Re: Cardiomyopathy - could it cause the weight gain?

[Guest guest]

When my body is acting in this manner, I take some Horsechestnut and

Butcher's broom. Helps in just a few days. I also take grapeseed extract to

support the blood vessels.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

_Cardiomyopathy - could it cause the weight gain? _

(http://us.lrd./_ylc=X3oDMTJwcWFycmxrBF9TAzk3MzU5NzE1BGdycElkAzkxNTc0BG\

dycHNwSWQDMTYwMDA2MTY0NQ

Rtc2dJZAM5OTc0NwRzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMTUwNDg2Mjc1;_ylg=1/SIG=1226

c65a4/**/message/99747)

Posted by: " annette barclay " _al_barclayuk@... _

(mailto:al_barclayuk@...?Subject=Re: Cardiomyopathy - could it cause the

weight gain?)

_al_barclayuk _ (al_barclayuk)

Fri Jun 16, 2006 9:34 am (PST)

Hi everyone,

I was thinking again about the weight gain side of ME and CFS. Managed to

get out into the sunshine briefly and got asked (yet again) about my

" pregnancy " .

Could a cardiac problem be causing some of this? I feel so full of water

that at times my stomach " swishes " like a hot-water bottle.

Read about someone with cardiomyopathy in a newspaper and it mentioned

bloating and swelling esp. in the abdomen and the ankles.

Could the type of heart problems described by Dr Cheney cause these symptoms?

I'm in the UK so that means I'm without access to a Cardiologist who would

take this seriously and I cannot afford private care.

Here's a snip from one website

<snip>

What are the symptoms?

Shortness of breath during exercise may be the first symptom you notice. As

the condition progresses and heart failure develops, you may have difficulty

breathing with even slight exertion. You may feel weak and tired. Many people

have swollen legs from fluid retention (edema). A buildup of fluid around

your liver, stomach, and intestines can cause bloating, nausea, and poor

appetite

<snip>

Kindest regards,

Annette

[Guest guest]

Hi MJH,

I've had no luck with those remedies. It so strange.

Thank you for your contributions to this group!

Kindest regards,

Annette

---------------------------------

Try the all-new . " The New Version is radically easier to use " –

The Wall Street Journal

[Guest guest]

Annette-I am no expert, but I have looked into the cardiomyopathy

(CM)

symptoms and this is what I believe. If you have some CM, you are

going to be by definition less active than you were previosly, so

if you don't cut down your calorie intake, you will most definetely

gain weight. However, if you look at the symptom list of CM from

your message below, poor appetite is one. So that would be good

news if your appetite is still good-at least in one sense that

your CM isn't too bad, or you don't have CM at all.

The bottom line is that if you are less active for whatever reason,

you will need to eat less to keep from gaining weight.

Mike C.

In , annette barclay

<al_barclayuk@...> wrote:

>

> Hi everyone,

>

> I was thinking again about the weight gain side of ME and CFS.

Managed to get out into the sunshine briefly and got asked (yet

again) about my " pregnancy " .

>

> Could a cardiac problem be causing some of this? I feel so full

of water that at times my stomach " swishes " like a hot-water bottle.

>

> Read about someone with cardiomyopathy in a newspaper and it

mentioned bloating and swelling esp. in the abdomen and the ankles.

>

> Could the type of heart problems described by Dr Cheney cause

these symptoms?

>

> I'm in the UK so that means I'm without access to a Cardiologist

who would take this seriously and I cannot afford private care.

>

> Here's a snip from one website

>

> <snip>

> What are the symptoms?

> Shortness of breath during exercise may be the first symptom you

notice. As the condition progresses and heart failure develops, you

may have difficulty breathing with even slight exertion. You may

feel weak and tired. Many people have swollen legs from fluid

retention (edema). A buildup of fluid around your liver, stomach,

and intestines can cause bloating, nausea, and poor appetite

> <snip>

>

> Kindest regards,

> Annette

>

>

> ---------------------------------

> Inbox full of spam? Get leading spam protection and 1GB storage

with All New .

>

>

[Guest guest]

Annette

Frequently with supplements as with pharmaceuticals the trick is finding the

right dose and the right form and sticking to it long enough to take effect.

My five year oddesey with Magnesium really drove that point home to me.--

Sorry these herbs-- Horsechestnut and Butcher's broom-- were not helpful to

you.

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

_Re: Cardiomyopathy - could it cause the weight gain? _

(http://us.lrd./_ylc=X3oDMTJwdjdlNW1iBF9TAzk3MzU5NzE1BGdycElkAzkxNTc0BG\

dycHNwSWQDMTYwMDA2MT

Y0NQRtc2dJZAM5OTc3MQRzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMTUwNTQwNjM0;_ylg=1/SIG=

122j2un9k/**/message/99771)

Posted by: " annette barclay " _al_barclayuk@... _

(mailto:al_barclayuk@...?Subject= Re: Cardiomyopathy - could it cause

the weight gain?)

_al_barclayuk _ (al_barclayuk)

Fri Jun 16, 2006 2:56 pm (PST)

Hi MJH,

I've had no luck with those remedies. It so strange.

Thank you for your contributions to this group!

Kindest regards,

Annette

[Guest guest]

Hi Mike,

Thank you very much for your reply. My appetite is OK nomally but when the

abdominal swelling/bloating is particuarly bad it does suffer.

The reason I have stopped considering food as THE reason for my

swelling/weight gain is that I picked up a bacterial bug a year or so ago. After

every meal (and sometimes during) I had severe pain and diahorea. This happened

for months and when blood tests were taken my vitamin levels were low.

The Gastro I saw couldn't understand why I hadn't lost weight. Everyone around

me could understand why I hadn't lost weight as my interest in food plummeted.

After particuarly bad bouts of diahorea when I lost a lot of water, my abdomen

did got down but my legs and ankles remain very swollen.

So, I've given up on the idea that what is happening is " inactivity + food =

weight gain " . The other reason I've suspected that it isn't related is because

when I was stupid enough to do graded exercise programs I also didn't lose

weight.

Kindest regards,

Annette

---------------------------------

The all-new goes wherever you go - free your email address from

your Internet provider.

[Guest guest]

OK, not to alarm you but to me the swelling in your ankles is

a troubling sign, maybe of low cardiac output. Have you been put

on a diuretic? I am also assuming that your weight gain is not

just in your swollen ankles and legs, that it is up higher.

I just read somewhere that low metabolism is the reason for fatigue

in CFS, so you may be suffering from low CO and low metabolism,

which may be related. The issue is very complex, but if I were

you I would try to get an answer about your swelling.

Additionally, your inability to tolerate any exercise could be

due to low CO and/or metabolism issues.

Mike C-obviously, not a medical expert

>

> Hi Mike,

>

> Thank you very much for your reply. >

>

> After particuarly bad bouts of diahorea when I lost a lot of

water, my abdomen did got down but my legs and ankles remain very

swollen.

>

> So, I've given up on the idea that what is happening

is " inactivity + food = weight gain " . The other reason I've

suspected that it isn't related is because when I was stupid enough

to do graded exercise programs I also didn't lose weight.

>

> Kindest regards,

> Annette

[Guest guest]

On Jun 17, 2006, at 3:37 AM, annette barclay wrote:

> Hi Mike,

>

> Thank you very much for your reply. My appetite is OK nomally but

> when the abdominal swelling/bloating is particuarly bad it does

> suffer.

>

> The reason I have stopped considering food as THE reason for my

> swelling/weight gain is that I picked up a bacterial bug a year or

> so ago. After every meal (and sometimes during) I had severe pain

> and diahorea. This happened for months and when blood tests were

> taken my vitamin levels were low.

>

> The Gastro I saw couldn't understand why I hadn't lost weight.

> Everyone around me could understand why I hadn't lost weight as my

> interest in food plummeted.

>

> After particuarly bad bouts of diahorea when I lost a lot of

> water, my abdomen did got down but my legs and ankles remain very

> swollen.

>

> So, I've given up on the idea that what is happening is

> " inactivity + food = weight gain " . The other reason I've suspected

> that it isn't related is because when I was stupid enough to do

> graded exercise programs I also didn't lose weight.

Have you had your heart and kidneys checked? This kind of water

weight retention can be indicative of both organs in failure. And

doctors are notoriously awful at recognizing these conditions in

women (we have different symptoms than men -- water retention being

one of them -- and since men are the medical " norm, " our unique

symptoms are glossed over as insignficant), so we often go completely

undiagnosed until very late in the game.

There's a great lay summary of the heart issues in CFS at <http://

www.cfids-cab.org/MESA/Cheney.pdf>.

Sara

[Guest guest]

Hi Annette,

It's my first time posting-so bear with me if I make a

mistake.

As I sit here-after a few hours on the

computer-sitting in the upright position-I am suddenly

suffering one of my own ongoing extreme stomach

bloating/swelling episodes.

I have been having these bloating/swelling stomach

episodes for approximately the last five years of my

17 year bout with fibromyalgia/cfs.

The one thing I did different at that time when the

first bad bloating episodes began was to take a

regimen of antibiotics every day for a " supposed "

diagnosis of chronic lyme disease.

Now, the first thought for some (and even myself)

would seem to be that the antibiotics were the

cause-along with possible candida/yeast overgrowth and

dysbiosis that is known to possibly follow.

I was always (and still am) on a very good probiotic

in high amounts though-and never had a womanly yeast

infection or thrush the whole time I was on

antibiotics. (Still have had no overt yeast infections

to this day after four years of antibiotics.

Also, my extreme bloating episodes never had anything

to do with my eating as many doctors like to mention

as the cause.

My bloating always had and still comes with activity

or use of the body. For example, sitting in the

upright position today for too long while on the

computer. It doesn't seem like exercise to be sitting

up for a few hours-but we forget how much we use all

of our body's muscles by sitting up. Of course-add to

this the fact of my and most of our

conditions-fibromyalgia/cfs.

Another example is-I can walk in and out of a few

stores or back and forth to the car and be fine for

awhile. Then, as happened two nights ago-I walked into

a Wal-Mart and after just walking a little more-my

stomach swelled out-bam!

So, at least for me Anette, it seems to come with

being in the upright positions of sitting up and

walking.

Now, if you read Dr. Cheney's work about the heart

problems in folks with cfs-he explains that we do

better laying down then upright-(there's a real

technical/medical reason for this but I'm so fatigued

right now I can't recall-but sure somewhere here can

fill us in-or go to Cheney's site and read the heart

stuff.)

Also, I researched on my own and found out that in

some forms of heart problems you will have swelling

not only in your feet and ankles-but also in your

stomach. Thus, water retention in your stomach can be

related to heart problems and I've read that people

who have the problem along with their heart problems

take diuretics and sometimes loose five to ten pounds

of water weight within a few days.

Also, I have high Angiotensin II which is not good in

the heart realm and researched it and found out that a

high level can cause you to retain water also.

Well, sorry to go on so long. But though I feel awful

for u-it is interesting to know at least one other

person out there that is similar to me in this stomach

thing. I can literally bloat up to four to six inches

extra around my waist in a matter of minutes only due

to a little waling or sitting (and not from eating).

If you find anything else out let me know.

I am going to have my heart checked out next month and

hopefully get into a stomach doc also.

Keep us posted.

Sincerely,

Gena

--- annette barclay <al_barclayuk@...> wrote:

> Hi Mike,

>

> Thank you very much for your reply. My appetite is

> OK nomally but when the abdominal swelling/bloating

> is particuarly bad it does suffer.

>

> The reason I have stopped considering food as THE

> reason for my swelling/weight gain is that I picked

> up a bacterial bug a year or so ago. After every

> meal (and sometimes during) I had severe pain and

> diahorea. This happened for months and when blood

> tests were taken my vitamin levels were low.

>

> The Gastro I saw couldn't understand why I hadn't

> lost weight. Everyone around me could understand why

> I hadn't lost weight as my interest in food

> plummeted.

>

> After particuarly bad bouts of diahorea when I

> lost a lot of water, my abdomen did got down but my

> legs and ankles remain very swollen.

>

> So, I've given up on the idea that what is

> happening is " inactivity + food = weight gain " . The

> other reason I've suspected that it isn't related is

> because when I was stupid enough to do graded

> exercise programs I also didn't lose weight.

>

> Kindest regards,

> Annette

>

>

>

> ---------------------------------

> The all-new goes wherever you go - free

> your email address from your Internet provider.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Mike,

Thank you so much for your replies. It's just such a major problem being in

the UK and unable to get any treatment from a ME-friendly doctor.

As soon as the NHS hear about M.E. they refuse to do any investigations and

they refuse to even make eye contact..... My GP writes a referel letter and it

always has a short medical history.

I had an idea of someone who may be able to advise. Dr Vance Spence from the

charity MERGE was a Vascular Consultant and he may have some ideas. I hate to

ask him as he has M.E. himself.

Thanks once again.

Kindest regards,

Annette

---------------------------------

All new " The new Interface is stunning in its simplicity and ease

of use. " - PC Magazine

[Guest guest]

Dear Gena,

Thank you for taking the plunge with your first email.

I'll certainly take more notice of what I do (sitting, lying, walking) and see

if that has any bearing on the swelling.

I feel as if I'm walking around with a huge hot-water-bottle strapped to my

waist and my legs are totally out of proportion to the rest of my body. I don't

have ankles, I have " cankles " .

Thanks once again for so much to think on

Kindest regards,

Annette

---------------------------------

All New – Tired of Vi@gr@! come-ons? Let our SpamGuard protect you.

[Guest guest]

Hi Anette,

Thanks for your reply.

I'm sorry about your situation with all of the

swelling and know how totally uncomfortable and tiring

it can be to deal with.

As usual, I awoke without a bloated stomach and then

after about thirty minutes of sitting up on

computer-bam-mine has swelled up.

Keep me posted and see if there is a tendency for your

swelling to get better if you lay down and rest for

several hours-or, for example, is it better first

thing in the morning but worse as the day goes on?

I wish there was more I could think of to help other

than the info I already gave.

Hang in there! Oh, by the way-I'm sure u have already

had your thyroid checked (since it can cause water

retention problems?

Also, do you have cardiomyopathy? If so, what do your

docs think of all the swelling?

And finally, can you convince a doc to let u try a

prescription diuretic?

Ok then, take care.

Miss Gena

--- annette barclay <al_barclayuk@...> wrote:

> Dear Gena,

>

> Thank you for taking the plunge with your first

> email.

>

> I'll certainly take more notice of what I do

> (sitting, lying, walking) and see if that has any

> bearing on the swelling.

>

> I feel as if I'm walking around with a huge

> hot-water-bottle strapped to my waist and my legs

> are totally out of proportion to the rest of my

> body. I don't have ankles, I have " cankles " .

>

> Thanks once again for so much to think on

>

> Kindest regards,

> Annette

>

>

>

> ---------------------------------

> All New – Tired of Vi@gr@! come-ons?

> Let our SpamGuard protect you.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________