Guest guest Posted June 19, 2001 Report Share Posted June 19, 2001 Hope I can shed a little insight on this matter. I cannot tolerate the anirodiane. My doctors and I have tried it several times. after my last time of having it left me with red and a reddish blotchy skin with bumps. People say t looks like I have sun poisoning. I have seen several Derms and they tell me to stay out of the sun and wear long sleeves. I recently had a bad skin out break again and my other specialist did some blood work when he saw the rash on my face and on the back of my leg and stated that it was Lupus and that the Anderonine even a long time after you stop taking it can cause lupus symptoms and effect. I have trying to find out more about this. If you hearing anything from your derma please advise. The and also caused me to go in fibromaalgia and have severe numbness in my foot and left hand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Thanks for the info. I too have fibro. and it has gotten worse. Several people have said that I should be tested for lupus. Is there any other meds that have same result as amio.??? Did the Dr. change you to something else, and if so how is it working for you??? Thanks again...Blessings, Stephi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 i am on Beta Pace 120mg 4 times per day, it effects my breathing and has helped to add a few ponds but I an tolerate it and it seems to do the job althogh I started out only taking 60 mg 2x/day and it has increased but I hae aged and I have had mor problems, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 In a message dated 6/21/01 7:03:36 PM Eastern Daylight Time, IIPistacio@... writes: i am on Beta Pace 120mg 4 times per day, it effects my breathing and has helped to add a few ponds but I an tolerate it and it seems to do the job althogh I started out only taking 60 mg 2x/day and it has increased but I hae aged and I have had mor problems, Sharon Are your problems from Beta Pace, and why did they increase your dosage? I am on it also 240 mg twice a day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2001 Report Share Posted June 21, 2001 In a message dated 6/21/01 7:03:36 PM Eastern Daylight Time, IIPistacio@... writes: i am on Beta Pace 120mg 4 times per day, it effects my breathing and has helped to add a few ponds but I an tolerate it and it seems to do the job althogh I started out only taking 60 mg 2x/day and it has increased but I hae aged and I have had mor problems, Sharon Why did they increase your Beta Pace, I am on it also 240 mg twice a day. I think I have gained weight as well. How had it afftected your breathing, and did you get more problems from it. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 Hi Stephi! I used to take a med called quinidine glutamate(Quiniglute) and after 2years rashes started after 6 years of taaking it got lupus and i was about to get fibros i stopped to take my ,eds and got an ICD now im on Amiodrone300 mg's a day toprol 50 mg's a day digoxin 1mg and coumidine 4 to 2 mg's alternating days. I just visited a rhumatologist(excuse the spelling dont know how to spell some words) he put me on Prednizone(stereoid) 20 mg's a day for two weeks then 15mg's aday for two wekks and on and on until im finished with LUPUS .Thank god i saw this rhumatologist guy he was fantastic in 9 days my rashes are gone and both my legs below the knee had turned purple from scratching now they are pink again. so ask your doctor he might tell you to do the same. Good luck and Good Heart. TURK PS: to everyone I am doing fantastic mentalwise aswell. Love you all for all the support you've given me in my troubled days. I am most gratefull. When i Finish my book I'm gonna dedicate it to you all. Re: amiodarone & rashes Thanks for the info. I too have fibro. and it has gotten worse. Several people have said that I should be tested for lupus. Is there any other meds that have same result as amio.??? Did the Dr. change you to something else, and if so how is it working for you??? Thanks again...Blessings, StephiPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 hi sharon, i take amioderone 200 mgs twice a day. ive noticed a lot of body pain, and also blue blotches on my upper left arm that look like veins coming to the surface. i started with a new e.p. this week and he seems to be very candid with me. we discussed the amioderone and he did say it is a very dangerous drug, but the alernative.................. i asked if i needed so much. he said he would like to keep me on three more months to make sure i remain zap free and then probably lower the dosage. but i dont have near the suffering of some of our members out there. even with my troubles ive been blessed. i wish some blessings for you as well. bob in pa -- Re: amiodarone & rashes In a message dated 6/21/01 7:03:36 PM Eastern Daylight Time, IIPistacio@... writes: i am on Beta Pace 120mg 4 times per day, it effects my breathing and has helped to add a few ponds but I an tolerate it and it seems to do the job althogh I started out only taking 60 mg 2x/day and it has increased but I hae aged and I have had mor problems, Sharon Why did they increase your Beta Pace, I am on it also 240 mg twice a day. I think I have gained weight as well. How had it afftected your breathing, and did you get more problems from it. Phyllis Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 Bob in Pennsylvania and Zapfriends, i take amioderone 200 mgs twice a day. ive noticed a lot of body pain, and also blue blotches on my upper left arm that look like veins coming to the surface. The blue blotches in your arms you refer are probably similar to the ones appearing in my legs. Veins coming to the surface due to heart condition is one possibility, but did yours begin to appear shortly after you began amiodarone? Mine did. in Northern Ireland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2001 Report Share Posted June 25, 2001 Dear Turk (and All), Thanks for the info. I have an appt. with electro (ICD) Dr. tomorrow and hopefully we can figure out the problem. I am also taking Prozac, but I can't remember when exactly the rashes started ( I've also had problems with short term memory), so wel'l discuss it tomorrow. I will also see the transplant team tomorrow and will get the ok to switch to Zoloft, I suppose time will tell....The rash is only on my face and arms.. no where else. I have started to make real effort to stay out of the sun. Here in Louisiana that can be really hard though. I've begun to slather on the sunscreen. Take care... and many Blessings, Stephi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Hi Stephi; you're welcome.if I can be of help to anyone please let me know. good luck to you with the doctor tomorrow stephi. If it wasn't for this group I would have been in Bellevue mental center committed for life. for that I thank you all that know after going thru what I went thru couldn't have done it without you and I am most grateful to everyone in this group for the normal life that I am trying to lead right now which seems to be ok so far .Thanks again everyone and God Bless. Good Luck and Good Heart. TURK. PS: now that I am on prednizone(steroids)for the past two weeks my lupus symptoms have disappeared thank god and I can wear shorts again. Re: amiodarone & rashes Dear Turk (and All), Thanks for the info. I have an appt. with electro (ICD) Dr. tomorrow and hopefully we can figure out the problem. I am also taking Prozac, but I can't remember when exactly the rashes started ( I've also had problems with short term memory), so wel'l discuss it tomorrow. I will also see the transplant team tomorrow and will get the ok to switch to Zoloft, I suppose time will tell....The rash is only on my face and arms.. no where else. I have started to make real effort to stay out of the sun. Here in Louisiana that can be really hard though. I've begun to slather on the sunscreen. Take care... and many Blessings,StephiPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.