Re: Re: leg symptoms

[Guest guest]

Magnesium helps B6 do it's thing. So, when you resume it, please remember

that it takes the two to tango!

In a message dated 3/2/06 4:59:09 A.M. Eastern Standard Time,

kcapel@... writes:

I'm sort of laying off my vitamins right now, but I do remember that

when I take B6 consistently -- or increase OR decrease it, I will get

leg cramping at night.

[Guest guest]

I haven't the foggiest idea what CBS stands for other than the television

network I am listening to.

mjh

Oh gee, thanks, mjh. So many 2 or 3 or even 4 to tango in these

things.

You wouldn't happen to know what CBS stands for, would you? I asked

earlier and no one answered. I've gone through an acronym finder

online, and couldn't find it there either.

Thanks, mjh.

>

>

>

>

> Magnesium helps B6 do it's thing. So, when you resume it, please

remember

> that it takes the two to tango!

[Guest guest]

Quinine pills are an old time remedy for leg cramps. They are still

available OTC.

By the way, I always keep a couple of liters of Tonic water on hand. It

takes about a liter for me.

But, Mg/B6 and vitamin E are the even heavier hitters for me with leg cramps

and the herbs I listed for circulation issues, which also help resolve the

pain, cold and etc.

mjh

In a message dated 3/2/06 1:30:08 P.M. Eastern Standard Time,

kcapel@... writes:

This is really interesting, Annette. I always drank tonic water when

I would feel the worst (before I suspected what was wrong with me)

and associated it with the quinine in it. I never knew if the

quinine in the tonic water actually DID anything or if there was

something " real " going on. Do you know what this quinine thing is

about?

[Guest guest]

In a message dated 3/2/06 7:00:24 P.M. Eastern Standard Time, lmas@...

writes:

May I ask, where have you been able to find quinine pills OTC? I have not

been able to find them . thx. Les

----- Original Message

They are sold with some name including the word " Legs " at WalMart, KMart and

our local chain in Michigan, USA, Meijer. Next time I am out of this house

and into a store, I will try to get an exact product name and manufacturer.

[Guest guest]

No sorry, ,

I don't know how the Quinene works. Professor Brostoff (Allergist/Immunologist

in London) mentioned it to me as a possible remedy for " restless legs " .

My Mother had been using it for years with some success. The magnesium

injections were the best for me but I've not been able to afford them.

Kndest regards,

Annette

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[Guest guest]

May I ask, where have you been able to find quinine pills OTC? I have not been

able to find them . thx. Les

Re: Re: leg symptoms

Quinine pills are an old time remedy for leg cramps. They are still

available OTC.

By the way, I always keep a couple of liters of Tonic water on hand. It

takes about a liter for me.

But, Mg/B6 and vitamin E are the even heavier hitters for me with leg cramps

and the herbs I listed for circulation issues, which also help resolve the

pain, cold and etc.

mjh

In a message dated 3/2/06 1:30:08 P.M. Eastern Standard Time,

kcapel@... writes:

This is really interesting, Annette. I always drank tonic water when

I would feel the worst (before I suspected what was wrong with me)

and associated it with the quinine in it. I never knew if the

quinine in the tonic water actually DID anything or if there was

something " real " going on. Do you know what this quinine thing is

about?

[Guest guest]

thank you, I would appreciate it ! Les

Re: Re: leg symptoms

In a message dated 3/2/06 7:00:24 P.M. Eastern Standard Time, lmas@...

writes:

May I ask, where have you been able to find quinine pills OTC? I have not

been able to find them . thx. Les

----- Original Message

They are sold with some name including the word " Legs " at WalMart, KMart and

our local chain in Michigan, USA, Meijer. Next time I am out of this house

and into a store, I will try to get an exact product name and manufacturer.

[Guest guest]

On Mar 3, 2006, at 12:55 PM, bernieanneca wrote:

> Hi - What part of Canada are you from? I'm in the Vancouver, BC

> area. I'm still trying to find a doctor who knows anything about CFS

> and is willing to do more than the basic tests. I don't know how many

> times I have been sent for the same tests; ie Routine Hematology

> Panel, General Chemistry, and Thyroid Function. Have you had any luck

> finding someone who will draw blood and send it to a US lab for

> testing?

>

> I'm fed up with doctor shopping, and my current doctor just doesn't

> get it when it comes to CFS.

Bernie, I'm on the North Shore. I've got an appointment with Dr.

Dunne (he's downtown, on Broadway) early next month.

My GP asked around, and says this is supposed to be THE guy in

Vancouver for ME right now.

Have you gone to him? If so, how'd it go? And if you're not familiar

with him, would you like me to report back after my visit?

Sara

[Guest guest]

On Mar 3, 2006, at 2:59 PM, bernieanneca wrote:

>

> Hi Sara - I would love to hear back from you after your visit with Dr.

> Dunne. I saw Dr. Saul Pilar (on W 16th) approximately ten years

> ago. He

> was the only doctor at the time that my GP could find who treated CFS.

> My problem with him was everytime he tried a new treatment, if there

> weren't any clear results in just two weeks, he moved on to something

> else. I ended up spending a lot of money with no results.

Ten years? We've learned a whole lot about treating this disease in

ten years.

Ten years ago, Teitelbaum's " From Fatigued to Fantastic " was still

one of the best books out there on CFS. My original edition put

patients through a list of over 70 tests designed to isolate possible

causes of fatigue. The assumption was that we were so clueless as to

how this thing worked that you had to consider *every* possible thing

that could concieveably fatigue a human body. It was shooting in the

dark, with very large shells full of very small shot, in the slim

hope of pinging one or two things that might return a response.

This approach helped me, inasmuch as item #17 on the list was to

investigate and address sleep apnea. For me, that was the first

(though hardly the last) breakthrough. But again, it was purely based

on guessing. I'm sure Dr. Pilar was guessing just as hard as anybody

else. At least he was interested in the questions -- which was also

very unusual to find back then. But it's not surprising that he

didn't have answers, because nobody did.

These days, thanks to the handful of doctors who got on this thing in

the 80s and didn't let go, we now know a whole lot more about the

specific causes of the disease, and what to do about it. Here in

Canada, it's not unreasonable to expect that any physician treating

ME will have a copy of the 2003 Health Canada Guidelines on his or

her desk, and will be referring to it often in directing patient

care. Since it's the gold standard worldwide in describing the

symptoms and treatment of ME, anybody with a BC Care Card should be

in clover. (That's the assumption; I'll tell you if it plays out that

way.)

One of the things that's striking about this list is, even though we

discuss a very wide range of treatments, they do cluster in certain

overall families. Rich's treatment document and the FFC protocol

both seem to work these same broad categories as well. This all

suggests that there's an emerging consensus about how the disease

works, what to test for, and what can be done to make most people

feel somewhat better most of the time. I know that working these

areas has yielded tremendous gains for me.

Still no cure yet -- but we're light years from where we were a

decade ago. Sounds like you stand to make some fine gains if you find

the right doctor, and have another go at it now.

Sara