Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Big, big hugs to you Steph. Zoe x > > Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it. > > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP hadn't > injected him with mercury etc. Give me strength! > > Sx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Hi Steph Yes Andy Wakefield talked about this at the lecture I went to in November. I felt I didn't want to know which one Joe had but I think its that one as whatever recovery he makes is very slow. I have phoned the health visitor today to find out. I guess its better to know really. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Hi Steph I watched the first three presentation last night and it was most worrying - but a great presentation by Wakefield. I'm not convinced is a measles kid, but I'm sure a subset have been tipped over the edge by the MMR, and sadly they seem to have the most severe symptoms. We had 's measles titer checked and it was normal - chicken pox and polio were the high ones. I am going to check the brand of MMR we had - thanks for posting this. Tina Sirr <mark.grabiec@...> wrote: Hi Feel pretty weary writing this. Having followed the most recent Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws particular attention to Priorix by GSK. I've just been told by another respected source that the most problems seem to be with one particular brand of MMR by GSK. And that there's a specific study going on into it.Of course, I then check my list provided by my helpful ex GP and Tom had Priorix. We've been barking very much up the thimerosal only route - now we probably will need those checks for measles titer etc. Can I just ask - did anyone else have Priorix for MMR and did they have specific Wakefield type investigations? And how are your kids? Every single investigation we've done into Tom has come up positive (i.e. negative!). And today our new GP surgery wants to charge us £10 to sign a letter saying we've notified them that Tom is having HBOT. This after we've spent about £43,000 on treating Tom for autism that he might well not have if a well meaning GP hadn't injected him with mercury etc. Give me strength!Sx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 How do you get measles titers checked? Like you ( rather, see parents no longer exist) Tom had no particular reaction to MMR, we've always dismissed it. But I'd like to be sure that the cumulative effect of the whole shebang doens't feature measles anywhere. I'm sure Tom doesn't have a terribly ulcerated intestine or Crohns but he does have parasites and odd allergic reactions in his gut and yeast and given that twelve months ago we had simply no idea how all this would help him (ie. resolution of) I have to really remind myself to keep an open mind on everything. It's last January that I discovered biomedical via an article by a woman called Doreen in the US. She didn't even know the journalist had included her email address. It's all so arbitrary and as yet, for us, so undirected by the NHS that I just never feel we can discount anything at all. Which gets bloody expensive as well as worrying. Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Steph xx > Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it. > > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP hadn't > injected him with mercury etc. Give me strength! > > Sx > > > > > > > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 Thanks Zoe. Feel like my children are hung round my neck whilst I stagger about with a bell shouting " unclean " . Well that's a slight exaggeration but you get the drift. Thanks for the sympathy. > > > > Hi > > > > Feel pretty weary writing this. Having followed the most recent > > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > > particular attention to Priorix by GSK. I've just been told by > > another respected source that the most problems seem to be with > one > > particular brand of MMR by GSK. And that there's a specific study > > going on into it. > > > > Of course, I then check my list provided by my helpful ex GP and > Tom > > had Priorix. We've been barking very much up the thimerosal only > > route - now we probably will need those checks for measles titer > > etc. Can I just ask - did anyone else have Priorix for MMR and > did > > they have specific Wakefield type investigations? And how are your > > kids? > > > > Every single investigation we've done into Tom has come up > positive > > (i.e. negative!). And today our new GP surgery wants to charge us > > £10 to sign a letter saying we've notified them that Tom is having > > HBOT. This after we've spent about £43,000 on treating Tom for > > autism that he might well not have if a well meaning GP hadn't > > injected him with mercury etc. Give me strength! > > > > Sx > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Hi Steph We had the tests done at The Doctors Laboratory in London. We had Rubella, Epstein-Barr, Cytomegalovirus (whatever that is!), Varicella, polio types 1 to 3, Tetanus and measles done - extension to the mortgage time! They are all blood tests. had his MMR at 15 months and he regressed somewhere between 18 and 22 months. He developed asthma at about the same time so his body was clearly in a bad way - but he has never had very obvious signs of bowel problems. Maybe his body did cope OK with the MMR but it left his immune system buggered - very technical language! Tina Sirr <mark.grabiec@...> wrote: How do you get measles titers checked? Like you ( rather, see parents no longer exist) Tom had no particular reaction to MMR, we've always dismissed it. But I'd like to be sure that the cumulative effect of the whole shebang doens't feature measles anywhere. I'm sure Tom doesn't have a terribly ulcerated intestine or Crohns but he does have parasites and odd allergic reactions in his gut and yeast and given that twelve months ago we had simply no idea how all this would help him (ie. resolution of) I have to really remind myself to keep an open mind on everything. It's last January that I discovered biomedical via an article by a woman called Doreen in the US. She didn't even know the journalist had included her email address. It's all so arbitrary and as yet, for us, so undirected by the NHS that I just never feel we can discount anything at all. Which gets bloody expensive as well as worrying.Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Steph xx> Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it.> > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP hadn't > injected him with mercury etc. Give me strength!> > Sx> > > > > > > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Hi Steph, has still got blasto hominis after treating it with paromamycin several months ago. Looks like we will need to blast it again with something else. What advice did Dr H give for Tom I will be speaking to him again next week. Jane Re: Priorix - anyone else have this particular MMR How do you get measles titers checked? Like you ( rather, see parents no longer exist) Tom had no particular reaction to MMR, we've always dismissed it. But I'd like to be sure that the cumulative effect of the whole shebang doens't feature measles anywhere. I'm sure Tom doesn't have a terribly ulcerated intestine or Crohns but he does have parasites and odd allergic reactions in his gut and yeast and given that twelve months ago we had simply no idea how all this would help him (ie. resolution of) I have to really remind myself to keep an open mind on everything. It's last January that I discovered biomedical via an article by a woman called Doreen in the US. She didn't even know the journalist had included her email address. It's all so arbitrary and as yet, for us, so undirected by the NHS that I just never feel we can discount anything at all. Which gets bloody expensive as well as worrying.Good consult with Dr H today - totally gut related - Tom has blasto hominis whatsit. Apparently you mostly catch it from poo. He's lucky he's good looking (Tom!) that's all I can say. Steph xx> Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it.> > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP hadn't > injected him with mercury etc. Give me strength!> > Sx> > > > > > > > DISCLAIMER> No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 my son, Tom, 4 yo, had the priorix at the age of 16 month, from this day he regressed to autism. Liora > > Sirr <mark.grabiec@n...> wrote: > Hi > > Feel pretty weary writing this. Having followed the most recent > Wakefield vids http://www.chem.cmu.edu/wakefield/ he draws > particular attention to Priorix by GSK. I've just been told by > another respected source that the most problems seem to be with one > particular brand of MMR by GSK. And that there's a specific study > going on into it. > > Of course, I then check my list provided by my helpful ex GP and Tom > had Priorix. We've been barking very much up the thimerosal only > route - now we probably will need those checks for measles titer > etc. Can I just ask - did anyone else have Priorix for MMR and did > they have specific Wakefield type investigations? And how are your > kids? > > Every single investigation we've done into Tom has come up positive > (i.e. negative!). And today our new GP surgery wants to charge us > £10 to sign a letter saying we've notified them that Tom is having > HBOT. This after we've spent about £43,000 on treating Tom for > autism that he might well not have if a well meaning GP hadn't > injected him with mercury etc. Give me strength! > > Sx > > > > > > > > DISCLAIMER > No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Well I heard back from our Dr today and as suspected, Joe had priorix. Now that I have this information I don't know what to do with it - Steph have you done anything about this, did you discuss it with Dr Heard? Could explain why any improvements Joe makes are little ones and his gut is stil not right after 4 years of diet, supps etc. Should I look to have him scoped now? Any ideas? Whilst posting, we are today starting step 2 of Rob Nijssen's protocol. Step 1 was probiotics. Step 2 is digestion. Don't know whether it is the threewells stuff or the fact that we stopped all his other supps (Dr Trossel gave me wrong advice on this, Rob rang me to say it is not ok to carry on with other supps) but Joe is sleeping through until 7 most mornings and is dry every night. This is a good enough reason to carry on with the protocol! Quote Link to comment Share on other sites More sharing options...
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