Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hi Jill, Where is everyone on Infections and inflamation2? Marie jill1313 wrote: > Thanx . That's promising. How many IV's have you had? > Was talking today with Lance, from whom I got my mild hbo chamber, and > talking about Dr Buttar and transdermal chelators. He said Dr. > Bergeron had been using them since 1998 or so and they were well > tolerated. I didn't know this. > > I'm still trying to figure out what to do in terms of testing. I > really cannot get Genovations--not by hook or by crook. And > testing4health, that Rich posted, is Dr. Yasko's company essentially, > but there's no track record there. I could spend $750 and how would I > know if it was legit? It's a saliva test. I don't love that idea. > I'm going to research a bit further. I want to find out my > polymorphisms, get my methlyation cycle up to snuff, and then do > td-dmps (transdermal). > > For your " brain pain " --I'm not sure what brain pain means. Do you mean > headaches? In any case, do some googling on hyperbaric oxygen. Harsch, > Heuser etc, you probably have hypoperfusion, and hbo is the quickest > way to fix that imo. > > >> >>> Okay, are we ready for a DMPS update yet? C'mon its been a few months >>> already...I am really interested. >>> >>> >> ***It slipped by your surveillance system last week. Check out >> > post#90019. > >> >> >> >> > > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 In a message dated 2/13/2006 6:56:53 A.M. Pacific Standard Time, jenbooks13@... writes: Well, Genovations originally used saliva testing which I did with kits for their five panels I brought home with me. Technically this would still very much work, but I think, and I'm purely guessing here, that they may be somehow wanting to protect or slow intrusion on what they see as their market advantage by requiring folks to go do and send in blood draws. Thanx, , that's good to know. That encourages me. It just seems surpassingly strange that Genovations is illegal, but I can order testing4health from my own home by myself! Saliva testing is used in " normal " medicine in very few instances, cystic fibrosis, parotid duct problems, mouth infections and maybe a few, very few, others . Non medical " doctors " who are not licensed to draw blood, can have a patient give a saliva specimen. To put it bluntly, there is no licence requirement to spit. Saliva labs salivate at these tests, there is no lab oversight for saliva testing. That is the basis of most saliva tests being performed, no MD is needed, no stringent lab control. More accurate information can be drawn from blood or other specimens. So save your money with regard to these quasi scientific analyses they are notoriously unreliable. Joy Research assistant to Dr Enlander _www.enlander.com_ (http://www.enlander.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Oh, now I remember the problem between you and Tony. I have had my grievances with him as well. I do miss some of the people also. Some very smart, wise, nice people. I mostly lurk but honestly had to cut back some of the medical reading and focus on more positive things which is for me are art and decorating, not science. When one only half understands the scientific jargon it is overwhelming especially with brain fog and exhaustion. I am focusing on the Vanderbilt Protocol so I visit Cpnhelp.org. It has been a roller coaster ride for me but I am beginning to see that I have made progress between the horrible herxes. Marie jill1313 wrote: > I don't know. I left a while ago because Tony was, imo, harrassing me. > He is very gung ho on lots of longterm high dose antibiotics, does not > believe that lyme or babesia are significant problems, wanted me to > take some gout medicine, and then wrote me an email suggesting I had > peritonitis or some kind of liver infection. It was too aggressive for > me, so I left the list and haven't been back. I do greatly miss Barb > Peck's insights and hope she's doing as well as ever. > > > >> Hi Jill, >> Where is everyone on Infections and inflamation2? >> Marie >> >> >> >> > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 Mel and My late son had significant seizure disorder not well controlled by drugs and their nasty side effects. However, he benefitted from Magnesium, B complex+B6, l-taurine and fish oil. As well as some others. We stopped seizure activity with Lobelia inflata extract. I had wanted to get him to either _www.pathmed.com_ (http://www.pathmed.com) or _www.amenclinic.com_ (http://www.amenclinic.com) for brain mapping to assess neurotransmitter status. Hope this helps mjh In a message dated 2/15/2006 7:31:35 AM Eastern Standard Time, davidhall@... writes: Hi, Mel. MelBaldwin <alphabear@...> wrote: > > , I had one of those hemmangiomas, a tangle of malformed blood vessels, in my left temporal lobe. I was barely aware of it, having only mild fleeting, localized headaches....until I had a bleed and a grand mal seizure. ***Very interesting. I recovered and take klonopin 1 mg. The point is, these malformations are poorly perfused and may not show up even with contrast. ***That's very close to what I thought. I presume you have tried some anticonvulsants?? ***Yup. Klonopin. Dilantin. Topomax. A few others. No cigar! mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 , I had one of those hemmangiomas, a tangle of malformed blood vessels, in my left temporal lobe. I was barely aware of it, having only mild fleeting, localized headaches....until I had a bleed and a grand mal seizure. I recovered and take klonopin 1 mg. The point is, these malformations are poorly perfused and may not show up even with contrast. I presume you have tried some anticonvulsants?? Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 In a message dated 2/15/2006 10:18:26 AM Eastern Standard Time, alphabear@... writes: mjh, I am familiar with Amen's work. I was digging in his writing last nite but I find no apparent explanation in neurotransmitters... doesn't fit any syndrome like 's. Sounds more congenital or, maybe, injury. I would agree that Amen would be my first choice detective. Mel THen, read Braverman's two books. One on amino acids, the newer one is called The Edge Effect which discusses neurotransmitters extensively. _www.pathmed.com_ (http://www.pathmed.com) Whether it's congential or injury, it would impact the neurotransmitter balance.... and relief can be had by getting those balanced along with other supplements. This is where the QEEG and other brain mapping are so very helpful mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Mel, I also have problems on left side of the brain. mainly on the temporal lobe.One energy therapist told me that i had problems with blood vessels at that side. I am also having some seizure like activities,feeling of swelling and pain on left side and was wondering if this would go to grand mal seizure. So,your experiences are very valuable for me. Nil Re: To --update? > Hi, Mel. > > > > MelBaldwin <alphabear@...> wrote: >> >> , I had one of those hemmangiomas, a tangle of malformed blood >> vessels, in my left temporal lobe. I was barely aware of it, having only >> mild fleeting, localized headaches....until I had a bleed and a grand mal >> seizure. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 mjh, I am familiar with Amen's work. I was digging in his writing last nite but I find no apparent explanation in neurotransmitters... doesn't fit any syndrome like 's. Sounds more congenital or, maybe, injury. I would agree that Amen would be my first choice detective. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Nil, Have you had a head injury? Do you have word finding problems? What's the quality and frequency of pain? Any throbbing? Many people have these malformed vessels and live all their life without complication. I think of it as having a bomb in my head...good for my small humility. Some meds, including melatonin, reduce the threshold for seizure. I feel much more comfortable on my klonopin. My " lesion " is operable but I decided to wait and see...do surgery if I had another bleed. That was ten years ago. Mel Quote Link to comment Share on other sites More sharing options...
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