete

results.I want to be able to bring with us as much

information as

possible,but am not sure how to go about this.

Appreciate any information,

Thankyou Sharon.

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Guest guest

Also Sharon,

you have the right to view your childs medical notes.

If you contact the hospital in writing

you should be given a time to attend and look at the notes. If you contact your consultants secretary she

should be able to tell you who to write to. You must do it in writing.

Elaine

From:

Autism Treatment

[mailto:Autism Treatment ] On Behalf Of Sharon

Sent: 09 March 2006 10:17

Autism Treatment

Subject:

Obtaining Medical Notes:

After talking to Dr Wakefield

at the conference on Tuesday about my

daughter Katy,we feel we have no alternatives left

but to go to Texas.

Please does anyone know if I would be able to get

copies of my

daughters medical notes,she had an Endoscopy in

January and various

blood tests in December at Great Ormond St

Hospital which despite

phone calls and e-mails we have not been able to

get complete

results.I want to be able to bring with us as much

information as

possible,but am not sure how to go about this.

Appreciate any information,

Thankyou Sharon.

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Guest guest

-Elaine ,of course I don't mind you asking why we are going to Texas.

We are going partly on the recommendation of Dr Usman,Katy was

terribly sick following her MMR vaccine when she regressed into

Autism,and over the years has proved very difficult to treat ,she's

had bad reactions to most things.Like a lot of children she has

suffered with constipation and diarrhoea,we've been free of

almost everyting diet wise and presently are down to about a total

of 10 foods which I can't say for definite that she tolerates,we've

gone through so many different kinds and makes of supplements for

her to have bad reactions to them such as worse gut symptoms ,fliud

retention and severe head jerking.

I think we have been extremely unlucky with our G.P and

paediatrician who put every symptom down to her being Autistic and

that is what Autistic children do attitude.We have been under a

Gasroenterologist for 4 years who has not offered any help and she

has only now had an endoscopy after 9 years since the onset of

Gastro intestinal symptoms.

Katy only seems to improve when we take something out and seems to

have problems when anything is added in.Saying all of this she has

made progress over the years remarkably so when I think of how sick

she was in the early years.If we are to move on with biomedical

treatment I have to sort out her gut,so I feel I have little

alternative but to give her this chance ,and when I asked DR

wakefield for advise on Tuesday he advised me to bring her to

Thoughtful House for gastro intestinal treatment.This is by no means

easy for us finacially and the way things are going I shall be

working until I'm eighty!!

I'm happy that you are doing well with Jean.I don't know, may be we

have gone about things the wrong way.I do know I have tried my

best,but with the amount of care ,love and hard work we've put in

she should be well now and she isn't.

Take care and sorry this is so long!

Love Sharon.

-- In Autism Treatment , " Elaine.Rankin "

<Elaine.Rankin@...> wrote:

>

> Sharon,

>

> Hope you don't mind me asking, but why are you going to texas,

what is

> wrong? The reason I am asking is that our son, , has been

incontinent

> for a year. At the worst point he was passing very soft faeces

constantly

> (50-60 times a day). We are seeing and things have improved,

now about

> 15 times a day and on occasion appear normal, but still

incontinent. Until

> 12 months ago was independent at toilet (he is 8). My

brother lives

> in texas (Houston) and I am interested what Dr Wakefield will do

for you.

>

> I am very happy with what we are doing with Jean.

>

> Thanks Elaine

>

> _____

>

> From: Autism Treatment

> [mailto:Autism Treatment ] On Behalf Of

Sharon

> Sent: 09 March 2006 10:17

> Autism Treatment

> Subject: Obtaining Medical Notes:

>

> After talking to Dr Wakefield at the conference on Tuesday about

my

> daughter Katy,we feel we have no alternatives left but to go to

Texas.

> Please does anyone know if I would be able to get copies of my

> daughters medical notes,she had an Endoscopy in January and

various

> blood tests in December at Great Ormond St Hospital which despite

> phone calls and e-mails we have not been able to get complete

> results.I want to be able to bring with us as much information as

> possible,but am not sure how to go about this.

>

> Appreciate any information,

>

> Thankyou Sharon.

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice.

> If you need medical advice, please seek it from a suitably

qualified

> practitioner.

>

>

>

>

>

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