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Just curious to know if there are any Floridians on the list? I get jealous

when I hear about support groups and meetings, when I don't think there's

anything like that near me.lol!

Jennie, Mom to Lindsey 5 (apraxia and hypotonia)

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Hi, Jennie. What part of Florida do you live in. I am in Ponte Vedra Beach.

I have a 3l/2 year old apraxic son. Please contact me and let me know where

you live.

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Hello Jennie

I am in Pinellas Co here in FL. I have found no one in my area that has a

support group. I too am jealous to hear of these. I did run across a person in

Sarasota or Manatee Co. She has a little boy about the same age as my (3)

It sure would make a difference to have the one on one with others in our boat!

What area of FL are you in? If I remember from before, are you in the northern

part? Or am I confusing you with someone else? Good luck on your search!

Tammy I.

Just curious to know if there are any Floridians on the list? I get jealous

when I hear about support groups and meetings, when I don't think there's

anything like that near me.lol!

Jennie, Mom to Lindsey 5 (apraxia and hypotonia)

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Hi Jennie,

I am also in Florida, Deltona to be exact! I have a 6year old with Verbal

and oral apraxia and ppd/nos and si. Where in Florida are you?

Just curious to know if there are any Floridians on the list? I get

jealous

when I hear about support groups and meetings, when I don't think there's

anything like that near me.lol!

Jennie, Mom to Lindsey 5 (apraxia and hypotonia)

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So there re quite a few of us! Great! I would be willing to travel a little

if we ever wanted to have one big get together!

Jennie

Mom to ph 8 and Lindsey 5

and I cant forget my 17 year old! Tim

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Hi If I remember right You are just below ville beach? That

would be about One and half hours from us I think. But a distance I do alot.

Please feel free to email me off list if you like maybe we can get together.

Eileen

Subject: Re: [ ] Florida

I live in Ponte Vedra Beach. I don't think that is too far from Deltona.

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Ok, all you Florida people - move over!! LOL Let's talk about

Pennsylvania! Anyone out there? I'm in Whitehall, about an hour and a half

NW of Philadelphia.

~~

> So there re quite a few of us! Great! I would be willing to travel a

little

> if we ever wanted to have one big get together!

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  • 2 years later...

, There are a couple different types of banding choices in

Florida. STARBands and DOCBands. I know that CT has a location in

Miami. Not sure about a STARBand location though.

Dustie

--- In Plagiocephaly , " vendjc " <jennvenditti@a...>

wrote:

> Hello everyone again,

>

> I forgot to ask if anyone knows how the places are in Florida. The

> neurosurgeon we are seeing is Carolyn Carey and I believe we would

> have to go to Miami for the fitting and helmet. Has anyone come to

> Florida for their helmets.

>

>

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Thank you very much Dustie. I will look at the photos. My daugthers

name is Jenna Rose.

> > Hello everyone again,

> >

> > I forgot to ask if anyone knows how the places are in Florida.

The

> > neurosurgeon we are seeing is Carolyn Carey and I believe we

would

> > have to go to Miami for the fitting and helmet. Has anyone come

to

> > Florida for their helmets.

> >

> >

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Hi ,

I live in Lakewood Ranch Florida. I don't have an orthotist yet. Is that someone the Neurosurgeon recommends? The Neuro is located at All Childrens Hospital in St. Pete. She was recommended from my pediatrician. I love my new Pediatrician. I have printed out a bunch of places that have the bands and helmets. I thought I saw some in Tampa or are those just the manufacturers. I am very confused on how to pick the right place and band. Also, why do you go every two weeks. Is that for adjustments? What is Angel Flight and how do I get information on them?

Thank you

(Lakeweood Ranch Florida - daugther Jenna Rose 6 months)

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