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Re: Priorix - anyone else have this particular MMR

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Big, big hugs to you Steph.

Zoe x

>

> Hi

>

> Feel pretty weary writing this. Having followed the most recent

> Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws

> particular attention to Priorix by GSK. I've just been told by

> another respected source that the most problems seem to be with

one

> particular brand of MMR by GSK. And that there's a specific study

> going on into it.

>

> Of course, I then check my list provided by my helpful ex GP and

Tom

> had Priorix. We've been barking very much up the thimerosal only

> route - now we probably will need those checks for measles titer

> etc. Can I just ask - did anyone else have Priorix for MMR and

did

> they have specific Wakefield type investigations? And how are your

> kids?

>

> Every single investigation we've done into Tom has come up

positive

> (i.e. negative!). And today our new GP surgery wants to charge us

> £10 to sign a letter saying we've notified them that Tom is having

> HBOT. This after we've spent about £43,000 on treating Tom for

> autism that he might well not have if a well meaning GP hadn't

> injected him with mercury etc. Give me strength!

>

> Sx

>

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Hi Steph

Yes Andy Wakefield talked about this at the lecture I went to in

November. I felt I didn't want to know which one Joe had but I think

its that one as whatever recovery he makes is very slow. I have

phoned the health visitor today to find out. I guess its better to

know really.

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Hi Steph I watched the first three presentation last night and it was most worrying - but a great presentation by Wakefield. I'm not convinced is a measles kid, but I'm sure a subset have been tipped over the edge by the MMR, and sadly they seem to have the most severe symptoms. We had 's measles titer checked and it was normal - chicken pox and polio were the high ones. I am going to check the brand of MMR we had - thanks for posting this. Tina Sirr <mark.grabiec@...> wrote: Hi Feel pretty weary writing this. Having followed the most recent Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws particular attention to Priorix by GSK. I've just been told by another respected source that the most

problems seem to be with one particular brand of MMR by GSK. And that there's a specific study going on into it.Of course, I then check my list provided by my helpful ex GP and Tom had Priorix. We've been barking very much up the thimerosal only route - now we probably will need those checks for measles titer etc. Can I just ask - did anyone else have Priorix for MMR and did they have specific Wakefield type investigations? And how are your kids? Every single investigation we've done into Tom has come up positive (i.e. negative!). And today our new GP surgery wants to charge us £10 to sign a letter saying we've notified them that Tom is having HBOT. This after we've spent about £43,000 on treating Tom for autism that he might well not have if a well meaning GP hadn't injected him with mercury etc. Give me strength!Sx

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How do you get measles titers checked? Like you ( rather, see

parents no longer exist) Tom had no particular reaction to MMR,

we've always dismissed it. But I'd like to be sure that the

cumulative effect of the whole shebang doens't feature measles

anywhere. I'm sure Tom doesn't have a terribly ulcerated intestine

or Crohns but he does have parasites and odd allergic reactions in

his gut and yeast and given that twelve months ago we had simply no

idea how all this would help him (ie. resolution of) I have to

really remind myself to keep an open mind on everything. It's last

January that I discovered biomedical via an article by a woman

called Doreen in the US. She didn't even know the journalist had

included her email address. It's all so arbitrary and as yet, for

us, so undirected by the NHS that I just never feel we can discount

anything at all. Which gets bloody expensive as well as worrying.

Good consult with Dr H today - totally gut related - Tom has blasto

hominis whatsit. Apparently you mostly catch it from poo. He's

lucky he's good looking (Tom!) that's all I can say.

Steph xx

> Hi

>

> Feel pretty weary writing this. Having followed the most recent

> Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws

> particular attention to Priorix by GSK. I've just been told by

> another respected source that the most problems seem to be with

one

> particular brand of MMR by GSK. And that there's a specific study

> going on into it.

>

> Of course, I then check my list provided by my helpful ex GP and

Tom

> had Priorix. We've been barking very much up the thimerosal only

> route - now we probably will need those checks for measles titer

> etc. Can I just ask - did anyone else have Priorix for MMR and did

> they have specific Wakefield type investigations? And how are your

> kids?

>

> Every single investigation we've done into Tom has come up

positive

> (i.e. negative!). And today our new GP surgery wants to charge us

> £10 to sign a letter saying we've notified them that Tom is having

> HBOT. This after we've spent about £43,000 on treating Tom for

> autism that he might well not have if a well meaning GP hadn't

> injected him with mercury etc. Give me strength!

>

> Sx

>

>

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

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Thanks Zoe. Feel like my children are hung round my neck whilst I

stagger about with a bell shouting " unclean " . Well that's a slight

exaggeration but you get the drift. Thanks for the sympathy.

> >

> > Hi

> >

> > Feel pretty weary writing this. Having followed the most recent

> > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws

> > particular attention to Priorix by GSK. I've just been told by

> > another respected source that the most problems seem to be with

> one

> > particular brand of MMR by GSK. And that there's a specific

study

> > going on into it.

> >

> > Of course, I then check my list provided by my helpful ex GP and

> Tom

> > had Priorix. We've been barking very much up the thimerosal

only

> > route - now we probably will need those checks for measles titer

> > etc. Can I just ask - did anyone else have Priorix for MMR and

> did

> > they have specific Wakefield type investigations? And how are

your

> > kids?

> >

> > Every single investigation we've done into Tom has come up

> positive

> > (i.e. negative!). And today our new GP surgery wants to charge

us

> > £10 to sign a letter saying we've notified them that Tom is

having

> > HBOT. This after we've spent about £43,000 on treating Tom for

> > autism that he might well not have if a well meaning GP hadn't

> > injected him with mercury etc. Give me strength!

> >

> > Sx

> >

>

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Hi Steph We had the tests done at The Doctors Laboratory in London. We had Rubella, Epstein-Barr, Cytomegalovirus (whatever that is!), Varicella, polio types 1 to 3, Tetanus and measles done - extension to the mortgage time! They are all blood tests. had his MMR at 15 months and he regressed somewhere between 18 and 22 months. He developed asthma at about the same time so his body was clearly in a bad way - but he has never had very obvious signs of bowel problems. Maybe his body did cope OK with the MMR but it left his immune system buggered - very technical language! Tina Sirr <mark.grabiec@...> wrote: How do you get measles titers checked? Like you ( rather, see parents

no longer exist) Tom had no particular reaction to MMR, we've always dismissed it. But I'd like to be sure that the cumulative effect of the whole shebang doens't feature measles anywhere. I'm sure Tom doesn't have a terribly ulcerated intestine or Crohns but he does have parasites and odd allergic reactions in his gut and yeast and given that twelve months ago we had simply no idea how all this would help him (ie. resolution of) I have to really remind myself to keep an open mind on everything. It's last January that I discovered biomedical via an article by a woman called Doreen in the US. She didn't even know the journalist had included her email address. It's all so arbitrary and as yet, for us, so undirected by the NHS that I just never feel we can discount anything at all. Which gets bloody expensive as well as worrying.Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you

mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Steph xx> Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix

by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it.> > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP

hadn't > injected him with mercury etc. Give me strength!> > Sx> > > > > > > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> >

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Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Hi Steph,

has still got blasto hominis after treating it with paromamycin several months ago. Looks like we will need to blast it again with something else. What advice did Dr H give for Tom I will be speaking to him again next week.

Jane

Re: Priorix - anyone else have this particular MMR

How do you get measles titers checked? Like you ( rather, see parents no longer exist) Tom had no particular reaction to MMR, we've always dismissed it. But I'd like to be sure that the cumulative effect of the whole shebang doens't feature measles anywhere. I'm sure Tom doesn't have a terribly ulcerated intestine or Crohns but he does have parasites and odd allergic reactions in his gut and yeast and given that twelve months ago we had simply no idea how all this would help him (ie. resolution of) I have to really remind myself to keep an open mind on everything. It's last January that I discovered biomedical via an article by a woman called Doreen in the US. She didn't even know the journalist had included her email address. It's all so arbitrary and as yet, for us, so undirected by the NHS that I just never feel we can discount anything at all. Which gets bloody expensive as well as worrying.Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Steph xx> Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it.> > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP hadn't > injected him with mercury etc. Give me strength!> > Sx> > > > > > > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> >

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my son, Tom, 4 yo, had the priorix at the age of 16 month, from this

day he regressed to autism.

Liora

>

> Sirr <mark.grabiec@n...> wrote:

> Hi

>

> Feel pretty weary writing this. Having followed the most recent

> Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws

> particular attention to Priorix by GSK. I've just been told by

> another respected source that the most problems seem to be with

one

> particular brand of MMR by GSK. And that there's a specific study

> going on into it.

>

> Of course, I then check my list provided by my helpful ex GP and

Tom

> had Priorix. We've been barking very much up the thimerosal only

> route - now we probably will need those checks for measles titer

> etc. Can I just ask - did anyone else have Priorix for MMR and did

> they have specific Wakefield type investigations? And how are your

> kids?

>

> Every single investigation we've done into Tom has come up

positive

> (i.e. negative!). And today our new GP surgery wants to charge us

> £10 to sign a letter saying we've notified them that Tom is having

> HBOT. This after we've spent about £43,000 on treating Tom for

> autism that he might well not have if a well meaning GP hadn't

> injected him with mercury etc. Give me strength!

>

> Sx

>

>

>

>

>

>

>

> DISCLAIMER

> No information contained in this post is to be construed as

medical advice. If you need medical advice, please seek it from a

suitably qualified practitioner.

>

>

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  • 3 weeks later...

Well I heard back from our Dr today and as suspected, Joe had priorix.

Now that I have this information I don't know what to do with it -

Steph have you done anything about this, did you discuss it with Dr

Heard?

Could explain why any improvements Joe makes are little ones and his

gut is stil not right after 4 years of diet, supps etc. Should I look

to have him scoped now? Any ideas?

Whilst posting, we are today starting step 2 of Rob Nijssen's

protocol. Step 1 was probiotics. Step 2 is digestion. Don't know

whether it is the threewells stuff or the fact that we stopped all his

other supps (Dr Trossel gave me wrong advice on this, Rob rang me to

say it is not ok to carry on with other supps) but Joe is sleeping

through until 7 most mornings and is dry every night. This is a good

enough reason to carry on with the protocol!

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