Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 The amount of time I'm spending trying to get a handle on this protocol is bordering on ridiculous. I really don't know if I want to invest in the DVDs so I've been trying to piece the protocol together from the posts on autismanswer.com. Havign said that, there is a post called 'Starting the program' in the The Basics section which lists 7 steps. *** Hi , I have also had a hard time finding things on the Yasko list <www.autismanswer.com> Unfortunately, I think there is a learning curve that just takes time. Hopefully, the basic protocol will eventually be simplified and placed in one place or in one book. Until then, I guess we have to search through the trees trying to see the forest. I will try to answer your questions if you mail me at Vickie_ @ juno.com Best wishes -- Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 No, no! My renewed brain continues to delight me most of the time. I find I am still relatively vulnerable to emotional upset, though. That dampens my thinking. Adrienne Yasko List > > > I've been backchanelled about this so will bring it up. > > This list is my favorite on . I don't want to see its > fertility undermined and I don't want us to just stop discussing > Yasko/glutathione etc her cold turkey. > > OTOH there are a # of us who probably want to discuss our test results > and our protocols and what's working, in detail that the others may > not want. If so, should we start a co-moderated Yasko group (with at > least 3 of us as moderators since we all have health issues and NONE > of us are going to want to play the role Ken sometimes has had to on > this list). We could have a files section where our test results are > permanently available to view (I don't think I can have a signature > because I use ). > > General insights, news, Rich's thinking, and substantial improvements > like Sue's could be posted in both. Or perhaps, to help ease the > reading of those here, Rich could post a long post analyzing someone's > health history and test results, or whatever he likes to post, on > there, and a message here that he has just posted on there, for those > who like to read it. Or cross post if its encompassing enough. > > What I'm trying to suggest is that we create a both/and situation, > that still allows big, important, stuff about the whole > Yasko/glutathione issue to remain a lively topic on here without > exclusively dominating the list for those who have trouble > concentrating or reading, and to allow those of us interested in > orembarking on this as one of our approaches to discuss it in as much > detail as we want on a Yasko list. > > Again, I think that at least 3 of us should be comoderators. Maybe > Rich wouldn't mind being the first one (i.e the first and final > arbiter, because he gets along with everybody) who starts the list, > and a few others of us can volunteer because Rich isn't always > available to post. So asking him to do more is not the idea at all, > simply having him as a final arbiter should a few times a year, there > arise some thorny internet situation. I hope there's not but I've seen > even the best lists have such situations from time to time. > > I would think that to register for this list, which would be > moderated, we should use the format where you have to mention a > bit about who you are and why you want to join (i.e. this list should > just be for people who genuinely want to pursue this approach; not for > those who are skeptical or want to cut it down). > > This is my suggestion. Please chime in, I hope that is okay with Ken, > rather than backchanelling, if we take a few days to discuss this and > arrive at a solution that overall will benefit everybody. > > The reason I'm bringing this up is because a few folks backchanneled > me on it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2006 Report Share Posted September 2, 2006 Katrina, I was unaware there had been any recent epidemics. What is the latest info on that? Thanks, Adrienne ----- Original Message ----- From: kattemayo ... sudden onset, pathogen/toxin induced epidemic ME/CFS/CFIDS, which people are still being struck down with.... Recent Activity a.. 16New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Probably you could benefit from the archives? Just a suggestion. Adrienne Re: Yasko List Well, I am not really into any particular treatment agenda... I am into objective examination of what may work... I am exhausted with people pushing a particular treatment avenue, as it can be downright dangerous for some, ineffective for many... I do think that Rich has made such significant contribution, that he would be sorely missed, and he contributes much beyond the Yasko subject matter... So, I can skip the Yasko messages, is not applicable. But, I would like to see other treatment protocols, discussed, in much more depth.. Amelia > I agree with and Adrienne, if it's clear from the subject heading > that it's about Yasko people can skip it. > > Personally, I have difficulty reading, processing information etc and > am averse to deterministic genetic theories. Yet the Yasko discusssions > here have allowed me to understand (I think!) that Dr Yasko is only > using the gentic information as a tool to help underdstand possible > causes of Autism, CFS etc and to target interventions with greater > accuracy. > > There are no guarantees or silver bullets with any treatment but I'm > grateful to all those who have raised my awareness. > > > > > > >An informal agreement to use " Yasko " as part of ones heading could > also be the sign for those who may choose to skip reading the posts on > this topic to do so. > > It's easier to keep conversations to as few lists as possible at this > point, IMO. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Hi, Marilyn, I would like to encourage you to think that where there's a will, there's a way. I was all het up about getting the cardiovascular testing done, but it has taken me so long to get that together and now, voila, news comes that 90% of the people Cheney tests have the defect, so it begins to make sense to begin treating without testing. Most of that treatment is easy. Perhaps you have not grasped it, but I was pushing Rich, and so he came up with that list of questions he ask some folks which allow one to make inferences about the mutations and figure at least some of it out without testing. And now there is that very helpful clue, (it needs sorting out to be sure), that we adults don't even need her whole program. And the DAN! people are being less precise and getting results anyhow! HAve hope! I am trying to remeber to clean up my posts. Peace, Adrienne Re: Yasko List I think the Yasko stuff belongs on its own list, with perhaps an occasional update here as to what is going on. People interested in Yasko can subscribe to both. I would do the testing if I could afford it. THose like me with cognitive impairment and very low energy even find it difficult to find non Yasko stuff in DIgest mode..... this in addition to my frequent plea for folks to trim their posts. I've deleted about the last 15 digests without even opening them. I've been a member since about 2000 mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Hi all, Just wished to remind that it is also possible to automatically send the mail to deleted mails folder at outlook express by creating a rule.I can not read Yasko mails at this point but I don't think they are irrelevant to this list. bw Nil Re: Yasko List > Hi, Jill. > > > > I agree with Adrienne. An informal agreement to use " Yasko " as part of > ones heading could also be the sign for those who may choose to skip > reading the posts on this topic to do so. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 I picked that figure up here on the list. MAybe I misread, but I thought it was referring to the diastolic problem. Thanks, Adrienne Re: Yasko List > > > I think the Yasko stuff belongs on its own list, with perhaps an occasional > update here as to what is going on. People interested in Yasko can subscribe > to both. I would do the testing if I could afford it. > > THose like me with cognitive impairment and very low energy even find it > difficult to find non Yasko stuff in DIgest mode..... this in addition to my > frequent plea for folks to trim their posts. > > I've deleted about the last 15 digests without even opening them. > > I've been a member since about 2000 > > mjh > " The Basil Book " > http://foxhillfarm.us/FireBasil/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Katrina, Thanks. I really have, apparently, only a superficial understanding of the treatment. Aside from the porcine cells, I thought it was a matter of taking supplements. What are you talking about 24/7 feet elevated? If I am not moving around, mine already pretty much are, anyway. Not absolutely, but almost. Please, could you give a summary of whatever else I may be missing. I am quite clear that I have some level of heart involvement. Everytime I have been on an upswing, as now, increasing my activity led to chest pain or pressure or palpitations. In oct. when I returned from near sea-level to my regular altitude, I wound up a few days later in the emergency w. a diagnosis of angina. I know that is not the same as DD., but I do need to take care of my heart. Adrienne Re: Yasko List > > > > > > I think the Yasko stuff belongs on its own list, with perhaps an > occasional > > update here as to what is going on. People interested in Yasko > can subscribe > > to both. I would do the testing if I could afford it. > > > > THose like me with cognitive impairment and very low energy even > find it > > difficult to find non Yasko stuff in DIgest mode..... this in > addition to my > > frequent plea for folks to trim their posts. > > > > I've deleted about the last 15 digests without even opening them. > > > > I've been a member since about 2000 > > > > mjh > > " The Basil Book " > > http://foxhillfarm.us/FireBasil/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2006 Report Share Posted September 3, 2006 Helen, Yeah, we have discussed feet up before. I don't " do " lines except at the supermarket sometimes, and, rarely, at the movies. And I naturally shift around. And come to think of it, all that stuff that used to be so hard is less hard now. I have the computer at the side of my queen bed, use large fonts and am about 4+ feet from the screen. Long cord on keyboard, and using optical mouse which I can use on the bed surface- or my stomach, too. At church they set up a special corner for me; easy chair with straight chair in front so I can keep my feet up.:-). Am already injecting b12, Mag by mouth. Nexavir: shoot! I was tempted to order buffalo liver along with the heart, but I didn't listen to myself! Are you using injectible or transdermal gel? Is it very costly? Would the NADH be to enhance energy production? Thanks, Helen. Adrienne Re: Yasko List Adrienne: Popping in here, but I'm sure Katrina will reply too. My understanding of the heart problem is that something has weakened the mitochondria so the heart muscles are operating under an energy deficit, which worsens when the gravitational stress of being upright has to be dealt with. So Cheney told me to either recline or sit with my feet up 22 hours a day. My heart gets a whole lot worse on his machines when I'm tilted upright. Right now I am sitting at the computer with my feet on the edge of the seat and my knees bent up, reaching around then to type, and have done that for years. Looks weird as hell, but I was instinctively protecting my circulatory flow. Now I do it on purpose. Standing is to be avoided and one should move the legs, step forwards and back or to the side if caught standing in line or talking to someone, my personal nemesis when out in the world. Might look like you need to urinate, but if you have CFIDS, you probably do! Besides the pig cells, Cheney's top recommended treatments as of last April were B12, magnesium,(both injected) nexavir, and hawthorn. Number 5 was Enada NADH. Helen > > Katrina, > Thanks. I really have, apparently, only a superficial understanding of the treatment. Aside from the porcine cells, I thought it was a matter of taking supplements. What are you talking about 24/7 feet elevated? If I am not moving around, mine already pretty much are, anyway. Not absolutely, but almost. Please, could you give a summary of whatever else I may be missing. > I am quite clear that I have some level of heart involvement. Everytime I have been on an upswing, as now, increasing my activity led to chest pain or pressure or palpitations. In oct. when I returned from near sea-level to my regular altitude, I wound up a few days later in the emergency w. a diagnosis of angina. I know that is not the same as DD., but I do need to take care of my heart. > Adrienne > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.