Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 hi, i'm wondering if anyone can help me. i have a couple of unrelated questions: 1. our gp was good enough to prescribe flagyl for Tom's clostridia. we were a bit overenthusiastic and ordered it three weeks before he needed it. then my mum (a nurse) pointed out that it probably has a shelf life. does anyone know if this is true? 2. secondly, he didn't seem to have a clue about the dosage - the paediatric dosage wasn't written in his book and there was a student in the room and he was nervous, he kept changing his mind and getting lower and lower, so now we are worried that the dose is too low. any ideas? 3. completely different question - we had a meeting with the LEA yesterday - we are between Tom's draft and final statement. the LEA said they couldn't support ABA until they had some British evidence from a British university. when i asked why, the answer was that we are British! i know it's only an excuse on their part, but does anyone know of any British university evidence for ABA? thanks, SARA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Southampton University has just sent the inital results of the SCAMP project theough to participants (we were one of the families involved) - this involved 10 LEAs in the south. It shows positive results for ABA!! Tinasaqabisa <saqabisa@...> wrote: > 3. completely different question - we had a meeting with the LEA > yesterday - we are between Tom's draft and final statement. the LEA > said they couldn't support ABA until they had some British evidence > from a British university. when i asked why, the answer was that we > are British! i know it's only an excuse on their part, but does anyone > know of any British university evidence for ABA?> thanks, SARA>> sara are you actually have a programm running????also it is better to submit evidence after final statement then beforeso dont worry what you lea says because you still have to go throughthe tribunal process.nasreenDISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hi there This is only in my humble opinion, but we have just received settlement without going to tribunal covering all our ABA costs ++. We did not have any research as proof of ABA working- although the latest Sallows report would have been included, had we gone to tribunal .We did however have bomb-proof reports from independent experts specifying in the minutest detail what was required in terms of our ABA programme and other treatments. We then submitted these with our parental evidence (stressing they came from independent experts), lifted the relevant sentences from their reports and demanded they be included in the Statement. Can't say if it won the LEA over but it certainly didn't do any harm! Rhona > > hi, i'm wondering if anyone can help me. i have a couple of unrelated > questions: > 1. our gp was good enough to prescribe flagyl for Tom's clostridia. we > were a bit overenthusiastic and ordered it three weeks before he > needed it. then my mum (a nurse) pointed out that it probably has a > shelf life. does anyone know if this is true? > 2. secondly, he didn't seem to have a clue about the dosage - the > paediatric dosage wasn't written in his book and there was a student > in the room and he was nervous, he kept changing his mind and getting > lower and lower, so now we are worried that the dose is too low. any > ideas? > 3. completely different question - we had a meeting with the LEA > yesterday - we are between Tom's draft and final statement. the LEA > said they couldn't support ABA until they had some British evidence > from a British university. when i asked why, the answer was that we > are British! i know it's only an excuse on their part, but does anyone > know of any British university evidence for ABA? > thanks, SARA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Rhona, did you already have the ABA up and running for several months and a baseline assessment and a later score showing progress before they LEA agreed to fund? PEACH told me you wouldn't get ABA funding unless you had already found the money from private sources to get everyting going for about 6 months. They also said estimated non-recoverable costs were very significant £10,000 to £20,000 I think was the ballpark idea. I wondered what all the out of pocket costs now were. Margaret Re: flagyl and ABA evidence Hi there This is only in my humble opinion, but we have just received settlement without going to tribunal covering all our ABA costs ++.We did not have any research as proof of ABA working- although the latest Sallows report would have been included, had we gone to tribunal .We did however have bomb-proof reports from independent experts specifying in the minutest detail what was required in terms of our ABA programme and other treatments. We then submitted these with our parental evidence (stressing they came from independent experts), lifted the relevant sentences from their reports and demanded they be included in the Statement. Can't say if it won the LEA over but it certainly didn't do any harm!Rhona >> hi, i'm wondering if anyone can help me. i have a couple of unrelated > questions:> 1. our gp was good enough to prescribe flagyl for Tom's clostridia. we > were a bit overenthusiastic and ordered it three weeks before he > needed it. then my mum (a nurse) pointed out that it probably has a > shelf life. does anyone know if this is true?> 2. secondly, he didn't seem to have a clue about the dosage - the > paediatric dosage wasn't written in his book and there was a student > in the room and he was nervous, he kept changing his mind and getting > lower and lower, so now we are worried that the dose is too low. any > ideas?> 3. completely different question - we had a meeting with the LEA > yesterday - we are between Tom's draft and final statement. the LEA > said they couldn't support ABA until they had some British evidence > from a British university. when i asked why, the answer was that we > are British! i know it's only an excuse on their part, but does anyone > know of any British university evidence for ABA?> thanks, SARA>__________ NOD32 1.1429 (20060303) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 > > Hi there > > This is only in my humble opinion, but we have just received > settlement without going to tribunal covering all our ABA costs ++. > > We did not have any research as proof of ABA working- although the > latest Sallows report would have been included, had we gone to > tribunal .We did however have bomb-proof reports from independent > experts specifying in the minutest detail what was required in terms > of our ABA programme and other treatments. We then submitted these > with our parental evidence (stressing they came from independent > experts), lifted the relevant sentences from their reports and > demanded they be included in the Statement. Can't say if it won the > LEA over but it certainly didn't do any harm! > > Rhona > > > > > > hi, i'm wondering if anyone can help me. i have a couple of > unrelated > > questions: > > 1. our gp was good enough to prescribe flagyl for Tom's clostridia. > we > > were a bit overenthusiastic and ordered it three weeks before he > > needed it. then my mum (a nurse) pointed out that it probably has a > > shelf life. does anyone know if this is true? > > 2. secondly, he didn't seem to have a clue about the dosage - the > > paediatric dosage wasn't written in his book and there was a > student > > in the room and he was nervous, he kept changing his mind and > getting > > lower and lower, so now we are worried that the dose is too low. > any > > ideas? > > 3. completely different question - we had a meeting with the LEA > > yesterday - we are between Tom's draft and final statement. the LEA > > said they couldn't support ABA until they had some British evidence > > from a British university. when i asked why, the answer was that we > > are British! i know it's only an excuse on their part, but does > anyone > > know of any British university evidence for ABA? > > thanks, SARA > > > > > > > > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 That's BRILLIANT news. thanks Tina. have read your later post too about posting it. you're a star. thanks Sara x > > 3. completely different question - we had a meeting with the LEA > > yesterday - we are between Tom's draft and final statement. the LEA > > said they couldn't support ABA until they had some British evidence > > from a British university. when i asked why, the answer was that we > > are British! i know it's only an excuse on their part, but does anyone > > know of any British university evidence for ABA? > > thanks, SARA > > > > > sara are you actually have a programm running???? > also it is better to submit evidence after final statement then before > so dont worry what you lea says because you still have to go through > the tribunal process. > nasreen > > > > > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 thank you for your humble opinion. very valuable. Sara x > > Hi there > > This is only in my humble opinion, but we have just received > settlement without going to tribunal covering all our ABA costs ++. > > We did not have any research as proof of ABA working- although the > latest Sallows report would have been included, had we gone to > tribunal .We did however have bomb-proof reports from independent > experts specifying in the minutest detail what was required in terms > of our ABA programme and other treatments. We then submitted these > with our parental evidence (stressing they came from independent > experts), lifted the relevant sentences from their reports and > demanded they be included in the Statement. Can't say if it won the > LEA over but it certainly didn't do any harm! > > Rhona > > > > > > hi, i'm wondering if anyone can help me. i have a couple of > unrelated > > questions: > > 1. our gp was good enough to prescribe flagyl for Tom's clostridia. > we > > were a bit overenthusiastic and ordered it three weeks before he > > needed it. then my mum (a nurse) pointed out that it probably has a > > shelf life. does anyone know if this is true? > > 2. secondly, he didn't seem to have a clue about the dosage - the > > paediatric dosage wasn't written in his book and there was a > student > > in the room and he was nervous, he kept changing his mind and > getting > > lower and lower, so now we are worried that the dose is too low. > any > > ideas? > > 3. completely different question - we had a meeting with the LEA > > yesterday - we are between Tom's draft and final statement. the LEA > > said they couldn't support ABA until they had some British evidence > > from a British university. when i asked why, the answer was that we > > are British! i know it's only an excuse on their part, but does > anyone > > know of any British university evidence for ABA? > > thanks, SARA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Thankyou Rhona for replying. The information I received from PEACH is expanded at their website: their cost figures only go up to 1993: http://www.peach.org.uk/News/SENDISTChallengeorOpportunity They say anyone who did not already have a programme in place when they went to Tribunal for ABA funding lost their case. Costs for running the programme before they went to Tribunal (latest date 1993) were: " Cost varied from £2,000 – £45,000. · 55% paid between £2,000 – £10,000· 30% paid between £10,000 - £20,000· 15% paid over £20,000" Legal costs were also not recoverable: "The cost of legal representation varied from £600 to £15,000. The average cost of legal representation was· £2,907 when settling prior to tribunal· £5,235 for all going to tribunal· £4,975 for those who won· £5,625 for those who lost· The average overall cost £4,276 32% paid legal costs of £6,000 or more. Parents had attended tribunals between 1997 and 2003. Legal costs had clearly risen significantly in that period with costs of £6,000 or more being common by 2002/3 compared with £2,000 in 1997/8. Peach interviewed two families who had paid more than £10,000 in costs for cases they had lost." Because of this information and my financial circumstances I decided it was impossible to start an ABA programme for my son. PEACH also report families were not taken seriously by their LEA until they employed a solicitor. All really rather upsetting. Margaret Original Message ----- From: bty343341 Autism Treatment Sent: Saturday, March 04, 2006 8:04 PM Subject: Re: flagyl and ABA evidence > > Hi there > > This is only in my humble opinion, but we have just received > settlement without going to tribunal covering all our ABA costs ++.> > We did not have any research as proof of ABA working- although the > latest Sallows report would have been included, had we gone to > tribunal .We did however have bomb-proof reports from independent > experts specifying in the minutest detail what was required in terms > of our ABA programme and other treatments. We then submitted these > with our parental evidence (stressing they came from independent > experts), lifted the relevant sentences from their reports and > demanded they be included in the Statement. Can't say if it won the > LEA over but it certainly didn't do any harm!> > Rhona > > > >> > hi, i'm wondering if anyone can help me. i have a couple of > unrelated > > questions:> > 1. our gp was good enough to prescribe flagyl for Tom's clostridia. > we > > were a bit overenthusiastic and ordered it three weeks before he > > needed it. then my mum (a nurse) pointed out that it probably has a > > shelf life. does anyone know if this is true?> > 2. secondly, he didn't seem to have a clue about the dosage - the > > paediatric dosage wasn't written in his book and there was a > student > > in the room and he was nervous, he kept changing his mind and > getting > > lower and lower, so now we are worried that the dose is too low. > any > > ideas?> > 3. completely different question - we had a meeting with the LEA > > yesterday - we are between Tom's draft and final statement. the LEA > > said they couldn't support ABA until they had some British evidence > > from a British university. when i asked why, the answer was that we > > are British! i know it's only an excuse on their part, but does > anyone > > know of any British university evidence for ABA?> > thanks, SARA> >> > > > > > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 > > > > Hi there > > > > This is only in my humble opinion, but we have just received > > settlement without going to tribunal covering all our ABA costs > ++. > > > > We did not have any research as proof of ABA working- although > the > > latest Sallows report would have been included, had we gone to > > tribunal .We did however have bomb-proof reports from independent > > experts specifying in the minutest detail what was required in > terms > > of our ABA programme and other treatments. We then submitted > these > > with our parental evidence (stressing they came from independent > > experts), lifted the relevant sentences from their reports and > > demanded they be included in the Statement. Can't say if it won > the > > LEA over but it certainly didn't do any harm! > > > > Rhona > > > > > > > > > > hi, i'm wondering if anyone can help me. i have a couple of > > unrelated > > > questions: > > > 1. our gp was good enough to prescribe flagyl for Tom's > clostridia. > > we > > > were a bit overenthusiastic and ordered it three weeks before > he > > > needed it. then my mum (a nurse) pointed out that it probably > has a > > > shelf life. does anyone know if this is true? > > > 2. secondly, he didn't seem to have a clue about the dosage - > the > > > paediatric dosage wasn't written in his book and there was a > > student > > > in the room and he was nervous, he kept changing his mind and > > getting > > > lower and lower, so now we are worried that the dose is too > low. > > any > > > ideas? > > > 3. completely different question - we had a meeting with the > LEA > > > yesterday - we are between Tom's draft and final statement. the > LEA > > > said they couldn't support ABA until they had some British > evidence > > > from a British university. when i asked why, the answer was > that we > > > are British! i know it's only an excuse on their part, but does > > anyone > > > know of any British university evidence for ABA? > > > thanks, SARA > > > > > > > > > > > > > > > > > DISCLAIMER > > No information contained in this post is to be construed as > medical advice. If you need medical advice, please seek it from a > suitably qualified practitioner. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 --- margerat as a working class familie neither can i afford aba. however i am running aba for 2 children. im running up my loans and the lea are just waiting for me to collapse and i would have if aba hadnt work. my eldest get6 hrs of aba and my second 10 - 18 hrs. i havent got proper staff . always tend to leave me in the lurch. but i still pick my self up. as for solictor ipsea can help and other repersentive also can. however taking them to a tribunal is not eay all i say to mysef is all the least they can say is no.... and at least i tried. then giving up straight away. as for my tip work harder on the biomedical side since this very effective compare to getting the same result as lovaas. nasreen > > > > > > > Hi there > > > > > > This is only in my humble opinion, but we have just received > > > settlement without going to tribunal covering all our ABA > costs > > ++. > > > > > > We did not have any research as proof of ABA working- > although > > the > > > latest Sallows report would have been included, had we gone > to > > > tribunal .We did however have bomb-proof reports from > independent > > > experts specifying in the minutest detail what was required > in > > terms > > > of our ABA programme and other treatments. We then submitted > > these > > > with our parental evidence (stressing they came from > independent > > > experts), lifted the relevant sentences from their reports > and > > > demanded they be included in the Statement. Can't say if it > won > > the > > > LEA over but it certainly didn't do any harm! > > > > > > Rhona > > > > > > > > > > > > > > hi, i'm wondering if anyone can help me. i have a couple of > > > unrelated > > > > questions: > > > > 1. our gp was good enough to prescribe flagyl for Tom's > > clostridia. > > > we > > > > were a bit overenthusiastic and ordered it three weeks > before > > he > > > > needed it. then my mum (a nurse) pointed out that it > probably > > has a > > > > shelf life. does anyone know if this is true? > > > > 2. secondly, he didn't seem to have a clue about the > dosage - > > the > > > > paediatric dosage wasn't written in his book and there was > a > > > student > > > > in the room and he was nervous, he kept changing his mind > and > > > getting > > > > lower and lower, so now we are worried that the dose is too > > low. > > > any > > > > ideas? > > > > 3. completely different question - we had a meeting with > the > > LEA > > > > yesterday - we are between Tom's draft and final statement. > the > > LEA > > > > said they couldn't support ABA until they had some British > > evidence > > > > from a British university. when i asked why, the answer was > > that we > > > > are British! i know it's only an excuse on their part, but > does > > > anyone > > > > know of any British university evidence for ABA? > > > > thanks, SARA > > > > > > > > > > > > > > > > > > > > > > > > > DISCLAIMER > > > No information contained in this post is to be construed as > > medical advice. If you need medical advice, please seek it from a > > suitably qualified practitioner. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Sorry, Rhona, I got the dates wrong - the figures were all at 2003, not 1993! Margaret Re: flagyl and ABA evidence I would not dismiss ABA as a possibility. PEACH are talking in broad terms and how much of the 1993 UK wide info is valid for Cambs 13 yrs later? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.