Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 , thanx for this great info. There *is* some connection with chronic lyme and metals...metals suppresses immunity, maybe it's simply that or maybe something else too. Some bacteria sequester metals. That's a heavy duty combo--EDTA plus DMPS IV? After seeing that guy's reaction to EDTA in my doc's office, I am going to start sooooo slow. I've heard of the homeopathic remedy. I can try to source it for you and post the source. Others have responded well to it too. > > Hi, All. > > > > I thought you might appreciate hearing that I just spoke with a long term(over 25 yrs homebound sick) CFS/Lyme patient at my docs office yesterday and she reports she is essentially cured now by having used RenewPro and doing IV EDTA/DMPS heavy metal chelation with 2000mg glutathione in these infusions twice monthly. She also reports a clear benefit derived from supplemental nutrients when taken in the form of a product called Body Balance from lifeforce-intl.com and from an apparent lyme specific homeopathic(dead borrelia bacteria she said) powder capsules from Eden Health Products out of Minnesota(I couldn't locate a website for them). > > > > What's most impressive to me about her case is she went with my suggestion to her last fall to take RenewPro to build glutathione, which she thanked me for, and she went with my docs inspired by Rich's glutathione depletion poster for CFS suggestion to do IV EDTA/DMPS infusions for heavy metal chelation with 2000mg of glutathione(formerly just 100mg) included. She thinks this IV chelation treatment is what has finally sent her over the top, after only seven infusions, into complete health restoration. > > > > Her energy she says(and it shows) has never been better in her entire life and her thinking is clear as well as her sleep now refreshing, and her muscle aches gone! Sounds fantismal, but it's true. > > > > I wouldn't have believed it if I'd not met her long before and would've thought she simply peddling quack rxs. I actually needed to accuse her of now being an official member of the happy camper club, for which in my case as a PWC(given a unique juggernaut blockage from heavy metals,or whatever?, on the right lower side of my brain) I'm not allowed in just yet for the constant energy drain, irritation and pain this apparent last big symptom is for me. > > > > I think her story is a big deal and that it's important to point out that like many PWC/Lyme the antibiotics(abx) over the long haul did little to nothing for her. She needed to stop them so she could do the IV chelation therapy(antibiotics can interfere with chelation working properly) as well as use the Eden Health's homeopathic lyme product. > > > > Has anyone here on this list with a lyme diagnosis heard of and/or used this? Anyway, her improvment accelerated upon stopping the abx > and seemed to clear the way to her health breakthrough from the glutathione repletion, heavy metal chelation, novel nutrient formulation and homeopathic lyme agent. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hi, . Thanks for posting this. I'm very happy to hear that this woman has been able to regain her health with this combination. This is the first time I've heard of anyone combining glutathione in the same infusion with the chelators. I think there would be some binding between them, but apparently there was still enough extra binding capacity to take out the heavy metals. That's a very interesting approach. I would never have thought to do this, because I would have been concerned that the two would just interact and not go after the heavy metals, but apparently this is not the case. Perhaps the reason is that the chelators bind the heavy metals more strongly than they do the glutathione, so that in the process of dynamic equilibrium that occurs chemically, the heavy metals are preferentially bound by the chelators, and the glutathione is there to pick up any stray heavy metal ions that come loose, and take them out. I think your doctor is pretty gutsy to try this, and I'm very glad it worked. I suspect that he will probably try this on some others, and I will be very interested to hear how it comes out. Rich > > Hi, All. > > > > I thought you might appreciate hearing that I just spoke with a long term(over 25 yrs homebound sick) CFS/Lyme patient at my docs office yesterday and she reports she is essentially cured now by having used RenewPro and doing IV EDTA/DMPS heavy metal chelation with 2000mg glutathione in these infusions twice monthly. She also reports a clear benefit derived from supplemental nutrients when taken in the form of a product called Body Balance from lifeforce- intl.com and from an apparent lyme specific homeopathic(dead borrelia bacteria she said) powder capsules from Eden Health Products out of Minnesota(I couldn't locate a website for them). > > > > What's most impressive to me about her case is she went with my suggestion to her last fall to take RenewPro to build glutathione, which she thanked me for, and she went with my docs inspired by Rich's glutathione depletion poster for CFS suggestion to do IV EDTA/DMPS infusions for heavy metal chelation with 2000mg of glutathione(formerly just 100mg) included. She thinks this IV chelation treatment is what has finally sent her over the top, after only seven infusions, into complete health restoration. > > > > Her energy she says(and it shows) has never been better in her entire life and her thinking is clear as well as her sleep now refreshing, and her muscle aches gone! Sounds fantismal, but it's true. > > > > I wouldn't have believed it if I'd not met her long before and would've thought she simply peddling quack rxs. I actually needed to accuse her of now being an official member of the happy camper club, for which in my case as a PWC(given a unique juggernaut blockage from heavy metals,or whatever?, on the right lower side of my brain) I'm not allowed in just yet for the constant energy drain, irritation and pain this apparent last big symptom is for me. > > > > I think her story is a big deal and that it's important to point out that like many PWC/Lyme the antibiotics(abx) over the long haul did little to nothing for her. She needed to stop them so she could do the IV chelation therapy(antibiotics can interfere with chelation working properly) as well as use the Eden Health's homeopathic lyme product. > > > > Has anyone here on this list with a lyme diagnosis heard of and/or used this? Anyway, her improvment accelerated upon stopping the abx > and seemed to clear the way to her health breakthrough from the glutathione repletion, heavy metal chelation, novel nutrient formulation and homeopathic lyme agent. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 THis is an interesting point, Rich, esp. since Dr. Haley is working on some kind of glutathione-based chelator. It may be both synergistic AND protective. > > > > Hi, All. > > > > > > > > I thought you might appreciate hearing that I just spoke with a > long term(over 25 yrs homebound sick) CFS/Lyme patient at my docs > office yesterday and she reports she is essentially cured now by > having used RenewPro and doing IV EDTA/DMPS heavy metal chelation > with 2000mg glutathione in these infusions twice monthly. She also > reports a clear benefit derived from supplemental nutrients when > taken in the form of a product called Body Balance from lifeforce- > intl.com and from an apparent lyme specific homeopathic(dead > borrelia bacteria she said) powder capsules from Eden Health > Products out of Minnesota(I couldn't locate a website for them). > > > > > > > > What's most impressive to me about her case is she went with my > suggestion to her last fall to take RenewPro to build glutathione, > which she thanked me for, and she went with my docs inspired by > Rich's glutathione depletion poster for CFS suggestion to do IV > EDTA/DMPS infusions for heavy metal chelation with 2000mg of > glutathione(formerly just 100mg) included. She thinks this IV > chelation treatment is what has finally sent her over the top, after > only seven infusions, into complete health restoration. > > > > > > > > Her energy she says(and it shows) has never been better in her > entire life and her thinking is clear as well as her sleep now > refreshing, and her muscle aches gone! Sounds fantismal, but it's > true. > > > > > > > > I wouldn't have believed it if I'd not met her long before and > would've thought she simply peddling quack rxs. I actually needed > to accuse her of now being an official member of the happy camper > club, for which in my case as a PWC(given a unique juggernaut > blockage from heavy metals,or whatever?, on the right lower side of > my brain) I'm not allowed in just yet for the constant energy drain, > irritation and pain this apparent last big symptom is for me. > > > > > > > > I think her story is a big deal and that it's important to point > out that like many PWC/Lyme the antibiotics(abx) over the long haul > did little to nothing for her. She needed to stop them so she could > do the IV chelation therapy(antibiotics can interfere with chelation > working properly) as well as use the Eden Health's homeopathic lyme > product. > > > > > > > > Has anyone here on this list with a lyme diagnosis heard of and/or > used this? Anyway, her improvment accelerated upon stopping the abx > > and seemed to clear the way to her health breakthrough from the > glutathione repletion, heavy metal chelation, novel nutrient > formulation and homeopathic lyme agent. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Jill, if you could please post the source of the lyme homeopathic remedy I would be most grateful. BW, Sheila C > > > > Hi, All. > > > > > > > > I thought you might appreciate hearing that I just spoke with a long > term(over 25 yrs homebound sick) CFS/Lyme patient at my docs office > yesterday and she reports she is essentially cured now by having used > RenewPro and doing IV EDTA/DMPS heavy metal chelation with 2000mg > glutathione in these infusions twice monthly. She also reports a > clear benefit derived from supplemental nutrients when taken in the > form of a product called Body Balance from lifeforce-intl.com and from > an apparent lyme specific homeopathic(dead borrelia bacteria she said) > powder capsules from Eden Health Products out of Minnesota(I couldn't > locate a website for them). > > > > > > > > What's most impressive to me about her case is she went with my > suggestion to her last fall to take RenewPro to build glutathione, > which she thanked me for, and she went with my docs inspired by Rich's > glutathione depletion poster for CFS suggestion to do IV EDTA/DMPS > infusions for heavy metal chelation with 2000mg of > glutathione(formerly just 100mg) included. She thinks this IV > chelation treatment is what has finally sent her over the top, after > only seven infusions, into complete health restoration. > > > > > > > > Her energy she says(and it shows) has never been better in her > entire life and her thinking is clear as well as her sleep now > refreshing, and her muscle aches gone! Sounds fantismal, but it's true. > > > > > > > > I wouldn't have believed it if I'd not met her long before and > would've thought she simply peddling quack rxs. I actually needed to > accuse her of now being an official member of the happy camper club, > for which in my case as a PWC(given a unique juggernaut blockage from > heavy metals,or whatever?, on the right lower side of my brain) I'm > not allowed in just yet for the constant energy drain, irritation and > pain this apparent last big symptom is for me. > > > > > > > > I think her story is a big deal and that it's important to point out > that like many PWC/Lyme the antibiotics(abx) over the long haul did > little to nothing for her. She needed to stop them so she could do > the IV chelation therapy(antibiotics can interfere with chelation > working properly) as well as use the Eden Health's homeopathic lyme > product. > > > > > > > > Has anyone here on this list with a lyme diagnosis heard of and/or > used this? Anyway, her improvment accelerated upon stopping the abx > > and seemed to clear the way to her health breakthrough from the > glutathione repletion, heavy metal chelation, novel nutrient > formulation and homeopathic lyme agent. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 hi david: thanks for sharing this hopeful story. i have been tryig to increase my glut levels over the past 3 weeks w/ iv pushes. unfortunately the tx seems to make me even iller. i am also holding on to a bunch of abx waiting to begin treament again, but feeling that they do not hold the answer for me. i'm very curious to learn more about this woman in your dr's office treatment. wondering if she would be willing to post more of her story here. also i know you are in n. calif, would you mind sharing (backchannel fine) the name of the doc working with you and this woman. thanks - -- In , " davidhall2020 " <davidhall@...> wrote: > > Hi, All. > > > > I thought you might appreciate hearing that I just spoke with a long term(over 25 yrs homebound sick) CFS/Lyme patient at my docs office yesterday and she reports she is essentially cured now by having used RenewPro and doing IV EDTA/DMPS heavy metal chelation with 2000mg glutathione in these infusions twice monthly. She also reports a clear benefit derived from supplemental nutrients when taken in the form of a product called Body Balance from lifeforce- intl.com and from an apparent lyme specific homeopathic(dead borrelia bacteria she said) powder capsules from Eden Health Products out of Minnesota(I couldn't locate a website for them). > > > > What's most impressive to me about her case is she went with my suggestion to her last fall to take RenewPro to build glutathione, which she thanked me for, and she went with my docs inspired by Rich's glutathione depletion poster for CFS suggestion to do IV EDTA/DMPS infusions for heavy metal chelation with 2000mg of glutathione(formerly just 100mg) included. She thinks this IV chelation treatment is what has finally sent her over the top, after only seven infusions, into complete health restoration. > > > > Her energy she says(and it shows) has never been better in her entire life and her thinking is clear as well as her sleep now refreshing, and her muscle aches gone! Sounds fantismal, but it's true. > > > > I wouldn't have believed it if I'd not met her long before and would've thought she simply peddling quack rxs. I actually needed to accuse her of now being an official member of the happy camper club, for which in my case as a PWC(given a unique juggernaut blockage from heavy metals,or whatever?, on the right lower side of my brain) I'm not allowed in just yet for the constant energy drain, irritation and pain this apparent last big symptom is for me. > > > > I think her story is a big deal and that it's important to point out that like many PWC/Lyme the antibiotics(abx) over the long haul did little to nothing for her. She needed to stop them so she could do the IV chelation therapy(antibiotics can interfere with chelation working properly) as well as use the Eden Health's homeopathic lyme product. > > > > Has anyone here on this list with a lyme diagnosis heard of and/or used this? Anyway, her improvment accelerated upon stopping the abx > and seemed to clear the way to her health breakthrough from the glutathione repletion, heavy metal chelation, novel nutrient formulation and homeopathic lyme agent. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hi all I am certainly no doctor and I cant pretend to know much about lyme disease or even chelation therapy. But I have experienced a long, wonderful period of remission where I believed that I was totally cured of my M.E. and was able to live a very fullfilling and normal life for quite some time. My fabulous remission period occurred after two years of complimentary and natural therapies, including homeopathy and aromatherapy, reflexology, Australian flower remedies, Reiki healing and of course very healthy eating, regular relaxation/meditation, drinking plenty of water etc, etc, but I must stress with no antibiotics or chelation therapy at all. When I first began using natural therapies I became much worse initially, but I persevered, and eventually began to gradually improve. within four months I had been offered a job working two days a week for a couple of hours as a part time receptionist in the Natural therapy centre where my homeopath worked. I accepted the position because my employer said she would not mind if I was not well enough to work at any time; I was not to receive cash, but natural therapy sessions as payment. Within the next year my improvement steadily increased, until finally I too, felt as if I had 'more energy than I had ever had in my whole life'; not surprising when you think about it with the enormous releif I was experiencing! I went back to my GP and cheerily announced I was 'cured'. and my Gp said great, but she said nothing else. She did NOT warn me that in the majority of cases, patients suffering from CFS/ME/FMS type diseases can actually experience huge improvements even up to near normality, but they can still always set themselves right back by pushing their limits too hard. Meanwhile, believing that I had been 'totally cured' I commenced- with much rejoicing- to live a full and happy normal life again. I went horseriding weekly for an hour to rebuild my muscle tone and strength, I went back to college to continue with my career as a fine art painter, I went on two glorious walking holidays per year in the mountains of scotland, wales and southern Ireland. I truly thought I was the luckiest woman alive. all in all I went on like this for around 3 years thinking that I was completely recovered. Yet, still, four years ago I experienced a complete relapse. I have been housebound ever since with no sign of improvement. I no longer have money in the bank to pay for complementary therapies. My ME/CFS consultant tells me now, that 'a small percentage of patients can sometimes experience improvement up to near normality; but they can still always set themselves right back by pushing their limits too hard. In view of how angry I feel now with that General Practitioner who did me no favours at all by being either too ignorant -or did not have sufficient courage- to warn me there is usually no such thing as 'complete recovery' from illnesses of this type; So you might be able to appreciate why now, I can never read any stories about anyone who is 'miraculously recovered', without worrying about them. I always wonder, how long have they been feeling better for? maybe as long as six months, even a year or two? does that make them think they are completely out of danger? Or are they still remembering to take proper care of themselves and not to try to push their limits too hard? It has been an extremely bitter experience for me. all the best yvonne , " rvankonynen " <richvank@...> wrote: > > Hi, . > > Thanks for posting this. I'm very happy to hear that this woman has > been able to regain her health with this combination. > > This is the first time I've heard of anyone combining glutathione in > the same infusion with the chelators. I think there would be some > binding between them, but apparently there was still enough extra > binding capacity to take out the heavy metals. That's a very > interesting approach. I would never have thought to do this, > because I would have been concerned that the two would just interact > and not go after the heavy metals, but apparently this is not the > case. Perhaps the reason is that the chelators bind the heavy > metals more strongly than they do the glutathione, so that in the > process of dynamic equilibrium that occurs chemically, the heavy > metals are preferentially bound by the chelators, and the > glutathione is there to pick up any stray heavy metal ions that come > loose, and take them out. > > I think your doctor is pretty gutsy to try this, and I'm very glad > it worked. I suspect that he will probably try this on some others, > and I will be very interested to hear how it comes out. > > Rich > > > > > > Hi, All. > > > > > > > > I thought you might appreciate hearing that I just spoke with a > long term(over 25 yrs homebound sick) CFS/Lyme patient at my docs > office yesterday and she reports she is essentially cured now by > having used RenewPro and doing IV EDTA/DMPS heavy metal chelation > with 2000mg glutathione in these infusions twice monthly. She also > reports a clear benefit derived from supplemental nutrients when > taken in the form of a product called Body Balance from lifeforce- > intl.com and from an apparent lyme specific homeopathic(dead > borrelia bacteria she said) powder capsules from Eden Health > Products out of Minnesota(I couldn't locate a website for them). > > > > > > > > What's most impressive to me about her case is she went with my > suggestion to her last fall to take RenewPro to build glutathione, > which she thanked me for, and she went with my docs inspired by > Rich's glutathione depletion poster for CFS suggestion to do IV > EDTA/DMPS infusions for heavy metal chelation with 2000mg of > glutathione(formerly just 100mg) included. She thinks this IV > chelation treatment is what has finally sent her over the top, after > only seven infusions, into complete health restoration. > > > > > > > > Her energy she says(and it shows) has never been better in her > entire life and her thinking is clear as well as her sleep now > refreshing, and her muscle aches gone! Sounds fantismal, but it's > true. > > > > > > > > I wouldn't have believed it if I'd not met her long before and > would've thought she simply peddling quack rxs. I actually needed > to accuse her of now being an official member of the happy camper > club, for which in my case as a PWC(given a unique juggernaut > blockage from heavy metals,or whatever?, on the right lower side of > my brain) I'm not allowed in just yet for the constant energy drain, > irritation and pain this apparent last big symptom is for me. > > > > > > > > I think her story is a big deal and that it's important to point > out that like many PWC/Lyme the antibiotics(abx) over the long haul > did little to nothing for her. She needed to stop them so she could > do the IV chelation therapy(antibiotics can interfere with chelation > working properly) as well as use the Eden Health's homeopathic lyme > product. > > > > > > > > Has anyone here on this list with a lyme diagnosis heard of and/or > used this? Anyway, her improvment accelerated upon stopping the abx > > and seemed to clear the way to her health breakthrough from the > glutathione repletion, heavy metal chelation, novel nutrient > formulation and homeopathic lyme agent. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Hi, . Your point is well taken. I'm sorry that you went through this experience. I think that there is a significant genetic predisposition involved in many cases of CFS, and the genes will not be changed by currently available treatments, so the predisposition will remain, and if the load of stressors is large enough, or the diet is insufficient to keep the level of glutathione up, the person can drop back into the same vicious circle mechanism again. However, I also think it is possible to climb back out of the vicious circle mechanism again, too, but it may require finding out what the genetic variations are and compensating for them specifically. Rich > > Hi all > > I am certainly no doctor and I cant pretend to know much about lyme > disease or even chelation therapy. > > But I have experienced a long, wonderful period of remission where I > believed that I was totally cured of my M.E. and was able to live a > very fullfilling and normal life for quite some time. > > My fabulous remission period occurred > after two years of complimentary and natural therapies, > including homeopathy and aromatherapy, reflexology, > Australian flower remedies, Reiki healing and of course very healthy > eating, regular relaxation/meditation, drinking plenty of water etc, > etc, > but I must stress with no antibiotics or chelation therapy at all. > > When I first began using natural therapies I became much worse > initially, but I persevered, and eventually began to gradually > improve. > within four months I had been offered a job working two days a week > for a couple of hours as a part time receptionist in the Natural > therapy centre where my homeopath worked. > I accepted the position because my employer said she would not mind > if I was not well enough to work at any time; I was not to receive > cash, but natural therapy sessions as payment. > > Within the next year my improvement steadily increased, until finally > I too, felt as if I had 'more energy than I had ever had in my whole > life'; not surprising when you think about it with the enormous > releif I was experiencing! > > I went back to my GP and cheerily announced I was 'cured'. > and my Gp said great, but she said nothing else. > > She did NOT warn me that in the majority of cases, patients suffering > from CFS/ME/FMS type diseases can actually experience huge > improvements even up to near normality, > but they can still always set themselves right back by pushing their > limits too hard. > > Meanwhile, believing that I had been 'totally cured' > I commenced- with much rejoicing- to live a full and happy normal > life again. > I went horseriding weekly for an hour to rebuild my muscle tone and > strength, > I went back to college to continue with my career as a fine art > painter, > I went on two glorious walking holidays per year in the mountains of > scotland, wales and southern Ireland. > I truly thought I was the luckiest woman alive. > > all in all I went on like this for around 3 years thinking that I was > completely recovered. > > Yet, still, four years ago I experienced a complete relapse. > > I have been housebound ever since with no sign of improvement. > > I no longer have money in the bank to pay for complementary > therapies. > > My ME/CFS consultant tells me now, > that 'a small percentage of patients can sometimes experience > improvement up to near normality; > but they can still always set themselves right back by pushing their > limits too hard. > > In view of how angry I feel now with that General Practitioner who > did me no favours at all > by being either too ignorant -or did not have sufficient courage- to > warn me there is usually no such thing as 'complete recovery' from > illnesses of this type; > > So you might be able to appreciate why now, I can never read any > stories about anyone who is 'miraculously recovered', without > worrying about them. > > I always wonder, how long have they been feeling better for? > maybe as long as six months, even a year or two? > does that make them think they are completely out of danger? > Or are they still remembering to take proper care of themselves and > not to try to push their limits too hard? > > It has been an extremely bitter experience for me. > > all the best > yvonne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 I think it is possible, too. , if you got better before you can get better again. I could be wrong but it sounds to me, not that you have some innate vulnerability that just reasserted itself, but that a latent infection flared up again. > > > > Hi all > > > > I am certainly no doctor and I cant pretend to know much about > lyme > > disease or even chelation therapy. > > > > But I have experienced a long, wonderful period of remission where > I > > believed that I was totally cured of my M.E. and was able to live > a > > very fullfilling and normal life for quite some time. > > > > My fabulous remission period occurred > > after two years of complimentary and natural therapies, > > including homeopathy and aromatherapy, reflexology, > > Australian flower remedies, Reiki healing and of course very > healthy > > eating, regular relaxation/meditation, drinking plenty of water > etc, > > etc, > > but I must stress with no antibiotics or chelation therapy at all. > > > > When I first began using natural therapies I became much worse > > initially, but I persevered, and eventually began to gradually > > improve. > > within four months I had been offered a job working two days a > week > > for a couple of hours as a part time receptionist in the Natural > > therapy centre where my homeopath worked. > > I accepted the position because my employer said she would not > mind > > if I was not well enough to work at any time; I was not to receive > > cash, but natural therapy sessions as payment. > > > > Within the next year my improvement steadily increased, until > finally > > I too, felt as if I had 'more energy than I had ever had in my > whole > > life'; not surprising when you think about it with the enormous > > releif I was experiencing! > > > > I went back to my GP and cheerily announced I was 'cured'. > > and my Gp said great, but she said nothing else. > > > > She did NOT warn me that in the majority of cases, patients > suffering > > from CFS/ME/FMS type diseases can actually experience huge > > improvements even up to near normality, > > but they can still always set themselves right back by pushing > their > > limits too hard. > > > > Meanwhile, believing that I had been 'totally cured' > > I commenced- with much rejoicing- to live a full and happy normal > > life again. > > I went horseriding weekly for an hour to rebuild my muscle tone > and > > strength, > > I went back to college to continue with my career as a fine art > > painter, > > I went on two glorious walking holidays per year in the mountains > of > > scotland, wales and southern Ireland. > > I truly thought I was the luckiest woman alive. > > > > all in all I went on like this for around 3 years thinking that I > was > > completely recovered. > > > > Yet, still, four years ago I experienced a complete relapse. > > > > I have been housebound ever since with no sign of improvement. > > > > I no longer have money in the bank to pay for complementary > > therapies. > > > > My ME/CFS consultant tells me now, > > that 'a small percentage of patients can sometimes experience > > improvement up to near normality; > > but they can still always set themselves right back by pushing > their > > limits too hard. > > > > In view of how angry I feel now with that General Practitioner who > > did me no favours at all > > by being either too ignorant -or did not have sufficient courage- > to > > warn me there is usually no such thing as 'complete recovery' from > > illnesses of this type; > > > > So you might be able to appreciate why now, I can never read any > > stories about anyone who is 'miraculously recovered', without > > worrying about them. > > > > I always wonder, how long have they been feeling better for? > > maybe as long as six months, even a year or two? > > does that make them think they are completely out of danger? > > Or are they still remembering to take proper care of themselves > and > > not to try to push their limits too hard? > > > > It has been an extremely bitter experience for me. > > > > all the best > > yvonne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2006 Report Share Posted May 10, 2006 HI , I too have had some good remissions over the past 36 yrs, but as you will guess from that length of time the picture wasn't at all simple. When I first had symptoms I had no diagnosis and so going into remission for the first time I too assumed everything was going away (though I was never 100%). Obviously once you have relapsed and remitted a number of times you begin to realise the score. I have been substantially relapsed since 1994 and think the only chance of a near normal life will be as the result of treatment based on good biomedical research. Rosie Hi all I am certainly no doctor and I cant pretend to know much about lyme disease or even chelation therapy. But I have experienced a long, wonderful period of remission where I believed that I was totally cured of my M.E. and was able to live a very fullfilling and normal life for quite some time. My fabulous remission period occurred after two years of complimentary and natural therapies, including homeopathy and aromatherapy, reflexology, Australian flower remedies, Reiki healing and of course very healthy eating, regular relaxation/meditation, drinking plenty of water etc, etc, but I must stress with no antibiotics or chelation therapy at all. When I first began using natural therapies I became much worse initially, but I persevered, and eventually began to gradually improve. within four months I had been offered a job working two days a week for a couple of hours as a part time receptionist in the Natural therapy centre where my homeopath worked. I accepted the position because my employer said she would not mind if I was not well enough to work at any time; I was not to receive cash, but natural therapy sessions as payment. Within the next year my improvement steadily increased, until finally I too, felt as if I had 'more energy than I had ever had in my whole life'; not surprising when you think about it with the enormous releif I was experiencing! I went back to my GP and cheerily announced I was 'cured'. and my Gp said great, but she said nothing else. She did NOT warn me that in the majority of cases, patients suffering from CFS/ME/FMS type diseases can actually experience huge improvements even up to near normality, but they can still always set themselves right back by pushing their limits too hard. Meanwhile, believing that I had been 'totally cured' I commenced- with much rejoicing- to live a full and happy normal life again. I went horseriding weekly for an hour to rebuild my muscle tone and strength, I went back to college to continue with my career as a fine art painter, I went on two glorious walking holidays per year in the mountains of scotland, wales and southern Ireland. I truly thought I was the luckiest woman alive. all in all I went on like this for around 3 years thinking that I was completely recovered. Yet, still, four years ago I experienced a complete relapse. I have been housebound ever since with no sign of improvement. I no longer have money in the bank to pay for complementary therapies. My ME/CFS consultant tells me now, that 'a small percentage of patients can sometimes experience improvement up to near normality; but they can still always set themselves right back by pushing their limits too hard. In view of how angry I feel now with that General Practitioner who did me no favours at all by being either too ignorant -or did not have sufficient courage- to warn me there is usually no such thing as 'complete recovery' from illnesses of this type; So you might be able to appreciate why now, I can never read any stories about anyone who is 'miraculously recovered', without worrying about them. I always wonder, how long have they been feeling better for? maybe as long as six months, even a year or two? does that make them think they are completely out of danger? Or are they still remembering to take proper care of themselves and not to try to push their limits too hard? It has been an extremely bitter experience for me. all the best yvonne , " rvankonynen " <richvank@...> wrote: > > Hi, . > > Thanks for posting this. I'm very happy to hear that this woman has > been able to regain her health with this combination. > > This is the first time I've heard of anyone combining glutathione in > the same infusion with the chelators. I think there would be some > binding between them, but apparently there was still enough extra > binding capacity to take out the heavy metals. That's a very > interesting approach. I would never have thought to do this, > because I would have been concerned that the two would just interact > and not go after the heavy metals, but apparently this is not the > case. Perhaps the reason is that the chelators bind the heavy > metals more strongly than they do the glutathione, so that in the > process of dynamic equilibrium that occurs chemically, the heavy > metals are preferentially bound by the chelators, and the > glutathione is there to pick up any stray heavy metal ions that come > loose, and take them out. > > I think your doctor is pretty gutsy to try this, and I'm very glad > it worked. I suspect that he will probably try this on some others, > and I will be very interested to hear how it comes out. > > Rich > > > > > > Hi, All. > > > > > > > > I thought you might appreciate hearing that I just spoke with a > long term(over 25 yrs homebound sick) CFS/Lyme patient at my docs > office yesterday and she reports she is essentially cured now by > having used RenewPro and doing IV EDTA/DMPS heavy metal chelation > with 2000mg glutathione in these infusions twice monthly. She also > reports a clear benefit derived from supplemental nutrients when > taken in the form of a product called Body Balance from lifeforce- > intl.com and from an apparent lyme specific homeopathic(dead > borrelia bacteria she said) powder capsules from Eden Health > Products out of Minnesota(I couldn't locate a website for them). > > > > > > > > What's most impressive to me about her case is she went with my > suggestion to her last fall to take RenewPro to build glutathione, > which she thanked me for, and she went with my docs inspired by > Rich's glutathione depletion poster for CFS suggestion to do IV > EDTA/DMPS infusions for heavy metal chelation with 2000mg of > glutathione(formerly just 100mg) included. She thinks this IV > chelation treatment is what has finally sent her over the top, after > only seven infusions, into complete health restoration. > > > > > > > > Her energy she says(and it shows) has never been better in her > entire life and her thinking is clear as well as her sleep now > refreshing, and her muscle aches gone! Sounds fantismal, but it's > true. > > > > > > > > I wouldn't have believed it if I'd not met her long before and > would've thought she simply peddling quack rxs. I actually needed > to accuse her of now being an official member of the happy camper > club, for which in my case as a PWC(given a unique juggernaut > blockage from heavy metals,or whatever?, on the right lower side of > my brain) I'm not allowed in just yet for the constant energy drain, > irritation and pain this apparent last big symptom is for me. > > > > > > > > I think her story is a big deal and that it's important to point > out that like many PWC/Lyme the antibiotics(abx) over the long haul > did little to nothing for her. She needed to stop them so she could > do the IV chelation therapy(antibiotics can interfere with chelation > working properly) as well as use the Eden Health's homeopathic lyme > product. > > > > > > > > Has anyone here on this list with a lyme diagnosis heard of and/or > used this? Anyway, her improvment accelerated upon stopping the abx > > and seemed to clear the way to her health breakthrough from the > glutathione repletion, heavy metal chelation, novel nutrient > formulation and homeopathic lyme agent. > > > > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.