Guest guest Posted January 10, 2007 Report Share Posted January 10, 2007 ----------------------- Greetings! >> >> Hey folks - we are new to this group and are really >> glad to meet you all. Our names are Matt and Angie. >> We are the parents of Ethan (17 months) and we just >> found out that he has progressive infantile >> scoliosis. We found ISOP and talked with and >> feel very blessed to have found this foundation. >> It's awesome all the information that you guys have >> been able to share! >> >> Here's Ethan's story: >> >> We had x-rays taken of Ethan at 8 months old because >> he had gotten bronchiolitis. The x-rays clearly >> showed the curvature in his spine but unfortunately >> we were never told about it or shown the x-rays. A >> couple months ago (Ethan was 15 months at this >> point) we noticed that he had a slump to his left >> side (looked like his right side was more muscular.) >> We talked to his pediatrician who referred us to an >> orthopedic surgeon who told us there was a serious >> problem and that he would have to be put in a brace >> until his mid to late teens and that bracing wasn't >> corrective (ie: this problem would NEVER go away.) >> It was just to slow down the curve until he was >> finished growing and could receive surgery. This >> freaked us out!!! >> >> We left on vacation for Christmas (as the surgeon >> had told us there was nothing we could do, yet) and >> sat on that little jewel of information for about 3 >> weeks. When we got back, we had the x-rays taken >> which showed a progression to about 30+ degrees >> (which we realize now is manageable.) We got in >> touch with with ISOP the day after the x-rays and >> called us back the following day with great >> information! We have since talked to more people and >> read a lot of posts which comfort us more and more. >> We are now more stoked than afraid, cause there is a >> good possibility that we can actually get this >> corrected before he gets too old, thanks to all of >> your help! >> >> Even tho we live in California and are closer to >> SLC, we've got an appointment lined up with Dr. >> Courey in Erie because they can see us sooner (early >> February) and hopefully we can start the casting as >> soon as possible at that time. We will keep you all >> posted with treatment and everything else. >> >> We'll post some pics of Ethan, but we don't have too >> many good pictures of his back yet cause the kid is >> always on the move >> >> Thanks! >> >> Matt and Angie >> >> [Non-text portions of this message have been >> removed] >> >> [Non-text portions of this message have been >> removed] >> >> > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.