Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 !! That's is SO wonderful! Such wonderful news! Sounds like such a positive & encouraging response, I'm sure he'll be just fine with the Dr. thinking so positive about it! What was he measuring in this brace 3 mos. ago? And out of brace? Just curious! Just keep a close watchful eye on it, I'm sure you intended too! Hopefully all continues to go well, I'm sure it will! Congratulations again!! ~Joy & Sol > > We returned from Erie late last night after our 3 month follow- up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Fabulous!! I'll share with Miss Mehta, if you dont mind. She loves to know how the children are doing. HRH Jake update We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Jake was 15 months old when he got his 1st cast. His measurement then was 28o. (The highest he got was 35o and 25o before treatment with Boston brace.) It's kind of a complicated situation because his curve kept changing from 1 curve to 2 curves and back again to 1. He had 3 casts before he got the " Erie/Mehta-style " brace. Thanks for the well wishes, & Jake Tasha Fontenot <ryanswalk@...> wrote: THAT IS AWESOME!!! I am so happy for Jake and I am thrilled for you. I can only imagine how you must be feeling............extremely happy, but I can totally understand you being scared. , forgive me I can't remember, how old was Jake when he got his 1st cast? And what were his measurements. How many casts did he have before the brace? I get so excited when I hear all these amazing stories. I am so anxious for to get his 2nd cast to see what the 1st one has done. Although I do realize all children respond differently so I try not to get too excited. Again congrats on this new step forward. Tasha/ Viveiros <jviv314@...> wrote: We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Bert, Good idea about the photo. I'll do it today. Although I will be looking for every little imperfection and running my fingers down his spine daily. Talk about paranoid. Thanks, & Jake bert lehane <bert_lehane@...> wrote: Dear Jen Congratulations on a straight Jake. I know how scared you must feel, it is so hard to see them without isn't it? You really are afraid that any movement will undo all that hard work. What about if you take a photo of his back with him standing straight with his arms out and then you can have a comparison to keep looking back at during the next 4 months as he grows. It will give you peace of mind and let you check any changes. We have tried to do this with Bridget at the suggestion of her physio and it has helped me. Good luck Bert and Bridget Viveiros <jviv314@...> wrote: We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 , Honestly--what do you think of no brace and no weaning period? Always cautious, & Jake heather hyatt <heather@...> wrote: Fabulous!! I'll share with Miss Mehta, if you dont mind. She loves to know how the children are doing. HRH Jake update We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Thanks, Jerry. I appreciate the thought. & Jake P.S. It's funny to see him in jeans again. All his clothes are falling off because there's no cast or brace there to hold them up! He keeps telling me to " fix it " . Jerry Lamarre <gerard_lamarre@...> wrote: Yippee to Jake. I wouldn't be scared. If his spine has held up and continues to hold up perfectly straight, it should continue to grow stratight. Good luck to your guys and congratulations.... Enjoy. Jerry and Marissa Jake update We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 --- Hi , I wanted to let you know that was,nt able to go into any tipe of Brace after her casting was done. It,a been since Nov.2005 and her back looks great to me we go back Oct.12th to see how things are.She was last seen by him in April and everyyhing was ok. then he said he would see her back in 6 months.But it will be 7 months when we go. If you would see anything Just get an earlier apt. When came out of her cast she was at a 13 degrees. Good luck and keep us posted. Bridgette, In infantile scoliosis treatment , Viveiros <jviv314@...> wrote: > > We returned from Erie late last night after our 3 month follow- up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 congratulations, jake and family! jennifer, i know that it is a bit of a worry, but really, you should be celebrating! it's time to think positively. of course, photos of his back like bert recommended can't hurt and will potentially reassure you over time, but " growth as a corrective force " by serial plaster casting seemed to have worked in jake's case. doing a happy dance for you guys! love, deshea On Sep 10, 2006, at 4:00 PM, Viveiros wrote: > We returned from Erie late last night after our 3 month follow-up/ > brace check appointment for Jake. I'm happy and at same time > terrified to report -- Jake's back is straight. Both curves now > measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 > week prior to x-ray due to hernia repair as you may recall.) That's > the good part. The part I'm scared about is -- Dr. sent Jake home > with NO brace. Stated he couldn't justify making a new brace for a > spine with no measurements. What about the step-down or weaning > period? Dr. said " He'll be fine. " We are to keep a watchful eye on > his little spine now until our next x-ray which will be in 4 > months' time. Dr. recommended having it done in pediatrician's > office and sending a copy to him. If all is still well, fantastic. > If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
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