Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 > > HI everyone; > I am looking for people who've tried or know someone who'se tried IV DMPS; I know lots and lots of people who made this mistake. > if they got good results or if it hurt them. One in 6 turn out as described at www.dmpsbackfire.com , I know some of those people and their stories are accurate, also I know many other people who had similar or worse experiences and are not reported there. > I read these horror stories on > there; but a couple of things stick out; one is that many seem to have still > had their fillings in; The 1 in 6 counts only those who had no fillings or other exposure at the time of the DMPS injection. I know of several life threatening reactions to iv DMPS in people with no fillings. " life threatening " is not my judgment, it was their doctor's prognosis when they called me up to ask what to do now. One was an experienced emergency room doctor who clearly has pretty good judgment as to what is and isn't life threatening. > next is that if they were gonna have a bad reaction it > usually happened with the first IV. Unforttunatley this is not true. Many people have it blow up on them after several apparently fine iv's. The risks do not appear to decline with continued use. > Also I > figure that if something real bad does happen from the IV's say more than > once per 50 people; these docs who give it would be out of business wouldn't > they? No. Mostly patients don't complain to medical boards, espeically in alterantive medicine where the patients are really desparate for anything that might help and usually really appreciate the doc being willing to do this. The adverse reaction rate is about 1 in 6 people. The adverse reaction rate to lots of mainstream medical therapies is much more than 1 in 50, medical licensure really doesn't protect the public as much as you'd expect. > The DMPS backfire people should all be millionairs after what they've > gone through; Apparently you are not aware of how malpractice law works. Some of them ARE suing the doctor. It takes 5-10 years to get to a judgment. The legal standard is thus: permanent disability or death resulted AND the doctor did something no other doctor would have done in that situation (not just that it was abad choice or hurt the patient) AND the doctor had reasonable reason to know better. Pain and suffering are very hard to collect for. Then after 5-10 years if you get a judgment it is not easy to collect it. E. g. in a case I know of locally, a chiropractor inappropriately adjusted a woman's neck, caused a stroke, and permanently disabled her from anything but basically being a janitor. The court found he was at fault but awarded no monetary damages since she was still able to do something for a living. In order to qualify for damages disability has to be total. in order to qualify for pain and suffering you generally need pain of the sort that requires narcotics to stop you from screaming. > since the docs; according to the AMA should never give DMPS except > in acute mercury poisoning. The AMA doesn't try the cases. Judges and juries do under the standards above. > I personally know 2 people who've done DMPS who > had fibro or CFS and they both got significant benefit from it. I'm glad. I know dozens, about 6 in person as friends or acquaintances, who had very careful doctors prepare them as well as possible who then had horrible permanent worsenings. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 : > > > > HI everyone; > > I am looking for people who've tried or know someone who'se tried IV >DMPS; > In 2001 I was sure that I was starting to develop Parkinson Disease........a 24 hour heavy metal urine test turned up lots of problems. I had the mercury fillings replaced and had about 12 IV DMPS treatments and my Parkinson symptoms disappeared. I followed each DMPS treatment several days later with a Vitamin and Mineral IV. I am positive for Lyme, Stealth, Mycoplasma fermentans incognitus. Wishing you better health, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Hi, Andy. I'm confused when I read this message together with your earlier one about DMPS and DMSA. In that one, you recommended DMPS. Was that oral, and here it's I.V.? Rich > > > > HI everyone; > > I am looking for people who've tried or know someone who'se tried IV > DMPS; > > I know lots and lots of people who made this mistake. > > > if they got good results or if it hurt them. > > One in 6 turn out as described at www.dmpsbackfire.com , I know some > of those people and their stories are accurate, also I know many other > people who had similar or worse experiences and are not reported there. > > > I read these horror stories on > > there; but a couple of things stick out; one is that many seem to > have still > > had their fillings in; > > The 1 in 6 counts only those who had no fillings or other exposure at > the time of the DMPS injection. I know of several life threatening > reactions to iv DMPS in people with no fillings. " life threatening " > is not my judgment, it was their doctor's prognosis when they called > me up to ask what to do now. One was an experienced emergency room > doctor who clearly has pretty good judgment as to what is and isn't > life threatening. > > > next is that if they were gonna have a bad reaction it > > usually happened with the first IV. > > Unforttunatley this is not true. Many people have it blow up on them > after several apparently fine iv's. The risks do not appear to > decline with continued use. > > > Also I > > figure that if something real bad does happen from the IV's say more > than > > once per 50 people; these docs who give it would be out of business > wouldn't > > they? > > No. > > Mostly patients don't complain to medical boards, espeically in > alterantive medicine where the patients are really desparate for > anything that might help and usually really appreciate the doc being > willing to do this. > > The adverse reaction rate is about 1 in 6 people. > > The adverse reaction rate to lots of mainstream medical therapies is > much more than 1 in 50, medical licensure really doesn't protect the > public as much as you'd expect. > > > The DMPS backfire people should all be millionairs after what they've > > gone through; > > Apparently you are not aware of how malpractice law works. > > Some of them ARE suing the doctor. It takes 5-10 years to get to a > judgment. The legal standard is thus: > > permanent disability or death resulted > > AND > > the doctor did something no other doctor would have done in that > situation (not just that it was abad choice or hurt the patient) > > AND > > the doctor had reasonable reason to know better. > > Pain and suffering are very hard to collect for. > > Then after 5-10 years if you get a judgment it is not easy to collect it. > > E. g. in a case I know of locally, a chiropractor inappropriately > adjusted a woman's neck, caused a stroke, and permanently disabled her > from anything but basically being a janitor. The court found he was > at fault but awarded no monetary damages since she was still able to > do something for a living. In order to qualify for damages disability > has to be total. > > in order to qualify for pain and suffering you generally need pain of > the sort that requires narcotics to stop you from screaming. > > > since the docs; according to the AMA should never give DMPS except > > in acute mercury poisoning. > > The AMA doesn't try the cases. Judges and juries do under the > standards above. > > > I personally know 2 people who've done DMPS who > > had fibro or CFS and they both got significant benefit from it. > > I'm glad. I know dozens, about 6 in person as friends or > acquaintances, who had very careful doctors prepare them as well as > possible who then had horrible permanent worsenings. > > > Andy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Hi Andy, Thank you so much for this link. www.dmpsbackfire.com If I ever again hear of anyone planning to use DMPS I will scream and holler until they read that site. Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Sue, I am planning to get genovations testing, get my methylation cycle in order, and then do transdermal DMPS. Even tho I've read a lot of parents doing Cutler's protocol of low dose DMSA every 3-4 hours for their kids, with my sleep disorder from lyme it is a terrible idea for my health to wake myself up every 4 hours. If I can get 6 hours of uninterrupted sleep that is really good and I always have a hard time falling back asleep since lyme. So. The half life is very important. If you do DMSA you do have to do it every 3-4 hours. If you do DMPS you can do it every eight hours. The problem, to me, with the IV is that you are getting a huge amount. With oral or transdermal, you can start low and slow and keep low constant amounts in the body, which hoepflly will limit redistribution. But you want your methylation cycle in order first. PRobably the folks who did really badly on DMPS shots had poor methylation, made worse by the metals, and couldn't detox any metals, and then the DMPS grabbed a lot and redistributed some, which just repoisoned them. So there is a logic to my thinking and in truth DMPS Is a bit of a stronger chelator, until we get Boyd Haley's in what, 3-5 years, whatever, that's the best we've got. > > Hi Andy, > > Thank you so much for this link. > > www.dmpsbackfire.com > > If I ever again hear of anyone planning to use DMPS I will scream and > holler until they read that site. > > Sue , > Upstate New York > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Jill, What is Boyd Haley going to have (in time)!? Your description fits me well. I don't have Lyme, but I do have disordered sleep. DMPS in IV or oral form overwhelms me. With DMSA, I'll do everything, multiple alarms, pills under my pillow, etc.. in order to try and get the every 3-4 hours with the DMSA/ALA. Yet I find myself waking up, still clutching the pill in my hand hours after the alarms have been turned off. I'd like to try the transdermal, but I've experienced how critical the Cutler protocol timeline is for me, (three hours works best), so I don't trust something that doesn't take that half-life into consideration. I have done some genomics testing and my methylation pathway is blocked, along with other issues. I think it is par for the course among " us. " Here's to new options!! Jess > > > > Hi Andy, > > > > Thank you so much for this link. > > > > www.dmpsbackfire.com > > > > If I ever again hear of anyone planning to use DMPS I will scream and > > holler until they read that site. > > > > Sue , > > Upstate New York > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Jill, What is Boyd Haley going to have (in time)!? Your description fits me well. I don't have Lyme, but I do have disordered sleep. DMPS in IV or oral form overwhelms me. With DMSA, I'll do everything, multiple alarms, pills under my pillow, etc.. in order to try and get the every 3-4 hours with the DMSA/ALA. Yet I find myself waking up, still clutching the pill in my hand hours after the alarms have been turned off. I'd like to try the transdermal, but I've experienced how critical the Cutler protocol timeline is for me, (three hours works best), so I don't trust something that doesn't take that half-life into consideration. I have done some genomics testing and my methylation pathway is blocked, along with other issues. I think it is par for the course among " us. " Here's to new options!! Jess > > > > Hi Andy, > > > > Thank you so much for this link. > > > > www.dmpsbackfire.com > > > > If I ever again hear of anyone planning to use DMPS I will scream and > > holler until they read that site. > > > > Sue , > > Upstate New York > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 My diagnosis is CFIDS. About six years ago my doctor realized I had a significant mercury level and I started chelating with DMPS. At the clinic where I am being treated, patients get a DMPS infusion every other week, with an IV of vitamins and minerals and a glutathione push forty-eight hours later. It's been an arduous journey but I feel significantly better than I used to. For the first couple of years on the DMPS I felt much worse after each infusion, and by the time I climbed out of the yuck it was time for another dose. Now, though, it's much easier and I hardly notice. Occasionally I seem to get depleted and I take a break from the routine, skipping the DMPS and just getting IV vitamins and/or glutathione until I feel better, then I resume chelation. The vast majority of patients in the clinic clear their mercury in well under a year. Two other patients and I, however, have neeeded a great deal more time than that. My doctor told me that they are finding that people with CFIDS or a CFIDS-like situation who have been ill a long time generally take longer to lose their heavy metals than people who suddenly become ill and immediately begin to chelate. I have tried DMSA and did not tolerate it at all. I got neurological symptoms (dizziness and ringing in the ears) so I am going to do as much as I can with DMPS and see where we go from there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hey ! > I had two DMPS IV's. They were a disaster for me... How are you doing these days? Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 I don't know. I just know he's working on a strong chelator, in which I think he is adding glutathione which is a good idea. Can you get your methylation pathways corrected with the right supplements? DMPS has an 8 hour half life. I also would like to reply as to how he's doing. Clearly he can handle IV. With transdermal, you could start with very small amounts. Of course there is controversy about it. Those who follwo Cutler's oral DMSA preotocol are against DMPS and say the transdermal is ineffective or that kids regress on it ultimately or that you can't monitor uptake. Then those who are having success with it, are thrilled. So. It's individual. I think it would depend on an individual's body chemistry and what their worst metals are. ALA never had an effect on me. DMSA had a really bad effect (redsitribution--after a 50 mg challenge dose) One thing I do know is Cutler was smart to talk about half life of a chelator. Trying to avoid distribution is really important I think, but also, having the right stuff to mop up distribution is important. > > > > > > Hi Andy, > > > > > > Thank you so much for this link. > > > > > > www.dmpsbackfire.com > > > > > > If I ever again hear of anyone planning to use DMPS I will scream > and > > > holler until they read that site. > > > > > > Sue , > > > Upstate New York > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hi Sue!! At the moment I'm doing quite well - not working yet, but closing in on it, I hope. I am taking more active care of my children, and hopefully helping my beleagured husband out a bit. I had been doing equally well, (maybe even a bit better on sleep issues), last fall. But then I chelated twice, and messed the second round up. This caused me to go backwards, and may have combined to cause some strange drug interaction or SOMETHING, as I wound up with scary visual hallucinations. Extremely weird, not to mention unsettling. Now we're sure I'm okay with all that, and I'm feeling pretty good. I can engage in some real exercise and not collapse or even need a nap! So I am feeling optomistic, as I am far better than I was even a year ago. How about you? What is happening there? Thanks for the note.. Jess > > Hey ! > > > I had two DMPS IV's. They were a disaster for me... > > How are you doing these days? > > Sue , > Upstate New York > Quote Link to comment Share on other sites More sharing options...
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