Re: Breakspear say no to providing MB12 nasal spray

[Guest guest]

In a message dated 07/02/2006 15:34:03 GMT Standard Time, zoe@... writes:

Rang them today to ask if they were considering making nasal sprayavailable to their patients. Mark in pharmacy had a word with DrHeard, who has said that unless the DAN! docs give it the green lightand verify it as part of the biomed protocol, Bspear will continueusing shots.

>>>I think he is being very careful to keep to the DAn protocol for insurnace purposes so will be later than US Dr's doing new stuff. Not that LDN is on there yet I don;t think. Maybe after AI and DAN! conference = bound to mention it there

Mandi x

[Guest guest]

Hi Zoe, according to people on the MB12

spray list, Dr Usman is using the MB12 spray so perhaps it is just a

matter of time. I am also interesting in trying this after reading good

reports. on has been on the MB12

injections since last summer, with everything hard to say what the improvement

has been but we continue nevertheless. As the nasal spray would be less

invasive I am all for giving it a go.

I speak with Dr H in a couple of weeks so

will ask again, nothing like pester power!

Sally

[Guest guest]

DrN is currently running a shot versus spray comparison trial. Don't

know how long it is going to take before he anounces any results.

Natasa

>

> Hi Zoe, according to people on the MB12 spray list, Dr Usman is

using

> the MB12 spray so perhaps it is just a matter of time. I am also

> interesting in trying this after reading good reports. on has

been on

> the MB12 injections since last summer, with everything hard to say

what the

> improvement has been but we continue nevertheless. As the nasal spray

would

> be less invasive I am all for giving it a go.

>

>

>

> I speak with Dr H in a couple of weeks so will ask again, nothing like

> pester power!

>

>

>

> Sally

>

[Guest guest]

We spoke to DrH three weeks ago and he ok'd LDN. Mark is supposed to

send us some this week with a new mb12 batch. Will we be the first here

to try this?

Natasa

>

>

> In a message dated 07/02/2006 15:34:03 GMT Standard Time, zoe@...

> writes:

>

> Rang them today to ask if they were considering making nasal spray

> available to their patients. Mark in pharmacy had a word with Dr

> Heard, who has said that unless the DAN! docs give it the green light

> and verify it as part of the biomed protocol, Bspear will continue

> using shots.

>

>

>

> >>>I think he is being very careful to keep to the DAn protocol for

> insurnace purposes so will be later than US Dr's doing new stuff. Not

that LDN is on

> there yet I don;t think. Maybe after AI and DAN! conference = bound to

> mention it there

>

> Mandi x

>

[Guest guest]

Afraid not. Dr H gave Tom LDN last Thursday and we have been using a

week. No great wows as yet - Tom has a cold.(Am still looking for

my wow! with Tom)

I also asked Dr H about MB12 nasal spray, his reply to me was that

the spray was not yet tried and tested. When it was he would provide

until then he was waiting and watching with interest.

Gail

> >

> >

> > In a message dated 07/02/2006 15:34:03 GMT Standard Time, zoe@

> > writes:

> >

> > Rang them today to ask if they were considering making nasal

spray

> > available to their patients. Mark in pharmacy had a word with

Dr

> > Heard, who has said that unless the DAN! docs give it the green

light

> > and verify it as part of the biomed protocol, Bspear will

continue

> > using shots.

> >

> >

> >

> > >>>I think he is being very careful to keep to the DAn protocol

for

> > insurnace purposes so will be later than US Dr's doing new

stuff. Not

> that LDN is on

> > there yet I don;t think. Maybe after AI and DAN! conference =

bound to

> > mention it there

> >

> > Mandi x

> >

>

[Guest guest]

I heard later on this evening that it was Jill who is running

the trial of shots vs spray and that she is using Dr N's protocol

for the shots. Apparently this trial has only just been approved so

I guess it may be a while before it reports.

Some of us from TA will be meeting with Steve Edelson from ARI soon

so maybe we can ask him for more info.

Zoe x

> >

> > Hi Zoe, according to people on the MB12 spray list, Dr

Usman is

> using

> > the MB12 spray so perhaps it is just a matter of time. I am also

> > interesting in trying this after reading good reports. on

has

> been on

> > the MB12 injections since last summer, with everything hard to

say

> what the

> > improvement has been but we continue nevertheless. As the nasal

spray

> would

> > be less invasive I am all for giving it a go.

> >

> >

> >

> > I speak with Dr H in a couple of weeks so will ask again,

nothing like

> > pester power!

> >

> >

> >

> > Sally

> >

>

[Guest guest]

We did LDN without any particular wows or particular problems. Our

greatest problem was givin it when he was deeply asleep - as he's an

insomniac and we often go to sleep when he's still awake.

We were giving one line of LDN and it completely zapped his

appetite. TOm is a skinny little thing, only 3 stone at 7 years old,

so this was a disaster. He just didn't need to eat. So we lowered

it to a blob and appetite came back. Used for about six weeks - he

was fine, possibly calmer after a few nights sleeplessness and early

waking but no sustained or clear gains. Watch out for the appetite

thing. It's cheap, it's really working for some parents and I can

understand the logic but I don't think it did much for Tom. There's

an LDN group that Dr McCandless uses if you're interested.

Steph

> >

> >

> > In a message dated 07/02/2006 15:34:03 GMT Standard Time, zoe@

> > writes:

> >

> > Rang them today to ask if they were considering making nasal

spray

> > available to their patients. Mark in pharmacy had a word with

Dr

> > Heard, who has said that unless the DAN! docs give it the green

light

> > and verify it as part of the biomed protocol, Bspear will

continue

> > using shots.

> >

> >

> >

> > >>>I think he is being very careful to keep to the DAn protocol

for

> > insurnace purposes so will be later than US Dr's doing new

stuff. Not

> that LDN is on

> > there yet I don;t think. Maybe after AI and DAN! conference =

bound to

> > mention it there

> >

> > Mandi x

> >

>

[Guest guest]

Steph, I wouldn't completely give up on it yet - quite a few families

that reported no gains go back to it at a later stage and see a

different reaction... it probably depends on lots of things going on in

the body at a particular time so if you follow an unsuccessful round of

LDN with another biomed treatment or new supplements/diets etc.... then

you go back to another LDN trial you might be surprised next time

around...

Natasa

> > >

> > >

> > > In a message dated 07/02/2006 15:34:03 GMT Standard Time, zoe@

> > > writes:

> > >

> > > Rang them today to ask if they were considering making nasal

> spray

> > > available to their patients. Mark in pharmacy had a word with

> Dr

> > > Heard, who has said that unless the DAN! docs give it the green

> light

> > > and verify it as part of the biomed protocol, Bspear will

> continue

> > > using shots.

> > >

> > >

> > >

> > > >>>I think he is being very careful to keep to the DAn protocol

> for

> > > insurnace purposes so will be later than US Dr's doing new

> stuff. Not

> > that LDN is on

> > > there yet I don;t think. Maybe after AI and DAN! conference =

> bound to

> > > mention it there

> > >

> > > Mandi x

> > >

> >

>

[Guest guest]

A friend of mine who is under Dr N is doing a shot/spray combo -daly

spray; shot every 3 days.

Anne-Marie

> > >

> > > Hi Zoe, according to people on the MB12 spray list, Dr

> Usman is

> > using

> > > the MB12 spray so perhaps it is just a matter of time. I am

also

> > > interesting in trying this after reading good reports.

on

> has

> > been on

> > > the MB12 injections since last summer, with everything hard to

> say

> > what the

> > > improvement has been but we continue nevertheless. As the

nasal

> spray

> > would

> > > be less invasive I am all for giving it a go.

> > >

> > >

> > >

> > > I speak with Dr H in a couple of weeks so will ask again,

> nothing like

> > > pester power!

> > >

> > >

> > >

> > > Sally

> > >

> >

>

[Guest guest]

absolutely!

> > > >

> > > >

> > > > In a message dated 07/02/2006 15:34:03 GMT Standard Time,

zoe@

> > > > writes:

> > > >

> > > > Rang them today to ask if they were considering making nasal

> > spray

> > > > available to their patients. Mark in pharmacy had a word with

> > Dr

> > > > Heard, who has said that unless the DAN! docs give it the

green

> > light

> > > > and verify it as part of the biomed protocol, Bspear will

> > continue

> > > > using shots.

> > > >

> > > >

> > > >

> > > > >>>I think he is being very careful to keep to the DAn

protocol

> > for

> > > > insurnace purposes so will be later than US Dr's doing new

> > stuff. Not

> > > that LDN is on

> > > > there yet I don;t think. Maybe after AI and DAN! conference =

> > bound to

> > > > mention it there

> > > >

> > > > Mandi x

> > > >

> > >

> >

>