Re: Intro- from Atlanta

[Guest guest]

Hi - welcome to the group. Your story sounds so familiar... Josh is very blessed to have parents who did not give up on him regardless of what the "experts" told them. I'm happy to hear he is doing so well. Keep up the fight!karen beauvais <jesusnowworld@...> wrote:

Hi-

I have been waiting for a quiet moment to write my intro haha.

My name is my 3rd of 4 kids Josh was dx with Autism at three.

My Mom was a public health nurse who ran "well baby clinics".

I thought the safest, most responsible thing I could do was to fully vaccinate my kids.

When my son was 12 months my dad died so I missed a check-up.

At 15 months we were told we were going to get "all caught up" so he got all his 12m shots and all his 18m plus a Hep B.

A clear pattern of regression soon followed along with screaming gut pain and loss of language. By some miracle, our neighbor a special ed teacher, knew enough to steer us toward early intervention. Our doctor kept saying all the usual lines and ignored symptoms. Finally, at 3, the early intervention speech therapist sat me down "off the record" and said "If I had to lay money on it , it is Autism." Our doctor then referred us to a neurologist who basically said nothing could be done.

Ironically that year, my husband and I had started a faith based community outreach to hospitals and our own child was getting insufferably worse and worse. He wouldn't keep clothes on, what little speech was gained in therapy was quickly lost if a week was missed. He fell in a pond and nearly drown and was brought home by the police after running off. He was reduced to humming for basic wants and was impervious to pain. Our life had turned upside down.

We had nothing to losing trying the GFCF. So we did and it worked, the crazy behavior stopped.

We found an excellent PA and doctor who partnered with us to help Josh.

We have been doing Bio-med for 2 years and chelating for one year with DMPS-td.

Josh speaks in full sentences now and has two way speech. He is up to grade level in most skills. We still have a ways to go but we are making daily progress. He is five.

My husband and I set up a list serve ASD_solutions to help newly diagnosed parents of ASD kids looking for answers.

We are Unlocking Autism and Generation Rescue Volunteers.

All of this has send me back to school for Nursing.

It has been a long hard journey but we are not giving up! We are determined to help anyone who asks along the way. It pains me that so many don't know that Autism IS treatable.

This week I had a Generation Rescue call from a GI's wife. I had to stop after every sentence as she was sobbing so hard. Doctors had told her there was no hope.

My overall belief is that we can't even begin to look at other environmental causes of Autism until we eliminate the MMR and Hg issues we know are provoking autism now. Once these issues are isolated the other causes are isolated enough to trace IMO. Hopefully one day doctors will be able to target kids with known genetic detox weaknesses (like they screen for PKU) after birth. Thanks Lenny for starting this list maybe collectively we can rock the juke box!

kcandm <KCandM@...> wrote:

I've been reading this list for a week and finally can take a minute to introduce myself. I live in the suburbs of Kansas City and have a 12 year old son who is heavy metal poisoned. (Sometimes I say he's just Young at Heart, sometimes autistic, sometimes heavy metal poisoned-- all are true).My son did a steady decline from somewhere around 10 to 12 months of age to age 3.5 when he was diagnosed. We started GF/CF diet 9 years ago, but didn't really get into biomed interventions heavily for three more years. At this point we have done just about all of it and are currently on growth hormone, methyl B-12 combo, plus of course MANY suppliments. Hayden has made progress every year, but there have been no amazing results with any single intervention. He is in sixth grade, is verbal but with significant language

impairment, has immune deficiencies (IgG and IgA), GI problems, and has some cognitive impairment. He does 6th grade math, but reads and spells 2 to 3 years behind his peers, is cognitively unsophisticated and has some OCD problems. We are so lucky to have been able to come this far; at diagnosis he was labeled severely autistic and the evaluator did not think he would ever be a verbal communicator.If there are members out there who know anything about what's going on in Topeka let me know. I have fairly good relationships with both my local representative and my rep in DC, but don't know who has done what in Kansas.ThanksI'm glad to be among such a terrific group of folks.Kathy

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