~jc~

[Guest guest]

Have your doc make an appt at a Rhuematologist and Allergist... As we all know, the body is one unit, and every part works together for the whole unit.. So... perhaps it is, and perhaps it is not. One thing that Cameron's Rhuematologist did NOT say was that people that have scleroderma die that quickly... that it is a very LONG process, the hardenings. So it differs from other folks info here. Fascinatingly.... there are very few Rheumatologists in the US. Meanwhile, plow on the "Vit E" and amino acids ... and enzymes. Carolyn ... mom of Cameron.JC <elder_jc@...> wrote: WOW!!You guys are just barrels of information!!This whole discussion makes me wonder....and it is just wondering. Ihave huge area's of hard skin all over. Hands, fingers, legs, feet. No doctor has ever been

able to tell me why. The only thing that hasever softened them is Aloe Vera!! Mighty strange! Maybe it's goingon inside too.....Weird!Jc > Notan, What do you think about my docs theory that the wrap was nottoo tight, but the "E" thickened over time. Just wondering what youthink. I had a wrap that had to be taken down. JC > Listed below are articles that discuss why myotomies fail. In thelast two you will see the term "sclerosis " which in this contextmeans a hardening or thickening of a tissue. So, there are reportsthat support what he said. It has been reported that over time

thewall of the esophagus in achalasia tends to thicken. Achalasia isprogressive, so I am thinking that this thickening could be continuingafter surgery and causing problems. I don't know if that is the causeof what he was referring to or not, but that is what it makes methink. It could also just be a response to the myotomy. I don't know.> > An interesting thing about the articles is that in the first twothey don't have much success with dilation after surgery and end updoing another surgery in most cases. In the last one they have goodsuccess with dilation after surgery and recommend it.> > This all brings to mind something I thought to say at times butnever did. Medicine uses science and there are medical sciences, butmedicine is not science. Can there be a disease that makes thisclearer than achalasia. We see the work of scientists and researchersworking on it. We benefit from the medical science that has

beendeveloped. But, they definitely don't have the treatment of achalasiadown to a science. > > notan> > Laparoscopic Heller myotomy and Dor fundoplication for achalasia:analysis of successes and failures.> Patti MG, Molena D, Fisichella PM, Whang K, Yamada H, Perretta S,Way LW.>http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & dopt=Abstract & list_uids=21378061> > Surgical treatment of failures or recurrences after Hellercardiomyotomy (author's transl)> Fekete F, Breil P.>http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=6810604 & dopt=Abstract> > Etiology, diagnosis, and treatment of failures after laparoscopicHeller myotomy for achalasia.> Zaninotto G, Costantini M, Portale G, Battaglia G, Molena D, CartaA, Costantino M, tti L, Ancona

E.>http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=11807357 & dopt=Citation> > > > > > > ---------------------------------> ! GROUPS LINKS > > > Visit your group "achalasia" on the web.> >