Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 I'm doing much better on a high dose of vitamin D. I'm even getting up and cooking breakfast in the morning if you can believe that. My MRI showed no demyelination on my spine, only one brain lesion. The muscle spasms in my legs and left eyelid have completely stopped. My muscle strength is much improved, and I did not think that was possible because my muscles are so infiltrated with scar tissue. My blood is starting to look a little less like molasses and more like blood. There are several reasons why it might help PWC's. It's a blood thinner potent enough to be used as rat poison (so DON " T take it with heparin). It's anti-inflammatory, especially in the intestine. It has an effect on the calpain in lymphocytes that isn't well understood. By regulating calcium it also has a calming effect and helps normalize nerve conductivity. BUT.... No one should take a high dose of vitamin D without evaluating the phosphorous/ calcium/ magnesium ratio you're getting. I believe the potential for toxicity is exaggerated by those who don't think anyone should take supplements, but you do need to take it in a proper proportion to calcium. You can create a whole new set of problems. Take only the natural lipid soluble vitamin D. If you take 3,000 units, for example, you will need 1500 mg each of calcium and phosphorous, and 750 mg of magnesium. So in a way, the amount of vitamin D you can take is somewhat limited by your bowel tolerance for magnesium. Phosphorous is so abundant in whole foods it's not necessary to supplement, and if you drink soda you're probably getting way too much. That amount of calcium can be supplied half by foods and half by supplements. There is no way to get adequate magnesium from commercially grown foods. Some studies done in the 1960's indicated that taking vitamin C with vitamin D would prevent toxicity. The RDA for vitamin D, 400 IU won't help you any more than the RDA of 15 IU of vitamin E or 75mg of vitamin C will. And remember too, that getting vitamin D from sunshine might be ideal, but not realistic for most of us. If you're walking around naked several hours a day in a temperate climate (without bathing) then you probably do get all the vitamin D you need from sunshine : ) Message: 25 Date: Wed, 11 Apr 2001 20:36:32 -0000 From: feige2see@... Subject: Vitamin D & immune system Reuters article yesterday,vitamin D useful in M.S. patients by having effect on cytokines.What do the people out there think of vit. D supplements for CFS? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 This is very interesting because my condition has always improved between May and September and then begins to decline in October. Maybe it's the extra Vit. D I'm getting from the sunshine? Re: re: Vitamin D & Immune system > In a message dated 4/12/01 8:01:11 AM Eastern Daylight Time, > faerytails@... writes: > > > > If you're walking around naked several hours a day in a temperate climate > > (without bathing) then you probably do get all the vitamin D you need from > > sunshine : ) > > > > Could explain though why I have always done better in the summertime. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 In article I posted about Vit.D the study for M.S.patients was 25mcg.a day How does that come out to when measured in I.U. on vitamin bottles. > This is very interesting because my condition has always improved between > May and September and then begins to decline in October. Maybe it's the > extra Vit. D I'm getting from the sunshine? > Re: re: Vitamin D & Immune system > > > > In a message dated 4/12/01 8:01:11 AM Eastern Daylight Time, > > faerytails@w... writes: > > > > > > > If you're walking around naked several hours a day in a temperate > climate > > > (without bathing) then you probably do get all the vitamin D you need > from > > > sunshine : ) > > > > > > > Could explain though why I have always done better in the summertime. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 hi all - > In article I posted about Vit.D the study for M.S.patients was > 25mcg.a day How does that come out to when measured in I.U. on > vitamin bottles according to Earl Mindell's Vitamin Bible 40 IU = 1 mcg.. Life Extension Mix Powder ( a multi) has 300 IU, my can of Sparx has D3 as 800 IU. this raises another question, if there is a D3, is there a D1,2, and 4? Judith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 In a message dated 4/12/01 5:43:39 PM Eastern Daylight Time, feige2see@... writes: > In article I posted about Vit.D the study for M.S.patients was > 25mcg.a day How does that come out to when measured in I.U. on > My Advanced Daily by NutriNeeds has 400iu. Is 400 4/10 of 1mcg or a totally different measurement altogether? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 Judith Gilbert wrote: > > hi all - > > > In article I posted about Vit.D the study for M.S.patients was > > 25mcg.a day How does that come out to when measured in I.U. on > > vitamin bottles > > according to Earl Mindell's Vitamin Bible 40 IU = 1 mcg.. Life Extension Mix > Powder ( a multi) has 300 IU, my can of Sparx has D3 as 800 IU. > > this raises another question, if there is a D3, is there a D1,2, and 4? I know there is D2 which is supposed to be made from yeast. D3 is made from bovine whatever, which I prefer to avoid. Did (sorry, can't remember name) who posted about the " natural lipid soluble VitD " ever say what brand? I need to go researching. TIA MA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Snap on the seasonal variation of symptoms. Bell has commented on the " October Factor " before. Perhaps we should all pay more attention to this illness moderator. One early theory I had was mould sensitivity but I have discounted this now. Currently I think that it is to do with hypercoagulation. The incidence of strokes goes up in cold weather due to the coagulating effect this has on the blood. I have also noticed a clear correlation with low pressure weather systems and symptoms patterns. In a depression I feel alot worse and energy levels bottom out. This could be to do with the barrow receptors in the nose. Bob --------------- Message: 11 Date: Thu, 12 Apr 2001 13:19:49 -0700 From: " Bullock " <bullocks@...> Subject: Re: re: Vitamin D & Immune system This is very interesting because my condition has always improved between May and September and then begins to decline in October. Maybe it's the extra Vit. D I'm getting from the sunshine? __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 > I have > also noticed a clear correlation with low pressure > weather systems and symptoms patterns. In a > depression I feel alot worse and energy levels bottom > out. This could be to do with the barrow receptors in > the nose. > > Bob I get horrible headaches when the barometric pressure drops. I am just getting over one. I put 'barometric pressure and headache' into a search engine last night and came up with a ton of URLs, so a lot of other non CFS types get these too. One doc referred to " baroreceptors " in the neck which are glands (?) that work to keep pressure in the head normalized. This info isn't related to this thread, but I thought I would throw it in. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Sometimes I wonder how many " non CFS " types have the same things going on as us but not to the degree. My " barometric pressure " headaches still went away with heparin and abx. Maybe other people have hypercoag blood and don't know it. Or some other type of thing like that. Cindi kmcamp22@... 04/13/01 02:33 PM Please respond to cc: Subject: Re: Vitamin D & Immune system > I have > also noticed a clear correlation with low pressure > weather systems and symptoms patterns. In a > depression I feel alot worse and energy levels bottom > out. This could be to do with the barrow receptors in > the nose. > > Bob I get horrible headaches when the barometric pressure drops. I am just getting over one. I put 'barometric pressure and headache' into a search engine last night and came up with a ton of URLs, so a lot of other non CFS types get these too. One doc referred to " baroreceptors " in the neck which are glands (?) that work to keep pressure in the head normalized. This info isn't related to this thread, but I thought I would throw it in. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 > Sometimes I wonder how many " non CFS " types have the same things going on > as us but not to the degree. My " barometric pressure " headaches still > went away with heparin and abx. Maybe other people have hypercoag blood > and don't know it. Or some other type of thing like that. > Cindi That is interesting. My sed rate runs 0-1, but i haven't done the ISAC yet. I will bring up the heparin tx w/ my pain doc. Mike Quote Link to comment Share on other sites More sharing options...
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