Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 Noone answered my " Does Heparin relieve anyone's brainfog here? " question so I suppose it hasn't. Nice posting of the Layman's guide to blood coagolation--thanks. My question is do most of you here inject heparin just once every 24 hours b/c I read about that girl in the UK on the Research list who injected twice a day. I think they come out with a pill form later this year, right? I suppose I will look into trying heparin later this year but right now I am taking licorice for hypotension which means that since it is raising my blood pressure it is also reducing blood volume, right? Does lowering blood volume (by taking licorice or supplementing with salt) affect blood viscosity is what I'm wondering. I know it is supposed to be the other way around: that blood coagolation (from the infection of the virus) causes increase in blood volume which lowers blood pressure but in this case I'm wondering if licorice affects blood viscosity/coagolation. In other words, should one be off licorice for a couple weeks before taking the ISAC test or is low blood pressure in and of itself proof enough to skip the ISAC to save money and just go right to heparin injections and get off the licorice? Did any of you here notice your hypotension lessened after being on heparin? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 hi and all - > Noone answered my " Does Heparin relieve anyone's brainfog here? " question so > I suppose it hasn't. when my doc first tried it iv with me (2500 units) it did disappear the brainfog dramatically, but didn't notice the same effects with sub-q injections, though I was taking a very small dose - .2 cc My question is do most of you here inject heparin just > once every 24 hours most people inject 2x/day - the stuff only stays in your bloodstream something like 6 hrs. .. I think they come out with a pill form later this > year reading the drug co. insert, heparin only works iv or subq, not im or orally, I think someone just came out with a nasal spray, but have no info saved on this, you might check the archives. Judith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 Judith, did you doc give you ISAC first or did he just try you on it I.V. first? I know it's called NMR for neurally mediated hypotension as if it's caused by a false signal from the brain and it can be overidden somewhat by taking flourineff, sodium, licorice, but I was thinking, is it NMR or is most hypotension that is so common in CFS really caused by the increase of blood volume due to blood coagolation due to the body's reaction to viruses as explained in that layman's guide to blood viscosity? Interesting. I used to be horrified at the thoughts of injecting every day but now that I just started the B12 shots and use the technique of relaxing my thigh muscle as I explained a couple emails back it's really not a big deal at all; in fact, I actually kinda like it...ok I'm fibbing a little there :-) - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2001 Report Share Posted May 23, 2001 I don't know all your answers. But regular heparin you do twice a day. Low molecular weight heparin (Lovenox) you do once a day because it has a longer half life. I don't notice the injections affect my brain fog at all. I've been taking them almost a year. Cindi jseaton357@... 05/23/01 12:26 PM Please respond to cc: Subject: Blood coagolation Noone answered my " Does Heparin relieve anyone's brainfog here? " question so I suppose it hasn't. Nice posting of the Layman's guide to blood coagolation--thanks. My question is do most of you here inject heparin just once every 24 hours b/c I read about that girl in the UK on the Research list who injected twice a day. I think they come out with a pill form later this year, right? I suppose I will look into trying heparin later this year but right now I am taking licorice for hypotension which means that since it is raising my blood pressure it is also reducing blood volume, right? Does lowering blood volume (by taking licorice or supplementing with salt) affect blood viscosity is what I'm wondering. I know it is supposed to be the other way around: that blood coagolation (from the infection of the virus) causes increase in blood volume which lowers blood pressure but in this case I'm wondering if licorice affects blood viscosity/coagolation. In other words, should one be off licorice for a couple weeks before taking the ISAC test or is low blood pressure in and of itself proof enough to skip the ISAC to save money and just go right to heparin injections and get off the licorice? Did any of you here notice your hypotension lessened after being on heparin? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 5/24/01 12:46:55 AM Eastern Daylight Time, canderson@... writes: > But regular heparin you do twice a day. > Low molecular weight heparin (Lovenox) you do once a day because it has a > longer half life. > Ok, I was wondering what Luvenox was, now I know. Let me ask an obvious question: if Luvenox needs only injecting once a day why would anyone inject regular heparin? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 In a message dated 5/24/01 4:53:02 PM Eastern Daylight Time, canderson@... writes: > I could care less how many times a day I inject. It takes 2 seconds and I > don't feel a thing. > Thanks for telling us about the bone density thing. Does Cheney also use Lovenox too to those who don't mind insurance not paying it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 Lovenox is much more expensive and often insurance won't cover it. I have seen the literature say regular heparin is more effective, and that Lovenox is more effective. I think it might depend on the person. Regular heparin also has the side effect of being able to reduce bone mass. I was just tested after a year on it and my bones were ok. But it could be a problem. I could care less how many times a day I inject. It takes 2 seconds and I don't feel a thing. Cindi jseaton357@... 05/24/01 06:13 AM Please respond to cc: Subject: Re: Blood coagolation In a message dated 5/24/01 12:46:55 AM Eastern Daylight Time, canderson@... writes: > But regular heparin you do twice a day. > Low molecular weight heparin (Lovenox) you do once a day because it has a > longer half life. > Ok, I was wondering what Luvenox was, now I know. Let me ask an obvious question: if Luvenox needs only injecting once a day why would anyone inject regular heparin? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 , Cheney has never even mentioned Lovenox to me. He prefers heparin injected twice a day. From talking to his nurse, I get the impression it's his gold standard, as I was asking about unpreserved heparin, and she replied that no one has ever reacted to the preservative in the heparin. Of course, I haven't asked him about Lovenox - heparin is pretty cheap, and I don't mind an extra stick. (I inject 3 to 4 times a day - what's one more!) Donna in NC Re: Blood coagolation > In a message dated 5/24/01 4:53:02 PM Eastern Daylight Time, > canderson@... writes: > > > > I could care less how many times a day I inject. It takes 2 seconds and I > > don't feel a thing. > > > > Thanks for telling us about the bone density thing. Does Cheney also use > Lovenox too to those who don't mind insurance not paying it? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2001 Report Share Posted May 24, 2001 From: <jseaton357@...> > Noone answered my " Does Heparin relieve anyone's brainfog here? " question so I suppose it hasn't. >My question is do most of you here inject heparin just once every 24 hours >Did any of you here notice your hypotension lessened after being on heparin? It's made my brainfog worse. But my liver doesn't detox properly, so if the heparin is cleaning up debris, or allowing bugs to be killed off and die, causing a herx, my liver can't keep up with the cleanup, and these lovely critters get to send their toxic die off crap throughout my bloodstream until my liver can catch up. I inject twice a day, and the only other part of your message I can answer is that nope - it did not help my hypotension. Still runs mid to high 80's over high 50's to mid 60's on a good day. Bad days I just don't want to know about! I do think it has made me warmer though. I always used to freeze, now still cold natured to be sure, but definitely less so. Donna in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 In a message dated 5/24/01 10:31:43 PM Pacific Daylight Time, donnap@... writes: > . But my liver doesn't detox properly, so if > the heparin is cleaning up debris, or allowing bugs to be killed off and > die, causing a herx, my liver can't keep up with the cleanup, and these > lovely critters get to send their toxic die off crap throughout my > bloodstream until my liver can catch up. I inject twice a day, and the only > other part of your message I can answer is that nope - it did not help my > hypotension. Still runs mid to high 80's over high 50's to mid 60's on a > good day. Bad days I just don't want to know about! I do think it has made > me warmer though. I always used to freeze, now still cold natured to be > sure, but definitely less so. > > Donna, the same thing happens to me. My liver can not keep up with all the die off and the Heparin use. I feel like all the die off and toxins just get caught in me and I become really toxic and I feel terrible. I can't sleep and I get really brain fogged. It is terrible. I wish there was a way to help body filter everything better. I have tried so many things but nothing has helped. Quote Link to comment Share on other sites More sharing options...
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