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I too have PA and I am on MTX and Remicade.. the mtx

has cleared my psoriasis 90%...The PA is in FULL rage

right now. in fact i just got home from doc because my

back is killing me and he gave me a good massage mobic

and some anti infammatory shot and said go home and go

to bed. so i was checking my emails. good luck and if

you need to chat add me to your friends list

swtthing12201999 Donna

--- tljohnson@... wrote:

> Hi everyone,

>

>

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Welcome ,

Do not feel affraid to ask or say anything here. We

are all here with the same purpose.. To deal or cope

with this thing we all have.

You will find that everyone here acts differently to

certian drugs, but one thing you will find here, is

that we all care, and we all hurt!!!

Welcome again,

in Atlanta, GA

__________________________________________________

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In a message dated 2/6/2003 1:16:20 PM Eastern Standard Time,

tljohnson@... writes:

> I'm having a

> LOT of trouble adapting to the drug -- I get

> terrible dizziness at my full dose, so we've been

> playing around with dosages a little, skipping weeks

> here and there, etc. I see him again next week and

> wonder if he might take me off it and try something

> else,

HI ,

I don't take methotrexate but I known that some of the people on the board

do and the people who had trouble with the pills are injecting it with no

side effects. I hope this helps. I have been waiting for Embrel to come for

10 days and called my drug plan today. They had no record of receiving the

prescription and I mailed it personally. I had to have my rheumy call then

and now I will have to wait all over again. (about 2 weeks) Keep in touch

Janet

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It's nice to meet you .

It sounds like you're frustrated and saddened by the PA. I can

understand that.

I have a way of dealing with my PA that has worked for me. Perhaps

some thought or idea will help you.

I was first diagnosed 10 years ago. I was really surprised, almost

stunned. I have been a healthy person all my life and fairly

active. At the time, I was rapidly going down hill. I couldn't hold

a pen. Walking was painful. I didn't know what to expect. How

would the disease progress? How would it affect my life?

I like to learn and drill into the meat of things until I understand

what I can do. I believe in constant improvement. Improvement

refers not only to my condition, but also in my understanding.

Becoming educated helps me advocate for myself and be an active

participant in my own treatment. This in turn improves my feeling of

control. I also strongly believe my personal situation has improved

as a result of my advocating for myself. At least three times, my

rheumy told me something about a change in my condition. He (or she)

explained it, but didn't change anything. I explained how this was

affecting my live, my level of activity and therefore my overall

health. I was able to ask questions and advocate for specific

treatment changes. Each of these changes was important and got me

back to being active, improved my health or reduced my symptoms.

Fortunately my P is not visible to others. Through trial, error and

tenacity, I have learned what best deals with my P. Through meds and

exercise, I have improved the therapeutic results concerning the PA.

I do not feel particularly limited. I continue to be active (I'm

going skiing tomorrow). Nor do I feel I am must suffer degradation

of my condition.

My PA is not me and my life goes on. What I have to do just became a

part of my daily routine.

I fee lucky to be alive today and not when my grandmother had

arthritis back in the 1960's. Who even know about PA vs. any other

type of arthritis, much less anything about different treatments?

In short, I maintain perspective, remain actively in control and go

on.

P.S. – I don't mean to diminish the issues that some of you have to

deal with. It's just not me nor is it what most PA suffers have to

deal with. I would not want to leave the impression with some new to

PA that everyone's level of problem will become similarly difficult.

Most don't.

> Hi everyone,

>

> I've been lurking on the list for about a week now

> and have had the odd question or comment, but didn't

> want to start sticking my two cents in until I'd

> introduced myself.

>

> I'm pretty new to PA, just diagnosed in October last

> year. My symptoms began in Dec. 2001, with pain and

> swelling in one toe. Last summer the arthritis began

> to spread really quickly, into other toes, then into

> several fingers, one wrist, one shoulder, one elbow,

> my neck, and both knees.

>

> In November, when my knees became involved, my

> rheumatologist put me on methotrexate. I'm having a

> LOT of trouble adapting to the drug -- I get

> terrible dizziness at my full dose, so we've been

> playing around with dosages a little, skipping weeks

> here and there, etc. I see him again next week and

> wonder if he might take me off it and try something

> else, because of these problems. But the MTX also

> has helped me a fair bit already, even at the lower

> doses. In December I was hardly able to walk and now

> the MTX has me walking well and relatively pain-free.

>

> I'm seeing an occupational therapist and a

> physiotherapist regularly for my fingers in

> particular, but sometimes I wonder if it's even

> helping. It doesn't feel like it most of the time.

>

> I'm 32, a web designer/technical writer, and single.

> I get pretty depressed sometimes about the disease,

> because it is so new to me and I'm still adjusting

> to the idea that I'm so young and have a lifetime of

> this ahead of me. And -- in reference to the

> discussion last week about relationships -- I

> confess I get depressed about whether anyone will

> " want " me when I'm such a physical mess. So right

> now the depression and also the fatigue seem as hard

> for me to deal with as the disease itself. But my

> outlook has improved since the MTX started to kick

> in: at least I feel hope that the medication can

> really help me control this disease.

>

> Anyway, there's my story... Sorry to ramble on so

> long, but I just wanted to introduce myself so I

> could join in the discussions. :-) I lurk on the

> alt.support.arthritis newsgroup but there are so

> many people there with so many different forms of

> arthritis that I tend to stay pretty quiet there.

> This group seems very informative and friendly, and

> with the focus on my particular form of arthritis I

> find it a lot more useful! I'm glad you all are

> here! :-)

>

>

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Donna,

How long have you been on MTX? I have been on it for three weeks and still have

a ton of psoriasis.

Robin, Penny, Chance, Heidi, and Hope (Florida)

http://www.geocities.com/goldens4life2000/index.html

I too have PA and I am on MTX and Remicade.. the mtx

has cleared my psoriasis 90%...The PA is in FULL rage

right now. in fact i just got home from doc because my

back is killing me and he gave me a good massage mobic

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Thanks for the warm welcome, everybody!

At 05:00 PM 2/6/03 -0500, Orin wrote:

>What form of MTX and dosage are you using now?

I'm only at 7.5mg right now, taken orally. I was at 12.5 but that's when

the dizziness got so bad. 7.5 seems semi-manageable, although I still feel

dizzy on it. I was wondering about the injections instead... I will have to

ask my rheumatologist about that.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Visit my personal web site at

http://members.shaw.ca/tljohnson/

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Fred, thank you so much for the welcome and the understanding you expressed

about my frustrations with PA. I guess the problem is that it's still so

new to me, and I tend to be a depressive personality sometimes, anyway. Not

a good combination! But I am definitely becoming more proactive about my

treatment and care, as you suggested.

Right now I'm taking an arthritis self-management class, and I do a lot of

reading on arthritis and have a laundry list of things to ask my

rheumatologist at my next appointment. I feel like more information can

only be a good thing, and if the information helps me to keep the disease

under control better, that's a plus. If not, well, perhaps if I feel like

I'm taking control by being proactive then it will help me not to feel as

frustrated or depressed. I hope!

Enjoy your skiing tomorrow! I'm so excited to hear of people with PA who

continue to do such active things... it helps to give me hope too. I'm

nowhere near skiing condition right now, but one of these days, who knows? :-)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Visit my personal web site at

http://members.shaw.ca/tljohnson/

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I really did enjoy skiing yesterday. The conditions were really

terrific. I skied from 11 AM until 4 PM and then went snow tubing

from an hour at 6:30. The really good thing is that I'm not sore at

all (well maybe a little, but only a little). If I could have gone

today, I would have.

I'm glad to hear that you are educating yourself about PA. You will

be a more effective advocate.

Good luck.

> Fred, thank you so much for the welcome and the understanding you

expressed

> about my frustrations with PA. I guess the problem is that it's

still so

> new to me, and I tend to be a depressive personality sometimes,

anyway. Not

> a good combination! But I am definitely becoming more proactive

about my

> treatment and care, as you suggested.

>

> Right now I'm taking an arthritis self-management class, and I do a

lot of

> reading on arthritis and have a laundry list of things to ask my

> rheumatologist at my next appointment. I feel like more information

can

> only be a good thing, and if the information helps me to keep the

disease

> under control better, that's a plus. If not, well, perhaps if I

feel like

> I'm taking control by being proactive then it will help me not to

feel as

> frustrated or depressed. I hope!

>

> Enjoy your skiing tomorrow! I'm so excited to hear of people with

PA who

> continue to do such active things... it helps to give me hope too.

I'm

> nowhere near skiing condition right now, but one of these days, who

knows? :-)

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Visit my personal web site at

> http://members.shaw.ca/tljohnson/

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Hi Carolyn

Welcome to the group. I have been a lurker for a year and just recently

started posting.

I too had very bad fingernails. This is the first year that the nails seem

attached to the nail bed. Hope it lasts.

My dermatologist told me I could have acrylics if I wanted to. Many of the

nail techs also did not want to do this because they thought I was contagious.

I finally found somebody who knew about this disease and is doing my nails

now. I must admit, the acrylic helps protect my nails and at least on the

outside they look good. I guess I am a bit vain even at 58.

Take Care

Barb

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welcome to the group. you will find unconditional love, support, caring, and

respect here. Additionally, the wealth of info is amazing. I don't post often,

but read everything that comes across and stockpile info like crazy.

My Derm told me at the beginning that these are Emotional diseases as well as

being physical diseases. Find some peace of mind. You are NOT some freak of

nature....believe that in your heart and in your head regardless of how people

seem to react to you. It does get hard I know. I finally found, through a

friend, a hairdresser who is not horrifed or afraid to cut my hair....one of the

places I have P is on my scalp and sometimes it is bad.

Anyway, welcome!

annie and the pugherd

[ ] New Member Introduction

Hello. My name is Carolyn and I have just joined your group. I am

a 45 year old female in Miami, Fl. Last year I was diagnosed with

psoriatic arthritis. I believe that this diagnosis is correct after

almost two years of being misdiagnosed and this causing me a great

deal of money and pain. I basically hide my illness from others as

much as I can. The areas that are affected are my fingers and to a

lesser physical apperance, my feet. Previous to the oneset of my

symptoms my personality was that of a happy and positive nature. I

still project that on the outside but the truth is I have to

challenge myself on a daily basis to overcome the fatigue and pain.

The last several holidays I have been unable to get a manicure

because the techinicians believe that I have some sort of contagious

diease. Here in Miami many of these thechs do not speak English

well and a translation must ensue. I have decide that this is too

embarrissing of an ordeal for me to endure. I have become quite

good at hiding my hands from the public. Most people don't notice

my subtle efforts to keep my hands under the table or have my palms

facing upwards to conceal the front of my fingers which are swollen

and somewhat deformed. At any given time I can have up to eight

cuts on my hands that appear that they are the result of a straight

edge blade. There is also redness. If someone does observe this I

tend to blame it on my having very fair and sensitive skin or a

allergic reaction. I believe that I have finally found a very good

rheumotologist and dermatologist. They have concluded that I should

be on Methotrexate. I rarely take it as I am terrified of the side

effects. I am single and doubt that I will meet anyone due to my

wanting to limit my social encounters. It's hard enough under

normal circumstnaces for a 45 yr. old woman to meet a great guy.

This letter has gone on much longer than I anticipated. I apologize

for that. Thank you in advance for your support.

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Dear Carolyn, Welcome to the group. I'm in Florida too, north of you on

the other side of the state. I live in Port Richey, about an hour north of

Tampa. We used to live in Naples, which was more in your neck of the woods.

I'm sorry to hear your PA is so bad and the psoriasis is so much trouble for

you now.

I used to get manicures all the time too. I finally gave them up, mainly

because I didn't feel well enough to go to the appointments anymore. I hate

how my hands look too. I love rings and have a million of them. Now I

seldom ever wear one, since my hands don't need any attention drawn to them.

I have a problem called erythromelalgia, which turns my hands bright red and

they feel like they are burning all the time. I carry cold gel packs with

me everywhere I go. So far it's the only thing that even touches the pain,

and I currently take a lot of pain medication. Have you ever thought to ask

your dermatologist if they know of a good nail technician? I realize it

might be a long shot, but sometimes the nurses know a lot of things like

that. I would tell them how frustrated you are and maybe they can suggest

something or someone.

I hide my hands as well, and my gel packs with them..lol. Have you

discussed your concerns with MTX with your doctor? Not that I think all

doctors have the answers, but maybe they can reassure you that it's " safe "

for you to take. I know it has a lot of side effects, and I couldn't take

it because I had an allergic reaction. ( You can't go by me though because

I have allergic reactions to almost everything these days..) It does help a

lot of people and some of the members will tell you it's been a great drug

for them. It's always the first line of defense with PA, or at least it

seems to be.

Making a decision on your medication is hard one. I've had to make several

choices and had some rough times when the drugs didn't work. For me though,

I had to do something. I haven't been able to work or drive now in almost 4

years. I'm finally getting back a portion of my self from taking Arava. I

did try MTX, plaquinel, Sulfa drugs, Enbrel, and Humira. None of them

helped me and several of them made me really sick. I didn't give up though

and please don't either. I'm sure there is something out there that will

help you. Once you do decide to take something, just keep your eyes open

for side effects and report them to your doctor.

Please don't worry about writing a long email. That's what we are here for.

You need to get it all out and sometimes that takes a long time. My emails

are always long and it probably drives everyone nuts, but I still write

them..lol. You just feel better knowing that someone else is going through

the same things you are. Plus this group is great for knowledge on drugs

and this disease. You'll learn a lot from the members who have been through

it all.

Anyway, I'm glad you found us and I hope we can help ease your pain in some

way. Take care. Love, Fran

Hello. My name is Carolyn and I have just joined your group. I am

a 45 year old female in Miami, Fl. Last year I was diagnosed with

psoriatic arthritis. I believe that this diagnosis is correct after

almost two years of being misdiagnosed and this causing me a great

deal of money and pain. I basically hide my illness from others as

much as I can. The areas that are affected are my fingers and to a

lesser physical apperance, my feet. Previous to the oneset of my

symptoms my personality was that of a happy and positive nature. I

still project that on the outside but the truth is I have to

challenge myself on a daily basis to overcome the fatigue and pain.

The last several holidays I have been unable to get a manicure

because the techinicians believe that I have some sort of contagious

diease. Here in Miami many of these thechs do not speak English

well and a translation must ensue. I have decide that this is too

embarrissing of an ordeal for me to endure. I have become quite

good at hiding my hands from the public. Most people don't notice

my subtle efforts to keep my hands under the table or have my palms

facing upwards to conceal the front of my fingers which are swollen

and somewhat deformed. At any given time I can have up to eight

cuts on my hands that appear that they are the result of a straight

edge blade. There is also redness. If someone does observe this I

tend to blame it on my having very fair and sensitive skin or a

allergic reaction. I believe that I have finally found a very good

rheumotologist and dermatologist. They have concluded that I should

be on Methotrexate. I rarely take it as I am terrified of the side

effects. I am single and doubt that I will meet anyone due to my

wanting to limit my social encounters. It's hard enough under

normal circumstnaces for a 45 yr. old woman to meet a great guy.

This letter has gone on much longer than I anticipated. I apologize

for that. Thank you in advance for your support.

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Dear Carolyn,

I'm so sorry that you are suffering so much but very happy for you

that you have found this wonderful group. many people will make you

feel very welcome - it is a very warm and supportive group of people

who unfortunately are suffering with the same disease as you are.

this is a wonderful place to learn, to share, to vent, to

commiserate and to just be 'you'. i'm very pleased to read you have

found a good medical support team - as many will tell you, this is

vital and makes a huge difference in how the disease progresses and

how one personally deals with it. my suggestion to you is to learn

as much as you possibly can about this disease. this support group

is very helpful but to learn even more, the internet is a wealth of

information. as well, if you are not yet doing so, i would keep an

informal log of how you are doing, and as well, make up a list of

questions that come up between visits with your dermo and rheumy to

ask them.

good luck carolyn, and once again, a very warm welcome,

gentle hugs,

love, karen

>

>

> Hello. My name is Carolyn and I have just joined your group. I

am

> a 45 year old female in Miami, Fl. Last year I was diagnosed with

> psoriatic arthritis. I believe that this diagnosis is correct

after

> almost two years of being misdiagnosed and this causing me a great

> deal of money and pain. I basically hide my illness from others

as

> much as I can. The areas that are affected are my fingers and to a

> lesser physical apperance, my feet. Previous to the oneset of my

> symptoms my personality was that of a happy and positive nature.

I

> still project that on the outside but the truth is I have to

> challenge myself on a daily basis to overcome the fatigue and

pain.

> The last several holidays I have been unable to get a manicure

> because the techinicians believe that I have some sort of

contagious

> diease. Here in Miami many of these thechs do not speak English

> well and a translation must ensue. I have decide that this is too

> embarrissing of an ordeal for me to endure. I have become quite

> good at hiding my hands from the public. Most people don't notice

> my subtle efforts to keep my hands under the table or have my

palms

> facing upwards to conceal the front of my fingers which are

swollen

> and somewhat deformed. At any given time I can have up to eight

> cuts on my hands that appear that they are the result of a

straight

> edge blade. There is also redness. If someone does observe this

I

> tend to blame it on my having very fair and sensitive skin or a

> allergic reaction. I believe that I have finally found a very

good

> rheumotologist and dermatologist. They have concluded that I

should

> be on Methotrexate. I rarely take it as I am terrified of the

side

> effects. I am single and doubt that I will meet anyone due to my

> wanting to limit my social encounters. It's hard enough under

> normal circumstnaces for a 45 yr. old woman to meet a great guy.

> This letter has gone on much longer than I anticipated. I

apologize

> for that. Thank you in advance for your support.

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In a message dated 12/15/2004 5:59:01 AM Eastern Standard Time,

miamired2004@... writes:

Hello. My name is Carolyn and I have just joined your group.

Hi Carolyn,

I am so sorry you have had to join our group. Mine started too with the

swollen fingers and nails falling off, and I hid my hands the same way...

For me, starting an NSAID (Bextra) helped control the swelling, and a cream

called Aldara helped get the nails under control. Once I started

Sulfasalazine, my nails really improved and my hands are back to normal.

I always thought noone knew about my nails and that I hid it pretty well,

but once they started to look better, everyone mentioned it:-)

For what it is worth, I started dating a wonderful guy when my hands were at

their worst. The relationship ended a year and a half later, but my hands

and the PA weren't a deal breaker for him, so please don't give up hope!

Please feel free to lean on us, that is what we are all here for!

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In a message dated 12/15/2004 5:58:41 AM Eastern Standard Time,

miamired2004@... writes:

Here in Miami many of these thechs do not speak English

well and a translation must ensue. I have decide that this is too

embarrissing of an ordeal for me to endure.

Hi Carolyn,

Welcome to the group. It is a good place to vent. I just had a manicure

last week and went to a new place. They also could hardly understand

English but right away said to me " contagious, yes? " I had to explain that is

was not and they did not have to worry. I believe I said allergies as well.

As for the methotrexate, if you are not going to take it then why don't you

ask the rheumy for something you will be more compliant with. Many of us here

on on biologics here. I am presently taking Enbrel and hoping for good

results.

Janet

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In a message dated 12/16/2004 6:05:17 AM Eastern Standard Time,

fam24@... writes:

I just had a manicure

last week and went to a new place. They also could hardly understand

English but right away said to me " contagious, yes? "

Hi Carolyn, I just had another thought about manicures (Janet too)...one of

my dermies opened a spa in her clinic (thye are all having trouble making

enough money as dermies, or so I have heard...). So maybe in Miami there is

some

kind of spa affiliated with a dermie that might be more understanding?

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Hi Carolyn,

I'm glad that you found this group, Sorry that you need to be here.

I hope you find all the support you need and I'm sure you'll find the

answers to most of your questions.

I know you have concerns about MTX. I have told my story many times

before, but in short, I could barely walk, had numerous swollen

fingers and toes, constant pain. Today, I have none of that. All due

to MTX. ZERO side effects after 3 years!!!

All I can say is read the side effects on your aspirin bottle.

Practically the same as MTX. Do you think thousands of folks are not

taking aspirin because of the POSSIBLE side effects? Read Fran's

post. Are you a carrot, egg or coffee?

Lastly, You said you rarely, or sometimes take MTX. My understanding

is that MTX is not a drug you can take sometimes. It is either 100%

as prescibed or not at all. In fact you may be causing more problems

by " sometimes " taking it.

I hope you read ALOT, consider your options and make an informed

decision about your healthcare.

Stay Well,

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Hi Carolyn,

You are not alone. Your letter was not too long. I'm 37 with 2 kids and a

husband and live in the Hudson Valley outside of NYC. Maybe through this board

you'll get the courage to tell people you have pa when they see your hands. I

have found that as long as you don't get to into the discussion (people can't

seem to handle that) they give you some understanding with a quick

explanation.

Hang in there,

{Editor's Note: Where are you in the Hudson Valley? We have a home in

Woodstock. Peace, love and rock n' roll! Kathy F.]

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Hi Jerre,

You are very lucky to have grown up in one of the most beautiful places in

the US. Few people know how beautiful the Hudson Valley is. One of the gifts

of having PA is that I have been forced to sit down more which gives me more

time to soak up my surroundings. There are few places as restorative to the

soul as the Hudson Valley.

Yes, it looks like that foot of snow we were supposed to get may now be no

more than a dusting. Phew! Our Woodstock home is on a mountain road and it

can be quite an adventure navigating the zigzags in the snow and ice.

Wishing you wellness,

Kathy F.

In a message dated 12/16/2004 10:41:45 PM Eastern Standard Time,

jerredawson@... writes:

Hi Kathy & Carolyn-My husband and I grew up in Croton-0n-Hudson and I still

have

family there and in Poughkeepsie. My High School is having a reunion this

summer (like

we did in 2000) for 1925 onward to 2004? (shows how small the school was).

I was just

at Boscobel for the candlelight walk (or limp-newest comlaint plantar

fascitis lol). It was

wonderful, gazing across the wetlands to West Point.

I guess that nor'easter is going to give us a pass. My husband made sure

the new snow

blower has hand warmers since that is where my pa and oa is worst! lol

jerre

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In a message dated 12/16/2004 11:18:00 PM Eastern Standard Time,

Pugnfriend@... writes:

You are very lucky to have grown up in one of the most beautiful places in

the US. Few people know how beautiful the Hudson Valley is.

that is definitely true. My older daughter went to school in Oneata and we

traveled through many times. My youngest is now in SUNY Albany.

Janet

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> Hi Kathy & Carolyn-My husband and I grew up in Croton-0n-Hudson and I still

have

family there and in Poughkeepsie. My High School is having a reunion this

summer (like

we did in 2000) for 1925 onward to 2004? (shows how small the school was). I

was just

at Boscobel for the candlelight walk (or limp-newest comlaint plantar fascitis

lol). It was

wonderful, gazing across the wetlands to West Point.

I guess that nor'easter is going to give us a pass. My husband made sure the

new snow

blower has hand warmers since that is where my pa and oa is worst! lol

jerre

> Hi Carolyn,

> You are not alone. Your letter was not too long. I'm 37 with 2 kids and a

> husband and live in the Hudson Valley outside of NYC. Maybe through this

board

> you'll get the courage to tell people you have pa when they see your hands. I

> have found that as long as you don't get to into the discussion (people can't

> seem to handle that) they give you some understanding with a quick

> explanation.

>

> Hang in there,

>

>

> {Editor's Note: Where are you in the Hudson Valley? We have a home in

Woodstock.

Peace, love and rock n' roll! Kathy F.]

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Hi Carolyn,

A belated welcome to the group. Hope you get what you are looking for from

it. It is a great place to get info if you need it and sympathy and especially

understanding on bad days. You can even share a joke or two on good days.

Sorry that it took so long to be correctly diagnosed. Unfortunately in is

not unusual for that to happen. Most of us can't believe it ourselves when we

are told what we have. lol

It is good that you have a Rheumy and Derm that you are happy with. It is

half the battle. (Well, maybe not half but you know what I mean)

Good luck in dealing with this in the future.

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Hi Pam,

Welcome

What Neuro do you see on Staten Island? I had my Uncle ( he lives on the Island) start on LDN, and his doctor finally agreed to write his script for him. I can get the info on him if you'd like. (if you aren't already seeing the same one!!)

I live in Fla. Right now, I'm in the process of packing up my house to move back to SI, so I'll be switching to his doctor as well, although I am a patient of Dr. Bihari's. Him, I see once a year or so.

I was dx. in 99, with RRMS, have been on LDN since 2002 and have experienced wonderful improvements ever since. I stopped Avonex and all the pills I was taking for MS about a month prior to my visit to Dr. B. and starting LDN, and haven't had to take anything, other than my LDN since! I take 4.0 mg

You can email me if you'd like, directly.

Follow your heart. Your own intincts are the ones that are usually right for you!

Keep in Touch

Carol

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> Hi everyone, not sure it's customary to say hello when joining

this group,

> but here goes anyway.

Welcome to the group. Sounds like you have all the answers you

need, and the rest will come from Dr. B. Lucky you to be close

enough to see the man himself! I have a 16 year old son who has

been using LDN since June of 2004, and is doing great. Prior to

that, he used Avonex and Rebif with terrible results. I had my head

in the clouds for awhile before I heard about LDN, too, but I am so

thankful that I did. Take care. Keep us posted!

Kim

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> Hi everyone, not sure it's customary to say hello when joining this

group,

> but here goes anyway. I'm 28 yrs old and I was diagnosed with MS in

Feb

> 2003. >

> Pam

> Linden NJ / Staten Island NY

++++++++++++++++++++++++++++++++++++++++++++++++++

Welcome to the group.. You will find that this is a great group of

people who are every helpful.

I live in Quebec and know of only 2-3 other people here with MS who

take LDN. We are all doing find.

Some have had great improvment others not but one thing is certain the

MS has stopped progressing or in the very least is slowed very very much.

Johanne F

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