Guest guest Posted July 31, 2006 Report Share Posted July 31, 2006 HI All, Those of you following Dr. Amy may be interested in reading this message posted from her today. I have permission to post this. It is a copy from her www.autsimanswer.com/forum. under the new adult section Sounds like she is working on a more specific program for " US " CFSers and may be a bit more simplified than what I have been following. Not sure yet. We'll see!! Best wishes, Sue T Dear Members of the Adult Section of this Discussion group, First, I want to give a warm welcome to all of you! For a number of years I concentrated on adult, neurological issues (ALS, MS, CFS, Parkinson's) before shifting my focus to the children and autism. The program that we currently use for autism is actually of variation of the program that was initially designed for adults. I find that autism is actually more complex than some of the issues I was addressing in adults, and as such the number of supplements/herbs/RNAs that we are using for the program has grown over time. I plan to make time over the next few weeks to pare down the program a bit so that it is more amenable to adults. In spite of the fact that we will ultimately use a more limited program for adults I urge you to take advantage of the information on this site that has been written for autism. Please take the time to really acquaint yourselves with the science. Please watch the DVDs, read the books, use the search feature, read the posts and the rules of the site. You are going to find that they are applicable and helpful to you. Along those lines, we have had a recent incident that was a bit of a misunderstanding between one of our new adult members and the way in which this site functions. I do feel badly about this miscommunication as anyone who has joined this site has done so because they are looking for support and help. The idea is not to create more stress but to relieve it! Perhaps if I include an excerpt from the post I sent back to this adult it will help to prevent any future misunderstandings… ....I think it is important for the group to understand that you can expect personal interactions with me. I am very involved in helping each and every person on our site to understand and implement the program. Due to the number of people on the site, it is impossible for me to respond to every person who posts a lengthy detailed background. This is not out of a lack of caring, simply due to the fact that I am one person and we have over 2000 people on the site all of whom need and want the kind of personal response and overview that a lengthy history requires. I try to address this in several ways, so that individuals on our site know that I am involved and that I do care about each and every one of you. First, we do limit the number of emails that I answer daily to 10 per day. These are picked by and I have complete trust in her judgment on the choices. I donate my time to answer these 10 daily and that can take several hours of my time each day. I also put personal comments on each and every test that is ordered through my office. I spend all day Tuesday and often times into Wednesday writing on each and every test. These comments are then emailed to you by my office staff. As with my answers to email posts there is no charge for my time for comments (there is a charge for the test itself). I also comment on nutrigenomic test results, hand writing comments on these lab reports. When we first started the chat room I was able to make the time to respond to long, personal posts for everyone. If I were to do that now for some, it would take away from my time to do what needs to be done to help a larger group. Rather than picking and choosing who I will choose to make personal individualized comments to, we draw the line in the sand so that I am free to answer the daily emails, comment on the tests, comment on the nutrigenomics as well as characterize additional SNPs to move this field forward. I have closed my personal practice in order to be able to donate all of this time. Finally, my inability to respond online to that type of a long involved personal history is one of the rules of the site. It would not be fair if I were to violate that rule for one individual; then each of the other 2000+ individuals would feel that I should do that for them, and clearly that is simply not possible.... In case any of our new adult members have not yet had a chance to read the rules they are limited and simple. We are basically here to support each other on an emotional level as well as sharing the science. For this reason I have a zero tolerance policy for negativity. That is actually my strictest rule! We try to share the science and " pay it forward " . You can expect personal interactions from me on a regular basis as well as love and hope for health, wellness and recovery for everyone on this site. Finally please remember that this is not a quick fix one supplement solution. It is a program. It works best if you take the time to understand it. As I write in the GARs….read it, learn it, live it. With love and hope and a warm welcome to the adults who have joined our site, Dr. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 I sure would like to follow this link, but like so many I receive from this list it doesn't work. Even after I remove the period at the end. Help? Adrienne Message for Adults from Dr. Amy HI All, Those of you following Dr. Amy may be interested in reading this message posted from her today. I have permission to post this. It is a copy from her www.autsimanswer.com/forum. under the new adult section Sounds like she is working on a more specific program for " US " CFSers and may be a bit more simplified than what I have been following. Not sure yet. We'll see!! Best wishes, Sue T Dear Members of the Adult Section of this Discussion group, First, I want to give a warm welcome to all of you! For a number of years I concentrated on adult, neurological issues (ALS, MS, CFS, Parkinson's) before shifting my focus to the children and autism. The program that we currently use for autism is actually of variation of the program that was initially designed for adults. I find that autism is actually more complex than some of the issues I was addressing in adults, and as such the number of supplements/herbs/RNAs that we are using for the program has grown over time. I plan to make time over the next few weeks to pare down the program a bit so that it is more amenable to adults. In spite of the fact that we will ultimately use a more limited program for adults I urge you to take advantage of the information on this site that has been written for autism. Please take the time to really acquaint yourselves with the science. Please watch the DVDs, read the books, use the search feature, read the posts and the rules of the site. You are going to find that they are applicable and helpful to you. Along those lines, we have had a recent incident that was a bit of a misunderstanding between one of our new adult members and the way in which this site functions. I do feel badly about this miscommunication as anyone who has joined this site has done so because they are looking for support and help. The idea is not to create more stress but to relieve it! Perhaps if I include an excerpt from the post I sent back to this adult it will help to prevent any future misunderstandings. ...I think it is important for the group to understand that you can expect personal interactions with me. I am very involved in helping each and every person on our site to understand and implement the program. Due to the number of people on the site, it is impossible for me to respond to every person who posts a lengthy detailed background. This is not out of a lack of caring, simply due to the fact that I am one person and we have over 2000 people on the site all of whom need and want the kind of personal response and overview that a lengthy history requires. I try to address this in several ways, so that individuals on our site know that I am involved and that I do care about each and every one of you. First, we do limit the number of emails that I answer daily to 10 per day. These are picked by and I have complete trust in her judgment on the choices. I donate my time to answer these 10 daily and that can take several hours of my time each day. I also put personal comments on each and every test that is ordered through my office. I spend all day Tuesday and often times into Wednesday writing on each and every test. These comments are then emailed to you by my office staff. As with my answers to email posts there is no charge for my time for comments (there is a charge for the test itself). I also comment on nutrigenomic test results, hand writing comments on these lab reports. When we first started the chat room I was able to make the time to respond to long, personal posts for everyone. If I were to do that now for some, it would take away from my time to do what needs to be done to help a larger group. Rather than picking and choosing who I will choose to make personal individualized comments to, we draw the line in the sand so that I am free to answer the daily emails, comment on the tests, comment on the nutrigenomics as well as characterize additional SNPs to move this field forward. I have closed my personal practice in order to be able to donate all of this time. Finally, my inability to respond online to that type of a long involved personal history is one of the rules of the site. It would not be fair if I were to violate that rule for one individual; then each of the other 2000+ individuals would feel that I should do that for them, and clearly that is simply not possible.... In case any of our new adult members have not yet had a chance to read the rules they are limited and simple. We are basically here to support each other on an emotional level as well as sharing the science. For this reason I have a zero tolerance policy for negativity. That is actually my strictest rule! We try to share the science and " pay it forward " . You can expect personal interactions from me on a regular basis as well as love and hope for health, wellness and recovery for everyone on this site. Finally please remember that this is not a quick fix one supplement solution. It is a program. It works best if you take the time to understand it. As I write in the GARs..read it, learn it, live it. With love and hope and a warm welcome to the adults who have joined our site, Dr. Amy This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 try www.autismanswer.com/forum Message for Adults from Dr. Amy HI All, Those of you following Dr. Amy may be interested in reading this message posted from her today. I have permission to post this. It is a copy from her www.autsimanswer.com/forum. under the new adult section Sounds like she is working on a more specific program for " US " CFSers and may be a bit more simplified than what I have been following. Not sure yet. We'll see!! Best wishes, Sue T Dear Members of the Adult Section of this Discussion group, First, I want to give a warm welcome to all of you! For a number of years I concentrated on adult, neurological issues (ALS, MS, CFS, Parkinson's) before shifting my focus to the children and autism. The program that we currently use for autism is actually of variation of the program that was initially designed for adults. I find that autism is actually more complex than some of the issues I was addressing in adults, and as such the number of supplements/herbs/RNAs that we are using for the program has grown over time. I plan to make time over the next few weeks to pare down the program a bit so that it is more amenable to adults. In spite of the fact that we will ultimately use a more limited program for adults I urge you to take advantage of the information on this site that has been written for autism. Please take the time to really acquaint yourselves with the science. Please watch the DVDs, read the books, use the search feature, read the posts and the rules of the site. You are going to find that they are applicable and helpful to you. Along those lines, we have had a recent incident that was a bit of a misunderstanding between one of our new adult members and the way in which this site functions. I do feel badly about this miscommunication as anyone who has joined this site has done so because they are looking for support and help. The idea is not to create more stress but to relieve it! Perhaps if I include an excerpt from the post I sent back to this adult it will help to prevent any future misunderstandings. ...I think it is important for the group to understand that you can expect personal interactions with me. I am very involved in helping each and every person on our site to understand and implement the program. Due to the number of people on the site, it is impossible for me to respond to every person who posts a lengthy detailed background. This is not out of a lack of caring, simply due to the fact that I am one person and we have over 2000 people on the site all of whom need and want the kind of personal response and overview that a lengthy history requires. I try to address this in several ways, so that individuals on our site know that I am involved and that I do care about each and every one of you. First, we do limit the number of emails that I answer daily to 10 per day. These are picked by and I have complete trust in her judgment on the choices. I donate my time to answer these 10 daily and that can take several hours of my time each day. I also put personal comments on each and every test that is ordered through my office. I spend all day Tuesday and often times into Wednesday writing on each and every test. These comments are then emailed to you by my office staff. As with my answers to email posts there is no charge for my time for comments (there is a charge for the test itself). I also comment on nutrigenomic test results, hand writing comments on these lab reports. When we first started the chat room I was able to make the time to respond to long, personal posts for everyone. If I were to do that now for some, it would take away from my time to do what needs to be done to help a larger group. Rather than picking and choosing who I will choose to make personal individualized comments to, we draw the line in the sand so that I am free to answer the daily emails, comment on the tests, comment on the nutrigenomics as well as characterize additional SNPs to move this field forward. I have closed my personal practice in order to be able to donate all of this time. Finally, my inability to respond online to that type of a long involved personal history is one of the rules of the site. It would not be fair if I were to violate that rule for one individual; then each of the other 2000+ individuals would feel that I should do that for them, and clearly that is simply not possible.... In case any of our new adult members have not yet had a chance to read the rules they are limited and simple. We are basically here to support each other on an emotional level as well as sharing the science. For this reason I have a zero tolerance policy for negativity. That is actually my strictest rule! We try to share the science and " pay it forward " . You can expect personal interactions from me on a regular basis as well as love and hope for health, wellness and recovery for everyone on this site. Finally please remember that this is not a quick fix one supplement solution. It is a program. It works best if you take the time to understand it. As I write in the GARs..read it, learn it, live it. With love and hope and a warm welcome to the adults who have joined our site, Dr. Amy This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 I got to the list of topics on the forum, but didn't see any new " Adult " forum. Is it staring me right in the face -- or on a second or third page??? d. > > try > > www.autismanswer.com/forum > > > > Message for Adults from Dr. Amy > > HI All, > > Those of you following Dr. Amy may be interested in reading this > message posted from her today. I have permission to post this. > > It is a copy from her www.autsimanswer.com/forum. > under the new adult section > > Sounds like she is working on a more specific program for " US " > CFSers and may be a bit more simplified than what I have been > following. > Not sure yet. We'll see!! > > Best wishes, Sue T > > Dear Members of the Adult Section of this Discussion group, > > First, I want to give a warm welcome to all of you! > > For a number of years I concentrated on adult, neurological issues > (ALS, MS, CFS, Parkinson's) before shifting my focus to the children > and autism. The program that we currently use for autism is actually > of variation of the program that was initially designed for adults. > I find that autism is actually more complex than some of the issues > I was addressing in adults, and as such the number of > supplements/herbs/RNAs that we are using for the program has grown > over time. > > I plan to make time over the next few weeks to pare down the program > a bit so that it is more amenable to adults. In spite of the fact > that we will ultimately use a more limited program for adults I urge > you to take advantage of the information on this site that has been > written for autism. Please take the time to really acquaint > yourselves with the science. Please watch the DVDs, read the books, > use the search feature, read the posts and the rules of the site. > You are going to find that they are applicable and helpful to you. > > Along those lines, we have had a recent incident that was a bit of a > misunderstanding between one of our new adult members and the way in > which this site functions. I do feel badly about this > miscommunication as anyone who has joined this site has done so > because they are looking for support and help. The idea is not to > create more stress but to relieve it! Perhaps if I include an > excerpt from the post I sent back to this adult it will help to > prevent any future misunderstandings. > > ...I think it is important for the group to understand that you can > expect personal interactions with me. I am very involved in helping > each and every person on our site to understand and implement the > program. Due to the number of people on the site, it is impossible > for me to respond to every person who posts a lengthy detailed > background. This is not out of a lack of caring, simply due to the > fact that I am one person and we have over 2000 people on the site > all of whom need and want the kind of personal response and overview > that a lengthy history requires. > > I try to address this in several ways, so that individuals on our > site know that I am involved and that I do care about each and every > one of you. First, we do limit the number of emails that I answer > daily to 10 per day. These are picked by and I have complete > trust in her judgment on the choices. I donate my time to answer > these 10 daily and that can take several hours of my time each day. > I also put personal comments on each and every test that is ordered > through my office. I spend all day Tuesday and often times into > Wednesday writing on each and every test. These comments are then > emailed to you by my office staff. As with my answers to email posts > there is no charge for my time for comments (there is a charge for > the test itself). I also comment on nutrigenomic test results, hand > writing comments on these lab reports. > > When we first started the chat room I was able to make the time to > respond to long, personal posts for everyone. If I were to do that > now for some, it would take away from my time to do what needs to be > done to help a larger group. Rather than picking and choosing who I > will choose to make personal individualized comments to, we draw the > line in the sand so that I am free to answer the daily emails, > comment on the tests, comment on the nutrigenomics as well as > characterize additional SNPs to move this field forward. I have > closed my personal practice in order to be able to donate all of > this time. > > Finally, my inability to respond online to that type of a long > involved personal history is one of the rules of the site. It would > not be fair if I were to violate that rule for one individual; then > each of the other 2000+ individuals would feel that I should do that > for them, and clearly that is simply not possible.... > > In case any of our new adult members have not yet had a chance to > read the rules they are limited and simple. We are basically here to > support each other on an emotional level as well as sharing the > science. For this reason I have a zero tolerance policy for > negativity. That is actually my strictest rule! We try to share the > science and " pay it forward " . You can expect personal interactions > from me on a regular basis as well as love and hope for health, > wellness and recovery for everyone on this site. > > Finally please remember that this is not a quick fix one supplement > solution. It is a program. It works best if you take the time to > understand it. As I write in the GARs..read it, learn it, live it. > > With love and hope and a warm welcome to the adults who have joined > our site, > Dr. Amy > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 My brother in law is paralyzed at this point with ALS. Do you think it would benefit him to research Yasko's work. Anyone? " Adrienne G. " <duckblossm@...> wrote: I sure would like to follow this link, but like so many I receive from this list it doesn't work. Even after I remove the period at the end. Help? Adrienne Message for Adults from Dr. Amy HI All, Those of you following Dr. Amy may be interested in reading this message posted from her today. I have permission to post this. It is a copy from her www.autsimanswer.com/forum. under the new adult section Sounds like she is working on a more specific program for " US " CFSers and may be a bit more simplified than what I have been following. Not sure yet. We'll see!! Best wishes, Sue T Dear Members of the Adult Section of this Discussion group, First, I want to give a warm welcome to all of you! For a number of years I concentrated on adult, neurological issues (ALS, MS, CFS, Parkinson's) before shifting my focus to the children and autism. The program that we currently use for autism is actually of variation of the program that was initially designed for adults. I find that autism is actually more complex than some of the issues I was addressing in adults, and as such the number of supplements/herbs/RNAs that we are using for the program has grown over time. I plan to make time over the next few weeks to pare down the program a bit so that it is more amenable to adults. In spite of the fact that we will ultimately use a more limited program for adults I urge you to take advantage of the information on this site that has been written for autism. Please take the time to really acquaint yourselves with the science. Please watch the DVDs, read the books, use the search feature, read the posts and the rules of the site. You are going to find that they are applicable and helpful to you. Along those lines, we have had a recent incident that was a bit of a misunderstanding between one of our new adult members and the way in which this site functions. I do feel badly about this miscommunication as anyone who has joined this site has done so because they are looking for support and help. The idea is not to create more stress but to relieve it! Perhaps if I include an excerpt from the post I sent back to this adult it will help to prevent any future misunderstandings. ....I think it is important for the group to understand that you can expect personal interactions with me. I am very involved in helping each and every person on our site to understand and implement the program. Due to the number of people on the site, it is impossible for me to respond to every person who posts a lengthy detailed background. This is not out of a lack of caring, simply due to the fact that I am one person and we have over 2000 people on the site all of whom need and want the kind of personal response and overview that a lengthy history requires. I try to address this in several ways, so that individuals on our site know that I am involved and that I do care about each and every one of you. First, we do limit the number of emails that I answer daily to 10 per day. These are picked by and I have complete trust in her judgment on the choices. I donate my time to answer these 10 daily and that can take several hours of my time each day. I also put personal comments on each and every test that is ordered through my office. I spend all day Tuesday and often times into Wednesday writing on each and every test. These comments are then emailed to you by my office staff. As with my answers to email posts there is no charge for my time for comments (there is a charge for the test itself). I also comment on nutrigenomic test results, hand writing comments on these lab reports. When we first started the chat room I was able to make the time to respond to long, personal posts for everyone. If I were to do that now for some, it would take away from my time to do what needs to be done to help a larger group. Rather than picking and choosing who I will choose to make personal individualized comments to, we draw the line in the sand so that I am free to answer the daily emails, comment on the tests, comment on the nutrigenomics as well as characterize additional SNPs to move this field forward. I have closed my personal practice in order to be able to donate all of this time. Finally, my inability to respond online to that type of a long involved personal history is one of the rules of the site. It would not be fair if I were to violate that rule for one individual; then each of the other 2000+ individuals would feel that I should do that for them, and clearly that is simply not possible.... In case any of our new adult members have not yet had a chance to read the rules they are limited and simple. We are basically here to support each other on an emotional level as well as sharing the science. For this reason I have a zero tolerance policy for negativity. That is actually my strictest rule! We try to share the science and " pay it forward " . You can expect personal interactions from me on a regular basis as well as love and hope for health, wellness and recovery for everyone on this site. Finally please remember that this is not a quick fix one supplement solution. It is a program. It works best if you take the time to understand it. As I write in the GARs..read it, learn it, live it. With love and hope and a warm welcome to the adults who have joined our site, Dr. Amy This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Yes . . . I do. She has treated all type of Neuro issues in adults. That is where she started many years ago. Sue T Edy Rayfield <edyrayfield@...> wrote: My brother in law is paralyzed at this point with ALS. Do you think it would benefit him to research Yasko's work. Anyone? " Adrienne G. " <duckblossm@...> wrote: I sure would like to follow this link, but like so many I receive from this list it doesn't work. Even after I remove the period at the end. Help? Adrienne Message for Adults from Dr. Amy HI All, Those of you following Dr. Amy may be interested in reading this message posted from her today. I have permission to post this. It is a copy from her www.autsimanswer.com/forum. under the new adult section Sounds like she is working on a more specific program for " US " CFSers and may be a bit more simplified than what I have been following. Not sure yet. We'll see!! Best wishes, Sue T Dear Members of the Adult Section of this Discussion group, First, I want to give a warm welcome to all of you! For a number of years I concentrated on adult, neurological issues (ALS, MS, CFS, Parkinson's) before shifting my focus to the children and autism. The program that we currently use for autism is actually of variation of the program that was initially designed for adults. I find that autism is actually more complex than some of the issues I was addressing in adults, and as such the number of supplements/herbs/RNAs that we are using for the program has grown over time. I plan to make time over the next few weeks to pare down the program a bit so that it is more amenable to adults. In spite of the fact that we will ultimately use a more limited program for adults I urge you to take advantage of the information on this site that has been written for autism. Please take the time to really acquaint yourselves with the science. Please watch the DVDs, read the books, use the search feature, read the posts and the rules of the site. You are going to find that they are applicable and helpful to you. Along those lines, we have had a recent incident that was a bit of a misunderstanding between one of our new adult members and the way in which this site functions. I do feel badly about this miscommunication as anyone who has joined this site has done so because they are looking for support and help. The idea is not to create more stress but to relieve it! Perhaps if I include an excerpt from the post I sent back to this adult it will help to prevent any future misunderstandings. ....I think it is important for the group to understand that you can expect personal interactions with me. I am very involved in helping each and every person on our site to understand and implement the program. Due to the number of people on the site, it is impossible for me to respond to every person who posts a lengthy detailed background. This is not out of a lack of caring, simply due to the fact that I am one person and we have over 2000 people on the site all of whom need and want the kind of personal response and overview that a lengthy history requires. I try to address this in several ways, so that individuals on our site know that I am involved and that I do care about each and every one of you. First, we do limit the number of emails that I answer daily to 10 per day. These are picked by and I have complete trust in her judgment on the choices. I donate my time to answer these 10 daily and that can take several hours of my time each day. I also put personal comments on each and every test that is ordered through my office. I spend all day Tuesday and often times into Wednesday writing on each and every test. These comments are then emailed to you by my office staff. As with my answers to email posts there is no charge for my time for comments (there is a charge for the test itself). I also comment on nutrigenomic test results, hand writing comments on these lab reports. When we first started the chat room I was able to make the time to respond to long, personal posts for everyone. If I were to do that now for some, it would take away from my time to do what needs to be done to help a larger group. Rather than picking and choosing who I will choose to make personal individualized comments to, we draw the line in the sand so that I am free to answer the daily emails, comment on the tests, comment on the nutrigenomics as well as characterize additional SNPs to move this field forward. I have closed my personal practice in order to be able to donate all of this time. Finally, my inability to respond online to that type of a long involved personal history is one of the rules of the site. It would not be fair if I were to violate that rule for one individual; then each of the other 2000+ individuals would feel that I should do that for them, and clearly that is simply not possible.... In case any of our new adult members have not yet had a chance to read the rules they are limited and simple. We are basically here to support each other on an emotional level as well as sharing the science. For this reason I have a zero tolerance policy for negativity. That is actually my strictest rule! We try to share the science and " pay it forward " . You can expect personal interactions from me on a regular basis as well as love and hope for health, wellness and recovery for everyone on this site. Finally please remember that this is not a quick fix one supplement solution. It is a program. It works best if you take the time to understand it. As I write in the GARs..read it, learn it, live it. With love and hope and a warm welcome to the adults who have joined our site, Dr. Amy This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Hi d, Try " Parents and Adult " section. The sections are in alphabetical order. Best wishes, Sue T kdrbrill <kdrbrill@...> wrote: I got to the list of topics on the forum, but didn't see any new " Adult " forum. Is it staring me right in the face -- or on a second or third page??? d. > > try > > www.autismanswer.com/forum > > > > Message for Adults from Dr. Amy > > HI All, > > Those of you following Dr. Amy may be interested in reading this > message posted from her today. I have permission to post this. > > It is a copy from her www.autsimanswer.com/forum. > under the new adult section > > Sounds like she is working on a more specific program for " US " > CFSers and may be a bit more simplified than what I have been > following. > Not sure yet. We'll see!! > > Best wishes, Sue T > > Dear Members of the Adult Section of this Discussion group, > > First, I want to give a warm welcome to all of you! > > For a number of years I concentrated on adult, neurological issues > (ALS, MS, CFS, Parkinson's) before shifting my focus to the children > and autism. The program that we currently use for autism is actually > of variation of the program that was initially designed for adults. > I find that autism is actually more complex than some of the issues > I was addressing in adults, and as such the number of > supplements/herbs/RNAs that we are using for the program has grown > over time. > > I plan to make time over the next few weeks to pare down the program > a bit so that it is more amenable to adults. In spite of the fact > that we will ultimately use a more limited program for adults I urge > you to take advantage of the information on this site that has been > written for autism. Please take the time to really acquaint > yourselves with the science. Please watch the DVDs, read the books, > use the search feature, read the posts and the rules of the site. > You are going to find that they are applicable and helpful to you. > > Along those lines, we have had a recent incident that was a bit of a > misunderstanding between one of our new adult members and the way in > which this site functions. I do feel badly about this > miscommunication as anyone who has joined this site has done so > because they are looking for support and help. The idea is not to > create more stress but to relieve it! Perhaps if I include an > excerpt from the post I sent back to this adult it will help to > prevent any future misunderstandings. > > ...I think it is important for the group to understand that you can > expect personal interactions with me. I am very involved in helping > each and every person on our site to understand and implement the > program. Due to the number of people on the site, it is impossible > for me to respond to every person who posts a lengthy detailed > background. This is not out of a lack of caring, simply due to the > fact that I am one person and we have over 2000 people on the site > all of whom need and want the kind of personal response and overview > that a lengthy history requires. > > I try to address this in several ways, so that individuals on our > site know that I am involved and that I do care about each and every > one of you. First, we do limit the number of emails that I answer > daily to 10 per day. These are picked by and I have complete > trust in her judgment on the choices. I donate my time to answer > these 10 daily and that can take several hours of my time each day. > I also put personal comments on each and every test that is ordered > through my office. I spend all day Tuesday and often times into > Wednesday writing on each and every test. These comments are then > emailed to you by my office staff. As with my answers to email posts > there is no charge for my time for comments (there is a charge for > the test itself). I also comment on nutrigenomic test results, hand > writing comments on these lab reports. > > When we first started the chat room I was able to make the time to > respond to long, personal posts for everyone. If I were to do that > now for some, it would take away from my time to do what needs to be > done to help a larger group. Rather than picking and choosing who I > will choose to make personal individualized comments to, we draw the > line in the sand so that I am free to answer the daily emails, > comment on the tests, comment on the nutrigenomics as well as > characterize additional SNPs to move this field forward. I have > closed my personal practice in order to be able to donate all of > this time. > > Finally, my inability to respond online to that type of a long > involved personal history is one of the rules of the site. It would > not be fair if I were to violate that rule for one individual; then > each of the other 2000+ individuals would feel that I should do that > for them, and clearly that is simply not possible.... > > In case any of our new adult members have not yet had a chance to > read the rules they are limited and simple. We are basically here to > support each other on an emotional level as well as sharing the > science. For this reason I have a zero tolerance policy for > negativity. That is actually my strictest rule! We try to share the > science and " pay it forward " . You can expect personal interactions > from me on a regular basis as well as love and hope for health, > wellness and recovery for everyone on this site. > > Finally please remember that this is not a quick fix one supplement > solution. It is a program. It works best if you take the time to > understand it. As I write in the GARs..read it, learn it, live it. > > With love and hope and a warm welcome to the adults who have joined > our site, > Dr. Amy > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2006 Report Share Posted August 1, 2006 Dear Edy, So sorry about your brother-in-law. When I saw Kane she told me that people with ALS responded very well, and quickly, to her program. She said CFIDS people took longer. As I posted a few days ago, I wasn't able to continue her program myself. Anyway, I thought I should throw this information out there. Best regards, Michele G I sure would like to follow this link, but like so many I receive from this list it doesn't work. Even after I remove the period at the end. > Help? > Adrienne > Message for Adults from Dr. Amy > > HI All, > > Those of you following Dr. Amy may be interested in reading this > message posted from her today. I have permission to post this. > > It is a copy from her www.autsimanswer.com/forum. > under the new adult section > > Sounds like she is working on a more specific program for " US " > CFSers and may be a bit more simplified than what I have been > following. > Not sure yet. We'll see!! > > Best wishes, Sue T > > Dear Members of the Adult Section of this Discussion group, > > First, I want to give a warm welcome to all of you! > > For a number of years I concentrated on adult, neurological issues > (ALS, MS, CFS, Parkinson's) before shifting my focus to the children > and autism. The program that we currently use for autism is actually > of variation of the program that was initially designed for adults. > I find that autism is actually more complex than some of the issues > I was addressing in adults, and as such the number of > supplements/herbs/RNAs that we are using for the program has grown > over time. > > I plan to make time over the next few weeks to pare down the program > a bit so that it is more amenable to adults. In spite of the fact > that we will ultimately use a more limited program for adults I urge > you to take advantage of the information on this site that has been > written for autism. Please take the time to really acquaint > yourselves with the science. Please watch the DVDs, read the books, > use the search feature, read the posts and the rules of the site. > You are going to find that they are applicable and helpful to you. > > Along those lines, we have had a recent incident that was a bit of a > misunderstanding between one of our new adult members and the way in > which this site functions. I do feel badly about this > miscommunication as anyone who has joined this site has done so > because they are looking for support and help. The idea is not to > create more stress but to relieve it! Perhaps if I include an > excerpt from the post I sent back to this adult it will help to > prevent any future misunderstandings. > > ...I think it is important for the group to understand that you can > expect personal interactions with me. I am very involved in helping > each and every person on our site to understand and implement the > program. Due to the number of people on the site, it is impossible > for me to respond to every person who posts a lengthy detailed > background. This is not out of a lack of caring, simply due to the > fact that I am one person and we have over 2000 people on the site > all of whom need and want the kind of personal response and overview > that a lengthy history requires. > > I try to address this in several ways, so that individuals on our > site know that I am involved and that I do care about each and every > one of you. First, we do limit the number of emails that I answer > daily to 10 per day. These are picked by and I have complete > trust in her judgment on the choices. I donate my time to answer > these 10 daily and that can take several hours of my time each day. > I also put personal comments on each and every test that is ordered > through my office. I spend all day Tuesday and often times into > Wednesday writing on each and every test. These comments are then > emailed to you by my office staff. As with my answers to email posts > there is no charge for my time for comments (there is a charge for > the test itself). I also comment on nutrigenomic test results, hand > writing comments on these lab reports. > > When we first started the chat room I was able to make the time to > respond to long, personal posts for everyone. If I were to do that > now for some, it would take away from my time to do what needs to be > done to help a larger group. Rather than picking and choosing who I > will choose to make personal individualized comments to, we draw the > line in the sand so that I am free to answer the daily emails, > comment on the tests, comment on the nutrigenomics as well as > characterize additional SNPs to move this field forward. I have > closed my personal practice in order to be able to donate all of > this time. > > Finally, my inability to respond online to that type of a long > involved personal history is one of the rules of the site. It would > not be fair if I were to violate that rule for one individual; then > each of the other 2000+ individuals would feel that I should do that > for them, and clearly that is simply not possible.... > > In case any of our new adult members have not yet had a chance to > read the rules they are limited and simple. We are basically here to > support each other on an emotional level as well as sharing the > science. For this reason I have a zero tolerance policy for > negativity. That is actually my strictest rule! We try to share the > science and " pay it forward " . You can expect personal interactions > from me on a regular basis as well as love and hope for health, > wellness and recovery for everyone on this site. > > Finally please remember that this is not a quick fix one supplement > solution. It is a program. It works best if you take the time to > understand it. As I write in the GARs..read it, learn it, live it. > > With love and hope and a warm welcome to the adults who have joined > our site, > Dr. Amy > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Hi there, Sorry to hear about your brother in-law's ALS. It amazes me how little the medical field has learned about the treatment of this horrible disease in the past 80 years. VIT E, and various oils such as hemp along with Omega-3, folic Acid, and VIT B6/B12 are among some of the things people with ALS try. Also have you read the stories about Lorenzo's oil ? Very interesting. Best wishes... I sure would like to follow this link, but like so many I receive from this list it doesn't work. Even after I remove the period at the end. > Help? > Adrienne > Message for Adults from Dr. Amy > > HI All, > > Those of you following Dr. Amy may be interested in reading this > message posted from her today. I have permission to post this. > > It is a copy from her www.autsimanswer.com/forum. > under the new adult section > > Sounds like she is working on a more specific program for " US " > CFSers and may be a bit more simplified than what I have been > following. > Not sure yet. We'll see!! > > Best wishes, Sue T > > Dear Members of the Adult Section of this Discussion group, > > First, I want to give a warm welcome to all of you! > > For a number of years I concentrated on adult, neurological issues > (ALS, MS, CFS, Parkinson's) before shifting my focus to the children > and autism. The program that we currently use for autism is actually > of variation of the program that was initially designed for adults. > I find that autism is actually more complex than some of the issues > I was addressing in adults, and as such the number of > supplements/herbs/RNAs that we are using for the program has grown > over time. > > I plan to make time over the next few weeks to pare down the program > a bit so that it is more amenable to adults. In spite of the fact > that we will ultimately use a more limited program for adults I urge > you to take advantage of the information on this site that has been > written for autism. Please take the time to really acquaint > yourselves with the science. Please watch the DVDs, read the books, > use the search feature, read the posts and the rules of the site. > You are going to find that they are applicable and helpful to you. > > Along those lines, we have had a recent incident that was a bit of a > misunderstanding between one of our new adult members and the way in > which this site functions. I do feel badly about this > miscommunication as anyone who has joined this site has done so > because they are looking for support and help. The idea is not to > create more stress but to relieve it! Perhaps if I include an > excerpt from the post I sent back to this adult it will help to > prevent any future misunderstandings. > > ...I think it is important for the group to understand that you can > expect personal interactions with me. I am very involved in helping > each and every person on our site to understand and implement the > program. Due to the number of people on the site, it is impossible > for me to respond to every person who posts a lengthy detailed > background. This is not out of a lack of caring, simply due to the > fact that I am one person and we have over 2000 people on the site > all of whom need and want the kind of personal response and overview > that a lengthy history requires. > > I try to address this in several ways, so that individuals on our > site know that I am involved and that I do care about each and every > one of you. First, we do limit the number of emails that I answer > daily to 10 per day. These are picked by and I have complete > trust in her judgment on the choices. I donate my time to answer > these 10 daily and that can take several hours of my time each day. > I also put personal comments on each and every test that is ordered > through my office. I spend all day Tuesday and often times into > Wednesday writing on each and every test. These comments are then > emailed to you by my office staff. As with my answers to email posts > there is no charge for my time for comments (there is a charge for > the test itself). I also comment on nutrigenomic test results, hand > writing comments on these lab reports. > > When we first started the chat room I was able to make the time to > respond to long, personal posts for everyone. If I were to do that > now for some, it would take away from my time to do what needs to be > done to help a larger group. Rather than picking and choosing who I > will choose to make personal individualized comments to, we draw the > line in the sand so that I am free to answer the daily emails, > comment on the tests, comment on the nutrigenomics as well as > characterize additional SNPs to move this field forward. I have > closed my personal practice in order to be able to donate all of > this time. > > Finally, my inability to respond online to that type of a long > involved personal history is one of the rules of the site. It would > not be fair if I were to violate that rule for one individual; then > each of the other 2000+ individuals would feel that I should do that > for them, and clearly that is simply not possible.... > > In case any of our new adult members have not yet had a chance to > read the rules they are limited and simple. We are basically here to > support each other on an emotional level as well as sharing the > science. For this reason I have a zero tolerance policy for > negativity. That is actually my strictest rule! We try to share the > science and " pay it forward " . You can expect personal interactions > from me on a regular basis as well as love and hope for health, > wellness and recovery for everyone on this site. > > Finally please remember that this is not a quick fix one supplement > solution. It is a program. It works best if you take the time to > understand it. As I write in the GARs..read it, learn it, live it. > > With love and hope and a warm welcome to the adults who have joined > our site, > Dr. Amy > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
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