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Re: RVAD

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Theres an article on Mehtas RVAD in the FILES section of CAST, as

well...Good info, please take a look. If the RVAD is over 20, its

considered progressive...Below 20, could be resolving..

> Kristy thanks for this info! Nobody has ever given me an RVAD measurement.

>

> He had a brain MRI at 4 months old (4.19.10) because his head measurements

> jumped from 50-90% --- everything appeared normal (his head is presently

> off the charts).

>

> His head is flat on the right side. I am definitely going to email you

> because I would love to contact Dr. K. And Birmingham is only 5 hours

> away!

>

> Thanks again :)

>

>

>>

>> HELLO! WELCOME TO CAST! I NOTICED MY DAUGHTER SIERRA'S LEFT CURVE AT 9

>> MO. JUST AROUND THIS PAST CHRISTMAS! AT HER CHECK UP THE PED. DID NOT

>> NOTICE & FORGOT TO POINT IT OUT! WELL, IT JUST STARTED TO BOTHER ME SO I

>> TOOK HER BACK IN. I KNEW & HAD THAT GUT FEELING SOMETHING WAS NOT RIGHT.

>> WE HAVE A 3 YR. OLD NAMED SUMMER ALSO. WELL, AS SOON AS I POINTED OUT

>> HER CURVE TO HER PED. HER FACE TURNED WHITE AS A SHEET...THIS IS A

>> FAMILY FRIEND ALSO. WE STRAIGHT FOR X-RAYS THAT DAY. BY THE TIME WE GOT

>> HOME (20 MIN) DRIVE THE PED. CALLED AND SAID SIERRA HAS SCOLIOSIS????? I

>> WAS LIKE WHAT???? NO ONE IN THIS AREA HAD EVER SEEN IT IN AN INFANT. WE

>> LIVE ON THE GULF COAST OF ALABAMA. THEY WANTED US TO WAIT ABOUT 3 WEEKS

>> TO GO SEE AN ORTHO PED. IN MOBILE ALABAMA ABOUT MAYBE BRACING!!!! I SAID

>> NO WAY I'M WAITING 3 WEEKS. I CAME HOME GOT ON LINE FOUND ISOP & TALKED

>> TO HEATHER ON THE PHONE THAT DAY. I RESEARCHED LIKE A WILD WOMEN TO FIND

>> A WAY TO CORRECT SIERRA'S CURVE. I FOUND A MEHTA TRAINED CASTING DR. IN

>> BIRMINGHAM ALABAMA. DR. K. NO ONE AROUND HERE EBEN KNEW HOW TO MEASURE

>> HER CURVE. TALK ABOUT FREAKING OUT. PED. SUGGESTED WE SEND X-RAY PIC'S.

>> I SAID NO!!!! I WANT IN TO SEE DR. K NOW. WE SAW DR. K 1 WEEK LATER.

>> SIERRA HAD A 34 DEGREE CURVE. DR. K SAID ANYTHING OVER 20 DEGREES WAS

>> CONSIDERED PROGRESSIVE. SHE HAD HER 1ST CAST THE DAY AFTER HER 12 MO.

>> B'DAY. HER RVAD WAS 25 ALSO. WE ARE NOW ON OUR 3RD CAST...JUST GOT IT

>> JULY 12TH. SIERRA HAD A BRAIN & SPINE MRI. EVERYTHING WAS NORMAL. SHE

>> HAS IDIOPATHIC INFANTILE SCOLIOSIS. SIERRA IS NOW DOWN TO 17 DEGREES IN

>> HER 3RD CAST & DOING GREAT. I WOULD NOT WAIT ANOTHER DAY! THE CASTING

>> HIS HARD AT TIMES ESPECIALLY IN THE HEAT & HUMIDITY BUT VERY DOABLE!

>> FROM WHAT I CAN UNDERSTAND THE BRACE DOES NOT CORRECT. I AM NO DOCTOR

>> BUT I AM PLEASED WITH THE CASTING! FROM WHAT I UNDERSTAND THE SCOLIOSIS

>> WILL PROGRESS!

>> ANY QUESTIONS PLEASE FEEL FREE TO CONTACT ME!

>> KRISTI D. JONES MOMMY TO SIERRA 16 MO. 3RD CAST 34 DEGREES DOWN TO 17

>> DEGREES IN CAST!

>> CASTED WITH DR, K IN BIRMINGHAM, AL. CHILDREN'S HOSPITAL 4TH CAST

>> SCHEDULED FOR OCT. 22ND.....HOPING FOR LOW #'S!!!

>>

>> From:

>> Sent: Monday, August 23, 2010 11:25 AM

>> infantile scoliosis treatment

>> Subject: New with Questions

>>

>>

>>

>> Hi, I am and my 8 month old son, Pierce, has idiopathic scoliosis.

>> We've been through quite a bit with him - some blue episodes with

>> feedings, micro-aspirating, severe GERD, milk protein allergy, suspected

>> food allergies/sensitivities and scoliosis.

>>

>> The first time we were made semi-aware of it was at 9 weeks old. Long

>> story short - upon confirmation from chest x-rays he was hospitalized

>> for right upper lobe pneumonia. While the techs were doing the x-rays, I

>> overheard one say " Does he have scoliosis? " They said they needed to do

>> a second set because they were not satisfied with the first. Those

>> x-rays were taken on Feb 26 and a follow-up set was done on Feb 28.

>>

>> At his 3 month visit with his pedi, I asked if the radiology reports

>> said anything about scoliosis (mind you I had been pointing out to our

>> pedi group for quite some time my concern with his hips/legs pointing to

>> the right of the infant carrier - it was dismissed as just positioning).

>> He pulled the reports and both indicated it!

>>

>> In late March, I took him to ortho #1 (Dr. W). His COBB measurement was

>> 19*. We followed-up in early June and his COBB measurement was 20*. This

>> past week we saw ortho #2 (Dr. F). His COBB measurement was 24*. Dr. F

>> said that if we saw a jump inside of 2 months we will most likely see

>> another jump 3 months from now.

>>

>> I asked what the next step would be and he said to brace him. He said he

>> is hesitant to brace because Pierce is about to hit major developmental

>> milestones (ie crawling, walking).

>>

>> Is it foolish of me to be worried seeing as how his curve is

>> progressing. I feel as though both orthos have kind of dismissed my

>> worries. Neither recommend treatment until a COBB of 30*.

>>

>> I know that his bones are still pliable. I really don't love the idea of

>> a brace because it won't correct his curve, it will merely attempt to

>> prevent it from worsening.

>>

>> Any advice?? I just don't know what to ask doctors, if I should seek a

>> 3rd opinion, etc. I am very frustrated.

>>

>> Thanks!!

>>

>

>

>

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oops...sierra got 3rd cast August 12th! not July 12th!. 4th cast will be Oct. 22nd. also, Dr. K and staff are in Montgomery, Alabama once a month. which is even closer than Birmingham. they do not cast there but could probably see you there. Sierra will have her 3rd cast removed in Montgomery on Oct.21st.!

thanks! Kristi Mommy to Sierra! Feel free to contact me anytime!

New with Questions>>>>>>>> Hi, I am and my 8 month old son, Pierce, has idiopathic scoliosis.>> We've been through quite a bit with him - some blue episodes with>> feedings, micro-aspirating, severe GERD, milk protein allergy, suspected>> food allergies/sensitivities and scoliosis.>>>> The first time we were made semi-aware of it was at 9 weeks old. Long>> story short - upon confirmation from chest x-rays he was hospitalized>> for right upper lobe pneumonia. While the techs were doing the x-rays, I>> overheard one say "Does he have scoliosis?" They said they needed to do>> a second set because they were not satisfied with the first. Those>> x-rays were taken on Feb 26 and a follow-up set was done on Feb 28.>>>> At his 3 month visit with his pedi, I asked if the radiology reports>> said anything about scoliosis (mind you I had been pointing out to our>> pedi group for quite some time my concern with his hips/legs pointing to>> the right of the infant carrier - it was dismissed as just positioning).>> He pulled the reports and both indicated it!>>>> In late March, I took him to ortho #1 (Dr. W). His COBB measurement was>> 19*. We followed-up in early June and his COBB measurement was 20*. This>> past week we saw ortho #2 (Dr. F). His COBB measurement was 24*. Dr. F>> said that if we saw a jump inside of 2 months we will most likely see>> another jump 3 months from now.>>>> I asked what the next step would be and he said to brace him. He said he>> is hesitant to brace because Pierce is about to hit major developmental>> milestones (ie crawling, walking).>>>> Is it foolish of me to be worried seeing as how his curve is>> progressing. I feel as though both orthos have kind of dismissed my>> worries. Neither recommend treatment until a COBB of 30*.>>>> I know that his bones are still pliable. I really don't love the idea of>> a brace because it won't correct his curve, it will merely attempt to>> prevent it from worsening.>>>> Any advice?? I just don't know what to ask doctors, if I should seek a>> 3rd opinion, etc. I am very frustrated.>>>> Thanks!!>>>>>

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