Re: Aspergers and Diet- Oh, yes!

[Guest guest]

Lou,

I have copied my three month update below that I posted on this

board. My son is continuing to do well except I believe he cannot

tolerate some highly phenolic foods even with enzymes. Actually, he

can " tolerate " them, but I think they cause him to wet and to stim

more. I have also seen some redness on his bottom lately I think

because I over-loaded him on tomato sauce and red grapes.

The behaviors described below are still present. Please post if you

have any other questions.

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From: ckelley100@...

Date: Sun Jul 22, 2001 10:52 am

Subject: THREE MONTH UPDATE

THREE-MONTH UPDATE

My son is eight years old and has Asperger's Syndrome. He was on the

gfcf diet for one year. Throughout the year, I also had to remove

eggs, corn, soy, nuts, tomatoes, mustard, chocolate, yeast, sorghum

flour, colorings, most flavorings, all but three fruits, most

vegetables, and coconut butter. He was restricted to low-sugar, low-

fruit and no vinegar due to a yeast problem. Just before adding

enzymes, I was planning to remove beef and white grapes due to

apparent sensitivities that were developing. Any diet infraction

consistently resulted in a bright red bottom, atypical behavior, and

wetting. Behaviors lasted one to three days and consisted of

unexplained anger, aggression, sound intolerance and/or

unresponsiveness. Usually the behavior pattern was a day of lethargy

and unresponsiveness followed by two days of anger and aggression,

with sound intolerance throughout. Additionally, a diet infraction

was usually followed by red ears.

Three months ago, on April 21, my son had his first dose of Peptizyde

and HN-Zyme Prime. He ate a complete restaurant meal of gluten and

casein filled food. He had no reaction.

I took all the information about the HNI enzymes to my son's

pediatrician. She sent a request to the school that the enzymes be

given with any diet infractions. We continued to give him the

enzymes with each meal and allowed more planned infractions. We saw

no red ears, no red bottom, no unresponsiveness, no unexplained anger

and no aggression. In fact, we started seeing an increase in many

areas of development. At a school conference, my son's teacher and

speech therapist insisted they were seeing significant changes that

they attributed to the enzymes started two weeks earlier. At four

weeks, with a much-expanded diet, my son's teacher called me with

more increases in behavior. She saw a new enthusiasm for learning, a

large increase in problem-solving skills, significantly more peer

interaction, and an overall happier child. At this point, my son was

eating a largely expanded diet with still more exposure to gluten and

casein.

Within a few more weeks, my son was completely off all previous

dietary restrictions. The only side effect was wetting, which has

since decreased by 90% or better. Not only do we not see any of the

problem behaviors and skin reactions of the past, we now see the

following behaviors on a consistent, daily basis:

Eye Contact: Increase of at least 500% since taking the enzymes.

Eye contact now could be categorized in the " normal " range.

Sound tolerance: Previously could not tolerate brother's voice about

90% of the time and either had to leave the room or would scream at

his brother. This is no longer observed. He now has responds

typically to his brother's sometimes excessive talking.

Initiating Conversation: Pre-enzyme, conversations were almost

exclusively about his narrow field of interest (Legos, computer

games). Now initiates conversations about a range of topics. Asks

questions that reach outside him, such as, " So, Mom, did anything

wonderful happen to you today? " and " What did you talk about while I

was gone? "

Obsessiveness: No longer obsessed with Legos. Pre-enzyme, would

always have a Lego flyer, book or instruction manual in his hand. He

read about Legos almost all day. Legos are now a favorite hobby, but

not an exclusive obsession. Previously would become angry if not

able to focus on Legos. Now asks to do a variety of activities.

Affection: Gives more spontaneous hugs, says, " I love you, " more.

Overall, significantly more affectionate with parents and

grandparents.

Empathy: Shows genuine concern for brother, which was not seen

before enzymes.

Self-stimming: Hand-flapping decreased significantly, especially in

brightly lit stores. Since adding back zinc the last few days,

stimming has decreased even more. Overall decrease of at least 50%.

Self-injurious behavior: Biting and hitting self when angry or

stressed decreased about 75% after enzymes. Since adding back zinc,

these behaviors have not been observed.

Transitioning: Previously, changing activities would usually result

in back talking or tantruming. Since enzymes, these behaviors have

decreased about 80%. Now back talks in a more typical way, not as an

automatic and exaggerated response to all changes and requests.

Desire for physical activity: Pre-enzyme, had to be forced to go

outside to play. Now compliant and even enthusiastic at the

suggestion at least half the time.

Skin color: Skin is less pale. Relatives comment he looks

healthier. Circles under eyes have lessened. Face looks more filled

out.

Adherence to routine: Significantly better able to handle changes in

daily routine, such as wearing mismatched pajamas or brushing teeth

in a different bathroom.

Stools: Stools are firmer, no longer light colored.

Interaction with Brother: By far, the most notable change. Pre-

enzyme would occasionally run through the house with him, sometimes

play with Legos with him for a total interaction time of about 15

minutes daily. Since enzymes, interacts with his brother throughout

the day. Now teaches him to play board games. Asks his opinion

about topics in books, encourages him to watch videos together.

Points out observations. Explains his ideas. Shares plans to play

tricks to play on parents. Tells his brother jokes. Giggles at his

brother's jokes. Fights in a typical sibling way, not in a sound

intolerant, screaming " Go away from me " way. After enzymes, asked to

sleep in his brother's room for the first time. Tolerates his

brother's tantrums and misbehavior exceptionally well.

Waking Up: Pre-enzyme, came downstairs in a grumpy mood almost all

of the time. Now consistently comes downstairs in a pleasant mood.

Awareness: Significantly more aware of the actions of others. Since

enzymes, has started eavesdropping on our conversations. No longer

appears detached. Has a better awareness of safety issues.

Problem Solving: Since starting enzymes, problem solving is no

longer a weakness. He is able to reason better and does not give up

readily as seen with pre-enzyme behavior. He is more aware of

consequences and acts accordingly.

Short-Term Memory: Now remembers requests and general information

better.

Humor: His humor is now more sophisticated. Recognizes the

subtleties of humorous situations.

Vocal Quality: Pre-enzymes, voice was unusually high-pitched. His

voice is now significantly and more appropriately lower.

Prosody: Pre-enzymes, voice was more flat. Now has a natural rise

and fall within each sentence.

Rate of Speech: Pre-enzymes, voice was slow and measured. Now has a

faster, natural rate of speech.

Disposition: Significant increase in overall happiness. Rarely

exhibits the typical pre-enzyme grumpy mood.

My son currently takes: HNI's Peptizyde and HN-Zyme Prime with each

meal, calcium/magnesium, zinc, probiotics.

Kelley

> Hi, I'm new and haven't had time to read all messages. Anyway, I

am

> curious if there is any research/proof in altering diet to help

curb

> the symtoms of aspergers. I read an article in a newspaper

recently

> which stated that the use of certain oils and minerals which we

don't

> readily eat nowadays can help ease the symptoms. Anyone got any

> helpful comments??????

[Guest guest]

Dear ,

This sounds like the direction we need to go. I have a 5 year old

daughter who is suspected AS. I want to homeschool. she would be

entering K right now, but she has a late birthday for our school year

in Texas, and as a former teacher, I know she'd never be where her

peers are even if she were nt, just b/c of age and size (she's just 31

lbs.). So, your son's wetting is attributed to food intolerances? That

is so interesting. She still has incredibly poor bladder control &

truly doesn't care. I've been so sad this week realizing if I wanted

to put her in school, she wouldn't be ready b/c of that. With the

diet, did the wetting stop, til you started the foods again? I'm

wondering, since we haven't done the diet, if the enzymes will cause a

similar reaction as the diet & might help w/ that, too. Your update

gives me hope that enzymes might help Bethany. Thank you! Now to find

the extra $ to buy them!

Lori Garrison

[Guest guest]

How long does it take the enzymes to start making a difference in your

kids? Thanks. Lori

[Guest guest]

I will answer your questions throughout your message below:

> Dear ,

> This sounds like the direction we need to go. I have a 5 year

old

> daughter who is suspected AS. I want to homeschool. she would be

> entering K right now, but she has a late birthday for our school

year

> in Texas, and as a former teacher, I know she'd never be where her

> peers are even if she were nt, just b/c of age and size (she's just

31

> lbs.).

My son has a summer birthday, is very small and with his previous " in

another world " state, we held him back a year from school. Around

here, that is a common practice with " NT " boys that have late

birthdays regardless of their size and development.

So, your son's wetting is attributed to food intolerances?

Yes! And when I brought that up to some doctors, they said, " Oh,

yes, that is possible. " Nobody told me that until I brought it up

from my own research.

That

> is so interesting. She still has incredibly poor bladder control &

> truly doesn't care. I've been so sad this week realizing if I

wanted

> to put her in school, she wouldn't be ready b/c of that. With the

> diet, did the wetting stop, til you started the foods again?

Yes, it stopped, then would resume with each new food sensitivity as

it developed. Then I'd remove that food, and the wetting would stop.

I'm

> wondering, since we haven't done the diet, if the enzymes will

cause a

> similar reaction as the diet & might help w/ that, too.

The enzymes might do the trick unless they don't help your child with

phenols and if your daughter's wetting is due to phenols. She may do

really well, but realize you may still have to remove some highly

phenolic foods. It varies from child to child. I don't usually come

right out and say, " Try these! " , but it really sounds like your child

could benefit. It will be interesting to see if the wetting stops.

If not, post again and we can compare notes.

Let me know if you have any more questions.

[Guest guest]

Most see a difference in the first three weeks, but a for a few it

took over five weeks. If you don't see any results or see a

reaction, you may need to adjust the dose up or down.

> How long does it take the enzymes to start making a difference in

your

> kids? Thanks. Lori

[Guest guest]

are these also good for hypoglacemia?

--- ckelley100@... wrote:

> Most see a difference in the first three weeks, but

> a for a few it

> took over five weeks. If you don't see any results

> or see a

> reaction, you may need to adjust the dose up or

> down.

>

>

>

>

>

> > How long does it take the enzymes to start making

> a difference in

> your

> > kids? Thanks. Lori

>

>

>

[Guest guest]

> How long does it take the enzymes to start making a difference in

your

> kids? Thanks. Lori

We saw a different the first day. My boys and I get a really solid

migraine starting about 2-3 hours after eating even a little casein.

We have been casein free for about 2 months when the enzymes came out

and saw no reaction at all with Peptizyde+casein. If you are not

casein free to begin with, it takes about 3 days for it to leave your

system, so within a week might be a good time frame. With others it

may take several weeks.

.

[Guest guest]

In a message dated 8/18/01 7:42:16 PM Pacific Daylight Time,

houstonni@... writes:

> While no formal study has been done using enzymes for hypoglycemia,

>

Are there formal studies out there using HNI enzymes for autism? If so,

where are they? I want DH to see them.

Margaret

[Guest guest]

While no formal study has been done using enzymes for hypoglycemia,

theortetically, it could.

Enzymes that break down complex carbohydrates (amylase, glucosidase,

lactase, etc.) can allow more simple sugars to be made available for

absorption.

Devin

> > > How long does it take the enzymes to start making

> > a difference in

> > your

> > > kids? Thanks. Lori

> >

> >

> >

[Guest guest]

No formal study has been completed using the HNI enzymes, however, at

least one is in the preliminary stages at a large Midwest university

center.

Devin

> In a message dated 8/18/01 7:42:16 PM Pacific Daylight Time,

> houstonni@y... writes:

>

>

> > While no formal study has been done using enzymes for

hypoglycemia,

> >

>

> Are there formal studies out there using HNI enzymes for autism?

If so,

> where are they? I want DH to see them.

>

> Margaret

>

>

>