Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Hi, Penny; Breaking down proteins is important, more so if one's diet is limited. The body needs every bit of nutrition it can get out of food, and that's the idea behind using enzymes, insuring that what little these kids eat doesn't go down the toilet! Since you are having difficulty being GF, the protease enzymes will break down the gluten such that gluteomorphins aren't produced, so maybe she can eat some gluten-containing foods and derive the protein her body needs from it without suffering ill effects from the gluten peptides (because they won't be there). If her diet is primarily carb-based, perhaps using an enzyme product with carbohydrase enzymes, would be helpful. I don't want you to be confused, please call me if you wish more information. Devin > Hi - > This is going to sound like a really sarcastic question, but it is most definitely a serious one. > > I am reading that many of you are on a GF/CF/SF, corn free/no fruits/few vegetable/no phenols diet. > > In all seriousness...what in the world do your children eat?????? and is there a list? > > My daughter eats literally next to nothing already!!! We are trying to go GF, there are very few GF foods she will eat. We > have replaced cow's milk with Almond milk (she doesn't bother with any other dairy products), she will eat corn (rarely)- > she will eat an occassional apple, no other fruit, no other vegetables. and chocolate/sugar is her best friend, which we > have all but taken away. > > I hope this isn't Off-Topic...but my husband just ordered Peptyzide, and I'm wondering, if this breaks down protein-based > foods (?) - How is this going to help her? > > I'm getting more confused by the day!! We also just got her Gluten/Casein Peptide test results back which were > frighteningly way off the charts as far as what is suppose to be normal for children. > > Penny > -------------------------------------------------------- > " Just remember this: Plenty of Horsepower, No Traction " - R. S. on > > " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. > Let him step to the music he hears, however measured or far away. " > --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Hi - This is going to sound like a really sarcastic question, but it is most definitely a serious one. I am reading that many of you are on a GF/CF/SF, corn free/no fruits/few vegetable/no phenols diet. In all seriousness...what in the world do your children eat?????? and is there a list? My daughter eats literally next to nothing already!!! We are trying to go GF, there are very few GF foods she will eat. We have replaced cow's milk with Almond milk (she doesn't bother with any other dairy products), she will eat corn (rarely)- she will eat an occassional apple, no other fruit, no other vegetables. and chocolate/sugar is her best friend, which we have all but taken away. I hope this isn't Off-Topic...but my husband just ordered Peptyzide, and I'm wondering, if this breaks down protein-based foods (?) - How is this going to help her? I'm getting more confused by the day!! We also just got her Gluten/Casein Peptide test results back which were frighteningly way off the charts as far as what is suppose to be normal for children. Penny -------------------------------------------------------- " Just remember this: Plenty of Horsepower, No Traction " - R. S. on " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music he hears, however measured or far away. " --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Hi Penny, You have just vocalized what many people think, and was one of the scarier things I faced when I first considered removing foods. I found myself seriously wondering where to buy hormone-free, free range buffalo and ostrich. My younger son, 7 yr and 65 pounds, would only eat about 5-6 things for years without a fight. He would eat rediculously slow as well and had lots of bowel problems. We started him on the Peptizyde and two weeks later he was always saying he was hungry. He increased his intake by a good 1/3 and soon after expanded his list of " acceptable " foods to around 30. We added the Zyme about that time too. He is very sensitive to casein, but now eats dairy and every thing else without problem. He had not gained weight in two years and has put on 5 pounds in the last 3 months. When I hear of a picky eater with very limited diets, I think that there is a bigger gastro problem, of malabsorbtion, going on. We decided not to get peptide tests run because there were many people posting on them being about 80% accurate, well, at least that there was not a direct correlation between the test results and food elimination. Some people say that after a year or more of no casein or gluten, the results came back HIGHER than in the beginning. . >> In all seriousness...what in the world do your children eat?????? and is there a list? >> I'm getting more confused by the day!! We also just got her Gluten/Casein Peptide test results back which were > frighteningly way off the charts as far as what is suppose to be normal for children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 Penny, Penny, Before enzymes my son ate: Rice, rice flour, rice milk, garbonzo bean flour, poultry, pork, beef (I suspected this was becoming a sensitivity and planned on removing it), green beans, broccoli, cauliflower, potatoes, sweet potatoes, pumpkin, zucchini, kiwi, mango, white grapes (also about to remove before enzymes), safflower oil, olive oil, Ener-G Egg Replacer, buckwheat flour (very occasionally- suspected a developing sensitivity), Dari-Free (very occasionally- suspected a sensitivity due to flavorings), minimal Ghee on vegetables, Arrowroot flour, potato starch, potato flour, brown rice flour, Miss Roben's Ultimate Sweetener, mung bean starch, quinoa flour, amaranth flour, limited spices in muffins and on meat, minimal soda pop from health food store that did not contain corn syrup or colorings. I may have missed a few minor ones. > Hi - > This is going to sound like a really sarcastic question, but it is most definitely a serious one. > > I am reading that many of you are on a GF/CF/SF, corn free/no fruits/few vegetable/no phenols diet. > > In all seriousness...what in the world do your children eat?????? and is there a list? > > My daughter eats literally next to nothing already!!! We are trying to go GF, there are very few GF foods she will eat. We > have replaced cow's milk with Almond milk (she doesn't bother with any other dairy products), she will eat corn (rarely)- > she will eat an occassional apple, no other fruit, no other vegetables. and chocolate/sugar is her best friend, which we > have all but taken away. > > I hope this isn't Off-Topic...but my husband just ordered Peptyzide, and I'm wondering, if this breaks down protein-based > foods (?) - How is this going to help her? > > I'm getting more confused by the day!! We also just got her Gluten/Casein Peptide test results back which were > frighteningly way off the charts as far as what is suppose to be normal for children. > > Penny > -------------------------------------------------------- > " Just remember this: Plenty of Horsepower, No Traction " - R. S. on > > " If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. > Let him step to the music he hears, however measured or far away. " > --Henry Thoreau Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2001 Report Share Posted July 21, 2001 > I am reading that many of you are on a GF/CF/SF, corn free/no fruits/few vegetable/no phenols diet. > > In all seriousness...what in the world do your children eat?????? and is there a list? My short answer -- NOTHING. Before I started these enzymes, this is the entire complete 100% list of the foods 3 of my 4 children could eat. I am NOT kidding here, and you can trust me when I tell you that after 20 months on this diet, I had tried most all available foods on this planet [including several mail order from overseas]. Chicken Turkey Rabbit Sunflower seed Corn [not whole from a can, did not tolerate the bran] Buckwheat White rice [not brown or wild, did not tolerate the bran] Plus one calcium supplement I found that they tolerated. And there was still something here which was causing a mild reaction, and new information I discovered a few days ago leads me to believe it was the sunflower seed. Before enzymes, I gave my kids either plain food, or I baked EVERYTHING from scratch. With these enzymes, my children still cannot eat highly phenolic foods, most fruits, many vegetables, beef, nuts, nitrites/nitrates, eggs, gluten, casein, and a few others. But here is what they CAN now eat that they did not tolerate before -- potatoes, honey, molasses, tapioca, sesame, and the big one, SEVERAL PRE-PACKAGED ITEMS!! I am still adding back foods one at a time, to see which ones my kids can now tolerate with enzymes. But, now here is the fun part, my autistic son is no longer autistic. My PDD son no longer has an oozing rash all over his body. And my NT 2yo has a formed bm every time. I basically have 4 NT children now, but the middle two are delayed because they still have a lot of catching up to do. Therefore, I have a 7yo and THREE 2yo, and one is in a 5yo body so when he says NO, boy does he mean it!! One is in a 4yo body, the other is in a real 2yo body. But when we decided we wanted to have our children close together, we were not contemplating having three 2yo at the same time LOL. But it is definitely better than one autistic [very low functioning before diet] and one PDD. Here is a list of simple items for you to consider, that your child may eat. http://home.pacbell.net/cscomp/lunch.htm > I hope this isn't Off-Topic...but my husband just ordered Peptyzide, and I'm wondering, if this breaks down protein-based > foods (?) - How is this going to help her? The Peptizyde may allow you to feed your daughter foods containing gluten/casein, but you will have to try it to determine if it will work for her. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 Foods are very limited on the diet and again, each child is different. I used to bake everything from scratch, and later learned that my daughter couldn't evern tolerate gfcf flours, bread mixes etc. Most of the products in South Africa are made locally and are DEFINATELY contaminated. I have now eliminated all gf braeds and any baking! She lives on lamb stew/ostrich stew (which she loves!) and cranberry or pineapple juice (freshly squeezed of course!!!!) It is very difficult! (SA) --- danaatty@... wrote: > > I am reading that many of you are on a GF/CF/SF, > corn free/no > fruits/few vegetable/no phenols diet. > > > > In all seriousness...what in the world do your > children eat?????? > and is there a list? > > My short answer -- NOTHING. Before I started these > enzymes, this is > the entire complete 100% list of the foods 3 of my 4 > children could > eat. I am NOT kidding here, and you can trust me > when I tell you that > after 20 months on this diet, I had tried most all > available foods on > this planet [including several mail order from > overseas]. > > Chicken > Turkey > Rabbit > Sunflower seed > Corn [not whole from a can, did not tolerate the > bran] > Buckwheat > White rice [not brown or wild, did not tolerate the > bran] > > Plus one calcium supplement I found that they > tolerated. > > And there was still something here which was causing > a mild reaction, > and new information I discovered a few days ago > leads me to believe it > was the sunflower seed. > > Before enzymes, I gave my kids either plain food, or > I baked > EVERYTHING from scratch. > > With these enzymes, my children still cannot eat > highly phenolic > foods, most fruits, many vegetables, beef, nuts, > nitrites/nitrates, > eggs, gluten, casein, and a few others. But here is > what they CAN now > eat that they did not tolerate before -- potatoes, > honey, molasses, > tapioca, sesame, and the big one, SEVERAL > PRE-PACKAGED ITEMS!! I am > still adding back foods one at a time, to see which > ones my kids can > now tolerate with enzymes. > > But, now here is the fun part, my autistic son is no > longer autistic. > My PDD son no longer has an oozing rash all over > his body. And my NT > 2yo has a formed bm every time. I basically have 4 > NT children now, > but the middle two are delayed because they still > have a lot of > catching up to do. Therefore, I have a 7yo and > THREE 2yo, and one is > in a 5yo body so when he says NO, boy does he mean > it!! One is in a > 4yo body, the other is in a real 2yo body. But when > we decided we > wanted to have our children close together, we were > not contemplating > having three 2yo at the same time LOL. But it is > definitely better > than one autistic [very low functioning before diet] > and one PDD. > > Here is a list of simple items for you to consider, > that your child > may eat. > > http://home.pacbell.net/cscomp/lunch.htm > > > > I hope this isn't Off-Topic...but my husband just > ordered Peptyzide, > and I'm wondering, if this breaks down protein-based > > > foods (?) - How is this going to help her? > > The Peptizyde may allow you to feed your daughter > foods containing > gluten/casein, but you will have to try it to > determine if it will > work for her. > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 , I have heard of this too. I think the body gets used to another substance and then converts those into the " morphine " like substance and you get the same reaction as the casein and gluten. Are you saying your son ate more after being on the enzymes? (my daughter could do with picking up some weight, but by gum .... she eats like a horse as it is!!!! - my grocery bill costs more for her ion a month that it does for the other 3 of us and she is only 4!!!!) Have you had the peptide test done after the enzymes and taking a normal diet? Has anyone done the peptide test before and after the diet? and if so, what were the results? We are wanting to do the peptide test too. (SA) --- kjorn@... wrote: > Hi Penny, > > You have just vocalized what many people think, and > was one of the > scarier things I faced when I first considered > removing foods. I > found myself seriously wondering where to buy > hormone-free, free > range buffalo and ostrich. > > My younger son, 7 yr and 65 pounds, would only eat > about 5-6 things > for years without a fight. He would eat rediculously > slow as well and > had lots of bowel problems. We started him on the > Peptizyde and two > weeks later he was always saying he was hungry. He > increased his > intake by a good 1/3 and soon after expanded his > list of " acceptable " > foods to around 30. We added the Zyme about that > time too. He is very > sensitive to casein, but now eats dairy and every > thing else without > problem. He had not gained weight in two years and > has put on 5 > pounds in the last 3 months. When I hear of a picky > eater with very > limited diets, I think that there is a bigger gastro > problem, of > malabsorbtion, going on. > > We decided not to get peptide tests run because > there were many > people posting on them being about 80% accurate, > well, at least that > there was not a direct correlation between the test > results and food > elimination. Some people say that after a year or > more of no casein > or gluten, the results came back HIGHER than in the > beginning. > > . > > > >> In all seriousness...what in the world do your > children eat?????? > and is there a list? > > >> I'm getting more confused by the day!! We also > just got her > Gluten/Casein Peptide test results back which were > > frighteningly way off the charts as far as what is > suppose to be > normal for children. > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 , Actually I have read that especially with a " leaky gut " condition that a person if very prone to develop intolerances to whatever they eat the most. So it is easy to see how our diet would have a problem with dairy and wheat (gluten). Whereas in Japan there is a much more common intolerance to rice, and with Scandanavians, it is to fish. So maybe the soy truly does have a peptide structure similar to casein and gluten, but with a leaky gut, whatever foods you start subbing with, will start to cause a problem too. It is good to hear that some people can eliminate just the casein and gluten, but it also explains why many people end up eliminating more and more. Yes, my younger son (the Prince of Pickiness) started eating MUCH more and put on about 5 pounds. He now eats in a decent 15-20 minutes instead of the 60-90 minutes of before. My older son chewed anything in sight and we had a time keeping his weight down. Now he does not have those cravings and eats normally as well instead of inhaling his food in 5 minutes (we have two extremes). He doesn't badger me for snacks every 20 minutes like before. I think the enzymes help to regulate the system as you get more nurishment out of the food. So in our case, we saw both extremes curbed more toward a normal menu and eating rate. I notice I don't have any " cravings " either on enzymes even though we still eat the same foods as we did before. So my body was lacking something it was looking for. We didn't do the peptide test because the results did not correspond directly to what the diet is, or isn't. I think I will save my money for the intestinal permeability test (leaky gut). I am more interested in healing the gut as a baseline benchmark than which foods to eliminate. . > , > I have heard of this too. I think the body gets used > to another substance and then converts those into the > " morphine " like substance and you get the same > reaction as the casein and gluten. > Are you saying your son ate more after being on the > enzymes? (my daughter could do with picking up some > weight, but by gum .... she eats like a horse as it > is!!!! - my grocery bill costs more for her ion a > month that it does for the other 3 of us and she is > only 4!!!!) > > Have you had the peptide test done after the enzymes > and taking a normal diet? > Has anyone done the peptide test before and after the > diet? and if so, what were the results? We are wanting > to do the peptide test too. > > (SA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2001 Report Share Posted July 22, 2001 , what is involved in the " leaky gut " test and is it costly? Sorry to be so forward, but I'm just trying to educate myself! ha! (SA) --- kjorn@... wrote: > , > > Actually I have read that especially with a " leaky > gut " condition > that a person if very prone to develop intolerances > to whatever they > eat the most. So it is easy to see how our diet > would have a problem > with dairy and wheat (gluten). Whereas in Japan > there is a much more > common intolerance to rice, and with Scandanavians, > it is to fish. So > maybe the soy truly does have a peptide structure > similar to casein > and gluten, but with a leaky gut, whatever foods you > start subbing > with, will start to cause a problem too. > > It is good to hear that some people can eliminate > just the casein and > gluten, but it also explains why many people end up > eliminating more > and more. > > Yes, my younger son (the Prince of Pickiness) > started eating MUCH > more and put on about 5 pounds. He now eats in a > decent 15-20 minutes > instead of the 60-90 minutes of before. My older son > chewed anything > in sight and we had a time keeping his weight down. > Now he does not > have those cravings and eats normally as well > instead of inhaling his > food in 5 minutes (we have two extremes). He doesn't > badger me for > snacks every 20 minutes like before. I think the > enzymes help to > regulate the system as you get more nurishment out > of the food. So in > our case, we saw both extremes curbed more toward a > normal menu and > eating rate. I notice I don't have any " cravings " > either on enzymes > even though we still eat the same foods as we did > before. So my body > was lacking something it was looking for. > > We didn't do the peptide test because the results > did not correspond > directly to what the diet is, or isn't. I think I > will save my money > for the intestinal permeability test (leaky gut). I > am more > interested in healing the gut as a baseline > benchmark than which > foods to eliminate. > > . > > > > , > > I have heard of this too. I think the body gets > used > > to another substance and then converts those into > the > > " morphine " like substance and you get the same > > reaction as the casein and gluten. > > Are you saying your son ate more after being on > the > > enzymes? (my daughter could do with picking up > some > > weight, but by gum .... she eats like a horse as > it > > is!!!! - my grocery bill costs more for her ion a > > month that it does for the other 3 of us and she > is > > only 4!!!!) > > > > Have you had the peptide test done after the > enzymes > > and taking a normal diet? > > Has anyone done the peptide test before and after > the > > diet? and if so, what were the results? We are > wanting > > to do the peptide test too. > > > > (SA) > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 For those of us who implemented the diet for a lengthy period of time, the gfcfdiet website was the basic starting place (at least for me). It is a website that has a group list (like this one) where you can get ideas and help for implementing this kind of restrictive diet, as well as product names, recipes, alternative food ideas, even eating ideas for the picky eaters. It also has a list of products that you can buy at the grocery store that are certified gfcf, and for all the other " frees " (corn, soy etc.) there is alot of help from other parents, etc. I think the casein free part is probably the easiest until you remove the soy and corn aspect, but then there are other alternatives for margarine (Ghee--a coconut base), sorbet for ice cream (lots of sugar though), rice milk, almond milk, DariFree milk substitute, etc. The gluten is the hardest part, but as all who have been there will say, take one at a time. Do the casein first because it tends to be the easiest. Then start with the gluten big hitters. There are many packaged breads that are gf and are sold through health food stores, organic markets and as others have pointed out via mail order (Miss Roben's, Gluten Free Pantry, Gluten Solutions, all have websites). Many of us have been there, so please ask. Lynn in Md Quote Link to comment Share on other sites More sharing options...
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