Re: Dr shoes makers VCS test and Abx/cholestyramene and ME/Lyme/Fibro

[Guest guest]

,

I was on Dr. Shoemakers' RX cholestyramine prescribed by an ophthalmologist

(for CFS). I was on it for a week. I got really sick. I am bipolar and it

was interfering

w/my other meds. I threw it all out, along with blood tests that even the

local hospital and my MD's never heard of. Also bought books recommended

and tossed them into the bin.

Carole

Dr shoes makers VCS test and Abx/cholestyramene

and ME/Lyme/Fibro

>I was reading Dr Shoemakers site chronicneurotoxins.com where he

> claims to have all the answers to chronic illnesses like

> ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are caused

> by neurotoxins affecting the brain and body.

>

> So, has anyone been cured by him who had a diagnosis of one of the

> above, well he says they have. If it was a simple matter of taking abx

> and cholestyramine, everyone would be better by now wouldn't they?

>

> I am not saying he is wrong but wouldnt doctors have sorted this out

> by now and if up-to-date people like AW are using his protocol why

> isnt everyone getting better then? Or are they?

>

>

>

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

well Meirleir told me in Brussels that the RNasel Ratio correlated

with the type of bug you've had and for a virus it had to be greater

than 10. Mine was 2.3 or something like that so he suggested

mycoplasma as my problem.

Now some people have said they get results with antivirals (HHV6 and

Parvovirus 19 for example), but others have said they tried them and

it didnt work.

Can you see what I am getting at? What with the other types of bugs

like lyme, ciguatera etc

are there many types of ME/CFS/Fibro perhaps? Or do viruses let off

neurotoxins too and it therefore is indeed just neurotoxins that are

the problem?

>

> ,

> I was on Dr. Shoemakers' RX cholestyramine prescribed by an

ophthalmologist

> (for CFS). I was on it for a week. I got really sick. I am

bipolar and it

> was interfering

> w/my other meds. I threw it all out, along with blood tests that

even the

> local hospital and my MD's never heard of. Also bought books

recommended

> and tossed them into the bin.

>

> Carole

>

>

> Dr shoes makers VCS test and

Abx/cholestyramene

> and ME/Lyme/Fibro

>

>

> >I was reading Dr Shoemakers site chronicneurotoxins.com where he

> > claims to have all the answers to chronic illnesses like

> > ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are

caused

> > by neurotoxins affecting the brain and body.

> >

> > So, has anyone been cured by him who had a diagnosis of one of

the

> > above, well he says they have. If it was a simple matter of

taking abx

> > and cholestyramine, everyone would be better by now wouldn't

they?

> >

> > I am not saying he is wrong but wouldnt doctors have sorted this

out

> > by now and if up-to-date people like AW are using his protocol

why

> > isnt everyone getting better then? Or are they?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal experiences

with each

> > other, not to give medical advice. If you are interested in any

treatment

> > discussed here, please consult your doctor.

> >

[Guest guest]

,

I have talked with Dr. Shoemaker and also went to see him as a

patient. He has a lot of good ideas and does research on them as to

what causes cfs and chronic Lyme. He readily admits he doesn't have

the cure. This is partly true because the products needed are not

invented yet. For instance MSH, melanocyte stimulating hormone, is

only sold in China. There are some pharmas developing it in the US

and Australia.

a Carnes

>

> I was reading Dr Shoemakers site chronicneurotoxins.com where he

> claims to have all the answers to chronic illnesses like

> ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are

caused

> by neurotoxins affecting the brain and body.

>

> So, has anyone been cured by him who had a diagnosis of one of the

> above, well he says they have. If it was a simple matter of taking

abx

> and cholestyramine, everyone would be better by now wouldn't they?

>

> I am not saying he is wrong but wouldnt doctors have sorted this

out

> by now and if up-to-date people like AW are using his protocol why

> isnt everyone getting better then? Or are they?

>

>

>

[Guest guest]

a

What's the MSH supposed to do then?

>

> ,

> I have talked with Dr. Shoemaker and also went to see him as a

> patient. He has a lot of good ideas and does research on them as

to

> what causes cfs and chronic Lyme. He readily admits he doesn't

have

> the cure. This is partly true because the products needed are not

> invented yet. For instance MSH, melanocyte stimulating hormone, is

> only sold in China. There are some pharmas developing it in the US

> and Australia.

>

> a Carnes

>

> >

> > I was reading Dr Shoemakers site chronicneurotoxins.com where he

> > claims to have all the answers to chronic illnesses like

> > ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are

> caused

> > by neurotoxins affecting the brain and body.

> >

> > So, has anyone been cured by him who had a diagnosis of one of

the

> > above, well he says they have. If it was a simple matter of

taking

> abx

> > and cholestyramine, everyone would be better by now wouldn't

they?

> >

> > I am not saying he is wrong but wouldnt doctors have sorted this

> out

> > by now and if up-to-date people like AW are using his protocol

why

> > isnt everyone getting better then? Or are they?

> >

> >

> >

>

[Guest guest]

I took the test, tested positive for biotoxins, last July was negative.

My dr. (a D.O. at our Fibro and Fatigue Center asked me to do the test.

Since it was positive, she has done more lab work to get more specific

results. I'm not sure if she uses the same protocol as Dr. shoemaker, the

labs won't be in for awhile. I'll be interested in hearing too, if anyone

else has good results.

Diane in MI

> I was reading Dr Shoemakers site chronicneurotoxins.com where he

> claims to have all the answers to chronic illnesses like

> ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are caused

> by neurotoxins affecting the brain and body.

> >

>

>

>

>

>

[Guest guest]

It's not a simple matter of taking abx and CSM, and Dr. S doesn't say

it is. His book Mold Warriors discusses many different treatment

options, and different tests that most doctors aren't even familiar

with. This includes genetic testing, which according to his theories,

can indicate which people are mold-susceptible or Lyme-susceptible or

multiply-susceptible and thus more likely to develop CFS.

I think it's worth getting the $25 book to check out his ideas and

approaches in detail (most of which are not on the website). Of course

he doesn't cover everything--he doesn't even discuss heavy metals and

glutathione, for example--but he covers ground that nobody else has, it

seems to me from my limited research. My guess is that generally

people who dismiss his approach haven't done the testing or treatments

he suggests, because they are expensive and time-consuming and it's

difficult to find a doctor (other than him) who can deal with them.

Also, supplemental MSH, which he claims may be necessary for some

people's recovery, isn't available in the U.S. yet. The sick building

forum on talks about his work some, maybe other forums do so more.

If CFS, Lyme, mold or MCS are affecting you, I think Shoemaker is worth

looking into. And if you're open to trying the CSM, consider this

pharmacy that compounds it without sweeteners, and consider that taking

it for 45 days (as one doctor suggested to me) may be required for a

fair trial:

www.hopkintondrug.com

By the way, who is AW?

>

> I was reading Dr Shoemakers site chronicneurotoxins.com where he

> claims to have all the answers to chronic illnesses like

> ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are caused

> by neurotoxins affecting the brain and body.

>

> So, has anyone been cured by him who had a diagnosis of one of the

> above, well he says they have. If it was a simple matter of taking

abx

> and cholestyramine, everyone would be better by now wouldn't they?

>

> I am not saying he is wrong but wouldnt doctors have sorted this out

> by now and if up-to-date people like AW are using his protocol why

> isnt everyone getting better then? Or are they?

>

>

>

[Guest guest]

Hi , the answer is it's not that simple. I am on the Shoemaker

protocol which /is/ more complicated than just one treatment,

cholestryramine. If you have the blood work done, you could identify

which HLA genetic type you are and then determine what treatments work.

I am one of the 25% of the poulation that is mold toxin (neurotoxin)

sensitive. It's a major part of my CFS. However, there are other things

wrong with me as well, defects in the detox pathways. So, if you are

looking for simple one treatment solutions (a magic bullet) then you may

be disappointed by any treatment. I would suggest Richie Shoemaker's

book " Mold Warriors " which is on Amazon.com for starters. The

cholestryramine has helped with some neurological and gut problems I had

(have). Unfortunately, for me, I still have to work on finding " magic

bullets " to correct other genetic flaws. Many CFSers have found

glutathione to be an important treatment, too. Joanee

martin19671967 wrote:

>I was reading Dr Shoemakers site chronicneurotoxins.com where he

>claims to have all the answers to chronic illnesses like

>ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are caused

>by neurotoxins affecting the brain and body.

>

>So, has anyone been cured by him who had a diagnosis of one of the

>above, well he says they have. If it was a simple matter of taking abx

>and cholestyramine, everyone would be better by now wouldn't they?

>

>I am not saying he is wrong but wouldnt doctors have sorted this out

>by now and if up-to-date people like AW are using his protocol why

>isnt everyone getting better then? Or are they?

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Carole & Simon, too bad. I also experienced considerable " brain fog "

when I tried cholestryramine (CSM).

Then my physician explained that it should be taken 2 hours after other

meds, as it binds with them. Then he gave me a custom compounded

cholestryramine that had ingredients to counteract known side effects of

the drug, such as constipation and bloatiing. Then he said to take

mini-doses, working up to standard dose. It worked! Joanee

Carole & Simon wrote:

>,

>I was on Dr. Shoemakers' RX cholestyramine prescribed by an ophthalmologist

>(for CFS). I was on it for a week. I got really sick. I am bipolar and it

>was interfering

>w/my other meds. I threw it all out, along with blood tests that even the

>local hospital and my MD's never heard of. Also bought books recommended

>and tossed them into the bin.

>

>Carole

>

>

>

[Guest guest]

Hi Joanee

What test did you do to find out that you are among the 25 % mold

sensitive. What regulates this ? What can be done about it ?

thanks

Per

> Hi , the answer is it's not that simple. I am on the Shoemaker

> protocol which /is/ more complicated than just one treatment,

> cholestryramine. If you have the blood work done, you could identify

> which HLA genetic type you are and then determine what treatments work.

> I am one of the 25% of the poulation that is mold toxin (neurotoxin)

> sensitive. It's a major part of my CFS. However, there are other things

> wrong with me as well, defects in the detox pathways. So, if you are

> looking for simple one treatment solutions (a magic bullet) then you

may

> be disappointed by any treatment. I would suggest Richie Shoemaker's

> book " Mold Warriors " which is on Amazon.com for starters. The

> cholestryramine has helped with some neurological and gut problems I

had

> (have). Unfortunately, for me, I still have to work on finding " magic

> bullets " to correct other genetic flaws. Many CFSers have found

> glutathione to be an important treatment, too. Joanee

> martin19671967 wrote:

>

> >I was reading Dr Shoemakers site chronicneurotoxins.com where he

> >claims to have all the answers to chronic illnesses like

> >ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are caused

> >by neurotoxins affecting the brain and body.

> >

> >So, has anyone been cured by him who had a diagnosis of one of the

> >above, well he says they have. If it was a simple matter of taking abx

> >and cholestyramine, everyone would be better by now wouldn't they?

> >

> >I am not saying he is wrong but wouldnt doctors have sorted this out

> >by now and if up-to-date people like AW are using his protocol why

> >isnt everyone getting better then? Or are they?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

[Guest guest]

Hi, it's called an HLA test and it is part of Richie Shoemaker's

protocol for treating mold sensitive people.

The first step in this protocol is an inexpensive test online at:

http://www.chronicneurotoxins.com/registration/index.cfm. If you get an

abnormal response, then order the book " Mold Warriors " at Amazon.com. Joanee

per h wrote:

>Hi Joanee

>

>What test did you do to find out that you are among the 25 % mold

>sensitive. What regulates this ? What can be done about it ?

>thanks

>

>Per

>

>

>

>

>>Hi , the answer is it's not that simple. I am on the Shoemaker

>>protocol which /is/ more complicated than just one treatment,

>>cholestryramine. If you have the blood work done, you could identify

>>which HLA genetic type you are and then determine what treatments work.

>>I am one of the 25% of the poulation that is mold toxin (neurotoxin)

>>sensitive. It's a major part of my CFS. However, there are other things

>>wrong with me as well, defects in the detox pathways. So, if you are

>>looking for simple one treatment solutions (a magic bullet) then you

>>

>>

>may

>

>

>>be disappointed by any treatment. I would suggest Richie Shoemaker's

>>book " Mold Warriors " which is on Amazon.com for starters. The

>>cholestryramine has helped with some neurological and gut problems I

>>

>>

>had

>

>

>>(have). Unfortunately, for me, I still have to work on finding " magic

>>bullets " to correct other genetic flaws. Many CFSers have found

>>glutathione to be an important treatment, too. Joanee

>>martin19671967 wrote:

>>

>>

>>

>>>I was reading Dr Shoemakers site chronicneurotoxins.com where he

>>>claims to have all the answers to chronic illnesses like

>>>ME/Fibro/Ciguatera/Sick builing syndrome ets and that they are caused

>>>by neurotoxins affecting the brain and body.

>>>

>>>So, has anyone been cured by him who had a diagnosis of one of the

>>>above, well he says they have. If it was a simple matter of taking abx

>>>and cholestyramine, everyone would be better by now wouldn't they?

>>>

>>>I am not saying he is wrong but wouldnt doctors have sorted this out

>>>by now and if up-to-date people like AW are using his protocol why

>>>isnt everyone getting better then? Or are they?

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

>>>

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