Guest guest Posted November 7, 2011 Report Share Posted November 7, 2011 I had exactly what you describe and it turned out to be stomach ulcers from h pylori infection. I have a cbs upregulation. Do you? Sent using BlackBerry® from Orange GI Upset Hello, Almost 2 months ago I saw my GP. Since my usual sleep meds were not working as well as they previously had, I asked if she had anything else I could try. She prescribed an antidepressant (Lexapro). It is an SSRI. After the second day of using it, I started having gastric pain. After about 5 days, I had to stop the Lexapro, because of a multitude of side-effects (these antidepressants are really horrible). However, the gastric pain has persisted. It feels like when you haven't eaten in a long time and your stomach feels like there is a big hole and some burning. I have been on Nexium for one month (The dose was increased to 80mg per days 10 days ago) with no relief. I am having trouble eating as all foods and liquids (including water) seem to irritate my stomach. I don't know what to do. I have never had gastric upset for 2 months straight and with no relief through medications. Does anybody have any experience with this or any ideas? Thank you. Yannick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2011 Report Share Posted November 7, 2011 I wish I had something better to suggest, but have you tried deglycyrrhizinated licorice? Ellen GI Upset Hello, Almost 2 months ago I saw my GP. Since my usual sleep meds were not working as well as they previously had, I asked if she had anything else I could try. She prescribed an antidepressant (Lexapro). It is an SSRI. After the second day of using it, I started having gastric pain. After about 5 days, I had to stop the Lexapro, because of a multitude of side-effects (these antidepressants are really horrible). However, the gastric pain has persisted. It feels like when you haven't eaten in a long time and your stomach feels like there is a big hole and some burning. I have been on Nexium for one month (The dose was increased to 80mg per days 10 days ago) with no relief. I am having trouble eating as all foods and liquids (including water) seem to irritate my stomach. I don't know what to do. I have never had gastric upset for 2 months straight and with no relief through medications. Does anybody have any experience with this or any ideas? Thank you. Yannick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 In addition to what others have suggested you should consider that you are eating an offending food/foods and gluten would be my first guess. Also, low stomach acid can cause issues. My oldest daughter used to get that " raw " feeling in her stomach when she accidently eat gluten or one of her intolerant foods. Deb > > Hello, > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not working as well as they previously had, I asked if she had anything else I could try. > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the second day of using it, I started having gastric pain. After about 5 days, I had to stop the Lexapro, because of a multitude of side-effects (these antidepressants are really horrible). > > However, the gastric pain has persisted. It feels like when you haven't eaten in a long time and your stomach feels like there is a big hole and some burning. I have been on Nexium for one month (The dose was increased to 80mg per days 10 days ago) with no relief. > > I am having trouble eating as all foods and liquids (including water) seem to irritate my stomach. > > I don't know what to do. I have never had gastric upset for 2 months straight and with no relief through medications. > > Does anybody have any experience with this or any ideas? > > Thank you. > > Yannick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 Hi, I've had that happen and last for months along with constipation and thought I'd die from it, the pain and nausea, then gradually gets better on it's own. I am in a bout of it now as I await a huge surgery for uterine cancer. Fear and a D & C have put me in an M.E. relapse from hell. As far as Nexium and the other proton pump inhibitors, sometimes you have to experiment with the different ones. I found the only one that worked for me the last time I had really bad acid reflux was Zegerid. Hope you feel better soon. Best Wishes, Robbi On Mon, Nov 7, 2011 at 8:54 AM, cancfs <ambitious8@...> wrote: > ** > > > Hello, > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > working as well as they previously had, I asked if she had anything else I > could try. > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > second day of using it, I started having gastric pain. After about 5 days, > I had to stop the Lexapro, because of a multitude of side-effects (these > antidepressants are really horrible). > > However, the gastric pain has persisted. It feels like when you haven't > eaten in a long time and your stomach feels like there is a big hole and > some burning. I have been on Nexium for one month (The dose was increased > to 80mg per days 10 days ago) with no relief. > > I am having trouble eating as all foods and liquids (including water) seem > to irritate my stomach. > > I don't know what to do. I have never had gastric upset for 2 months > straight and with no relief through medications. > > Does anybody have any experience with this or any ideas? > > Thank you. > > Yannick > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 What does a CBS upregulation have to do with an H. Pylori infection? > > I had exactly what you describe and it turned out to be stomach ulcers from h pylori infection. I have a cbs upregulation. Do you? > > Sent using BlackBerry® from Orange > > GI Upset > > Hello, > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not working as well as they previously had, I asked if she had anything else I could try. > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the second day of using it, I started having gastric pain. After about 5 days, I had to stop the Lexapro, because of a multitude of side-effects (these antidepressants are really horrible). > > However, the gastric pain has persisted. It feels like when you haven't eaten in a long time and your stomach feels like there is a big hole and some burning. I have been on Nexium for one month (The dose was increased to 80mg per days 10 days ago) with no relief. > > I am having trouble eating as all foods and liquids (including water) seem to irritate my stomach. > > I don't know what to do. I have never had gastric upset for 2 months straight and with no relief through medications. > > Does anybody have any experience with this or any ideas? > > Thank you. > > Yannick > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 Hi Robbi, I am sorry to hear of your cancer. I hope that you have a quick recovery from the surgery. I wonder if you have given thought to the anesthesia issues that ME/CFIDSers have. I am not intimately familiar but I have heard of people choosing an anesthesia that is less harmful to our systems. Maybe someone can jump in here who has been through this. I have not done the research but just wanted to point that out in case you have not given it that much thought (with everything else you are going through). I would like to add a caution about proton pump inhibitors. They can cause long term damage due to the reduced acid - osteoporosis, nutritional deficiencies, etc. I have used them long term and will not do that again. They are meant to be used as short term treatments to heal ulcers and esophogeal issues caused by acid reflux. I have found that the acidic sour stomach is best treated (for me) by ingesting vinegar, either pickles/pickle juice or apple cider vinegar. Using Tums or an antiacid seems to give very short term relief but then causes rebound acid. By adding acid to the stomach, it registers sufficient acid through a feedback loop so the blood stops dumping excess acid to the stomach. I read this somewhere years ago and tried it and it works. The only time I use antiacids is when I am having a pancreatic or gall bladder attack but then I wean off of them and use vinegar at the end of thee attack. Not sure what the mechanism is during pancreatitis but the vinegar trick does not work then. Have to go through antiacids or baking soda in large quantities then deal with the rebound acid after the attack is over. I am currently using Ranitidine for excess acid if I absolutely have to (famitodine works as well.) This is a benefit because ranitidine is an H2 blocker so it keeps my urticaria under control. Not sure if this is helpful, Marti > > > ** > > > > > > Hello, > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > working as well as they previously had, I asked if she had anything else I > > could try. > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > second day of using it, I started having gastric pain. After about 5 days, > > I had to stop the Lexapro, because of a multitude of side-effects (these > > antidepressants are really horrible). > > > > However, the gastric pain has persisted. It feels like when you haven't > > eaten in a long time and your stomach feels like there is a big hole and > > some burning. I have been on Nexium for one month (The dose was increased > > to 80mg per days 10 days ago) with no relief. > > > > I am having trouble eating as all foods and liquids (including water) seem > > to irritate my stomach. > > > > I don't know what to do. I have never had gastric upset for 2 months > > straight and with no relief through medications. > > > > Does anybody have any experience with this or any ideas? > > > > Thank you. > > > > Yannick > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery after just the 1/2 hour D & C made me so very ill. I thought about not proceeding and just letting the cancer get me and then taking advantage of our states death with dignity law. It's been a mess because none of the docs. except my former cardiologist who studies Cheney's work gets how serious M.E. is and he's at a conference now. My insurance changed so I don't really see him anymore.(my good cardio., that is) I will go ahead though and will give anesthesiologists all the good CFS and M.E. protocol info. I have. I told my husband to remarry if they lose me, someone healthy who will love our developmentally disabled adult daughter who lives at home, grandbabies and my very beloved dog. Might be a tall order! You're so right about the proton pump inhibitors. I only used when my poor stomach was just all torn up from acid as a last resort and it healed up as I recovered from relapse that caused it, was able to go off, and it seemed like just eating plain yogurt everyday kept stomach good for many years, until now, alas. Best of luck to you and thank you for writing. I'll let you know how things go, when I'm able. Love, Robbi On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala <marti_zavala@...>wrote: > ** > > > Hi Robbi, > I am sorry to hear of your cancer. I hope that you have a quick recovery > from the surgery. > > I wonder if you have given thought to the anesthesia issues that > ME/CFIDSers have. I am not intimately familiar but I have heard of people > choosing an anesthesia that is less harmful to our systems. > > Maybe someone can jump in here who has been through this. I have not done > the research but just wanted to point that out in case you have not given > it that much thought (with everything else you are going through). > > I would like to add a caution about proton pump inhibitors. They can cause > long term damage due to the reduced acid - osteoporosis, nutritional > deficiencies, etc. I have used them long term and will not do that again. > They are meant to be used as short term treatments to heal ulcers and > esophogeal issues caused by acid reflux. > > I have found that the acidic sour stomach is best treated (for me) by > ingesting vinegar, either pickles/pickle juice or apple cider vinegar. > Using Tums or an antiacid seems to give very short term relief but then > causes rebound acid. By adding acid to the stomach, it registers sufficient > acid through a feedback loop so the blood stops dumping excess acid to the > stomach. I read this somewhere years ago and tried it and it works. > > The only time I use antiacids is when I am having a pancreatic or gall > bladder attack but then I wean off of them and use vinegar at the end of > thee attack. Not sure what the mechanism is during pancreatitis but the > vinegar trick does not work then. Have to go through antiacids or baking > soda in large quantities then deal with the rebound acid after the attack > is over. > > I am currently using Ranitidine for excess acid if I absolutely have to > (famitodine works as well.) This is a benefit because ranitidine is an H2 > blocker so it keeps my urticaria under control. > > Not sure if this is helpful, > Marti > > > > > > > > ** > > > > > > > > > > Hello, > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > working as well as they previously had, I asked if she had anything > else I > > > could try. > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > second day of using it, I started having gastric pain. After about 5 > days, > > > I had to stop the Lexapro, because of a multitude of side-effects > (these > > > antidepressants are really horrible). > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > eaten in a long time and your stomach feels like there is a big hole > and > > > some burning. I have been on Nexium for one month (The dose was > increased > > > to 80mg per days 10 days ago) with no relief. > > > > > > I am having trouble eating as all foods and liquids (including water) > seem > > > to irritate my stomach. > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > straight and with no relief through medications. > > > > > > Does anybody have any experience with this or any ideas? > > > > > > Thank you. > > > > > > Yannick > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 Robbi, Sounds like you're having a tough time right now. I'll try to send good energy your way, and the courage to face whatever you must deal with. Do you know when the surgery will be? Will you be able to have someone there with you at the hospital when it happens? I hope it won't be as bad as you fear, and that you recover well. Sending hugs your way, Marcia on in Salem, Massachusetts On Nov 8, 2011, at 6:01 PM, Robbi wrote: > Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery > after > just the 1/2 hour D & C made me so very ill. I thought about not > proceeding > and just letting the cancer get me and then taking advantage of our > states > death with dignity law. It's been a mess because none of the docs. > except > my former cardiologist who studies Cheney's work gets how serious > M.E. is > and he's at a conference now. My insurance changed so I don't really > see > him anymore.(my good cardio., that is) > > I will go ahead though and will give anesthesiologists all the good > CFS and > M.E. protocol info. I have. > > I told my husband to remarry if they lose me, someone healthy who will > love our developmentally disabled adult daughter who lives at > home, grandbabies and my very beloved dog. Might be a tall order! > You're so right about the proton pump inhibitors. I only used when > my poor > stomach was just all torn up from acid as a last resort and it > healed up as > I recovered from relapse that caused it, was able to go off, and it > seemed > like just eating plain yogurt everyday kept stomach good for many > years, > until now, alas. > > Best of luck to you and thank you for writing. I'll let you know how > things > go, when I'm able. > > Love, Robbi > On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala > <marti_zavala@...>wrote: > > > ** > > > > > > Hi Robbi, > > I am sorry to hear of your cancer. I hope that you have a quick > recovery > > from the surgery. > > > > I wonder if you have given thought to the anesthesia issues that > > ME/CFIDSers have. I am not intimately familiar but I have heard of > people > > choosing an anesthesia that is less harmful to our systems. > > > > Maybe someone can jump in here who has been through this. I have > not done > > the research but just wanted to point that out in case you have > not given > > it that much thought (with everything else you are going through). > > > > I would like to add a caution about proton pump inhibitors. They > can cause > > long term damage due to the reduced acid - osteoporosis, nutritional > > deficiencies, etc. I have used them long term and will not do that > again. > > They are meant to be used as short term treatments to heal ulcers > and > > esophogeal issues caused by acid reflux. > > > > I have found that the acidic sour stomach is best treated (for me) > by > > ingesting vinegar, either pickles/pickle juice or apple cider > vinegar. > > Using Tums or an antiacid seems to give very short term relief but > then > > causes rebound acid. By adding acid to the stomach, it registers > sufficient > > acid through a feedback loop so the blood stops dumping excess > acid to the > > stomach. I read this somewhere years ago and tried it and it works. > > > > The only time I use antiacids is when I am having a pancreatic or > gall > > bladder attack but then I wean off of them and use vinegar at the > end of > > thee attack. Not sure what the mechanism is during pancreatitis > but the > > vinegar trick does not work then. Have to go through antiacids or > baking > > soda in large quantities then deal with the rebound acid after the > attack > > is over. > > > > I am currently using Ranitidine for excess acid if I absolutely > have to > > (famitodine works as well.) This is a benefit because ranitidine > is an H2 > > blocker so it keeps my urticaria under control. > > > > Not sure if this is helpful, > > Marti > > > > > > > > > > > > > ** > > > > > > > > > > > > > > Hello, > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds > were not > > > > working as well as they previously had, I asked if she had > anything > > else I > > > > could try. > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. > After the > > > > second day of using it, I started having gastric pain. After > about 5 > > days, > > > > I had to stop the Lexapro, because of a multitude of side- > effects > > (these > > > > antidepressants are really horrible). > > > > > > > > However, the gastric pain has persisted. It feels like when > you haven't > > > > eaten in a long time and your stomach feels like there is a > big hole > > and > > > > some burning. I have been on Nexium for one month (The dose was > > increased > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > I am having trouble eating as all foods and liquids (including > water) > > seem > > > > to irritate my stomach. > > > > > > > > I don't know what to do. I have never had gastric upset for 2 > months > > > > straight and with no relief through medications. > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > Thank you. > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2011 Report Share Posted November 8, 2011 _____ Hi Robbi, Sorry to hear about your forthcoming operation - not a pleasant thought for any of us. I just wanted to share my experiences with you as a CFS (or CFIDS) sufferer. I recently was in a position where I had to have 3 separate day procedures in a period of 4 weeks, one being a D & C also. One of the anaesthetists was very helpful and said he would use a type of anaesthetic that was helpful to people with cfs, so at least he acknowledged my condition, and that there was a different drug to use (that was for the D & C). The other anaesthetists that saw for me the other 2 procedures didn't even comment on the type of drug or my condition, cos they were in a hurry !! I must admit after having so many procedures in a short time, I felt pretty awful anyway, but did notice that the D & C procedure wasn't as bad as I expected, and I think I recovered better from that procedure. The other procedures involved taking out a polyp from the bowel, which turned out to be cancerous unfortunately, and another procedure was to tattoo the area where they removed the polyp so they could keep an eye on that area for future growths. Four years ago I had to have a rapidly growing sarcoma removed from my left hand side, and at that time I wasn't offered any choice in terms of anaesthetic, but I guess in the last 4 years there is a lot more knowledge about CFIDS. After that op, I recovered reasonably well, but I think the B12 injections I was having really helped my body. Anyway, I don't know if any of the above helps, but best wishes for your op and recovery. Regards, Elene _____ From: [mailto: ] On Behalf Of Robbi Sent: Wednesday, 9 November 2011 10:01 AM Subject: Re: Re: GI Upset Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery after just the 1/2 hour D & C made me so very ill. I thought about not proceeding and just letting the cancer get me and then taking advantage of our states death with dignity law. It's been a mess because none of the docs. except my former cardiologist who studies Cheney's work gets how serious M.E. is and he's at a conference now. My insurance changed so I don't really see him anymore.(my good cardio., that is) I will go ahead though and will give anesthesiologists all the good CFS and M.E. protocol info. I have. I told my husband to remarry if they lose me, someone healthy who will love our developmentally disabled adult daughter who lives at home, grandbabies and my very beloved dog. Might be a tall order! You're so right about the proton pump inhibitors. I only used when my poor stomach was just all torn up from acid as a last resort and it healed up as I recovered from relapse that caused it, was able to go off, and it seemed like just eating plain yogurt everyday kept stomach good for many years, until now, alas. Best of luck to you and thank you for writing. I'll let you know how things go, when I'm able. Love, Robbi On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala <marti_zavala@... <mailto:marti_zavala%40> >wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Robbi, So sorry you are going through this. Having CFS is enough without added stress like surgery. Your post brought to light what I am sure others have thought, but maybe not written. I hope all goes well for you and the recovery is not overwhelming. Hugs to you. What you are going through made me sad. Deb > > > > > > > ** > > > > > > > > > > > > > > Hello, > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > > working as well as they previously had, I asked if she had anything > > else I > > > > could try. > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > > second day of using it, I started having gastric pain. After about 5 > > days, > > > > I had to stop the Lexapro, because of a multitude of side-effects > > (these > > > > antidepressants are really horrible). > > > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > > eaten in a long time and your stomach feels like there is a big hole > > and > > > > some burning. I have been on Nexium for one month (The dose was > > increased > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > I am having trouble eating as all foods and liquids (including water) > > seem > > > > to irritate my stomach. > > > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > > straight and with no relief through medications. > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > Thank you. > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Robbi, Find out if they can do a spinal for anesthesia. When I had surgery for a broken hip, I had that, with " light sedation, " and it was better than all-out general anesthesia. You might be able to get them to skip the light sedation if you know you can stay calm and not talk the whole time. I'll be praying that it goes well. Ellen Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery after just the 1/2 hour D & C made me so very ill. I thought about not proceeding and just letting the cancer get me and then taking advantage of our states death with dignity law. It's been a mess because none of the docs. except my former cardiologist who studies Cheney's work gets how serious M.E. is and he's at a conference now. My insurance changed so I don't really see him anymore.(my good cardio., that is) I will go ahead though and will give anesthesiologists all the good CFS and M.E. protocol info. I have. I told my husband to remarry if they lose me, someone healthy who will love our developmentally disabled adult daughter who lives at home, grandbabies and my very beloved dog. Might be a tall order! You're so right about the proton pump inhibitors. I only used when my poor stomach was just all torn up from acid as a last resort and it healed up as I recovered from relapse that caused it, was able to go off, and it seemed like just eating plain yogurt everyday kept stomach good for many years, until now, alas. Best of luck to you and thank you for writing. I'll let you know how things go, when I'm able. Love, Robbi On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala <marti_zavala@...>wrote: > ** > > > Hi Robbi, > I am sorry to hear of your cancer. I hope that you have a quick recovery > from the surgery. > > I wonder if you have given thought to the anesthesia issues that > ME/CFIDSers have. I am not intimately familiar but I have heard of people > choosing an anesthesia that is less harmful to our systems. > > Maybe someone can jump in here who has been through this. I have not done > the research but just wanted to point that out in case you have not given > it that much thought (with everything else you are going through). > > I would like to add a caution about proton pump inhibitors. They can cause > long term damage due to the reduced acid - osteoporosis, nutritional > deficiencies, etc. I have used them long term and will not do that again. > They are meant to be used as short term treatments to heal ulcers and > esophogeal issues caused by acid reflux. > > I have found that the acidic sour stomach is best treated (for me) by > ingesting vinegar, either pickles/pickle juice or apple cider vinegar. > Using Tums or an antiacid seems to give very short term relief but then > causes rebound acid. By adding acid to the stomach, it registers sufficient > acid through a feedback loop so the blood stops dumping excess acid to the > stomach. I read this somewhere years ago and tried it and it works. > > The only time I use antiacids is when I am having a pancreatic or gall > bladder attack but then I wean off of them and use vinegar at the end of > thee attack. Not sure what the mechanism is during pancreatitis but the > vinegar trick does not work then. Have to go through antiacids or baking > soda in large quantities then deal with the rebound acid after the attack > is over. > > I am currently using Ranitidine for excess acid if I absolutely have to > (famitodine works as well.) This is a benefit because ranitidine is an H2 > blocker so it keeps my urticaria under control. > > Not sure if this is helpful, > Marti > > > > > > > > ** > > > > > > > > > > Hello, > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > working as well as they previously had, I asked if she had anything > else I > > > could try. > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > second day of using it, I started having gastric pain. After about 5 > days, > > > I had to stop the Lexapro, because of a multitude of side-effects > (these > > > antidepressants are really horrible). > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > eaten in a long time and your stomach feels like there is a big hole > and > > > some burning. I have been on Nexium for one month (The dose was > increased > > > to 80mg per days 10 days ago) with no relief. > > > > > > I am having trouble eating as all foods and liquids (including water) > seem > > > to irritate my stomach. > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > straight and with no relief through medications. > > > > > > Does anybody have any experience with this or any ideas? > > > > > > Thank you. > > > > > > Yannick > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Hi Marcia, Thank you so much! Yes, it should be Mon. Nov. 14th. My husband and some other family will be there, I think my husband will spend the night(s) if we can get a room where he can. I have a bit of agoraphobia that I keep well hidden and force myself to " not have " but I am afraid of the hospital. I have had so many bad reactions and am allergic to almost every antibiotic so just don't know what to expect. The surgery is supposed to be 4 hours and will be cancer staging, so they'll look to see if spread then maybe go to other sites. This surgery is not done on heart disease or diabetes patients as too dangerous. Of course they don't know about CFS and our hearts but I can't even walk much at all and have to use mobility scooter or get bad chest pain. I just hope CFS (or really M.E.) hearts can take this. I'm having so much stomach trouble right now too and that's not going to be good either. I just have to be braver than I've ever been before and pray I'll come through. My poor dog thinks I hung the moon and we lost her lifelong mate and my other " best friend " to unexpected cancer the day after my D & C a few weeks back and if she loses me now, she will be so lost. Not to mention my family but at least they will know what happened... Sorry I'm such a big baby! Thank you for writing and your well wishes. Take care. Love, Robbi On Tue, Nov 8, 2011 at 8:29 PM, Marcia on <mmorrison@...> wrote: > ** > > > Robbi, > > Sounds like you're having a tough time right now. I'll try to send > good energy your way, and the courage to face whatever you must deal > with. Do you know when the surgery will be? Will you be able to have > someone there with you at the hospital when it happens? > > I hope it won't be as bad as you fear, and that you recover well. > > Sending hugs your way, > > Marcia on > in Salem, Massachusetts > > > On Nov 8, 2011, at 6:01 PM, Robbi wrote: > > > Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery > > after > > just the 1/2 hour D & C made me so very ill. I thought about not > > proceeding > > and just letting the cancer get me and then taking advantage of our > > states > > death with dignity law. It's been a mess because none of the docs. > > except > > my former cardiologist who studies Cheney's work gets how serious > > M.E. is > > and he's at a conference now. My insurance changed so I don't really > > see > > him anymore.(my good cardio., that is) > > > > I will go ahead though and will give anesthesiologists all the good > > CFS and > > M.E. protocol info. I have. > > > > I told my husband to remarry if they lose me, someone healthy who will > > love our developmentally disabled adult daughter who lives at > > home, grandbabies and my very beloved dog. Might be a tall order! > > You're so right about the proton pump inhibitors. I only used when > > my poor > > stomach was just all torn up from acid as a last resort and it > > healed up as > > I recovered from relapse that caused it, was able to go off, and it > > seemed > > like just eating plain yogurt everyday kept stomach good for many > > years, > > until now, alas. > > > > Best of luck to you and thank you for writing. I'll let you know how > > things > > go, when I'm able. > > > > Love, Robbi > > On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala > > <marti_zavala@...>wrote: > > > > > ** > > > > > > > > > > Hi Robbi, > > > I am sorry to hear of your cancer. I hope that you have a quick > > recovery > > > from the surgery. > > > > > > I wonder if you have given thought to the anesthesia issues that > > > ME/CFIDSers have. I am not intimately familiar but I have heard of > > people > > > choosing an anesthesia that is less harmful to our systems. > > > > > > Maybe someone can jump in here who has been through this. I have > > not done > > > the research but just wanted to point that out in case you have > > not given > > > it that much thought (with everything else you are going through). > > > > > > I would like to add a caution about proton pump inhibitors. They > > can cause > > > long term damage due to the reduced acid - osteoporosis, nutritional > > > deficiencies, etc. I have used them long term and will not do that > > again. > > > They are meant to be used as short term treatments to heal ulcers > > and > > > esophogeal issues caused by acid reflux. > > > > > > I have found that the acidic sour stomach is best treated (for me) > > by > > > ingesting vinegar, either pickles/pickle juice or apple cider > > vinegar. > > > Using Tums or an antiacid seems to give very short term relief but > > then > > > causes rebound acid. By adding acid to the stomach, it registers > > sufficient > > > acid through a feedback loop so the blood stops dumping excess > > acid to the > > > stomach. I read this somewhere years ago and tried it and it works. > > > > > > The only time I use antiacids is when I am having a pancreatic or > > gall > > > bladder attack but then I wean off of them and use vinegar at the > > end of > > > thee attack. Not sure what the mechanism is during pancreatitis > > but the > > > vinegar trick does not work then. Have to go through antiacids or > > baking > > > soda in large quantities then deal with the rebound acid after the > > attack > > > is over. > > > > > > I am currently using Ranitidine for excess acid if I absolutely > > have to > > > (famitodine works as well.) This is a benefit because ranitidine > > is an H2 > > > blocker so it keeps my urticaria under control. > > > > > > Not sure if this is helpful, > > > Marti > > > > > > > > > > > > > > > > > > ** > > > > > > > > > > > > > > > > > > Hello, > > > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds > > were not > > > > > working as well as they previously had, I asked if she had > > anything > > > else I > > > > > could try. > > > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. > > After the > > > > > second day of using it, I started having gastric pain. After > > about 5 > > > days, > > > > > I had to stop the Lexapro, because of a multitude of side- > > effects > > > (these > > > > > antidepressants are really horrible). > > > > > > > > > > However, the gastric pain has persisted. It feels like when > > you haven't > > > > > eaten in a long time and your stomach feels like there is a > > big hole > > > and > > > > > some burning. I have been on Nexium for one month (The dose was > > > increased > > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > > > I am having trouble eating as all foods and liquids (including > > water) > > > seem > > > > > to irritate my stomach. > > > > > > > > > > I don't know what to do. I have never had gastric upset for 2 > > months > > > > > straight and with no relief through medications. > > > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > > > Thank you. > > > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Hi Elene, Thank you for writing and your good advice. Goodness you have been through a lot and I hope and pray you are ok now. I am not sure why the D & C layed me so low. I had nausea and shaking chills for 4 weeks and it froze my intestinal tract to still I can't go to the bathroom w/o milk of magnesia so I wonder with fear what a hysterectomy will do. I had breast cancer 5 years ago with lumpectomy then mastectomy and I did quite well with surgeries but I was much healthier CFS (M.E.) wise and could go on up to a mile long walks back then. The radiation I think made me really bad for these 5 years or something changed my heart to where now I can't walk w/o chest pain. Still have good quality of life, feel mostly good if I stay well with in my limits, lots of various pain but bearable but now this big setback, ugh! Going to see anesthesiologists in advance and give them protocol info. and then just hope for the best. I will keep you in my thoughts and prayers too and that you continue to do well. Thank you so very much for writing. Love, Robbi On Tue, Nov 8, 2011 at 8:50 PM, bsam <bsam9848@...> wrote: > ** > > > > > _____ > > Hi Robbi, > > Sorry to hear about your forthcoming operation - not a pleasant thought for > any of us. > > I just wanted to share my experiences with you as a CFS (or CFIDS) > sufferer. > > I recently was in a position where I had to have 3 separate day procedures > in a period of 4 weeks, one being a D & C also. > > One of the anaesthetists was very helpful and said he would use a type of > anaesthetic that was helpful to people with cfs, so at least he > acknowledged > my condition, and that there was a different drug to use (that was for the > D & C). > > The other anaesthetists that saw for me the other 2 procedures didn't even > comment on the type of drug or my condition, cos they were in a hurry !! > > I must admit after having so many procedures in a short time, I felt pretty > awful anyway, but did notice that the D & C procedure wasn't as bad as I > expected, and I think I recovered better from that procedure. > > The other procedures involved taking out a polyp from the bowel, which > turned out to be cancerous unfortunately, and another procedure was to > tattoo the area where they removed the polyp so they could keep an eye on > that area for future growths. > > Four years ago I had to have a rapidly growing sarcoma removed from my left > hand side, and at that time I wasn't offered any choice in terms of > anaesthetic, but I guess in the last 4 years there is a lot more knowledge > about CFIDS. After that op, I recovered reasonably well, but I think the > B12 injections I was having really helped my body. > > Anyway, I don't know if any of the above helps, but best wishes for your op > and recovery. > > Regards, Elene > > _____ > > From: > [mailto: ] On Behalf Of Robbi > Sent: Wednesday, 9 November 2011 10:01 AM > > Subject: Re: Re: GI Upset > > > Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery after > just the 1/2 hour D & C made me so very ill. I thought about not proceeding > and just letting the cancer get me and then taking advantage of our states > death with dignity law. It's been a mess because none of the docs. except > my former cardiologist who studies Cheney's work gets how serious M.E. is > and he's at a conference now. My insurance changed so I don't really see > him anymore.(my good cardio., that is) > > I will go ahead though and will give anesthesiologists all the good CFS and > M.E. protocol info. I have. > > I told my husband to remarry if they lose me, someone healthy who will > love our developmentally disabled adult daughter who lives at > home, grandbabies and my very beloved dog. Might be a tall order! > You're so right about the proton pump inhibitors. I only used when my poor > stomach was just all torn up from acid as a last resort and it healed up as > I recovered from relapse that caused it, was able to go off, and it seemed > like just eating plain yogurt everyday kept stomach good for many years, > until now, alas. > > Best of luck to you and thank you for writing. I'll let you know how things > go, when I'm able. > > Love, Robbi > On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala <marti_zavala@... > <mailto:marti_zavala%40> >wrote: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Hi Deb, Thank you for your thoughts. I've been trying to do advocacy for our illness to be recognized just so we wouldn't find ourselves smack in the middle of the situation I am in. If I pull through I will continue the good fight. Somehow because of what's happening, I've had long lost friends coming out of the woodwork and others I've never met, like here, and it is so enheartening (? is that a word? I'm taking xanax for my anxiety, memory so bad) that others care so much. I'm hanging on to that. Take good care. Love, Robbi On Wed, Nov 9, 2011 at 5:25 AM, migde12000 <MigDe1@...> wrote: > ** > > > Robbi, > > So sorry you are going through this. Having CFS is enough without added > stress like surgery. Your post brought to light what I am sure others have > thought, but maybe not written. I hope all goes well for you and the > recovery is not overwhelming. Hugs to you. What you are going through made > me sad. Deb > > > > > > > > > > > ** > > > > > > > > > > > > > > > > > > Hello, > > > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > > > working as well as they previously had, I asked if she had anything > > > else I > > > > > could try. > > > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After > the > > > > > second day of using it, I started having gastric pain. After about > 5 > > > days, > > > > > I had to stop the Lexapro, because of a multitude of side-effects > > > (these > > > > > antidepressants are really horrible). > > > > > > > > > > However, the gastric pain has persisted. It feels like when you > haven't > > > > > eaten in a long time and your stomach feels like there is a big > hole > > > and > > > > > some burning. I have been on Nexium for one month (The dose was > > > increased > > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > > > I am having trouble eating as all foods and liquids (including > water) > > > seem > > > > > to irritate my stomach. > > > > > > > > > > I don't know what to do. I have never had gastric upset for 2 > months > > > > > straight and with no relief through medications. > > > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > > > Thank you. > > > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Hi Ellen, Yes, I've wondered about that--like they do for C-sections maybe. This is supposed to be a robotic assisted total hysterectomy with cancer staging so I don't know but will ask. I'm sorry you broke your hip--how painful and I know they are hard to heal. Thank you for your prayers and good thoughts. So very deeply appreciated. Take good care. Love, Robbi On Wed, Nov 9, 2011 at 5:58 AM, ellen <variegatedfoliage@...> wrote: > ** > > > Robbi, > > Find out if they can do a spinal for anesthesia. When I had surgery for a > broken hip, I had that, with " light sedation, " and it was better than > all-out general anesthesia. You might be able to get them to skip the light > sedation if you know you can stay calm and not talk the whole time. I'll be > praying that it goes well. > > Ellen > > > Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery after > just the 1/2 hour D & C made me so very ill. I thought about not proceeding > and just letting the cancer get me and then taking advantage of our states > death with dignity law. It's been a mess because none of the docs. except > my former cardiologist who studies Cheney's work gets how serious M.E. is > and he's at a conference now. My insurance changed so I don't really see > him anymore.(my good cardio., that is) > > I will go ahead though and will give anesthesiologists all the good CFS and > M.E. protocol info. I have. > > I told my husband to remarry if they lose me, someone healthy who will > love our developmentally disabled adult daughter who lives at > home, grandbabies and my very beloved dog. Might be a tall order! > You're so right about the proton pump inhibitors. I only used when my poor > stomach was just all torn up from acid as a last resort and it healed up as > I recovered from relapse that caused it, was able to go off, and it seemed > like just eating plain yogurt everyday kept stomach good for many years, > until now, alas. > > Best of luck to you and thank you for writing. I'll let you know how things > go, when I'm able. > > Love, Robbi > On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala <marti_zavala@... > >wrote: > > > ** > > > > > > > Hi Robbi, > > I am sorry to hear of your cancer. I hope that you have a quick recovery > > from the surgery. > > > > I wonder if you have given thought to the anesthesia issues that > > ME/CFIDSers have. I am not intimately familiar but I have heard of people > > choosing an anesthesia that is less harmful to our systems. > > > > Maybe someone can jump in here who has been through this. I have not done > > the research but just wanted to point that out in case you have not given > > it that much thought (with everything else you are going through). > > > > I would like to add a caution about proton pump inhibitors. They can > cause > > long term damage due to the reduced acid - osteoporosis, nutritional > > deficiencies, etc. I have used them long term and will not do that again. > > They are meant to be used as short term treatments to heal ulcers and > > esophogeal issues caused by acid reflux. > > > > I have found that the acidic sour stomach is best treated (for me) by > > ingesting vinegar, either pickles/pickle juice or apple cider vinegar. > > Using Tums or an antiacid seems to give very short term relief but then > > causes rebound acid. By adding acid to the stomach, it registers > sufficient > > acid through a feedback loop so the blood stops dumping excess acid to > the > > stomach. I read this somewhere years ago and tried it and it works. > > > > The only time I use antiacids is when I am having a pancreatic or gall > > bladder attack but then I wean off of them and use vinegar at the end of > > thee attack. Not sure what the mechanism is during pancreatitis but the > > vinegar trick does not work then. Have to go through antiacids or baking > > soda in large quantities then deal with the rebound acid after the attack > > is over. > > > > I am currently using Ranitidine for excess acid if I absolutely have to > > (famitodine works as well.) This is a benefit because ranitidine is an H2 > > blocker so it keeps my urticaria under control. > > > > Not sure if this is helpful, > > Marti > > > > > > > > > > > > > ** > > > > > > > > > > > > > > Hello, > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > > working as well as they previously had, I asked if she had anything > > else I > > > > could try. > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > > second day of using it, I started having gastric pain. After about 5 > > days, > > > > I had to stop the Lexapro, because of a multitude of side-effects > > (these > > > > antidepressants are really horrible). > > > > > > > > However, the gastric pain has persisted. It feels like when you > haven't > > > > eaten in a long time and your stomach feels like there is a big hole > > and > > > > some burning. I have been on Nexium for one month (The dose was > > increased > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > I am having trouble eating as all foods and liquids (including water) > > seem > > > > to irritate my stomach. > > > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > > straight and with no relief through medications. > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > Thank you. > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2011 Report Share Posted November 9, 2011 Thank you all for your input. I was already off gluten, dairy, sugar, eggs and fish. I was eating mostly meats, vegetables and gluten-free grains (buckwheat, quinoa, rice, corn). I can hardly tolerate any of that now. I don't know what to eat anymore...evrything gives me stomach pain. Question for Marti: You mentionned the vinegar. I know that the naturopaths always say that heartburn is caused by insufficient acid rather than too much and recommend vinegar. You truly found it to be effective? If it was so simple, we would never have invented acid-lowering drugs. Yannick > > > ** > > > > > > Hello, > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > working as well as they previously had, I asked if she had anything else I > > could try. > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > second day of using it, I started having gastric pain. After about 5 days, > > I had to stop the Lexapro, because of a multitude of side-effects (these > > antidepressants are really horrible). > > > > However, the gastric pain has persisted. It feels like when you haven't > > eaten in a long time and your stomach feels like there is a big hole and > > some burning. I have been on Nexium for one month (The dose was increased > > to 80mg per days 10 days ago) with no relief. > > > > I am having trouble eating as all foods and liquids (including water) seem > > to irritate my stomach. > > > > I don't know what to do. I have never had gastric upset for 2 months > > straight and with no relief through medications. > > > > Does anybody have any experience with this or any ideas? > > > > Thank you. > > > > Yannick > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 hi I have had the same crazy hunger pain for a couple months. Turns out it's h. pylori. I've had it before but don't remember it feeling like this. Another possibility is low stomach acid. You can do a simple belch test to check it. To perform this test: mix one quarter teaspoon of baking soda in eight ounces of cold water, first thing in the morning, before eating or drinking anything except water. Drink the baking soda solution. Time how long it takes to belch. Time up to five minutes. If you have not belched within five minutes stop timing anyway. If your stomach is producing adequate amounts of hydrochloric acid you should probably belch within two to three minutes. Early and repeated belching may be due to excessive stomach acid. Belching results from the acid and baking soda reacting to form carbon dioxide gas. The Heidelberg or Gastrocap tests can be employed for confirmation of the results of this test. hope this helps! > > Hello, > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not working as well as they previously had, I asked if she had anything else I could try. > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the second day of using it, I started having gastric pain. After about 5 days, I had to stop the Lexapro, because of a multitude of side-effects (these antidepressants are really horrible). > > However, the gastric pain has persisted. It feels like when you haven't eaten in a long time and your stomach feels like there is a big hole and some burning. I have been on Nexium for one month (The dose was increased to 80mg per days 10 days ago) with no relief. > > I am having trouble eating as all foods and liquids (including water) seem to irritate my stomach. > > I don't know what to do. I have never had gastric upset for 2 months straight and with no relief through medications. > > Does anybody have any experience with this or any ideas? > > Thank you. > > Yannick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 Here's a link to some info on the low stomach acid. http://www.drdebe.com/stomach-acid-assessment.html hi I have had the same crazy hunger pain for a couple months. Turns out it's h. pylori. I've had it before but don't remember it feeling like this. Another possibility is low stomach acid. You can do a simple belch test to check it. Here's a link to some info on that: http://www.drdebe.com/stomach-acid-assessment.html here's the belch test: To perform this test: mix one quarter teaspoon of baking soda in eight ounces of cold water, first thing in the morning, before eating or drinking anything except water. Drink the baking soda solution. Time how long it takes to belch. Time up to five minutes. If you have not belched within five minutes stop timing anyway. If your stomach is producing adequate amounts of hydrochloric acid you should probably belch within two to three minutes. Early and repeated belching may be due to excessive stomach acid. Belching results from the acid and baking soda reacting to form carbon dioxide gas. The Heidelberg or Gastrocap tests can be employed for confirmation of the results of this test. hope this helps! > > Hello, > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not working as well as they previously had, I asked if she had anything else I could try. > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the second day of using it, I started having gastric pain. After about 5 days, I had to stop the Lexapro, because of a multitude of side-effects (these antidepressants are really horrible). > > However, the gastric pain has persisted. It feels like when you haven't eaten in a long time and your stomach feels like there is a big hole and some burning. I have been on Nexium for one month (The dose was increased to 80mg per days 10 days ago) with no relief. > > I am having trouble eating as all foods and liquids (including water) seem to irritate my stomach. > > I don't know what to do. I have never had gastric upset for 2 months straight and with no relief through medications. > > Does anybody have any experience with this or any ideas? > > Thank you. > > Yannick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 Hi Yannick, Yes, I read it in a nurses medical reference or somesuch quite some time ago. It doesn't work for me when it is an attack of pancreatitis or gall bladder. I think it feels like heartburn or sour stomach but a different mechanism must be happening. But otherwise, staying away from anti-acids helps. Once I take a couple of dose of anti-acids, the sour stomach/heartburn is so much worse. Worse than before taking the anti-acids. I think it is called rebound acid. So, if you get off omeprozole or any of the proton pump inhibitors, you will have excess acid until it stabilizes. This is what I remember - the stomach has low acid so the bloodstream dumps acid to make the ph what it is supposed to be, therefore, excess acid. By adding vinegar, the feedback loop is stopped so the blood stops dumping excess acid. Yeah, it is that simple. Try it - if it makes the pain worse, then take some baking soda to neutralize. Marti > > > > > ** > > > > > > > > > Hello, > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > working as well as they previously had, I asked if she had anything else I > > > could try. > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > second day of using it, I started having gastric pain. After about 5 days, > > > I had to stop the Lexapro, because of a multitude of side-effects (these > > > antidepressants are really horrible). > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > eaten in a long time and your stomach feels like there is a big hole and > > > some burning. I have been on Nexium for one month (The dose was increased > > > to 80mg per days 10 days ago) with no relief. > > > > > > I am having trouble eating as all foods and liquids (including water) seem > > > to irritate my stomach. > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > straight and with no relief through medications. > > > > > > Does anybody have any experience with this or any ideas? > > > > > > Thank you. > > > > > > Yannick > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 Hi Robbie, Thanks for replying and being sympathetic! I guess it helps to know we are not alone in our suffering. So sorry to hear about your breast cancer - the radiation therapy is pretty horrendous and does harm you long term. I had 33 sessions of it after my sarcoma, and they had to do an area from my hip around to my spine, so it was fairly intense. Afterwards wasn't too bad, but a year down the track I developed a swollen hip area which has gotten worse year by year and nobody can do anything about it. They also think they may have damaged my bowel with all the radiotherapy hence my continuous bowel problems. I reckon with the radiotherapy - if it doesn't kill YOU - it must kill the cancer!! It's a horrendous thing to have and I feel sorry for anyone that has gone through it. The radiotherapy also seems to leave scarred areas or areas with swelling that continue to plague people. I'm sure the operation and the radiotherapy would have left your poor body feeling like crap and no doubt as time went past, your body had trouble coping with it all. I mean, it's great that they can get rid of the cancer - but honestly they leave us with wrecked bodies and no help for it. They are great here, but when you mention problems, they pretty much say " " oh but we got rid of your cancer " " and pat you on the head and send you on your merry way !! Sorry that you had bad probs with the D & C - I wonder if they were a bit rough with you? I had a colonoscopy a couple of years ago and had intense cramps and pain for the whole day afterwards and felt ill for days. I told the doctor this recently when I had to have another colonoscopy, and he said " " you need to have all the gas removed after the procedure, otherwise you get a lot of pain and cramps, and we make sure we do this " " " .. maybe that's what happened to you? I can imagine your trepidation with having a hysterectomy cos they are not a little operation, depending on how they are doing it. I wish you all the best with your op and hope that you get some sympathetic surgeons and anaesthetists who actually want to assist you. I guess all you can do afterwards is keep whinging at them ... sometimes they need that constant reminder that you are in pain, until they do something. Also, not sure how your system works in USA (I'm in Australia), but can you see different doctors if your pain persists or if you feel you are not being looked after? We are able to do that in Australia, thank goodness, cos sometimes it takes 3 doctors before you find one that actually will listen to what you have to say and try and help. Sometimes (being usually male surgeons) they are very unsympathetic about any procedures and think people should recover without any problems ! Good luck to you, and I will be sending you all my positive thoughts. It's lovely to see so many people writing to you and sending you positive encouragement and wishing you well. Nice to know there are still some " " real " " people in the world, who do give a damn .. a lot of them of course are in poor physical condition, so I guess we can relate to each other!! Love and best wishes, Elene xx _____ From: [mailto: ] On Behalf Of Robbi Sent: Thursday, 10 November 2011 2:00 AM Subject: Re: Re: GI Upset Hi Elene, Thank you for writing and your good advice. Goodness you have been through a lot and I hope and pray you are ok now. I am not sure why the D & C layed me so low. I had nausea and shaking chills for 4 weeks and it froze my intestinal tract to still I can't go to the bathroom w/o milk of magnesia so I wonder with fear what a hysterectomy will do. I had breast cancer 5 years ago with lumpectomy then mastectomy and I did quite well with surgeries but I was much healthier CFS (M.E.) wise and could go on up to a mile long walks back then. The radiation I think made me really bad for these 5 years or something changed my heart to where now I can't walk w/o chest pain. Still have good quality of life, feel mostly good if I stay well with in my limits, lots of various pain but bearable but now this big setback, ugh! Going to see anesthesiologists in advance and give them protocol info. and then just hope for the best. I will keep you in my thoughts and prayers too and that you continue to do well. Thank you so very much for writing. Love, Robbi On Tue, Nov 8, 2011 at 8:50 PM, bsam <bsam9848@... <mailto:bsam9848%40bigpond.net.au> > wrote: > ** > > > > > _____ > > Hi Robbi, > > Sorry to hear about your forthcoming operation - not a pleasant thought for > any of us. > > I just wanted to share my experiences with you as a CFS (or CFIDS) > sufferer. > > I recently was in a position where I had to have 3 separate day procedures > in a period of 4 weeks, one being a D & C also. > > One of the anaesthetists was very helpful and said he would use a type of > anaesthetic that was helpful to people with cfs, so at least he > acknowledged > my condition, and that there was a different drug to use (that was for the > D & C). > > The other anaesthetists that saw for me the other 2 procedures didn't even > comment on the type of drug or my condition, cos they were in a hurry !! > > I must admit after having so many procedures in a short time, I felt pretty > awful anyway, but did notice that the D & C procedure wasn't as bad as I > expected, and I think I recovered better from that procedure. > > The other procedures involved taking out a polyp from the bowel, which > turned out to be cancerous unfortunately, and another procedure was to > tattoo the area where they removed the polyp so they could keep an eye on > that area for future growths. > > Four years ago I had to have a rapidly growing sarcoma removed from my left > hand side, and at that time I wasn't offered any choice in terms of > anaesthetic, but I guess in the last 4 years there is a lot more knowledge > about CFIDS. After that op, I recovered reasonably well, but I think the > B12 injections I was having really helped my body. > > Anyway, I don't know if any of the above helps, but best wishes for your op > and recovery. > > Regards, Elene > > _____ > > From: <mailto:%40> > [mailto: <mailto:%40> ] On Behalf Of Robbi > Sent: Wednesday, 9 November 2011 10:01 AM > <mailto:%40> > Subject: Re: Re: GI Upset > > > Thank you, Marti, yeah I'm so scared... can't imagine 4 hour surgery after > just the 1/2 hour D & C made me so very ill. I thought about not proceeding > and just letting the cancer get me and then taking advantage of our states > death with dignity law. It's been a mess because none of the docs. except > my former cardiologist who studies Cheney's work gets how serious M.E. is > and he's at a conference now. My insurance changed so I don't really see > him anymore.(my good cardio., that is) > > I will go ahead though and will give anesthesiologists all the good CFS and > M.E. protocol info. I have. > > I told my husband to remarry if they lose me, someone healthy who will > love our developmentally disabled adult daughter who lives at > home, grandbabies and my very beloved dog. Might be a tall order! > You're so right about the proton pump inhibitors. I only used when my poor > stomach was just all torn up from acid as a last resort and it healed up as > I recovered from relapse that caused it, was able to go off, and it seemed > like just eating plain yogurt everyday kept stomach good for many years, > until now, alas. > > Best of luck to you and thank you for writing. I'll let you know how things > go, when I'm able. > > Love, Robbi > On Tue, Nov 8, 2011 at 10:14 AM, marti_zavala <marti_zavala@... <mailto:marti_zavala%40> > <mailto:marti_zavala%40> >wrote: > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 Marti- How much vinegar and how much baking soda do you take or recommend? ________________________________ From: marti_zavala <marti_zavala@...> Sent: Thursday, November 10, 2011 7:13 PM Subject: Re: GI Upset  Hi Yannick, Yes, I read it in a nurses medical reference or somesuch quite some time ago. It doesn't work for me when it is an attack of pancreatitis or gall bladder. I think it feels like heartburn or sour stomach but a different mechanism must be happening. But otherwise, staying away from anti-acids helps. Once I take a couple of dose of anti-acids, the sour stomach/heartburn is so much worse. Worse than before taking the anti-acids. I think it is called rebound acid. So, if you get off omeprozole or any of the proton pump inhibitors, you will have excess acid until it stabilizes. This is what I remember - the stomach has low acid so the bloodstream dumps acid to make the ph what it is supposed to be, therefore, excess acid. By adding vinegar, the feedback loop is stopped so the blood stops dumping excess acid. Yeah, it is that simple. Try it - if it makes the pain worse, then take some baking soda to neutralize. Marti > > > > > ** > > > > > > > > > Hello, > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > working as well as they previously had, I asked if she had anything else I > > > could try. > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > second day of using it, I started having gastric pain. After about 5 days, > > > I had to stop the Lexapro, because of a multitude of side-effects (these > > > antidepressants are really horrible). > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > eaten in a long time and your stomach feels like there is a big hole and > > > some burning. I have been on Nexium for one month (The dose was increased > > > to 80mg per days 10 days ago) with no relief. > > > > > > I am having trouble eating as all foods and liquids (including water) seem > > > to irritate my stomach. > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > straight and with no relief through medications. > > > > > > Does anybody have any experience with this or any ideas? > > > > > > Thank you. > > > > > > Yannick > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2011 Report Share Posted November 10, 2011 When it comes to vinegar, I use 2 tablespoons. Never more than an ounce. And I rarely, if ever, do a second dose. I use apple cider vinegar - Braggs. By the way, this dose is the same anti-viral dose to knock out the herpes family. The vinegar dissolves the lipid layer protecting the virus cell. Works if you follow a strict 8 hour timing. Herpes viruses (at least HSV 1 & 2) seems to replicate on 8 hour timeframe. I take Valtrex now but this worked okay when I didn't have insurance. The baking soda dose I use is double what the box says (1/2 tsp in 8 oz water -so I use 1 tsp in 8 oz water). this also just happens to be the dose for reducing lactic acid in your muscles (the first 1/2 tsp is used neutralizing the stomach acid and the remaining 1/2 tsp goes into your bloodstream then to your muscles. I discovered this when I researched how marathon and triathalon athletes recover from an event. doing the vinegar before a meal might also help your digestive system. when we start chewing, the stomach releases additional stomach acid but our population usually has trouble with this. HTH, Marti > > > > > > > ** > > > > > > > > > > > > Hello, > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > > working as well as they previously had, I asked if she had anything else I > > > > could try. > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > > second day of using it, I started having gastric pain. After about 5 days, > > > > I had to stop the Lexapro, because of a multitude of side-effects (these > > > > antidepressants are really horrible). > > > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > > eaten in a long time and your stomach feels like there is a big hole and > > > > some burning. I have been on Nexium for one month (The dose was increased > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > I am having trouble eating as all foods and liquids (including water) seem > > > > to irritate my stomach. > > > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > > straight and with no relief through medications. > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > Thank you. > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 Yes Braggs works, it helps me. The other thing that helps is kefir and Bubbies dill pickles or tomatoes........they are very high in probiotics. Before I started using these products I could not eat anything without getting GI trouble, now I can eat raw veggies, cooked cabbage, fruit, beans without difficulty. > > > > > > > > > ** > > > > > > > > > > > > > > > Hello, > > > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > > > working as well as they previously had, I asked if she had anything else I > > > > > could try. > > > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > > > second day of using it, I started having gastric pain. After about 5 days, > > > > > I had to stop the Lexapro, because of a multitude of side-effects (these > > > > > antidepressants are really horrible). > > > > > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > > > eaten in a long time and your stomach feels like there is a big hole and > > > > > some burning. I have been on Nexium for one month (The dose was increased > > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > > > I am having trouble eating as all foods and liquids (including water) seem > > > > > to irritate my stomach. > > > > > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > > > straight and with no relief through medications. > > > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > > > Thank you. > > > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2011 Report Share Posted November 11, 2011 Marti, you are fount of information. Thanks for posting this, I might give it a try myself. Marcia on in Salem, Massachusetts On Nov 10, 2011, at 9:07 PM, marti_zavala wrote: > > When it comes to vinegar, I use 2 tablespoons. Never more than an > ounce. And I rarely, if ever, do a second dose. I use apple cider > vinegar - Braggs. By the way, this dose is the same anti-viral dose > to knock out the herpes family. The vinegar dissolves the lipid > layer protecting the virus cell. Works if you follow a strict 8 hour > timing. Herpes viruses (at least HSV 1 & 2) seems to replicate on 8 > hour timeframe. I take Valtrex now but this worked okay when I > didn't have insurance. > > The baking soda dose I use is double what the box says (1/2 tsp in 8 > oz water -so I use 1 tsp in 8 oz water). this also just happens to > be the dose for reducing lactic acid in your muscles (the first 1/2 > tsp is used neutralizing the stomach acid and the remaining 1/2 tsp > goes into your bloodstream then to your muscles. I discovered this > when I researched how marathon and triathalon athletes recover from > an event. > > doing the vinegar before a meal might also help your digestive > system. when we start chewing, the stomach releases additional > stomach acid but our population usually has trouble with this. > > HTH, > Marti > > > > > > > > > > > ** > > > > > > > > > > > > > > > Hello, > > > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds > were not > > > > > working as well as they previously had, I asked if she had > anything else I > > > > > could try. > > > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. > After the > > > > > second day of using it, I started having gastric pain. After > about 5 days, > > > > > I had to stop the Lexapro, because of a multitude of side- > effects (these > > > > > antidepressants are really horrible). > > > > > > > > > > However, the gastric pain has persisted. It feels like when > you haven't > > > > > eaten in a long time and your stomach feels like there is a > big hole and > > > > > some burning. I have been on Nexium for one month (The dose > was increased > > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > > > I am having trouble eating as all foods and liquids > (including water) seem > > > > > to irritate my stomach. > > > > > > > > > > I don't know what to do. I have never had gastric upset for > 2 months > > > > > straight and with no relief through medications. > > > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > > > Thank you. > > > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2012 Report Share Posted January 28, 2012 Hi Marti, I'm interested in trying this. I hadn't heard about it being an anti-viral before, and I've got several members of the herpes family hitchhiking along in my body. It wasn't clear to me whether you add the baking soda to the same glass as the vinegar. Would the vinegar still be effective against the lipid layer when buffered by the baking soda? How crucial is it to take it on an empty stomach? Did you experience any die-off reactions when you first started taking this? If you add the baking soda, is it still a good idea to use a straw when drinking it to protect the enamel on your teeth? I'll probably think of more questions, but that's it for now. Thanks, Marcia on in Salem, Massachusetts On Nov 10, 2011, at 9:07 PM, marti_zavala wrote: > > When it comes to vinegar, I use 2 tablespoons. Never more than an ounce. And I rarely, if ever, do a second dose. I use apple cider vinegar - Braggs. By the way, this dose is the same anti-viral dose to knock out the herpes family. The vinegar dissolves the lipid layer protecting the virus cell. Works if you follow a strict 8 hour timing. Herpes viruses (at least HSV 1 & 2) seems to replicate on 8 hour timeframe. I take Valtrex now but this worked okay when I didn't have insurance. > > The baking soda dose I use is double what the box says (1/2 tsp in 8 oz water -so I use 1 tsp in 8 oz water). this also just happens to be the dose for reducing lactic acid in your muscles (the first 1/2 tsp is used neutralizing the stomach acid and the remaining 1/2 tsp goes into your bloodstream then to your muscles. I discovered this when I researched how marathon and triathalon athletes recover from an event. > > doing the vinegar before a meal might also help your digestive system. when we start chewing, the stomach releases additional stomach acid but our population usually has trouble with this. > > HTH, > Marti > > > > > > > > > > > ** > > > > > > > > > > > > > > > Hello, > > > > > > > > > > Almost 2 months ago I saw my GP. Since my usual sleep meds were not > > > > > working as well as they previously had, I asked if she had anything else I > > > > > could try. > > > > > > > > > > She prescribed an antidepressant (Lexapro). It is an SSRI. After the > > > > > second day of using it, I started having gastric pain. After about 5 days, > > > > > I had to stop the Lexapro, because of a multitude of side-effects (these > > > > > antidepressants are really horrible). > > > > > > > > > > However, the gastric pain has persisted. It feels like when you haven't > > > > > eaten in a long time and your stomach feels like there is a big hole and > > > > > some burning. I have been on Nexium for one month (The dose was increased > > > > > to 80mg per days 10 days ago) with no relief. > > > > > > > > > > I am having trouble eating as all foods and liquids (including water) seem > > > > > to irritate my stomach. > > > > > > > > > > I don't know what to do. I have never had gastric upset for 2 months > > > > > straight and with no relief through medications. > > > > > > > > > > Does anybody have any experience with this or any ideas? > > > > > > > > > > Thank you. > > > > > > > > > > Yannick > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.