Re: to a-- a thought on your relapses/ test for babesia

[Guest guest]

Sue, part of the problem of getting tested for babesia is that there are

like 17 strains with a test for one. I don't know if you test is at all

positive. My Lyme doc decided I probably had babesia because I do so well on

Zithromax. Also, my red blood cells look like babesia infection with dark

field microscopy. Who knows. He didn't even bother to test me, just added a

few months of Mepron to the mix.

a

[Guest guest]

Geez.

Have you taken a good look at the clinical literature on babesia? It

cannot be cleared with any of the drugs commonly in use. There was one

definitive experiment in dogs, where they cleared it completely or so

they thought, then passed that blood to uninfected dogs, and a bunch

of them became infected.

Therefore I think THAT is the key to your ongoing need of zihromax.

Mepron/zithromax does NOT usually clear it. People can even relapse on

9 months of it.

Check out the recent thread by liz28 on lyemenet. She usd primaquine

and then chloroquine. The latter is used for malaria. She had become

'immune' to the mepron/zith (ie her strain had). Within 2 hours of

chloroquine her babesia symptoms started to abate.

I know you feel relatively okay on permanent zithromax and that is

certainly one solution, but I just want to suggest that you might

consider a more aggressive babesia treatment, and that being the

underling cause of your need for antibiotics. You may also still have

lyme or it may simply be the babesia that flares when you go off the

zithromax.

>

> Sue, part of the problem of getting tested for babesia is that there are

> like 17 strains with a test for one. I don't know if you test is at all

> positive. My Lyme doc decided I probably had babesia because I do so

well on

> Zithromax. Also, my red blood cells look like babesia infection with

dark

> field microscopy. Who knows. He didn't even bother to test me, just

added a

> few months of Mepron to the mix.

>

>

>

> a

>

>

>

>

[Guest guest]

There are a few reasons I can't take Mepron . . My Liver defects won't allow for

it because of my CYP3A4 and that type of drug can cause seizure activity.

I tried the 4 day dose of Riamet(from Germany) a anti malaria drug used for

Babesia. I had huge brain problems at the times and did not know it was seizure

activity. Those antimicrobial are just too toxic for me. I also tried

Artemisin(?) . My liver enzymes went sky high. That is why I chose another

direction and now happy working with Yasko . .( I know there is no guarantee,

but it is my best road to follow for now)

Best wishes, Sue T

a Carnes <pj7@...> wrote:

Sue, part of the problem of getting tested for babesia is that there

are

like 17 strains with a test for one. I don't know if you test is at all

positive. My Lyme doc decided I probably had babesia because I do so well on

Zithromax. Also, my red blood cells look like babesia infection with dark

field microscopy. Who knows. He didn't even bother to test me, just added a

few months of Mepron to the mix.

a

[Guest guest]

Jill, I know I may still have babesia, but there isn't one thing I

can do about it. I cannot take any of the drugs you mention. Hey, I

can't even drink tonic water without getting severe tendon pain for

days. They are going to have to come up with something else that hits

babesia before I can get cured. This is another reason why Zithromax

looks good to me.

a

>

> Geez.

> Have you taken a good look at the clinical literature on babesia? It

> cannot be cleared with any of the drugs commonly in use. There was

one

> definitive experiment in dogs, where they cleared it completely or

so

> they thought, then passed that blood to uninfected dogs, and a bunch

> of them became infected.

>

> Therefore I think THAT is the key to your ongoing need of zihromax.

> Mepron/zithromax does NOT usually clear it. People can even relapse

on

> 9 months of it.

>

> Check out the recent thread by liz28 on lyemenet. She usd primaquine

> and then chloroquine. The latter is used for malaria. She had become

> 'immune' to the mepron/zith (ie her strain had). Within 2 hours of

> chloroquine her babesia symptoms started to abate.

>

> I know you feel relatively okay on permanent zithromax and that is

> certainly one solution, but I just want to suggest that you might

> consider a more aggressive babesia treatment, and that being the

> underling cause of your need for antibiotics. You may also still

have

> lyme or it may simply be the babesia that flares when you go off the

> zithromax.

>

>

> >

> > Sue, part of the problem of getting tested for babesia is that

there are

> > like 17 strains with a test for one. I don't know if you test is

at all

> > positive. My Lyme doc decided I probably had babesia because I do

so

> well on

> > Zithromax. Also, my red blood cells look like babesia infection

with

> dark

> > field microscopy. Who knows. He didn't even bother to test me,

just

> added a

> > few months of Mepron to the mix.

> >

> >

> >

> > a

> >

> >

> >

> >

[Guest guest]

I hear you, Sue. I have similar issues with quinolones, not liver but

CNS and tendons. So we shall see.

I wish you the best and will watch to see how you are doing.

a

>

> There are a few reasons I can't take Mepron . . My Liver defects

won't allow for it because of my CYP3A4 and that type of drug can

cause seizure activity.

> I tried the 4 day dose of Riamet(from Germany) a anti malaria

drug used for Babesia. I had huge brain problems at the times and did

not know it was seizure activity. Those antimicrobial are just too

toxic for me. I also tried Artemisin(?) . My liver enzymes went sky

high. That is why I chose another direction and now happy working

with Yasko . .( I know there is no guarantee, but it is my best road

to follow for now)

> Best wishes, Sue T

>

> a Carnes <pj7@...> wrote:

> Sue, part of the problem of getting tested for babesia is

that there are

> like 17 strains with a test for one. I don't know if you test is at

all

> positive. My Lyme doc decided I probably had babesia because I do

so well on

> Zithromax. Also, my red blood cells look like babesia infection

with dark

> field microscopy. Who knows. He didn't even bother to test me, just

added a

> few months of Mepron to the mix.

>

> a

>

>

[Guest guest]

I wish you the best too, a. I have a feeling lots of the neuro syptoms I

complain about are more than excitotoxins at times . . . I think it still may be

Babesia.

I'll keep you posted.

Sue T

pjeanneus <pj7@...> wrote:

I hear you, Sue. I have similar issues with quinolones, not liver but

CNS and tendons. So we shall see.

I wish you the best and will watch to see how you are doing.

a

>

> There are a few reasons I can't take Mepron . . My Liver defects

won't allow for it because of my CYP3A4 and that type of drug can

cause seizure activity.

> I tried the 4 day dose of Riamet(from Germany) a anti malaria

drug used for Babesia. I had huge brain problems at the times and did

not know it was seizure activity. Those antimicrobial are just too

toxic for me. I also tried Artemisin(?) . My liver enzymes went sky

high. That is why I chose another direction and now happy working

with Yasko . .( I know there is no guarantee, but it is my best road

to follow for now)

> Best wishes, Sue T

>

> a Carnes <pj7@...> wrote:

> Sue, part of the problem of getting tested for babesia is

that there are

> like 17 strains with a test for one. I don't know if you test is at

all

> positive. My Lyme doc decided I probably had babesia because I do

so well on

> Zithromax. Also, my red blood cells look like babesia infection

with dark

> field microscopy. Who knows. He didn't even bother to test me, just

added a

> few months of Mepron to the mix.

>

> a

>

>

[Guest guest]

Okay. Well, zithromax is good as a holding pattern for you, as is a

hyperbaric chamber for me.

But then we have to renew our efforts to combat babesia. Which brings

me back to the apicoplast. I had spoken to one of the top

guys/research centers, and downloaded a lot of PDF's but all into my

email...and my entire hard drive crashed last November. I had a backup

hard drive that saved everything on my " C " drive but not my emails. So

I lost a lot of good stuff in that arena.

Babesia should be vulnerable to drugs that target apicoplasts...there

are some, even orphan drugs. I lost all that info and I suppose I

should investigate it again.

Certain essential oils might do it, too.

I'm trying out a liposomal allicin right now.

> > >

> > > Sue, part of the problem of getting tested for babesia is that

> there are

> > > like 17 strains with a test for one. I don't know if you test is

> at all

> > > positive. My Lyme doc decided I probably had babesia because I do

> so

> > well on

> > > Zithromax. Also, my red blood cells look like babesia infection

> with

> > dark

> > > field microscopy. Who knows. He didn't even bother to test me,

> just

> > added a

> > > few months of Mepron to the mix.

> > >

> > >

> > >

> > > a

> > >

> > >

> > >

> > >

[Guest guest]

> Certain essential oils might do it, too.

> I'm trying out a liposomal allicin right now.

Of course. The problem is you will reach toxicity for your body before

you'll reach toxicity for the disseminated babesia.

Sylvie

[Guest guest]

I will reach toxicity for my body with liposomal allicin? I do not

think so. There is good research at Weissman Institute on allicin.

Not sure about essential oils but they treat many microbes effectively

without harming the host, except the ones with high amounts of phenols.

>

>

> > Certain essential oils might do it, too.

> > I'm trying out a liposomal allicin right now.

>

> Of course. The problem is you will reach toxicity for your body before

> you'll reach toxicity for the disseminated babesia.

>

> Sylvie

>

[Guest guest]

Jill and all

Essential oils are powerful tools and need to be used with knowledge of

appropriate use and safety in order to be effective.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

Not sure about essential oils but they treat many microbes effectively

without harming the host, except the ones with high amounts of phenols.

[Guest guest]

I spent a month recently reading, and taking extensive notes on, and

reading again, and taking notes on again, three arometherapy texts

which were fairly heavy on chemistry and research (such as it is--but

a lot of studies were cited). I'm not saying these are all gold

standard peer reviewed NEJM style studies, but there's no doubt that

essential oils can do a great deal to treat infection where

antibiotics fail and that when administered by a knowledgeable

professional are generally safe. There are not many knowledgeable

professionals here, there are far more in France and Germany (here, I

mean, America).

Also, Farah...I forget her last name, she posts on lymenet, she feels

she treated her lyme effectively with her essential oil formula. She

used it very high potency, more than generally recommended.

> >>

> >>

> >>> Certain essential oils might do it, too.

> >>> I'm trying out a liposomal allicin right now.

> >>

> >> Of course. The problem is you will reach toxicity for your body

before

> >> you'll reach toxicity for the disseminated babesia.

> >>

> >> Sylvie

> >>

>